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LARS Question/resection with no ileostomy
Looking for some info on what to expect post-op as related to the possibility of dealing with LARS, I am 3 weeks post op, was able to lobby for a laparoscopy, and no ileostomy. That went well and so far so good. I was T3b N1M0, tumor higher in the rectum. Had FOLFOX and radiation pre-surgery. Was told to expect some bowel…
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Anyone done an Ion Cleanse?
What's your opinion? Better to let the chemo linger in ya or get it out quickly and completely?
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Bad reaction to my last Oxiplatin infusion
I knew beforehand that the last infusion, yesterday, wasn't going to be easy. Had no idea how bad:0( Was only able to take a third of the bag before a few hives, severe lower abdominal pain, and profusely sweating. Took about an hour and a lot of Benadryl and passing out for 30 minutes before I woke and felt better. Hope…
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Lower Anterior Resection Syndrome
I just found out that the interesting bowel habits I have had since my surgery back in 2012, has a name - Lower Anterior Resection Syndrome. Why did my Oncologist or Radiation Oncologist not tell me that before? It has always just been a side effect, and now I have a name for it. Somehow, it makes me feel good, to be able…
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16 years out
Hello all, Been a long time since I posted. Just as a hopeful message to those out there. 16 years ago dx with stage 4 colon cancer, mets to liver and lung. After 10 years of whack and mole with chemo and surgery, I have been just lucky that it hasn't popped back up again. My son, who was in 6th grade when this started ,…
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Possible recurrence of colon cancer
Hi I was diagnosed at 43 with stage 3 colon cancer back in 2018. All labs and CT scans and colonoscopies were NED. I have had my routine CT scan and they informed me of a small cystic adnexal mass 3.9 cm. I’m so scared! I can’t stop the impending doom that I’m about to walk through. I can’t eat, sleep function. I was…
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Treatment ‘options’
I’m just curious if there are others out there who said no to adjuvant Chemo and how you feel about it now. I’m roughly 5 1/2 months post ileostomy take down and 7 1/2 since the LAR. And I’m kinda plagued by the ‘did I make the right decision?’ I’ve apparently got a new chronic anxiety now, thanks to cancer. I was in no…
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A big fat update
It's been a while... So, I died. Yep, you read that right. I’ll explain. For those who don’t know, you can read about my previous experiences in my bio (I hope most of it remains there since the site update). In short, I have Metastatic Colon Cancer with spread to the liver. I was “fortunate” to have relatively few mets…
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Seeking information on Colorectal cancer and CDiff infection regarding surgery
My husband's pathology report just confirmed colon cancer. He was also battling CDiff infection, lab test recently came back, he is negative for CDiff after treating. My husband has consult with surgeon to discuss surgery and treatment. I am needing guidance in this area.
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Pelvic Recurrence with Sacral Mets
My Dad was diagnosed with Adenocarcinoma Rectum in 2017. For which he got LAR and ileostomy bag and then also got 6 months of FOLFOX. But we never had radiation. Then in 2017, PET CT came clear. In Dec 2018, PET CT found some pelvic recurrence with some SUV value but I don't know we also got biopsy done which came out OK…
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Stage 4 with mets to skin
Hi all, I'm looking for some uplifting encouragement. My husband was originally diagnosed with stage 4 adenocarcinoma at the age of 32 in 2017. He underwent 12 rounds of FolFox, 5 weeks of radiation and a total colectomy. At the time of the colectomy he had 4 tumors in his colon but we were told he was left with negative…
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y90 is a complete load of crap
Yes that's true, the treatment stinks and it made me even worse. The tumor they went after increased in size and I even have some new tumors. I'm done with the fake promises of wonder drugs. The name of the game is money and they are raking it in.
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New warrior
I went in during the beginning of the covid pandemic thinking at age 44 i had my first hemorrhoid. Turns out it was stage 4 rectal cancer. Chemo, radiation, and surgery has me 8 months cancer free. 90% of my rectum was removed. Illeostomy for healing and now reconnected. Having a hard time back at work with frequent BM.…
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Bowel obstruction
How do you know you have an obstructed bowel? I have been having some abdominal pain and constipation and wondered if it could be? when i was diagnosed it was “near obstructing” and I was told it was a concern but never given a “what to watch for” list. thanks
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My One Year+ Adventure, So Far
Nov 2020 diagnosed with colorectal stage 2. 1st step was radiation and then a month of chemo. This was to check to see if the mass might shrink. No change in 8 cm mass. On to surgery they call "abdominal pernial resection with external ostomy". 1st report no sign of "C'' in lmypth Glands. Dr suggested another round of…
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So about intimacy
How long do you usually wait after being disconnected from the chemotherapy before you feel safe about sharing kisses or being close? Thank you 💖
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Three weeks since scans - no more tumor!
In July of 2021, I was diagnosed with Stage II colorectal cancer. I was 48. Prior to my diagnosis, I was exercising daily and eating a very “clean” diet (no grains which was bad!). The doctors were talking about surgery which was either reconstructive or a bag. I was terrified! The oncologist said they would have a better…
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Switch from Folfox to Folfiri
My mother just had her pre-op consult for the HAI pump placement, primary tumor and lymph node resection. They found that the lesions in the liver had also grown in size and number just since she paused treatment to prepare for the surgery(1 month). Now HAI is off the table as is the rest of the surgery. Another 6 months…
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It has been 6 years since my stage 4 diagnosis!
Well, I just keep right on going with this stuff. I would love to be able to tell you that I've been in remission, or that I have a break in treatment or something like that, but all I have at the moment is an extremely stubborn will to keep going, and a reasonably good response to treatment. Today I'm in the middle of my…
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Avastin
Anyone have experience with Avastin? I will be starting it with Lonsurf soon.
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Stage 2 colon cancer and now concerning spot on my lung
I had lost this support group link so I hadn’t posted for a bit. I saw the cancer dr and she will be scheduling a new colonoscopy since the large tumor was removed and they can now see if there is further cancer. She said so far she considers it stage 2. We talked about radiation or chemo. She said at this point there is a…
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Importance of vitamin D3+K2
It's Official: Vitamin D Reduces the Incidence of Autoimmunity: And a brief review of the growing body of knowledge of vitamin D (orthomolecular.org)
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Recurring as something different.
My dad was diagnosed with colorectal cancer in 2017. During that we were suggested a surgery to remove the surgery by the biggest hospital in my country and my dad had to carry an ileostomy bag for couple months and the surgery also gave him some infections which lasted for months. Then doctor suggested him folfox which we…
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10 years out, really life????
Hi its Helen for those who know me from 2012/13. The boards give me anxiety so I tend to avoid them. I was happy to have beaten cancer. Lost my job of 28 years last year which qualified me temporarily for medicaid. So my new GP runs a test that my old gp didnt. Serum 19-9c. Comes up with a cancer tunor marker. Norm is 30.…