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Uterine/Endometrial Cancer

Archives for October 2015

Good News
We have gotten good news all week; Even the doctor says that the tumor is melting. At the same time I want to help more and I can't I feel helpless. I try to have a postive attitude and most of the time I do. I just feel exausted, taking care of my mom, my brother, and my fiancee has finally taken it's toll. We are only…
Want to apologize for not replying to your posts - some issues developed
I know I pop on and off these boards and sometimes I can give a quick reply to some of your posts. I wish these boards had a button to push on a post something like "thinking of you" "prayers" especially if you can't reply like you would like. I want each and everyone of you to know that you are in my thoughts and prayers…
Weird night - I had a dream I was in pain but it was just a dream
Has this happened to any of you? I woke up about 3:00 a.m. "thinking" I was in terrible pain. My side of the bed is about four steps to our bathroom and I went in there to get some percoset. But....when I got in there, there was no real pain at all. I felt just fine! I wiggled my arms and legs and moved around a bit and,…
Book Recommendation - Eating on the Wild Side
The author, Jo Robinson, has written a fascinating book about how we have manipulated and hybridized a lot of the nutrients out of our fruits and vegetables over hundreds of years. But, she offers information on how to select and/or grow the most nutritious varieties as well as the best ways to store and cook them to…
I changed my username
Cucu me, former cucligata. I liked how Cindi called me and changed my username. Only cucu was not available so I decided to be "Cucu me". Post chemo "brain" I guess, but I like it.
Great news/ good news/not so good news
I had my check up today, CA125 at 15.8(where it's been for over a year), physical exam good. Now, I have the Certificate from M.D. Anderson, suiteable for framing, proclaiming that I have advanced to the Survivorship Program now that I am officialy five years NED! Whew! Good news, the second new heart valve they put in in…
Today, I have reached two years NED
and I am celebrating! Some time ago, I questioned my gyne oncologist as to when "NED" officially begins. I've read here that it is when a woman first heard those dreadful words "You have cancer." I've also heard that it is when adjuvant Tx ended, i.e., chemo or radiation after surgery. My surgeon said that NED starts with…
First chemo went good
I had my first chemo yesterday at noon and I was home by 3:30. That was really good time because I didn't have any adverse reaction to it. I'm having Taxotere and Carboplatin after a steroid which takes about 15 minutes. I took the Miralax as a lot of your recommended and have been drinking so much I have a path worn from…
Spotting after Hysterectomy
Hi, I am having some spotting. I have MMMT uterine cancer stage 2 grade 3. I am 74 years young. My hysterectomy was June of 2014 followed by 5 chemo treatments and 3 brachytherapy treatments. I have had some pain like everything is going to fall out and bloating but now heavy spotting. I have been feeling so great but I…
pity party for one
havnt posted anything in some time back in aug i had my surgery, well all went well or so i thought things do not seem to be improving as it seems this ride that i so despritly want to get off of does not seem to stop. well according to my last ct they did find a spot on my lung and they are not sure if cancer or not. they…
Happy end to a hard month
Ladies, I have been holding back. This has been a tough month at our house. My father-in-law died, and then on the day of the funeral our son-in-law's lung collapsed requiring major surgery. I ended up with spots in my left breast from a recent mammogram so more testing there, and a CT to be done to see if the treatment…
Good news
Today we went to radiation as usual, we found out that the treatment was most likely working and that the tumor was melting.
Looking for input on chemo after stereotactic radiotherapy for lung met
Just finished my 3rd and final stereotactic radiation treatment for lung met measuring about 1 cm. There is one other, smaller nodule measuring in the mm's. The larger nodule took about a year to develop. Have appt on Wednesday with oncologist who will likely recommend chemo again - my 3rd time. The radiologist gave me…
Recent diagnosis
Hi everyone. I recently learned I have uterine cancer and the results of the endometrial biopsy showed papillary serous cells. Felt like someone had punched me in the nose when the gyn informed me a little over a week ago that my pap smear was extremely abnormal and she needed to do a biopsy right away for cancer. She…
Annabella Rose
Has anyone heard from Annabelle? I am worried about her. As far as I can remember, she has not posted since August and she sounded depressed then. Annabelle if you are still coming to the uterine board, please drop us a not and let us know how everything is going for you. Sandy
New Book..The Gene Therapy Plan
I just found out about this new book by, Mitchell Gaynor. I heard about it on the NPR radio channel. It made me very excited. This doctor has a lot of experience treating cancer w/ modern medicine and nutrition. He isn't against chemo, he is pro, use food and supplements to support your other treatments. His book comes…
Family's reaction
I know some of you haven't told your children about your diagnosis but I'm wondering how the rest of you are dealing with your family's reaction. At first I didn't tell my husband because I didn't want him to worry in case this turned out to be nothing but when I had to have the hysterectomy it was pretty hard to hide. I…
I want to thank you all.
I want to thank you all for the support and information you have given me. I have a great chemo nurse and a lot of support from family and friends but YOU are the ones who have been through this and know the ups and downs. I've accepted the cancer and I'm not angry or afraid but I'm going to fight with everything I've got.…
First Oncology Appt.
Hello, I'm 31 years old and was just diagnosed with Uterine Cancer. What can I expect for my first oncology appointment? The appointment is Monday the 26th and I'm terrified of what I will hear.
some thoughts on the "battle" metaphor...and goodbye to this board
i've been on this board for a while, posted a bit, read a lot of posts...haven't really seemed to connect with any of you beautiful women and you haven't connected with me either -- ie i don't get responses to my posts or comments. i feel excluded. i see other women being welcomed. nobody has welcomed me. maybe because…
My moms diagnosis
Last month my mother was diagnosed with uterine cancer. She is stage 3 and she has had two weeks of radiation. I am trying to be there for my family and I am scared and angry for her. Does anyone else feel this way and if so does the anger ever go away?
Clinical trial update
So we met with the team to review my scans today. The tumors are considered stable, no new growth, no shrinkage nor new tissue. The surprise was that the scan revealed lesion in my abdominal muscle by my spleen. They are hoping that this is either a pocket of blood or possibly other fluid related to surgeries. It appears…
None the Wiser
Hi Ladies, I've finally had my MRI scan, the hospital scanner kept breaking down and appointments cancelled. Five weeks seems such a long time, so I had to pay for one. The results are sent to my consultant. I now have to have a PET CT scan. which I don't know very much about so any info would be very helpful. I still am…
I bought my wig!
Since I start chemo on Tuesday and my doctor wants me to stay home for the three weeks after, I made an appointment to look at wigs. My doctor and chemo nurse said my hair will definitely fall out, probably after the second round. I wanted something as close to my style and color but ended up with a shade darker blonde. I…
Graduated to every six months for check ups
Fellow survivors, I have always felt so incredibly lucky to have had my UPSC caught at Stage 1A, and my heart aches for all of the women who have not been as fortunate. With that said, I met with my oncologist today and she said with the end of three years post treatment approaching that it is time to switch to every six…
Stage II UPSC
For the ladies here with stage 2 UPSC- Sandy and EZLiving 66 and only here, Linda P. reported in a research study that reviewed the effectiveness of various treatments in terms of disease free survival. In the title search, type in: New 'March 2009' and her post will come up. Not bad prognosis with chemo +/- radiation,…
probiotics question
hey ladies -- for those of you take (or were taking) probiotics...how much/many did you take per day? i am taking a very high potency one -- ultimate flora women's 90 billion 12 strains -- once a day as directed on the bottle. but it occurs to me that's prolly the dosage for folks whose systems haven't just been through…
Genome Testing
Abbycat2 brought up something in another thread I am curious about. How many of you have had genome testing? I know AWK has, but the more I research and read, the more I think that perhaps this is something that should be standard for these more aggressive cancers. Why have women going through months of treatment with…
Another CA-125 question
Hi Gals, I do not post often but I do read on the board. I have UPSC. I finished treatment about 4 years ago and have been NED since then...YEAH!! My oncologist retired at the end of last year and I got another oncologist in the same practice. When I was diagnosed my CA-125 was 22.2...not high. After surgery it went up to…
Cuculigata
I have been thinking about you. How are you doing? Were you able to get your 6th and final?!!!! Sending good thoughts and hugs your way. Cindi

Uterine/Endometrial Cancer

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