Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Breast Cancer

Archives for September 2014

Today is Thyca anne's Birthday!
Happy Birthday! Hope you have a wonderful day! Jenny
Inflamation of breast area after mastectomy 1 yr ago
Hello. I have a question and maybe one of you can shed some light on..I had a mastectomy one year ago of my left breast and diagnosed with stage IV breast cancer. Over the past month I have noticed a strange feeling in that side of my breast. Lately it gets swollen and red and feels hot. I was looking around this site and…
Femara
Hi everyone. I had a check up with my onc today and he told me I will be on Femara for another 2-5 years. I am approaching my 5 year mark this winter and expected to be coming off of Femara by Spring. I wasn't aware that studies are now showing that an extended period of Femara is recommended. I don't really mind as I have…
Port information needed
I will be having a port installed soon before beginning Herceptin infusions. I have never had a port before. How long does it need to heal before treatments begin? Does it bother you after it is in place and healed? If I am right handed should I have it implanted on the left side or does it matter? Sorry to be such a wuss,…
Expressions Gallery**
Just a quick note for those of you who have not checked out the Expressions Gallery.....there is a woman on there posting her Chemo Journey with Fantastic Graphics and Scientific Graphs.........it is well worth looking at them and very uplifting to see her Great Attitude***
Free Scarf Offer
While going through my pile of pamphlets yesterday from my cancer center, I came across this free scarf offer, thought it was local but turns out it's national. I called the 888 number and the lady was so nice and gave me their web site, and my scarf is on its way. http://www.goodwishesscarves.org/request-a-wrap/
Next step for my Mom
We met with the oncologist on Tuesday. He indicated that she is a Stage 3 (HER2 Positive) at this point given the skin and a lymph node involvement. However, during examination, he could not feel the lymph node. The doctor wants her to get a PET scan. Right now we are waiting for approval and hopefully it will be scheduled…
Pancreatic Biopsy #3 - still waiting
I called to see if they had results on Monday (I admit I have no patience). No word. Office just called to today to tell me that they still don't have results. Lol, I guess they knew I was about to call and harass them again. Why is waiting so hard - even after 26 years of this disease?! I am holding tight to all of your…
I need some help - TNBC Stage 2
I have been in remission since July 2014. I've had a right mastectomy - lymph nodes clear. Yesterday, September 23, I woke up with swelling on my right hand. No pain but uncomfortable. I called my oncologist office and left a message.. no answer as yet. Has anyone had the same thing and what can it mean....??
skin graft nipples
Hi I just had my nipples and areolas done with skin grafts after waiting 5 years to decide on it. I still have dressings on them and only saw them briefly. I am experiencing lots of itchiness where they added fat as well. I am wondering if anyone had the skin grafts done and if they like them or not and what I should…
Triple Negative with Metastasis to the sternum
I had triple negative breast cancer stage 2, no lymph node involvement. I now have triple negative metastasis to the sternum. They say I have a unique case, so it will be brought before the conference to discuss and determine my treatment plan. I had double mastectomy on 7/11 of this year, PET scan 8/26 showed spot on…
Pink bus on Wednesday - let's have fun together
Hello my dear sisters, it's that time again ... going for PET/CT, yes that right 3 months passed by quickly, now back to our favorite activity - imaging & metabolic activity of b** This time I wil really appriciate your company, making sure that IV, contrast and everything else will be in order. Hoping for good results…
was "It is mets"...now plan of attack
Saw my oncologist today. One silver lining...we caught the mets "early" and so there hasn't been damage to the liver yet. I told him I was ready for "shock and awe" and I really wanted to hit this cancer hard. Here is the plan of attack and please let me know if any of you have used these drugs. We are signing on for a…
Today is TJ Johnson's Birthday!
Happy Birthday! Sending Big Birthday wishes your way! Jenny
Today is ButterFlylvr's Birthday!
Hope you have a Great day - filled with everything and everyone you love most! Jenny
Me with hair
This is a picture taken a couple of years ago. What i look like now.
Post Menopausal bleeding
Wow it's been quite awhile since I have actually posted anything. I am so sad to see that we have lost some of the brave Pink angels that I know helped me so much as well as helping others. I will def have to update my pic since it was taken the day before I got my port which was in January 2010. I lost my Dad the day…
FallWinter -Are you ready?
As 'Fall has Fell, (in some areas) are you ready? And what do you do to be prepared? We got our first blizzard last year the first of Oct. We were without electric power for 8 days. I was prepared for all but one thing I never thought about. For heat have a good keorseene heater, lots of antique kero lamps, large pantry,…
tissue expanders after Double Mastectomy
Just wanted to know if it is normal to feel intense tightness in your chest due to tissue expanders. I just had my DM almost 3 weeks ago. Drains are to be removed in a few days. I am still on pain meds, but lower doses due to the pain/tightness I still feel. Is this normal?
Diabetes and Cancer too!
I am a long time cancer survivor recently diagnosed with bone mets. Two years ago I was also diagnosed with diabetes. I have been managing the diabetes pretty well but just wonder now how this new situation (I will be starting Herceptin soon) will affect my diabetes. Anyone else with this combination?
celebrating survivorship
I was dx with BC in 2011. The road has had many bumps along the way. Finally almost 3 years out I feel things are settling down. I changed my diet to a lot of raw fruits and vegetables, mostly vegan, and I walk EVERY day 3-6 miles. I want to have control over my life and hopefully stop a reoccurance. I was wondering if…
Any advise I can give my mom?
Hi All: My 80 year old mother (soon to be 81 in November) was just diagnosed with IDC (HER2 positive). She already has a skin lesion and one lymph node that shows up on the scan. We met with a surgeon and he suggested that she do chemo and herceptin first and then surgery. Although he did say she could do everything he…
Herceptin
Hello everyone. I am an 'oldie' here who had been in remission for several years. However, my cancer has returned in my bones. I will begin a series of Herceptin treatments soon. I have not taken this drug before and would very much appreciate comments from those who have and can tell me a bit about the side effects, etc.…
Can local recurrence to chest wall look like spider veins?
Hi Everyone, I have some spider veins that appeared on my upper chest, same side as the cancer. I have looked online and am not sure if this can be a recurrence to my chest wall. Does anyone know anything about chest wall recurrence? What it could look like? I do use dumbells on my chest to do ab work and do stress the…
Pancreatic biopsy #3
I had the 3rd and last biopsy (I hope) today. I don't want to jinx myself, but, so far, this has been the easiest of the 3. Danny took a photo of me waiting to get the biopsy. Now, we wait about 4 days. Send positive thoughts, prayers, whatever you have for this to be benign!
I'm in The New England Journal of Medicine!
I’m famous! Please, no autographs or paparazzi…. Some of you will remember that my family was asked to participate in a study last year for families like mine with a strong history of breast cancer, but who are BRCA-negative. Through this study, I found out that I carry the PALB2 genetic mutation, which is just starting to…
Tamoxifen
I was wondering if anyone has periods even though they are on Tamoxifen. I suddenly started again this morning after 2 1/2 years of menopause, or at least what I thought was menopause. I'm 48 and have been taking tamoxifen almost 2 years now without forgetting any pills at all (i take one a day). I'm not worried about…
Watering eyes
Hello everyone, I finished chemo about four weeks ago. But my eyes are watering a lot. I've been to the eye's doctor but nothing is helping. Does anyone have that experience? Please let me know what you use.
Boarding our Pink Bus for CypressCynthia
Hi everyone, Pink bus for Eileen. Driving to a "specialist" interventional radiologist who is going to get a percutaneous (through the skin) aspirate of her pancreas on Friday. I'll see you on the bus
It is mets
The news I really didn't want to hear... I saw the doctor today and it is mets to the liver and nodes. I had an additional CT done today of the abdomen and an MRI of my spine. The bone scan was negative but there were two spots from a previous CT that everyone said was arthritis, but this onc wants to be sure. We are…

Breast Cancer

Discussion List