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Head and Neck Cancer

Archives for January 2021

Our Furry Friends
Has anyone noticed a change in behaviour from their dogs and cats whilst you were ill? I know its a fact that certain dogs can, or can be trained to smell cancer! Thats a bit weird....personally I'd prefer a human medical diagnosis. Anyhow, I've got 2 cats and the one, Max has definatly been paying more attention to me…
So tired
Hi. I first wanted to say: sorry, guys. I know I was quite active, during the first weeks of my radiations. Then I disappeared for a while, more or less. I feel a bit guilty, because I received a lot of support and good advice, and it feels a bit like freeloading, at this point. It's just that, during these last weeks, I…
What should I try to eat?
I am officially 16 days post radiation treatment and today is the first time I could chew and swallow regular food. I have to keep it to one side of my mouth as I still have a lingering sore along the right side of my tongue that really hurts when anything gets in it other than a shake running past (even plain water hurts…
Unlucky lottery winner. Spoiler MEC.
Hello Everyone, As you might have guessed from my username, my name is Dan. I couldn’t think of anything clever at the time of creation so the generic, “Dan The Man”, username seemed appropriate. While I find myself be to a new member of the club that nobody wants to be a part of, but I’m glad to be here with you all. Here…
What I am doing
Howdy fellow H&N members, This is CivilMatt with a brief update on my corner of the H&N forum. I am currently working over the ROLL CALL 2021 (per a request from the CSN staff) to bring the format of the RC into compliance with the rules we all use to post information on the H&N forum. The current RC is over 80 pages and…
update from CM
Howdy fellow H&N members, This is CivilMatt with a brief update on my corner of the H&N forum. I am currently working over the ROLL CALL 2021 (per a request from the CSN staff) to bring the format of the RC into compliance with the rules we all use to post information on the H&N forum. The current RC is over 80 pages and…
biopsy for reoccurrence - what to consider
Hi All, I had gone thru this journey in 2012 and had found this group extremely friendly - could not have done without all the information and support. I have sores in mouth that are not going away from almost 3 weeks so need a biopsy. I had toungue cancer on right hand side and I had 30 radiation treatments. I am…
VA Won't Pay f
tube feed formulas
Hello. I have been diagnosed with cancer in my neck. I haven't started treatments yet, probably 1 more week. Chemo and Radiation. I will be needing to use a PEG tube. I am interested in finding out if any one else is/has made their own food mixture. I am going to be mixing my own food and looking to get some input. Thanks.
Week 5 of 7
Week 5 of 7... In the middle of week 5, definitely experencing increased symptoms and the need of pain meds. swallowing has become more difficult, and i have a mouth sore that is painful when eating or drinking. The combo of the 2 are making things uncomfortable. Night time is the worse , due To increased dry mouth. Today…
Gift Idea for spouse ?
I am fighting my way through recovery and feel like I am tending positive now (I still have a ways to go Understandably), but my wife has been a dream. She has taken care of our home, 3 kids (running them to activities and keeing them out of Dad's hair when I'm irritable) and I'd like to do something for her. Have any of…
advice on how to combat bad taste in mouth and excessive mucus
My husband is undergoing chemo and radiation for a Stage 2 HPV+ oropahryngeal cancer. He is taking all nutrition through the PEG tube due to difficulty swallowing and the horrible taste in his mouth. He is also experiencing a great amount of mucus. He has tried the salt, water, baking soda rinse - doesn't seem to help. Any…
Anyone else permanently lose taste?
I had a rare type of sinus cancer back in '17 (all cleared up now) and because of the kind i had and where my tumors were at i had to have my olfactory nerve removed, which is the nerve that gives you the ability to smell. Was bad enough losing that but i soon found out too that i would lose my ability to taste because of…
Mouth and Tongue Sores
Hi Everyone - I completed my chemo and radiation trial on 1/8. By Saturday morning I developed sores on my tongue and they start near the tip and go all the way to the back of my tongue. I tried magic mouthwash this morning and it caused the pain to INCREASE significantly. It almost brought me to my knees. I've searched…
Starting week 4 of 7 chemo and radiation treatments update
Finished week 3... I've been tolerating things well. I started this out in great shape , started swallowing exercises 2 week prior to treatments as well as getting acupuncture twice a week since treatments started. I've try to get some fitness in with some weight training as well. I do have the metal taste and a sore…
Throat Cancer reoccurance- Laryngectomy in my future
Hello all, I had vocal chord cancer diagnosis in the fall of 2018. 8 weeks of radiation cleared it up completely and was doing well until this past spring. I noticed my voice deteriorating. With Covid I wasn't able to get scoped until June, but it looked fine. CT in August was fine. Voice continued to go downhill. I went…
Tongueometer after radiation?
Hi, Did anyone buy / use a tongueometer to rehab their tongue / swallowing post treatment? The swallow / speech therapist recommended I get one. I'm 3 months post-radiation for NPC. They are expensive, so wondering if you had luck with them. Thank you! Tracy
Clear Blisters on Roof of mouth
I don't think I've posted my story on here , but have posted some on other threads. I was diagnosed with SCC of the left tonsil, with local metastasis to a lymph node. I just finished 6 Cisplatin and 33 rads. I just finished my last Radiation this past Wednesday. I used Helios, and did the rest of what the Drs suggested…
Lymphedema and Trach
Hi there, I am wondering if anyone has experienced lymphedema in your neck and face after having a trach placed? My dad had one placed about 1 week ago and has constant humidity running through and a few days ago began noticing facial and neck swelling (mostly after falling asleep). CT scan came back clear to rule out any…
how long before get taste back
I am just starting to be able to eat soft stuff not much flavor in any foods was wondering how long before getting some taste back thanks and Happy New Year
Wishing All A Great And Blessed new Year-Add Your Wishes & Comments
Hello and God Bless. Wishing everyone a wonderful new year and hoping and praying for everyone on the forum who is in treatment or had recent treatments to be able to have great outcomes from their treatments and good recoveries and few complications and leftover symptoms. And for those who are out of treatments may you be…

Head and Neck Cancer

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