Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for October 2017

ivf or pregnancy after chemo?
I realize this is a very ambitious of me. but i have finally just got done with chemo and im expecting good results with my blood work and scans. My husband i would love to have a child together as this was the plan before i found out about the cancer. I realize i must wait a certain while after chemo to ensure my eggs…
New Here Husband Stage IIIb
Hello Everyone! I am new here. My husband was diagnosed last month with colorectal cancer. His tumor was in the rectum and the sigmoid colon. He has already had colon resection surgery and met with the oncologist. He is stage IIIb, lymphs were negative but he had 4 tumor deposits. His tumor was 4a. He also had perineural…
Had my first infusion yesterday.
So I had my first infusion yesterday at UT Southwestern and all went smooth. I had a private infusion room with a recliner and TV plus 2 guest chairs. In the hall at the snack station they had coffee, hot chocolate and snacks. I was very comfortable. Boy does it hurt to touch cold stuff. It turned cold in my area so the…
Rectal cancer stage 4 with mets in liver and lungs - feeling lost, need help and advise
Dear all, i'd really need some help and advise. My mother (turned 70 last month, the most energetic, kind and full of life person I know) was diagnosed with rectal cancer in Feb17, while she was going through stroke rehab (! all of a sudden and out of nowhere she suffered a severe stroke after New Years). She started, in…
Hello old friends and new
I've been super busy. Reorganizing at work has been crazy and stressfu. New grand baby girl on April 9. New grand son on October 4th. Life is wonderful and stress is something I wish would simply leave me alone. And now its time for scans and CEA test. My last tests were in June. I've been NED since December 2014. I'm…
Muscle/Joint aches and pains
I finished 12 treatments of folfox August 2. Have pretty constant numbness and tingling in my hands and feet. Taking B complex and magnesium/calcium. Have accepted this will take a while to resolve itself. However I seem to have muscle and joint aches and pains like I've not had before and they only started in the past…
Metastasized colorectal cancer
My mother found out Tuesday that her cancer has spread to her liver (6/7) masses and her lungs. The doctors said the only option we have is to do aggressive chemo to prolong her life. I'm scared for her to do the chemo because last time she almost died twice. She contracted MRSA and Sepsis as well. Her health already isn't…
Experience with Neulasta?
Anyone have experience with Neulasta? After seven rounds of FOLFOX and Avastin, my white blood cell counts are down to 3.7/ul (normal range for female is 3.8 - 10.8/ul). So I am getting my first treatment with Neulasta today. Kat
surgery for stage 4 with liver, lung mets
I am wanting surgery but two oncologists just say no, not with mets in liver, lungs, and possible aortacaval lymph nodes.....just in a six week break from 5fu but still go for erbitux....back in hometown, after undergoing 12 sessios in LA, ten with oxyaliplatin, that was dropped...couldn't keep up the drive twice a month…
bad side effects of fu
Hello guys. I understand im pretty new here and have been out. The last couple treataments really has sorry for language kicked my ****. I had super bad handburning last time unable to walk or touch anything so doc took out a med. This treatment, same thing ;( Doc basically said to take as many oxyocodones as I can without…
Oncologist initial visit for Colon Cancer Stage III
Hi, I was diagnosed with colon cancer on the 22nd of September after my resection. During my normal colonoscopy my doctor said, the carpet polyp is back and larger. He took a biopsy that came back negative. He had already sent me to a surgeon for the resection when it came back negative. I was in disbelief that I was told…
Side-effetcs of chemo question
My 28 year old boyfriend is currently undergoing chemo treatment for what was a diagnosis of stage 3b colorectal cancer. He is almost done, and has undergone radiation, 3 surgeries, and several phases of chemo in the past 8 months. He also went through a 3 month period where he could not eat or drink anything without…
port removal
I am trying to find out how a port is removed that goes to the main artery in the neck?Is it a doctor visit or hospital?If hospital how long do you have to stay after it is removed?I have been colon cancer free for 4 years but afraid to get port removed from the artery.How do they seal the artery up so a person doesn't…
SIRT Y90 for Liver Tumors - Any opinions/experience?
Hi, Came back from the hospital with a 2nd opinion from another oncologist. Mom has stage 4 colon cancer met liver. Been on a few chemo combinations for 2 years. Now this new oncologist says that mom is a good candidate for SIRT Y90 for her liver tumors. Anyone got experience with SIRT Y90? Any bad side effects? I did some…
Port removal is getting nearer, but...
Yep, my schedule on port removal is getting closer, but my neuropathy hasn't gone away yet. My toes and fingers are numbed. Have you had/have this problem at all? If so, what did you do to get them back to normal. My oncologist told me the nerve cells die while on chemo. But after the last session, nerve cells go back to…
Manifest Call
I know we have two members (NHMIKE and DARCHER) scheduled soon for surgery, but I don't know when. Guys, if you will, what are your scheduled dates and times? Let us know so we can think about you and pray for you. Believe me, it makes a difference when you know that others, who have fought and are fighting this fight, are…
CEA - please be honest
my husband has been in remission from stage 3b rectal for a little over a year. His cea in April was 1.6. Got results that it’s now 44.4. His CT is not until Wednesday. I know I should stay off the internet, but I can find no instances where a level that high was not cancer. I am sad and scared, but ready to fight…
Rectal Cancer with skip metastasis
Is there anyone out there that has had colorectal cancer with no regional cancer in Lymph nodes but cancer is non regional nodes such as the iliac chain? It is called skip metastasis as there is no cancer in any nodes near the primary tumor in the colon or rectum
Cut off distance from verge for bag
Ok, this is the one thing that has me petrified. I'm sure not just me. A lot of people probably wonder the same thing yet I haven't seen the question put out there. As if cancer isn't bad enough but to anyone who doesn't end up with a permanent bag. The distance of the tumour to the anus is probably the most decisive…
Ileostomy friendly diet?
Everyone: I have just completed my sixth day at home after my resection surgery (LAR). I brought home an ileostomy and according to the plan it will be with me until I complete mop-up chemo in late February. There have been three areas of concern for me regarding the ileostomy and I improve in each area daily, but one is…
Brain Mets
Brain Mets from colon cancer ? My mother had a CT scan one month ago and it did not show any Mets other than a few sets of abdominal lymph nodes . Fast forward .. On Tuesday we started having balance issues . She is now an Hospice patient. Her liver is giving out . We have non-alcoholic cirrhosis. It just came on out of…
How frequently should I have a colonoscopy after diagnosed with Stage 2B colon cancer
My husband who was 44 at the time was diagnosed Feb. 2016 with stage 2 B colon cancer. When he had original colonoscopy due to the size of the tumor they were not able to get the scope in to do a full colonoscopy. After his surgery and removal of the tumor in February he had another colonoscopy in May 2016. He was…
Looks like no Avastin today either
so since they took the Irinotecan out, and now the Avastin due to high blood pressure all he is getting is Folfox. I am so worried this will never shrink those two metastasis in his liver down enough for surgery in two more treatments. He does not pay attention and did not listen when she told him she wanted him on bp…
Spastic Rectum
Yesterday afternoon I began to have a new pain deep in my rectum. It feels like a cramp and will cycle from discomfort to comfort. Repositioning and sitting on a heating pad provide little relief. My sleep last night was very much affected by the discomfort. Anyone else experienced this? If so, what did you do to make it…
Neuropathy
I thought I would share this in case anyone on here needs it. I had a pretty rough time with lingering neuropathy during and following my most recent Folfox treatments. My chemo nurse told me to start taking a vitamin B complex to help with the neuropathy. She specifically said that the "Nature Made" brand worked the best.…
Does your colon tumour show in the CT scan?
Hello everyone - I have CRC with mets to my liver. I was initially diagnosed because my ultrasound and then the CT showed lesions in my liver - had liver biopsy, and was told it was adenocarcinoma. I then had a colonoscopy which confirmed tumour in colon. None of my CT scans report about the colon tumour. Just wondering if…
Guilt, Happiness, and Confusion
Everyone: I spoke with my surgeon yesterday morning (he returned my phone call) and asked him about the surgical pathological report. In a condescending tone he said that he thought that he had shared that with me in the hospital. I bit my tongue and did not respond in kind. This is why I had an aversion to this guy.…
Round 2 tomorrow
after the problems last week I am so nervous for this round. He has to see the Dr today she will be away tomorrow. In the hospital she told him it was just a reaction to the chemo but today she said she thinks he did have pancreatitis. Honestly, it's so frustrating to keep getting different answers. So she decided to take…
cancer using diatomaeous earth and apricot seeds
When I had my first colonoscopy I had two polyups that had cancer cells in them. They had not started growing yet. Went back in three years had another polyup with cancer cells not growing yet. I started drinking human grade diatomaeous earth and eating ground up apricot seeds which I froze to keep fresh and each time I…
Questions on personal items in the hospital
Looks like I can post new topics now (hooray!). I received a package from the hospital yesterday and it indicated that I shouldn't have any valuables on me and they discouraged things like phones, cash, checkbooks, etc. How did others handle this? I would like to be able to communicate with others when I'm back in the room…

Colorectal Cancer

Discussion List