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Ovarian Cancer

Archives for January 2010

Happy to find this site that has such caring people.
Hi, This is my first time visiting this site and I am please to find such a caring group of people. I was diagnosed with clear cell adenocarcinoma stage 1A ovarian cancer in November. I had a total hysterectomy and thank God it did not spread to the glands. I am doing 6 chemo treatment Paraplatin & Taxol. I have completed…
Post Hysterectomy Pain and Discomfort
Was diagnosed stage 3 ovarian cancer in June, 2009, after a total hysterectomy. Completed six rounds of chemo in November and getting stronger. The nagging pain and discomfort originally felt in mostly right lower abdomen is getting more intense and frequent. Should I be concerned?
Honest answers please
Hello again. I just got home from visiting mom in the hospital-I am getting a little nervous that she might know more than what she is telling me. They are going to put a port in on Monday for chemo/radiation. I asked her what kind of treatment they are going to be doing(so I can come home and post it here to get info) and…
New CA125
It's 12.5!!! Can you picture me doing the happy dance?
A little miffed..should i be?
OK, wednesday is a big day. After 6 months of what you are all familiar with: chemo, major debulking, cisplatin, kidney damage etc., my mother goes in for her CT scan results and her HUGE meeting. Onc, says CT scan shows two "somethings" where both her re-sections were, and since her previous CA-125 was high Onc's nervous,…
Honoring my mother.. via my skin
Yesterday, I went to honor my mother via tattoo. I've always wanted a tattoo but I did not know what I wanted to get. Now, I know. It is an ovarian cancer ribbon with the Japanese character for mother (haha). My mother was half Japanese and one thing that we would do together was go to Chinatown in Seattle, to this huge…
Chemo is complete!
I finished my last treatment of chemo today! 6 rounds of carboplatin via IP, and 18 weekly Taxol treatments. CA-125 started at 377 and now is 4. The lord is full of grace 'cause I asked him to please get me through and he did! This week I saw a few posts of people who are having tough go of it: you can do it, have faith in…
Vitamin supplements and rising CA125
Hi, I am wondering if any of you have encountered this situation and can help me. A week ago I began taking natural vitamin supplements: Vitamin D, garlic, coQ10, megavitamin, Omega/fish oil, green tea and melatonin. My CA125 results came back rising from 14 to 55. I am 2 months off of chemo. Any chance the supplements…
Celebrating!
Teal Warriors, I am celebrating my 2 years of surviving Ovarian cancer since my diagnosis two years ago today! Praise the Lord for His many blessings! Love you all, Libby♥
Doctor's Report
I saw a gyn/onc from Dallas that was in town this month, alternates with my usual one to check my colon pain/diverticulitis. I have now had three pelvics in the last three months and no one can feel any tumor. He ordered a CT yesterday and my oncology nurse called with the report this morning. I have a lymph node next to…
kidney counts up
I have been having some pain/pressure in the middle of my back and had a CT last week. There seems to be a tumor or adhesion on the ureter causing impact and bringing up my kidney count. (I know I have heard some of you vets say that it it not always a tumor when it lights up, but this is the first time I've heard that…
OK, Mixed results..has any one experienced this???
First, thank you all for your thoughts and prayers. Bonnie, I was thinking a lot about you today and hope things went well.Here's how our day went: Mom's CT scan shows an area, near where they re-sectioned her colon that is "suspect (this area was cancer intense obviously). The radiologist says she's cancer free and that's…
Need a little pep talk
Hello everyone. I want to start off by saying that I have read a lot of the posts on here and I am deeply inspired by the strength and courage.... this will be a long post so my apologies in advance. My mother was just diagnosed with Stage IV ovarian cancer and I am petrified.. I just don't know where to begin. Her 57th…
Needle Recall
I plan on asking the nurses if they use theses needles! WASHINGTON — Federal health officials announced the recall of 2 million medical needles Tuesday because of a risk they can push bits of silicone into patients' bodies. The Food and Drug Administration said Japanese manufacturer Nipro Medical Corp. has voluntarily…
Doing well
I just think everybody would like some good news! My chemo was switched back to taxol/carboplatin (from topotecan/avastin) in early Dec. The CA-125 was 408, It was drawn again (after 1 2/3 cycles - I'm on weekly treatment) and it was 62!!! I'm hoping it will continue to fall into the normal range again. Other good news -…
PLease Pray tonight...tomorrow is a BIG day
Tomorrow is a big day. Mom meets with the surgeon, and oncologist to see what progress has been made over the past 8 months of chemo, surgery, and chemo...respectively. She is terrified. I have no idea what to expect...I stayed in MN and will be on conference call, My sister will be with her...I feel a little guilty for…
No chemo again!
Good Morning Ladies! And it has been good. Was at church this morning counting the offering with another volunteer. So obviously I am not at West Penn Medical Short Stay getting my treatments!! Went to lab yesterday before church and had CBC and platelets were still too low. At 85,000 (last Tuesday 80,000) I cannot have…
Post chemo blues
I have just had my 3rd treatment of Carboplatin/Taxol and up to now have coped pretty well with it. I have also had some fantastic results with my CA125 as it has come down in stages from 1119 - 887 and the very lastest count was 291. However this is day 2 post chemo and I feel so ill. I am weak, disorientated, lethargic…
Facebook Alert
There is apparently a Facebook app that sends notifications to friends without notifying that they are doing it. Here is what happened to me tonight and I am so upset that I am in tears about it! I received a notification from a relative that she had commented on my "funny grave." So I wanted to see what she had commented…
Is doxil a better drug?
Dear ladies: I am a newbie. Recently, my oncologists thought I am having a recurrence of ovarian cancer. Their advice is to start chemo again with doxil. I had taxol/carboplatin previously. My wbc and rbc counts were dangerously low during my previous treatment. Do you ladies have experience with doxil? In terms of side…
More questions
Hi ladies! You all are so helpful and I love reading all of your advice. I have another question about my mom. She has had her colostomy for about 2 weeks now and she is so depressed and overwhelmed by it. I know it is a big adjustment, but she is just totally upset and depressed and I dont know how to help her. She is…
Newbie, question about low blood count
Hi, my name is Patty, and I am writing on behalf of my best friend of 50 yrs. She was dx this past March, with Stage 4, a very aggresive form. I have been reading these boards to educate myself, so I can understand what she is going through. She had debulking surgery followed by chemo, she is in a trial using carbo and…
No chemo next week
I saw my oncologist and he agreed that we should postpone the scheduled chemo next week. He now thinks that I should not have had the treatment earlier this month. He said "go on the cruise, as scheduled and have a good time". My CA125 stayed at 158 as it was in Dec. and we both suspect that it is the bowel diverticulitis…
leesag
Good Morning, I have been trying to talk to you for a couple of days, but I am so busy studying for nursing prep review classes, I can't find the time to get on the computer to say much. Are you going to Mercy Hospital? I am pretty sure that Dr. Dwight Um is the doctor that checked on me during rounds every morning,…
Did you shave your head?
As I have mentioned before, I still have about 20-25 per cent of my hair. I had it cut very short before I started chemo and even though it is super thin and I have some spots that are totally "naked", I have not shaved it. Is that something I should re-think? Would it be better for it to all grow back in at the same time?…
LeesaG
Hi Leesa, In a previous post you mentioned your kids and how to tell them. How old are your kids? I have 3 kids. My younger two are 6 and 4. The social worker at my cancer center gave me a book about talking to kids about cancer. It is called "In Mommys Garden" The author is Neyal J. Ammary. The concept is easy to…
Face Book
All you ladies are welcome to be my friend on Face Book. Just search for Carlene Mullins, and I'm in Dallas/Ft Worth Texas, if there are a ton of them. I just have one request......I don't post anything about cancer on my FB page/wall. There are a lot of people who don't know I'm sick and I surely don't want them to find…
changing chemo
I did have my app't this afternoon. I will stay on Gemzar and since I was allergic to Cisplatin, I will have Carboplatin again. Treatment 6A will be Monday if counts are up (Gem/Carbo) and then 2 weeks later just Gemzar and then repeat but don't know for how long since I am slightly behind! Was suppose to be done this…
Official Diagosis
I met my GynOnc today. He greeted me with a hug! It's officially ovarian cancer that has spread to the peritoneal wall. He assured me that he and I would be having a long term relationship. I'm scheduled for surgery either 2/3 or 2/10 and will know more about staging then. I'm a little freaked about my CA125 markers. Has…
All these chemos
I have been reading our recent posts. It really amazes me how so many of you can have chemo all the time on time and it has not really affected the counts too much. You ladies must have strong insides!! ☺ I just got back my blood work today and see that my CA125 has gone from 12.2 (November 30) to 28. Will see my doctor…

Ovarian Cancer

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