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Head and Neck Cancer

Archives for May 2018

Mouth sore 2.5 years later
Hello, 3 weeks ago today I saw my ENT for 6 month check up. Looked good. Then a few days later I get a small ulcer like sore on back of tongue. Painful. I write it off as a canker sore. It has been the same for 2+ weeks. Sore, same size, very small...did I mention painful and annoying. Everything I read says go see the dr.…
All good so far
First pet scan after 4 months post treatment and all looked good Visit to ent scoped me and saw no signs of it.Just one question.How long before the soreness in my body goes away I feel like ive been in a bar fight when I was 18 .is there anything to speed the heal? I’m back at work and my job is physical but I can’t hold…
Wet cough
there are times when I tend to get involved with my life and the fact that my husband had camcer a year ago. But then something happens and i remember. About a week ago i had a pretty nasty cold. It lasted a few days and then it was gone. Last Tuesday my husband said his throat hurt, kinda swollen. The next day he was…
High calorie foods to replace Jevity
We are so close. In March we completed 40 rads and 3 Cisplatin. We started this journey with emergency trach and feeding tube. PET is scheduled for 6/8 at which time we will be able to remove the trach and feeding tube (well, tube once he can eat food orally and maintain weight). We started with 8 Jevity/day and are now…
upload a picture
Does anyone here know how I can upload a picture from my computer's picture library? Civilmatt I know you have done so before.
Treatment done - Feel worse!
Hi everyone. Sorry it's been awhile since I posted. In and out of the hospital. Feeding tube fell out dehydration severe nausea. My treatment ended last Monday but my wonderful radiation team failed to tell me that the next 3 weeks post treatment are the worse. I have more mucuos nausea and dizziness than I did before!…
BOT Squamous Cell Carcinoma w/3 lymph nodes: Week by Week
Greetings, I've never posted on this site, but I've read it often over the past several months as I've gone through cancer treatment. It's been so helpful. I can't thank everyone enough. I know the following is long, but this is the type of information I was looking for when I was first diagnosed. I found it on this site…
Long time reader/lurker now member with recurrence
Hello I have always been a lurker in the background reading the posts during my bout with throat cancer. Found in late 2012 I started treatment in January 2013. Probably stage 3 or 4 squamous cell because scope showed my throat was pretty well almost closed but the only indication was a sore throat that did not respond in…
Squamous tongue cancer
throat cancer after rediation and chemo
How inportant are floride treatments after 35 radition and 8 chemo treatments?
Got my results yesterday...
I don't know how to start this so I guess I will just jump in... My lung find needle biopsy came back and it showed cancer has spread to my lungs. My ENT also thought i may have a recurrence in my jaw also and am going for an MRI soon. I just wanted to keep you all posted and thank you for all your encouragement. It has…
I'm part of a clinical trial
I feel I am a lucky person to have been approved to participate in a clinical trial for a less damaging radiation treatment. I had been seeking treatment with protons for that same "less damaging" reason, but due to various factors, getting insurance approval was simply taking too long. I start Tuesday. Involved Field…
Coffee Shake
Struggling through this 2 weeks ago finished 30 rads, 6 X cisplatnum plus surgery. Actually I am physician and love to cook so let’s apply a little science. Taste is a complicated subject, food has aroma which is sense of smell and is intact, taste from taste buds...all gone, and feel in the mouth seriously altered. I have…
When could you eat solid food again?
Greetings all, I know this has been touched on in a few other threads, but I really wanted to hear some information focused on when solid food could be consumed again. Wife is almost three weeks from last treatment of 29 rads and 6 chemos. She's been consuming liquid only since early in the treatment. She's living off meal…
6-Month Post Scan and 1 Year Anniversary Update
Almost a year ago I felt something odd on the side of my neck and went to the doctor. That eventually resulted in a diagnosis of stage 3 base of tongue SCC with a fairly large tumor. Through much research on this forum and other sights I proceeded with no neck dissections, no tumor surgery, no pain meds, no feeding tube…
Please write.
OK. Finally figured out how to start a new thread and hope there's still time to hear from you.Biopsy tomorrow morning. Have experienced horrid facial swelling and pain inside and out for awhile now. Dentist ruled out TMJ/D yesterday and clearly didn't know cause. Pain is disabling and I don't understand how radiology…
Week four absolutely no taste
Hello everyone started week four yesterday three more to go!! No pain thank good but absolutely no taste and I’m starving, doing smoothies and shakes but so wish I could taste food. Down 7lbs and they weren’t too happy with that but I’m trying. Any suggestions what to eat or try or is this it??? As always thanks and hope…
1 year later
Well, 1 year ago this week I started chemo/radiation for stage 4 base of tongue cancer. I had 35 rads and 6 weekly chemo of cisplatin. I had a PEG tube as well. I had a really hard time not with treatment, but with recovery. When treatment ended, I didnt eat food until 4 months out from treatment. I had very bad pain and…
Scared to death
I was diagnosed with throat cancer 3 months ago.. treatment was supposed to be 33 radiation treatment and chemotherapy. I had the mask made but due to my aniexty and claustrophobia which I didn't even know I had an issue with I freaked out once they put me on the radiation table..they not only locked my head in place but…
How to best support during the worst of it all?
I'd particularly like to hear from head/neck/throat patients and survivors. A very close male, single, friend of mine is just entering week 5 of radiation. He completed the 2nd round of chemo last week and has been horribly ill round the clock, only briefly poking his head out of the bedroom to see family members who are…
Helpful Cookbook
Just thought I would share - I came across this amazing cookbook today. Goes Down Easy - from the Princess Margaret Hospital Dietitians with Elise Mecklinger. It is thoughtfully laid out with chapters dealing with Loss of Appetite, Dealing with Nausea, Taste Changes, Sore Mouth and Swallowing Problems, Dealing with…
Interesting..
https://www.facebook.com/ThisMorning/videos/10156562067762122/
Feeding Tube Help!
Hello everyone! I ended treatments for Nasopharyngeal cancer 10 years ago but pretty soon I will have to have a feeding tube. I am freaking out!! Please, I need advice from those of you that eat only 100% by tube. Would like to know: - What are the best tubes to have ( is a button tube better?). - How do you go about your…
Bleeding/blood in nose after treatment? (Nasopharyngeal cancer)
Hello, Hope everyone is well. I guess my question is how long do you expect the post-treatment effects (including nasal bleeding/scarring) to go away, and if they do occur after say one year of radiation, are they indicative of reccurence? Details: My dad has nasophangeal cancer was treated with radiation and chemo…
Induction Chemo?
My partner had his first round of induction chemo last Monday (TPF with the 5 day 5FU pump that finished Saturday pm) He was sailing along Monday - Thursday last week but has been really sick ever since Friday. I can’t get him to consume enough calories and he just wants to sleep most of the time. We have gone in for…
The latest
I have a swelling, on the right side, so I was suitable freaking terrified.. so I tortured my ENT into a test, and got this... CT neck May 4, 2018 HISTORY: Base of tongue cancer, status post chemoradiation. New pain. TECHNIQUE: A spiral volume scan is made through the neck during administration of 100 cc of nonionic…
Hey Curlyn! Thinking of You
I know you are fighting with all your might right now. Just really wanted to let you know that I am thinking of you and praying that you are doing well with your treaTrent. You likely have little energy to respond but are lurking. Know that your friends over at Head and Neck Cancer are here for you!
Dry Mouth Tips?
Hi everyone, Wife is 10 days post radiation and chemo treatments for BOT tumor that spread to lymph nodes in the neck. Both sides of her neck were radiated. The skin is peeling, but getting a bit better. The dry mouth is worse now than during the treatment. Any ideas for that. She hates Magic Mouthwash with an unnatural…
Feel like a ball is in my throat...normal???
Starting week three tomorrow and today and yesterday it feels as if a ball is in the left side of my throat. I can eat fine but feel it when I swallow, and jaw and neck feel stiff when I do the swallow and neck exercises. Not to mention the entire left side of my neck is tender to toucH. Is rhe lump in my throats normal or…
Swollen & inflamed larynx
Hi, All. My fi attempt on the discussion board. After completing 37 rounds of radiation I have had mostly uneventful 18 months. Some horseness, some sensitivity to coughing episodes but checkups by my ENT & Encologist that were clean & problem free. About 3-4 weeks ago I started having some soreness added to the coughing &…

Head and Neck Cancer

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