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Ovarian Cancer

Archives for January 2009

Exray IVPT - IVP/DIP with Nephrot
Today my husband and I picked up my CD with the results of the scan I had Friday. Yes, I did put it in my computer just to see what the report said. Possible hydronephrosis Developmental extrarenal pelvis Simple peristalsis retrograde pyelogram And of course I have no clue what any of that means! The computer is a wealth…
No Gemzar and Nexavar stopped
God's morning to all. Just a quick note to let you know my platelets were 51 on Tuesday so no Gemzar again. I also stopped taking the Nexavar Saturday night, I woke in the night with such pain in my feet n hands I started pain meds. Monday afternoon was the last day I had to take them, feet n hands getting a better but the…
Cancer Treatment Centers
Does anyone here have any experience with Cancer Treatment Centers of America? Is it common practice to get a second opinion prior to starting treatment?
Sorry it has been a while!!
I have finally been able to get on the computer. WOOHOO! I have been working and it feels great while I am there. Then I get home and the exhaustion takes hold. Oh well. I am thankful for that day of work, and the ability to feel so tired. January 7th was one year since my 3b diagnosis and I spent a lot of it thanking the…
33 yo with large papillary serous cystadenoma...what are my odds?
Hi there, I'm 33 and because of 4 months of increasingly heavy periods and spotting, bloating, etc, went into the OBGYN. I was sent for a U/S due to a swollen uterus, which ended up being a normal uterus with a very large ovarian cyst sitting behind it. Measured 12cm on U/S. They said it was mostly fluid filled and felt it…
2 primary cancers
I have 2 primary cancers - Ovarian stage 3c and Endometrial stage 1-2... anyone else?
I am a caregiver to someone with Ovarian Cancer
I am my mothers caregiver. She was diagnosed on October 16, 2008 with stage 4 ovarian cancer. We rushed her to the hospital because her stomach looked like there was a beach ball in there and she couldn't breathe well. She is currently going for her 5th round of chemo (taxil and carboplatin). My thing is that I know she is…
Angel wings for Coach Kay Yow
Hello to everyone! As a North Carolinian, I feel a duty to say thanks to a very publicly courageous cancer fighter, NC State Women's Basketball coach, Kay Yow. Kay Yow "got her angel wings" - I like that too, Karen - Saturday morning (yesterday). Granted, she had breast cancer, not ovarian, but she brought a tremendous…
joint pains, new thread....
Hello Beatiful Lady's Yes back to these dang joint pains.....now it's in both my shoulders and boy it's so difficult lifting a bottle of soda....not sure if I mentioned that I had a follow up with oncologist last week them asking me "how's the arthritis pain?". I was kind of angry with her and my response was "so that's…
hexalen
Hi all, It has been awhile since I have been on, I talked my doctor into a break after my last surgery.It was great to be clear of mind during the holidays with family and friends. I have now started on hexalen 10 pills a day. Bonnie I was so sorry to read your post you have always been an inspiration to me, I may not be…
surgery and heated interperitoneal chemotherapy
Hi all - I was wondering if anyone has undergone surgery to remove tumors and then had, while still in surgery, a heated chemotherapy bath in their abdomen to kill off any remaining tumors? The surgery is followed by 5 days of interperitoneal chemotherapy. I've actually got colon cancer with mets to pericolic fat so Dr.…
CA-125 Good/Bad
Hi, I've had surgery and had 8 treatments of carbo/taxol and now onto my 5th treatment of Doxil with no break in between. My CA-125 levels came back 40,34,35 and(after my last chemo treatment) at 34, which I understood to be acceptable, but after reading a lot of the messages on this board showing women with lower levels,…
Gemzar cancelled
Hi everyone, no chemo yesterday as my platelets were only 46. I guess its from the nexavar?? I am still taking nexavar twice a day so not sure how they'll come back up, but we are hopeful next tuesday I can do the chemo. The nexavar is causing some hand/foot pain, and (of all things) acne. I have a raised red area on my…
Update on Joanne Prayers Needed
Hi, I also belong to the John Hopkins Ovarian site and this was a posting about our sweet Joanne today that I thought I would share with all our OVCA sisters, it is from her sister. Dear (((((Friends))))))) I just want to update you on Joanne. (floridajo) Joanne's blood pressure is very low and she is on medication to keep…
Doctor's Report
My CA-125 last week was 51 as compared to the 48 of last month. My oncologist said that a difference of 3 points was within the margin of statistical error and not to worry. For the first time he acknowledged the chemo causes the joint pain and wrote a prescription for naproxin sodium (aleve) for 500 mg taken two times a…
ct scan tomorrow
I am having my ct scan tomorrow. the first one since end of oct.I am on the avastin clinical trial so I still go in for an infusion every three weeks. but don't know if it is avastin or placebo. not even the doc knows. they left a 5 cm mass in me during surgery becasuse it was wrapped up in my main arterie to the liver.…
Thanks to all
Hello Everyone, Thanks so very much for the welcoming posts. I live in Salem, Oregon and that picture was taken 2 days before Christmas 2008.....My sister had just given me the hat for Christmas. My last Chemo was on Oct.6th 2008 and my hair is not growing very fast but I have been going out without a scarf or hat since…
New to CSN
Hi Everyone, Lauracec told me about CSN when I met her in the DR.'s office waiting room. I was diagnosed with Stage 3c Ovarian cancer on April 3, 2008.....I was in shock! I am 65 yrs old and had never even heard of Ovarian Cancer. I have had a rough time with treatment as I am sure we all have had......but finished Chemo…
Update
Hello ladies, Again I want to thank you all for all your love,sopport and prayers. They all mean so much to me. I had my 1st Taxotere yesterday. Other than being tired (from the benadryl and ativan)I woke up this AM feeling great!!! Last night wasn't easy,but a bowel movement was needed!!! YUCKY!!! I have had the new drain…
29 years old with stage 3c of ovarian cancer
Hi all, I need some place to talk. This has been a rough year. I have stage 3c ovarian cancer and I am 29 years old. Last July I was diagnosis and ended up having a full hysterectomy when my debulking surgery took place. I am on my 4th cycle of chemo Cysplatin via IP and Taxol via IV. I have 2 more cycles left. Some reason…
Nexavar arrived, gemzar administered
Sorry I am so slow at sharing ~ the nexavar arrived at my door Monday morning, so far so good. It upsets your stomach a little bit after you have taken it but goes away. I have been putting the Eucerin creme on my feet since friday, have instant ocean and epsom salts for soaks. The gemzar went fine, and got a neuprogen…
2nd Recurrence in Isolated Lymph nodes(coeliac region) in Clear cell Ovarian cancer
My mom under went total hysterectomy with partial omentectomy in March 2006. When her CA 125 was 46.8. Biopsy 1 Biopsy report revelaed 'CLEAR CELL' carcinoma of left ovary along with cervex. Chemo: Received 6 cycles of Cisplatin(300)+Taxol (60) upto September 2006. CA 125 showed gradual decrease and remained stable from…
Lynch Syndrome
Are any of you familiar with Lynch syndrome? If so, please share your experience.
joint pains?
Hello ladies, good to be back again. For those of you who know me, I've been doing pretty good. My last chemo was in July, although the cancer is still there, it's not doing anything, as he puts it "they're just winking at us". I go back Feb. 5th for my third ct check up. Weight gain, oh boy! I don't really recognise…
Question
I know this is not an ovarian question, but how do you get the little person icon with a plus sign on the head by your name?? I am probably not using this forum to it fullest. Which is not unusual for me!! Thanks, Libby
sugery confirms early stage ovarian cancer
Stage 1a ovarian cancer. Surgery removed all cancer through complete hysterectomy. I am now at home trying to recover and it is so painful to move. I seem to have some chest congestion now and that is making coughing completely unbearable. I begin taking vivelle dot (estrogen patch) on friday. Hopefully it will help my…
Nexavar and Gemzar a go
I got a call last night from the clinic, I will take the nexavar(2 tablets) twice a day and get gemzar once a week for 3 weeks with 1 week off. A little nervous about the gemzar, I was so short of breath last time and ran such high fevers, plus my cancer grew grew grew. Hopefully with the combination it will be different…
Surgery date confirmed
Hi ladies, my doctor in the US was able to read all the PET/CT etc. Recurrence is confirmed in the liver, kidney and spleen. None of these seem to be SOL (space occupying lesion?) and only on the surface. He will do a laparodomy and debulking surgery and remove these, (he uses his argon laser tool for ablation I believe)…
Getting agitated, another cancer? (sorry, venting)
*sigh* I'm muddling through the darn chemo, and now dealing with Neulasta injections to save myself another week long hospital stay with Neutropenia. And to add to it all, I have to sit and talk with another oncologist (this time a urologist) tomorrow. Before I even had the darn ovarian cancer, I had a pretty large cyst on…
Need Prayers
Hi guys I have come up to another bad news day. First off I just got out of the hospital. I had unrelenting pain new years eve,so I went to the hosp. new years day. Since the pain was the same type of pain I exp back in Sept I figured it was ascites again and it was. They removed 3000cc this time (3650cc back in Sept) I…

Ovarian Cancer

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