Colorectal Cancer
Discussion List
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Kidney stones
OK, really painful day yesterday. I had my appendix taken out 9 years ago so that was pretty much ruled out. Pain was in lmy ower back and naturally I went to whatever organs were left cancer spread. It was so debilitating that I went to emergency. I never did this with anything for cancer. This must have been the first ER…
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CEA rising but no cancer detection
Hello im new to this board and I really hope you can help me. I never had cancer before and my CEA level was consistently below 2 for past 10 years. However suddenly this year my CEA was increased to 11.3. Then two weeks later, it increased to 14.1. We did colonoscopy, PET, and CT but no tumor is detected. I know smoking…
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Damn, radiation again
Well, I got a week of telling everybody I was NED and feeling happy. I went to my oncologist today and she wants me to have the lung spots radiated. In case it is cancer even thought they haven't grown. She's concerned that if they do start growing and are cancerous they could start spilling cancer cells in my body. So I'm…
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Waiting period between radiation and surgery
Happy Thanksgiving everyone, may you had a wonderful time with family or surrounded by the love of those who care for you. My husband, Donny finished chemoradiation on October 28 and he is scheduled for surgery on Jan 11 about 10 weeks after. He dx with stage 3 rectal cancer. Would anyone share your experience on how long…
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I find this a little frightening - Warning: A little gruesome
I was reading an article in the BBC News online, unrelated to Cancer (if your interested http://www.bbc.com/news/magazine-34920068), and it mentions that many bodies of people who have been on Chemotherapy, do not decompose as fast as regular bodies. Think Twinkie. I don't know if I care to find out exactly what went into…
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What are we grateful for?
Happy Thanksgiving! I'm grateful for my re-gains health, newfound happiness, the precious people in my life and the limited time langostino tacos at Rubio's. You? Laz
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7 Years Today
Hello dear friends: I've not been on in quite some time. My brother's passing this year from cancer and my husband's diagnosis and surgery with cancer has left me numb. Also the fact that I'm not able to give much adivce on the new treatment out. What was offered me years ago is a different protocol. I've not heard of the…
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Gratitude
I wanted to drop in and wish everyone a blessed Thanksgiving! I often think of the silver lining that exists around these dark clouds that settle over us in our lives. Grateful that this happended to me and not my daughter, husband and family that I love dearly. Grateful for all of the extra phone calls from my…
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This week
Hello everyone. You guys gave me some good advice when I was diagnosed in October 2015 I had one foot of my colon and rectum removed on 18nov15. Today I was discharged with a Foley's catheter. I should get pathology on my Lymph nodes tomorrow. Surgeon still thinks we caught early with to spread. My question is if results…
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46 yrs diagnosed with Colon Cancer with Liver Metastases
Hi, A new bee here. I was diagnosed with Colon Cancer about a month ago. Saw blood in stool, went to a Gastro who in turn did a colonoscopy to discover a tumor in the colon. I had subsequent CT / PET Scan that confirmed the disease and looks like they did not see anything else in the PET scan which is good. It was in total…
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Grand Canyon and Cancer
We just got back from a trip to Las Vegas. While there we took a day and went up to the Grand Canyon. I have been there a few times, but not in the last few years. Not since my first cancer diagnosis a little over 4 years ago. As we stood at the top, the snow at our feet, nothing but silence and the wind in the trees, I…
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Lightheaded ??
The one constant symptom my husband has with his folfox6 with avastin treatment is he is always lightheaded when he is up walking around. The onc. tells him to drink more fluids, but he drinks at least at least 5 - 6 12 oz bottles of water a day. Does anyone else have this problem and what solutions have you tried? Thanks,…
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Thanksgiving week - Off topic
Thinksgiving week has arrived. A time to ponder all of the things we have been blessed with and are grateful for. I would love it if those of you in America would share their Thanksgiving plans, and those who live outside, well, you can share as well. We've all got things we are grateful for. Sue - Trubrit P.S. To all of…
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Hi Guys!
I just thought I'd post an update. My brother is on Vectibix every other week. He has the yucky rash on his face. The doctor has given him creme to help control it. If it gets worse they will put him on Minocycline. He's feeling okay, just a little tired which is to be expected. I saw his CEA and it is down to 97.2 from…
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NED
It's official. I am NED. I've prayed every night about it and prayed with gratitude when I found out. The lung spots haven't changed and likely have nothing to do with the colon cancer. They also discovered I have an old compression fracture in my back but that's another story. I am so grateful and relieved. After all the…
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Husband's CT Scan, still unclear
I know most people would be relieved by these results but I am just not, I try so hard to be positive but I am not getting a definitive answer. His CEA which has been a good indicator for him in the past went from 1.34, 2.24, 4.88. The ins refused a pet scan and only allowed a CT Scan which showed his fluid accumulation on…
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Seeking answers for my dad
Hello, I am out and about trying to find answers to my dad questions. A month ago we took him to the ER, they found a tumor blocking his colon. He was admitted, had a biopsy and emergency surgery to have the tumor, lymph nodes, part of his small intestine and apart of his abdomen removed. Surgery was a sucess, he was in…
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In about 2 Weeks, I see the Oncologist. I am lousy at knowing what questions to ask
What questions did you wish you ask? What questions did you ask? I don't care if they turned out to be dumb questions. I just don't want to stand there like a deer in the headlights (by the way, drive carefully, everyone. It's that timed yeah) Chemo is, I understand, a foregone conclusion. It will cause my immune system to…
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Prevention regiment after high-grade dysplasia.
Hi all, I've had Crohn's disease for 16 years now, and after a routine colonoscopy last revealed probable high-grade dysplasia, my GI guy recomended a total colonectomy with out the option of a j pouch (due to the likelihood of Crohns manifesting in the pouch). I couldn't bear the idea of that, so I elected against it.…
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Need help, support and advice
The good news is that Dennis was able to get his first chemo last week... that his platelets seem to be cooperating more now.The bad news is that they did a scan and saw something in the peritoneal nodes (*spelling) to add to the liver and lung tumors. Does anyone have any advice or experience they could share as for the…
- Off Topic: Peace for Paris ... and the World
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New to the site
Hi! I was diagnosed on July 31 when I was taken in for emergancy surgery. The pet scan and biopsy have me at stage 4. I have had 2 rounds (4 treatments) of folfox and am trying to stay positive. I am 57 and they have approved me for Social security disability. I fell very tired almost all the time and would like to know if…
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Sir-Spheres (Y-90) procedure...anyone have it?
In about 10 days I'll be having the SIR-Spheres procedure on my liver tumor. Many months of chemo (FOLFOX, FOLFIRI plus Avastin) have not seen much shrinkage. They say this mircorpheres procedure will put radiation directly on the tumor and it will start to shrink and continue to do so over several months. Then they say, I…
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Saunas with colostomy
Does anyone here know if you are able to in an infrared sauna if you have a colostomy? I just recently bought a sauna and now I find I may be going on a permanent colostomy.
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need advice on problems healing from APR and colostomy
In April I was diagnosed with T1 rectal cancer 1/2 cm from anal verge. Had a transanal resection and path report came back as a T2 tumor and margins clean. I was advised by 4 docs to have an APR surgery and permanent colostomy. I had that surgery in June (T3 N0 M0). All went well, but I am having trouble healing from the…
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fanny pack kind of weekend and questions about tumor markers
Hello all! Chemo treatment #4 now. So when I recover from this one, I'm 1/3 of the way done. Yay! I am having more side effects from oxaliplatin as I go. More numbness, tingling, hand and eye cramps, cold intolerance. Nothing horrible, but hoping not to have to stop or reduce dose....we shall see. Went to MDACC for an…
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Lobectomys
was wondering if anyone has had. multiple lobectomys ? Thanks
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Colon and Breast Cancer at the same time
Dear All, My mother was recently diagnosed with colon (Stage: IIIB) and breast cancer (Stage: II, HER2+). She is 53 years old. She will start her chemo as soon as she heals from her colon resection. Her medical oncologist will put her to Herceptin for the breast and CapeOx (Capecitabine+Oxaliplatin) for the colon. What is…
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Insurance companies are ridiculous
in my last post I had said my husband's CEA has crept up from 1.34 to 4.88. He is stage 4 with a liver resection for two mets last October. MRI in May showed an 8mm non specific enhancing nodule at the hepatic flexure adjacent and inferior to the resection margin. Onc ordered a PET insurance denies it saying there is not…
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tumor
Hello, I have rectal cancer and was operated on 2/13/2015 and underwent a proctocolectomy ended with a pernament ileostomy and chemo for a year. The colon-rectal surgeon was unable to get a margin around the tumor anterirorly and on the right lateral aspect because of involvement of the vagina, bladder and pelvic sidewall.…