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Recent LAR and Temp Loop Ileostomy
Hi folks - just had LAR and ileostomy last week. Was to address T1N0M0 rectal tumor. Waiting on path which may result in perm colostomy and/or more chemo if in LN...fingers crossed! Things going well so far. Was robotic surgery so out in about 3 days. Looking for input, suggestions, tips for managing recover from LAR, but…
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biopsy results after surgery????
Hi there, My 47yr old husband was diagnosed with stage 2 rectal cancer in December and has been through chemo and radiation and just had surgery which resulted in permanent colostomy due to the location of the tumor. He will have more chemo to go too. He had a biopsy prior to treatment that allowed them to stage his…
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pete43lost_at_sea has passed
Just read the sad news that Pete has passed away. For those of you who remember him, you'll know that he was a tough guy, who followed cures all over the world. For those who do not remember him, you will see his posts popping up when folks ressurect old threads. He was quite the guy. Always sad when we lose one of our…
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A new member with Stage III
Second session of FOLFOX yesterday, with sensitive glands again. My chest and shoulder are in pain too. Didn't get a good sleep last night.
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Helping husband come to terms with colostomy
Hi there, My husband just had his surgery for stage 2 rectal cancer and due to it's low location he now has a permanent colostomy. After having the teaching from the colostomy team I feel that it will be something that will be fairly easy to adjust to.....easy for me to say, I know! To those of you who have experienced…
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Liver Enzymes - Anecdotal thoughts
The question re controlling/lowering Liver Enzymes has been coming up frequently lately. My Integrative Med specialist at Sloan Kettering was concerned. She put me on Milk Thistle twice a day (started at 150 mg (1 capsule) twice a day; after a week, increased to 300 mg twice a day.) Saw limited improvement, but she upped…
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Is there any suffered on hernia while on treatment
One after another, and I am only on my second treatment tomorrow!! I have this lower back pain on my right side since yesterday after did some light cleaning in one room. Then my abdomen started to hurt me, then constant burping!! I am still in pain right now. Just waiting to doctor clinic's office hour. I have to see my…
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Raised bumps on Port stitch line
Hello all - For those who have had a port for their chemo - has anyone had pimple-like bumps form on the stitch line. I had one form (told probably embedded stitch), now another has popped up further along stitch line. Now I have two bumps. Sometimes they look more red - and if they are stitches, why do they not grow out.…
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Blood on surface of stool and very weird stool shape (help!)
Hi everyone, I am Robert. In the past year, I found several times bright red blood stripe the one side surface of my stool. I went to see a doctor for this. The doctor did sigmoidoscopy and found nothing. As bleeding continued (not so often, about two to three continuous days per month), I went to see doctor again. This…
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Radio Active Bead Therapy on
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No Adjuvant Chemo
My 17 year old niece , got operated for Stage 4B colon cancer last month. She is not taking adjuvanct chemo as advised by doctors as they are not guaranteeing anything even after chemo. Surgery went well , she is quite active now. I want to know if there are similar cases with no adjuvant chemo? Thank you
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Still have neuropathy from Folfox/Oxy chemo
Hi, I am new to the forum, I was diagnosed Nov 2015 with a tumor in the rectum. Had 28 traditions, 6 weeks of 24/7 chemo, surg resection of tumor with temp illiostomy (for 12 weeks) then take down, then 12 sessions of Folfox/Oxy plus others that I don't remember currently. I had many of challenges others have experienced…
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Today we meet with the new oncologist *update*
my husband's old oncologist was just awful. He called us names, I was nervous wife because I cried once when he had a PET scan show a recurrence, and he was a moron because he opted to not do chemo first time around. Right now he has highly elevated liver enzymes that jumped from normal in a month ( alp 352, bilirubin 3.7,…
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What food to eat while on chemo therapy
I wonder if there's any limitations on what food to eat while on chemo therapy. Some says avoid red meat, eat vegetables rich in protein since our body needs energy while we're under treatment. Anyone's opinions and advices are appreciated....
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Really scared, Can't see a gastro for nearly two months
Hi, My name is Venny as you can already tell. I am currently suppose to go in to see my gastro due to blood in my stool, along with pain in my side and other various minor things--This started to crop up late last year, but my gastro at the time said it was nothing to worry about due to my rather sensitive stomach. Then…
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Cancer Treatment Center of America
Has anyone had experience with CTCA in Newnan Ga? I am going there Sunday for three days for second opinion.
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Anyone have Meniere's Disease as well? Any correlation?
Yesterday I was dx'd with Meniere's Disease (after seeing 3 different ENTs; the first 2 wouldn't hear what I had to say, and only heard what they wanted to hear.) I've had episodes of true vertigo (spinning dizziness, not just unsteadiness) over many years. Now my ear feels full, is painful (not infected) and I have…
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About steristrip on port-a-cath
Like most of us having chemo treatment has to have port-a-cath. I had mine on April 13 then the infusion the next day. It was painful!! The nurse poke the needle in a wrong place cause me bled, so another nurse took over the procedure. Thank God!! After 46 hours of carrying the pump in a fanny pack around the house I…
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Losing my job and a question about my kidney
Yup, my boss decided that I have to leave the company. First he told me he was cutting me back to two days a week because he's going to open more days and hours and wants to give the new person four days a week and cut me back because I'm 'unrelibale'. I've missed two weeks last September because of an obstruction and then…
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I really need some help
so my husband is 7 years from his diagnosis, stage 3 they did resection of the colon, three years later his CEA creeped up, there were spots on his liver but they were too small to light up on pet scan, then a year later they did, he had resection of his liver in 2014. Flash to now his CEA started creeping up in January…
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Released From Onc Care
Guys, Happy to say I had my post 5year appointment with my Onc today. CEA is 0.8 and all scans are clear. So I went from stage 3b signet cell colon cancer to NED, oficially. My Onc shook my hand, gave me a big hug and said I am officially "cured", it was weird but I said I am not 100% comfortable with that, but I like NED.…
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LAR vs Excision
Hi folks - I had posted something on LAR surgery a few days ago...continuing to assess things. T2N0M0 clinically tagged. Assessing LAR or Transanal excision. Seems to come down to going with a less invasive surgery with better post op quality of life, but with the unknowns on lymph involvement vs LAR with possible LARS,…
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Chronic Diarrhea-so tired on dealing with this 4 years after treatments
In 2013, I had radiation, rectalectomy, ileostomy, take down of the ileostemy 2 months later, and chemo. They tell me I'm well now but the side effects are nearly unbearable. The diarrhea is unpredictable and so embarrasing. Last night, I went to the movies with my husband and our two teenage children. Upon arriving, I had…
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mesenteric mass
Hello All, My sister recently had her Rectal tumor removed with a hysterectomy. At that time, we were told that they removed the tumor and all lymphnodes that were tested were not affected. Now, 2 months later, she had her follow up CT scan and the report says they see mesenteric mass. Any ideas of what that means?
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Dental work while taking Avastin?
My poor husband really needs at least a few teeth pulled for starters. His Onc. asks if he can hold out, says he will need to stop taking Avastin for 4 weeks and really does not want him to. Has anyone else had to have dental work done while on this drug? Is there any special treatment the Dentist could do so he could stay…
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Back in the fight, sigh - surgery update
I was three months away from saying "I've been NED for 3 years". Instead I get to say I've got another recurrence. S--t. I've been working on losing weight since the beginning of the year before my surgeon repaired my peristomal hernia. I recently had an obstruction, spent 5 days in hospital with a nasty NG tube. After…
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New to forum, starting chemo (oxilaplatin and capecitabine) on April 24
Hi: I found out I had a tumor in my upper colon on February 7, 2017. I had it surgically removed on March 22. The lab work showed I had Stage 3 cancer with 3 of 27 lymph nodes affected. I guess that makes me T3 N1b M0. I will start adjuvant (mop-up) chemotherapy on April 24, with oral Capecitabine (Xeloda) and IV…
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Starting Xeloda with Avastin today..
I have taken my Xeloda and will be heading out to get the Avastin shortly. Wish me Luck
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CEA Levels
Hi everyone. I am new to these discussion boards, and was diagnosed with stage 1 colon cancer in September 2016. I had 23 lymph nodes removed and all of them were clear, and I also had a CT scan that was good. My concern is regarding my CEA levels. Although I feel fortunate that my cancer was caught early, I still have…
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Bad Day- Hating How Cancer Affects So Many Things
So Monday morning I got up and had a burst blood vessel in my eye. Looks creepy but no big deal. Patients were asking what I'd done and I told them and laughed about it. I've never had one before and didn't know how long until it goes away. This morning it's even more of an area with almost half of my eye a dark red…