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Drama in the chemo room
A bit of drama in the chemo room yesteday. After a few minutes of the decadron and anti-nausea pre-meds went into my drip, i began to feel a tightness in my chest. At first it was very mild, but quickly became a pain, and then more intense like my heart was being wrung out. Then a wave of numbness down my arm, and then…
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MOM is getting her surgery at 4 PM today..eastern time
Hi everyone..it's Michele- haven't been here in a while because mom has been waiting for surgery. Her BP was way too high last Friday to have her surgery so her surgeon got her in today. She is having a hysterectomy and spleen is diseased so they are taking that and we are not sure about her colon but the Dr felt something…
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Its not over until the fat lady sings!
Well today was meant to be mums last chemo! But her bloods have come back low :( . She will be having a blood transfusion on Tuesday so hopefully will be able to finish her treatment next week. On the plus side her ca125 is now at 9 :) Gutted I thought today was the final hurdle for her for (finger crossed) a long time.…
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A good day
I went into my office today for the first time since 2/26/2010. I am retiring effective 11/30 and needed to clean out my office. I had been putting it off because every time I thought about going in, I got emotional. I worked there for 17 years. Well happy to report it was all upbeat. I got so many hugs and they were just…
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Diarrhea
I was diagnosed with stage 2 Ovarian Cancer two years ago. I went through a hysterectomy and chemotherapy. In the year and a half since I finished chemo I have been battling diarrhea. My CA 125 has been very constant, at or close to 5, and my overall health has been improving steadily, but I can't trust my bowels anymore!…
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Anti Nausea Meds
I'm wondering about these meds, if there are stronger ones or lesser ones or whatever. I've only had prochlorperazine (generic of compazine, I believe) but looking into starting the doxil in a few weeks, and especially after all the grief it gave Tina, I am wondering if I should ask for something stronger perhaps? I don't…
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what do you recommend for nausea?
My mother has started the PARPs yesterday and they warned her about nausea..only recommended 2 drugs: ativan which knocks her out and something else that makes her constipated that she won't take. any other suggestions?
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Back in the land of living
It is 2 weeks since my first infusion of Caelyx (Doxil) and I am actually feeling OK. It was a total shock to me to have such terrible nausea and to feel so ill. No one warned me about these side effects with this drug. I was warned about the sore mouth and the hand and foot syndrome (Which in fact I do NOT have!!!) But…
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Neupogen shot advice
Can anyone give me any advice for my mom about the neupogen shot? She's scared to death of needles and the idea of getting these shots has her questioning whether she'll continue with the chemo. She has 4 infusion of carbo/taxol down with four more to go. She's petrified of the "bone pain" that the nurse told her about.…
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There is hope, after all....
I met two OVCA ladies in the waiting room today, when I went for labs. One is 3 years post-diagnosis and the other is almost two years. The first one was getting her semi-annual CA125 and the other was getting her 3 month blood draw and port flush. Both of them were stage 3c. Neither has had a recurrence. I would soooooooo…
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Feeling very discouraged
I had my first check-up today since starting carbo/doxil for my first recurrence. Sadly my CA125 went from 16 to 34. While this may not seem that high, my "original" baseline was 5. I was crushed. The doc said we will wait until another chemo cycle, then evaluate. The first carbo/taxo knocked it down right away. I feel…
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CA 125 went up to 7.5 :(
This is my post-treatment CA125 history: May, 2010: 7 June, 2010:7.3 July, 2010:4.8 Aug, 2010: 6.9 Sept, 2010:6.9 Oct, 2010: 6.4 Nov, 2010: 7.5 I know it's still very low, but that doesn't stop me from fretting and fussing. Crazy, I know. And obsessive. I hate that I can't seem NOT to allow these damn numbers to rule my…
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Neuropathy ?
I am waiting for my doctor to get back with me but thought I would check with you all too. Have you ever had a neuropathy sensation that is a sharp electrical shock feeling go up your back and neck? I had this with another chemo treatment along time ago but I've had so many treatments in the last 4 1/2 years that I can't…
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Double Take on my diagnosis
I was diagnosed 2 1/2 years ago with stage 3 ovarian cancer. I've had my ups and downs. I seem to be doing good = Today I had to go for a "routine" CT scan of my pelvis, abdomen and chest. While waiting I read my Drs. report - stating I had "relapsed peritoneal carcinomatos due to ovarian cancer". Has anyone experienced…
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Freaking mother in laws!!
Quick rant! Mother in law visited earlier and started going on about mum, she is so bloody insensitive. Her comment was "well if your body is giving up then you should listen to it, I wouldn't take a 100 pill day to stay alive!" I immediately said to her well I would! I then said you would rather die then ? Silence was the…
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Freaking Doctors
I get so frustrated sometimes. I went out to Moffitt Cancer Center in Tampa yesterday. I live 3.5 hours away, so between the hotel room the night before, food, gas, and tolls I was well over 125 dollars just to GET to this all day marathon of testing to get me started on my clinical trial. So they call me this morning to…
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Skeerd and anxious
Most of you have been there before....my first chemo is Friday, Carbo and Taxol. I will be doing IV, no port. I'm sitting in Buffalo airport after visiting my elderly Dad and getting ready to fly back to CA. The reality hit me when I checked my email and there was a confirming email from my local pharmacy confirming I have…
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I should start a log.....
on all the different ways my 7yr old has come up with to cure cancer. From the weird 'why can't they just use a big shovel?" (A shovel???) To the simplistic, "can't you just find a doctor who knows how to get rid of the cancer?" Some nights he says to me, "Mom, I'm so happy you are still alive" It must weigh on his mind…
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I hate cancer
I am having an emotional morning. I have hardly slept and today for some reason i am feeling angry. Mom's chemo went well yesterday, she is continuing on with at least three more treatments so that will be 9 in total. I feel like this is going to be her life from now on and that the Mom i used to have is gone. Thanks for…
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Chemo has made me stupid!
So I am baking whoopie pies from a mix from crate and barrel. I am added the water and the batter was so runny. I am saying, "I am so mad I could spit!" I asked my daughter to read the directions and she confirmed I followed the instructions. So hubby says let me see if a man can figure this one out. So he looks in the…
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YIKES! What's that bulge in my belly?
Several people have recently discovered bulges that they feared might be tumors. Here is some information, in its own thread, that might help. Incisional hernias are VERY common when you have (1) had a "big belly" surgery and (2) had your omentum removed, as is typical of OVCA de-bulking. So....if you suddenly notice a…
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OMG!!!! Was it a sign?
I cannot believe it! I was just letting the dog out , and was thinking of mum, looking up at the sky , I was thinking give me a sign,that she will be ok, low and behold I saw a shooting star! Who knows , I am choosing to believe that was a sign from dad and my grandparents up there that she will beat this! Hope so xxx
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Thought for the day....
Never give in--never, never, never, never, in nothing great or small, large or petty, never give in except to convictions of honour and good sense. Never yield to force never yield to the apparently overwhelming might of the enemy. Sir Winston Churchill
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For those who don't Face Book....
Today is Lessa G's birthday! Happy B Day, Leesa.
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HIVES!
I've been battling hives since Friday night. Going into my 4th week of the new trial chemo regimen of daily oral pills. UGH!!! I've been on Benadryl all weekend and they keep coming back. I have to call the doctor on Monday to see how we will proceed. I haven't taken the pill since Friday. I am hoping a lower dose is in…
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I'm thankful for....
the ladies on this board who, may not always agree, but are always open to listening and sharing and not passing judgement. The best thing about this board is the lack of drama! Hugs to all! Leesa
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So terrified right now
for the past few days i have the same symtoms i had last year when i first got sick. Pain in the stomach and middrift area, lots of gas and belching. Please please oray this has not returned to me. do not know if it may be the stress of loosing my sister or what, but i am just teriffied right now please pray
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Anybody see "Wit"?
It is a movie about a young-ish professor that gets diagnosed with stage 4 OVCA. It has Emma Thompson in it and received rave reviews. I thought it might help me understand my mom better. Any thoughts?
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Putting it in perspective
Today, I went to my favorite restaurant to get my favorite Prime Rib Sandwhich to go. I noticed a cup asking for donations because of the death of a co-worker. I realized that it was for the wonderful server/assistant manager who had always been so kind to me. Giving my kids an extra large helping of vegetable beef soup…
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MUGA Scan
Hello Everyone, On Wednesday I had a MUGA Scan for the first time in preparation for my treatment (AMG386/Doxil). Well, I got a call saying that the test results came back and my hearts major ventricle is functionimg at 50.3%. Because of that fact my oncologist is pulling me from the Doxil since its already toxic to the…