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Food after surgery
Hi, I was wondering if anyone else has discovered food 'intolerance's' after their surgery? My husband gets sick to his stomach when he tries to eat ice cream. He throws it up. He also gets very sweaty and sick feeling. He takes med's to help calm his heart rate as well. Thanks, ~Shelly
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Pain in the Back
Hi there! Has anyone with EC experienced pain in the back? God Bless you in advance, Yovana
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PET Scan Results
My mom had her appointment yesterday and for the most part she got good news. The tumor is still there but it has shrunk considerably. There is no metastsis to other organs which is a huge blessing! The one doctor was unsure of whether there was still cancer in the trachea or not but it doesn't really matter. The overall…
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listing from the paper
http://www.legacy.com/obituaries/postgazette/obituary.aspx?page=lifestory&pid=142089812 Photo FOCER SCOTT H. Age 56, on Tuesday, April 20, 2010 of Arlington. Beloved husband of 35 years to Jolene Focer; loving father of Melissa (James) Mullen and Christina (Jesse) Linton; Pap Pap to James, Makayla, Emma, Braydon, Ava and…
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Scan Shows "New' Nodule in Lung
My husband is a Esophageal Cancer survivor after 2 years. He had radiation - chemo - and 'the' major surgery done, and has been doing great since then, with no follow up treatment. He will always have eating issues, but he is doing well. His cancer had not spread to other organs. All his check ups has been very good, up…
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Update on my baby sister
Hi Folks Sorry for not responding to my post of 2 months ago. Unfortunately it will be hit and miss for another month for me. I am giving up the sunshine of Florida and moving back to my hometown to help care for my sister and the family. So busy packing and making arrangements. I posted about my baby sister ( Laura ) back…
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Rough day at the hospital
Lyle went in for his procedure to remove the stent and place the feeding tube. The stent will stay in due to tissue beginning to grow around it. Not what we wanted to hear. The feeding tube was placed so hopefully we can keep this guy hydrated and nurished! During the procedure Lyle started throwing up green stuff (bile)…
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PGHMOMMA HAS LOST HER FATHER PLEASE PRAY FOR HER
I just wanted to let everyone know I just found out just a few minutes ago that Tina lost her dad this morning unfortunately it wasn't EC, he fought that and won, it was ARDS, I believe, Please keep her in your prayers, she was such a daddy's girl and he was only 56. I think he won EC battle but other complications set in…
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PET Scan Results Tomorrow
Hello everyone, My mom decided to have a PET Scan done last week to see how the chemoradiation worked. She is still considered "terminal" because there isn't anything else they can try but she is a trooper and wants to keep an eye on this beast. Tomorrow she will get the results. Please pray that the cancer has not spread.…
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PET Scan Results Tomorrow
Hello everyone, My mom decided to have a PET Scan done last week to see how the chemoradiation worked. She is still considered "terminal" because there isn't anything else they can try but she is a trooper and wants to keep an eye on this beast. Tomorrow she will get the results. Please pray that the cancer has not spread.…
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Hi, new here...
Hi everyone, My name is Faye and my Dad was recently diagnosed with stage 3 esophageal cancer. He had been having some trouble with swallowing certain foods and then about 2 weeks ago he was taken to the hospital after throwing up some blood and passing out. They told us it was most likely an ulcer and did an endoscopy,…
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My father Dave- stage IV
Dear Jane, Sherri, Lori, and William, I started out by trying to reply to each of you individually but I got overwhelmed. I think I'm mostly overwhelmed by the care and support each of you has offered me. I am so very grateful. All of this is new territory for me and I am very appreciative of the information and your…
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A new update on Eddie
Ed started his third round of oxiplatin and xeloda today and then the dreaded pet scan comes in two weeks. The oncologist had to sit him down today and say "NO" to this ridiculous idea of a new motorcycle and Eddie was not a happy man., started telling the doctor he is 56 years old and can make his own decisions so from…
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REPORTS ARE GOOD, PORT COMING OUT FOR GOOD WE HOPE
Hello to all my CSN Friends Jeff went to the oncologist today, it was one year ago this month that we started visiting the oncologist, wow what a journey it has been, Jeff and I have been through so many BUMPS, AND HURDLES through this journey that it is so amazing how things have worked. I learned so much in our beginning…
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Anybody have pleural effusions and other lung problems after the surgery
Well I was so happy about my clear CT findings but I did note that it said I had a moderately large atelectasis and a bronchiectasis and a pleural effusion but did not hear from the dr after I already had the report but he called Saturday to tell me I needed antibiotics for pneumonia. Has anyone had this stuff? I don't…
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I hate to post this but I have to get it out
So dad has been doing well, he remains sadated and stable, but critical. The dr spoke with us today and said the only thing in his favor right now is his heart. His kidneys already shut down and he is on dialiyias. His liver is a bit elevated. His plates are in the 60's. His mouth is bleeding and they are unsure if its…
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Jessica, there is hope
Jessica, I know you have read my post regarding my husband. I see William and Sherri have already sent you messages. I know when you have time you will update us with more info. The only advise I can give you at this point is you need to be aggressive in your treatment. If the dr's say "no hope,"......get another dr. There…
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Might be going to the hospital...
Hi, my friends, Lyle is soooo skinny, in so much pain, and can't keep anything down. Just when I think something might stay down...up it comes. I don't think he has gotten much nurishment in this weekend. So...I have a call into the doctor and hopefully he can make arrangements to take out the stent and place a feeding…
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BAILEY1459 , WE HAVE SOMEONE REACHING OUT FOR A STAGE 4 PLEASE HELP JESSICA
Sherri, Maybe you can help you are very knowledgeable on this. thanks Lori Hope things are well
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UPDATE ON PGHMOMMA'S DADDY
Just wanted to let everyone know that her dad is still the same, they are taking baby steps, he will probably have to have a trach to survive for awhile, but she said when she squeezes his hand he knows who she is so that is good news and he has really came further than last week. I reminded her to keep HER BIG GIRL…
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3 half yrs....clear
hi all, my name is mike, i had ec, 4yrs ago at age 45, it was detected by pure luck while checking out another matter, i was just on stage 2, so didnt really have many recognisable symptoms, i had lost weight but put it down to hard work, also i had always suffered from acid reflux, but who dosnt i though.i developed…
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vitamins and minerals
Hi, is that true that vitamins and minerals are feeding the cancer cells and should we eliminate vitamins and minerals?
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finally made it home from MD Anderson
My dad finished all his appointments. Turns out it isn't esophageal cancer, but stomach cancer that spread to the bottom of his esophagus! It is in the first lining of the stomach and two lymph nodes look suspicious so they took fluid. It isn't in any other organs and we forgot to ask about the esophagus... We go back next…
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I lost my aunt last night
Hi All, I am here to ask for prayers to keep me strong!! My aunt passed away for breast/lung cancer last night. During the entire time that Al was sick I had been talking to her on a regular basis, NOT ONCE DID SHE INDICATE TO ME THAT SHE WAS ALSO VERY SICK AND THAT SHE WAS HAVING CHEMO AND RADIATION. SHE DIDN'T WANT ME TO…
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I got a Letter from the Governor
Today I got a letter from the Governor of Pennsylvania sealed and stamped stating April Esophageal cancer awareness month from here on out!! Today is also my mothers birthday, so what a great present for her as well!
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Ostomy Bag for Leaking J Tube
Just wanted to share something that is working for a leaking J tube. Before we left the hospital after surgery, the ostomy nurse came and placed a urostomy bag around our leaking J-tube. It has been a very good solution to a messy problem. I clean around the J-tube site daily, and have applied some nystatin and some…
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pet scan vs cat scan
why do some doctors do only pet scans and not cat scans, I read this all the time, am I correct that cat scans can tell us how much shrinkage has gone all and pet scans just tell us the maarkers of the cancer sites. I am confused, my husband's doctor only does pet scans and I do not understand why not pet/cat scans…
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Update on Caballero38 AKA- Luis Rodriguez
Hi all, I haven't posted in a while, but I thought I should give you an update on my status. Recap- I was diagnosed sometime in April of last year with Esophageal Cancer stage 3 n1 I beleive, I had surgery in October (esophagectomy). They told me I was cancer free and I was recovering well. Durring my recovery, I broke a…
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Got report all looks good!!!
Hi, Well I got the CT report yesterday after coming home from the EGD which went pretty good. They found a titanium staple hanging loose and catching food and the dr also heard a big pop when he put the scope in and thought I might have had some blockage. So that is good. Now to the CT scan, no organs involved no mention…
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Hello everyone...sorry I have been scarce
I have been working my tail off...which is odd because I am gaining so much weight. Stress eating, I am sure. That's a total disappointment because I had just lost 50 lbs when Layne was diagnosed. Sigh. Anyway, we had great scans in January and we are going back on Thurs for more scans. Layne did follow up chemo, it was…