Colorectal Cancer
Discussion List
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Hemicolectomy next week 11/8/16. What to expect after that? Getting back on feet, eating?
I have a hemi colectomy coming next week week. What can I expect when I wake up and the next several days? What does one eat? It's got to be different, how long does that go on? How about getting around? Is there discomfort, fatigue? Its not clear except for bowel changes that don't sound all that different from now and…
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feeling sad after treatment
Hi im welch girl i have colon cancer ive had my second treatment this past week . and took a pump home for2 days .i was just wondering if you sometimes get sad after treatment and dose it go away after a few day. ive did pretty good with the frist treatment i had some fatigue nauses but did better than what i thought i do…
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First Folfox treatment yesterday, felt OK going into, nurses' info depressing
I had my first Folfox treatment yesterday, am at home with the rest of the treatment that runs for 2 days. Going into chemo after my first visit with my oncologist and his nurse, I felt fairly good about what I was facing. (51 years-old, laparoscopic sigmoid resection with 1 of 21 nodes positive). Being in otherwise fairly…
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Neuprogen for low WBC - bone pain
I have had 4 shots of neuprogen to raise WBC (having 5 before next chemo), as my chemo has been reduced 20 and then 30% so far. Today when I got up (after 3rd shot yesterday) had some weird , fairly sharp spinal pain and in area of a hiatal hernia I have - especially when I laid down or sat. Better if stood up. Took 2 more…
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medical pot
well 3 diffrent chemos and radiation and 7 surgys now on to medical pot going to try the oil under my tounge starting in 30 days let ya know what results i get
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Lymphodema and Spiking Fevers
Hi everyone. Robert actually asked me to reach out to you all tonight - get some feedback. He has not had chemo in 3 weeks - his last WBC count was 1.6. With all these kids going back to school and such he just keeps getting sick. Good news is he has had very little rectal pain the last few weeks - now it's just the…
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New here
Hi all, just signed up for this site. I have locally advanced rectal cancer and had agressive chemo/rad at the same time which destroyed my body. Was supposed to have surgery within 4 months of treatment but didnt feel physically able to do this until 11 months later. They removed all my internal plumbing resulting in a…
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I am dying! Am I dying? We're all dying!
I am having an issue with the 'We're all dying' phrase. I know for some its a great way to take the pressure off of the emotional issue of acceptance of death, to say 'You could get run over by a bus tomorrow' or 'We're all dying', and that is good for them, but for me, it does nothing but make me feel like they are saying…
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31 year old Stage 2A.
Hello friends, My name is Erica, I was diagnosed with rectal cancer on August 2016 after a 5.5 cm tumor was found during a colonscopy (no family history). I had a resection surgery that removed part of my rectum, the surgery was successful and I did not require a coloctomy bag. I started my first cycle of chemo today with…
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Patty Smith with the angels...
I just found out through facebook that our friend Patty Smith has passed away. I don't remember what her CSN user name was; maybe someone else will remember. She had only recenty begun being active again on fb, and she never whispered a peep about being sick again; if that is, in fact, what took her. I've noticed that…
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New Here
My mother ( 78 years old )was diagnosed with colon cancer . Stage 4 After having stomach issues all spring and summer. Having multiple test they did a cat scan that showed a mass on her right colon . Had a colonoscopy a few days later confirmed it . On Aug 30 she had the mass removed along with 24 lymph nodes . 7 of them…
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Nausea med
Hello All - I currently have a nausea pill that I can take every 6 hrs as needed. When I had chemo, I was given an anti-nausea med before, then had a pill to take in the am and pm for 2 days afterwards, plus this other nausea pill that I can take every 6 hrs as needed. It is called Metoclopramide Hcl 10mg. On the med info…
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Pain Questions
Hello All, I am writing in concern for my sister. She started folfox and 5FU on 10/07/16, and she is still extremely fatigue. Her next treatment is this Friday, 10/21/16. She said she is so tired, she does not feel like getting out of bed. Granted, she is enduring a lot of pain from the obstruction and fistula and heavily…
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Depressed, just unloading here
I don't know why but my husband asking how long I have to live and the doctor saying maybe ten years and sounding like probably not has put me in a terrible depression. I can't stop thinking about it. I know that they don't really know and I know that there could be some new thing that comes up before then but I can't stop…
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New flavoured Colonoscopy prep being tested
http://edition.cnn.com/2016/10/17/health/colonoscopy-drink-food-bars/index.html It sure would be nice to have a prep that didn't taste bad. SUE
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Lung Mets Question
Okay, so I get it that the lung mets are still colon cancer that's in my lung now. I should have asked this of the onc when I was there but I didn't think about it at the time so I'm hoping you guys can tell me. I'm going to give it the best shot I can to not let them get bigger and try to keep myself healthy and with as…
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Question about Power Port removal and replacement
For the last few chemo treatments I 've sometimes needed an injection of Alteplase to unclot my PowerPort catheter. the port hasn't worked for withdrawing blood but they have been able, after the unclotting med works, to go ahead with the infusion. Yesterday was different. When they began the infusion it caused a nasty…
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Suggestions on the never ending bathroom topic
Hi all - Robert's wife Alyssha again. One of htese days maybe he will get on here and see how wonderful you are ;) After his trip to the hospital with the terrible stomach pain a few weeks ago he did start chemo. I think I updated that. The chemo causes major explosive diarhea but for him that is a bit of a relieff. He has…
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5 year lifeaversary
5 years ago today I was diagnosed with stage 3 colon cancer. I heard the words "you have cancer" for the first time. I have "survived" 5 years. My life has been changed forever by those 3 words. Unfortunately I heard "your cancer is back" a few months after completing the first 8 months of treatment. Then again just 6…
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So Much I Want to Do, So Little Energy
Just wondering if anyone else relates... I start out the day optimistically with a mental list of 5 things that I want to get done today. By 1pm I've done 2 things from my list and I'm physically done in. On the couch, tired out and pissed off because I'm 36 but feel like I'm 80. Chemo always knocks me on my butt for 4 or…
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/panitumumab-vectibix
Hi! hope every bodies staying on top of this winning battle! I haven't been on in awhile writing but I do check in now and then to see how things are going and to know I'm always praying and thinking of all of you NOW I just started this new infusion called /panitumumab-vectibiX And so far developed a mean rash on my face!…
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Jeff Anderson
passed away this morning. His wife, Misun, thanks everyone for their support and concern. Jeff's battle was epic and inspirational. I'm picturing him now riding his beloved motorcycle. Rest In Peace Jeff. Easyflip/Richard
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Miserable Week and Not Happy at All
Okay, where do I start. First, I got a partial blockage on Sunday. This one really knocked me on my butt so I've been either in bed or on the couch for the past 6 days. The chills, abdominal pain, nausea, incredible weakness, severe dehydration, the whole gamut. So weak the first day I wet my pants 3 times because I…
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Strictures, Inflamed colons, Obstructions, Just can't go?
Okay, before I start, I have to warn whoever's reading this that some people might find this post a little graphic. I'm not shy talking about bodily functions, so beware! I, like many of us, have had a myriad of problems going to the bathroom even half-way normally since our GI issues started. For me it started with the…
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is anyone who has had an APR and/or radiation having lower spine issues?
Want to go into this appointment knowledgeable enough to help myself and get the right answer the first time. I'm finding with APRs in general, doctors outside of the cancer center are trying to figure it out.
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We are BACK!
Hi everyone, We are home from our extended trip to Costa Rica and Panama. We had an amazing adventure. For a month I was able to leave all things cancer behind and live. I did really well physically. 5 months after my last major surgery I was able to hike, explore, swim and even ride ATV's. In Costa Rica we stood at the…
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Seeing that old post made me cry instantly.
So many people on there that are missed. <3
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Did folfuri chemo help to reduce rectal tumour - how know?
Hello all - Started folfuri chemo + avastin for CRC with mets to liver. Have a few questions for all on this site who have/had colorectal cancer. Was your tumour reduced in size by your chemo treatment? Would the chemo cocktail stop the tumour from blocking the intestine? How did you know if the chemo was working to reduce…
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All systems are Go
But I'd love a little more warning! Normal diet, healing rapidly. Tomorrow I start EPIC, 3 days of intraperitoneal chemo using FUDR, a form of 5FU. 2 liters pumped into me belly tomorrow, then one more liter each day on Tuesday and Wednesday. Scared of that because I had rare problems with it lasr time . I'm hoping…