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4th treatment of chemo
Well...Lyle had his 4th treatment of chemo. So he has more behind him than in front of him at this point. This has been a very tough week. He has had pain at a level 10 and is not sleeping. He is not sick to his stomach and has not lost any hair...but he does lose his food often due to the stomach being open to the…
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food question?
My friend Tyler has had a g-tube for a month or so now and is somewhat used to it. We weren't really expecting the issues that come with regular food (no good reason, we just weren't) to also be part of g-tube use - you know, things like nausea and constipation and etc. Anyway, he's pretty much adapted. But now it seems…
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Last chemo
Hello everyone, I have an update on my hubby. He was supposed to have 3 rounds of chemo after surgery.He's gone through two and said that he was done. Of course, this made me very nervous and scared. Well, we were told good news today from his oncologist. His oncologist agreed and so my hubby doesn't need the last chemo…
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update on dad
We made it Monday and had a test Tuesday and met with a doctor (he will be having tests until Friday). The cancer is going into his stomach, so they say they would have to cut half of his stomach out, along with a good bit of his esophagus. They said because of his past stroke and seizures, it is too risky and they don't…
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I hope it's alright to post this here. Book Suggestion
As a new member I hope it's alright to post a book suggestion here. If not please feel free to delete this. Understand I have no vested interest in this book. I was told about it by one of my contacts on the Flickr photo site where I spend a lot of time. Turns out he is the author and photographer. I was told about it…
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Havn't posted in awhile
Hi everyone, it's been awhile since I posted. I still follow the site just havn't felt like writing. The kids are amazing!!! They keep me smiling and are going on with life just as they should. The reality of him being gone has hit, I am now a single parent having to support and raise my family. Not much time to grieve, I…
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Tina (Pghmomma)
Tina, Been thinking about you all night. Couldn't sleep. Haven't heard from you. Wanted to let you know we all are praying for you and your family. I am also in Pittsburgh. 5 minutes away from Presby Hospital. Can I do ANYTHING for you? Please let me know. My heart just aches for you... Praying real hard...Hang in there...…
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New and Scared
Hi, I am new here. I was diagn with EC the past march 23th. According to CT Scan, the size of the tumor is 6cm X 5cm large no metast. Biopsy done the past 19th, states mucuosa squalmus carcinoma in si-tu. Doctor at UCLA believes that my cancer is more advanced due to the size of the tumor, so he ordered PET Scan this…
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We're going to Alaska
I hesitated to post this but decided to...maybe it will help some one see that life goes on after a horrible diagnosis such as esophageal cancer. After clear scans in Dec and again in April...we've booked a 15 day Princess land/cruise excursion to Alaska..and we leave June 11th... Both my husband and I agreed not to wait…
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New Here, Husband Diagnosed in February...no idea what to expect.
My husband is 36. He was diagnosed with EC in Feb. Stage UT3 UN2. He was having difficulty with food going down, feeling like it was getting stuck in his chest, he also said he had a burning sensation. I had to force him to go to the doctor ,they put him on a couple of acid reflux medications and after a month of not…
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Tina's dad (phgmomma)
We all need to keep her and her family in your prayers, she hasn't posted nothing on this site or the other site I am on with her. As you all know he is in critical condition. They need prayers and BIG PRAYERS. tHANKS lORI
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DONNA, WE HAVE A NEWBIE JUST LIKE YOU AND JEFF WANT TO REPLY
dONNA, Might want to reply to our newbie he has a j-tube I cant help with that as Jeff didn't have one, and i know you had yours for a long time. thanks Lori
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So Here's My Story...
Hello All! Glad I found this board and am learning a lot reading the other posts. Thought I would share the story of my battle with "The Big C". So here goes nothing. After several months of having trouble swallowing and eating which got progressively worse, I had an endoscopy in mid October. After finishing the procedure,…
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Mother Diagnosed with EC
My mother residing in Bangalore, India was diagnosed with EC (Squamous cell cancer) last month all those tests today they staged her as T1N0. What are my options here, I'm reading that surgery is the best treatment, I'm also worried if that will be a cure or just a treatment. Overall we are devastated with the news, my…
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HELP-need Stage 3 EC Cancer survivor stories
Hi all, \As most know, my dad has stage 3 EC had surgery 12/09 and doing well but needs to gain weight. But, My my uncle---my dad's little brother has also been diagnosed with EC -also stage 3. HE did go for 2nd opinion at Moffitt in Tampa. I do not not know all details of what was actually said but he was told to go back…
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Please pray/Cancer Treatment Centers of America
My husband Paul was diagnosed with late stage esophageal cancer in August. He is 43 and I am 39. It was a shock to us. He had problems with acid reflux, but we were unaware of what the problem could be when the lymph nodes on the left side of his neck started to swell. We were hoping for lymphoma, but that wasn't the case.…
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About dad
He is still in the ICU listed under critical condition. He has what they are calling ARDS. So its very important he stays sadated and controled. So far everything is well now that he has a different vent. Its one that they use on babies to matture their lungs when born premmies. They will continue to take xrays on his…
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pain in rib area
Hi everyone, I was wondering if anyone out there experiences pain in the rib area. It seems like sometimes after I eat I can feel something poking out and will be sort of sore aroung my rib area.I don't think my ribs were broken during Surgery.At least the Dr didn't tell me they were.But this has just started to happen…
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Update: 2nd round of chemo done
I finished my 2nd round of 96 hours of Cisplatin and 5FU Friday night. It was really bad. Nausea from Tuesday and it still continues. Also mouth sores. I am very weak, but am trying to build back some strength. I have two more rounds of chemo. I just hope the next one is not as bad as this last one. So far I still have my…
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CT scan tomorrow
Hi, Tomorrow I get my post chemo cat scan and find out whether I need more treatment or go on the every 3 month check up schedule. I really would appreciate prayers. I am kind of nervous but just ask God to take care of me. On Thursday getting an EGD and dilation to find out why I am coughing so much and throwing up more…
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New Here
Greetings: My better half just had minimally invasive esophagectomy at KU med center in Kansas. Turns out that 3 out of 18 lymph nodes were positive. We are looking at chemo soon, and just would like some words of encouragement or advise about things to watch out for. He is doing well - minimal pain - he does have a fib,…
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Has anyone had mets to Sigmoid Colon?
Hi family, I am a 2 year survivor of stage 3 EC (as of March 18th) and am awaiting a colonoscopy on April 19th to see if we can figure out what is causing the 2 strictures in/on my Sigmoid Colon. I have been waiting a while for this as the Surgeon wanted me as an inpatient for the procedure as I will be having difficulty…
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To Lori "Moe and Papa"
Thanks Lori for blogging on some of my posts. I would love to talk to you via email, you can leave it for me and I will definately write to you. I think we both are in the same boat, my husband is stage four with lots of mets. I need to connect to someone who really understands my situation, and yes, William Marshall is a…
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Udate - it's been awhile
Hello everyone! I haven't posted in quite a long time. My hubby was diagnosed with T3N1M0, and had surgery back in Dec. 16, 2009. He's still recovering. He had some complications after surgery, but is getting stronger everyday. He only has one more chemo treatment left and (hoping and praying) it will be his last. He's…
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Restaged today and questions regarding pro's and cons of Surgery..
I had posted on here about my cancer early last month..At that time I was staged a 3A at another medical center but wanted to get another opinion..I waited 3 weeks to get into UCSF and was worried about the time lag.Well that wait was worth it,I had a PET/CT yesterday and the oncologist phoned today and said the lymph…
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Paul-Sad News
As many of you know Paul went into Hospice care last month. I am sad to say that he died last month after about three weeks in Hospice. I started to post this several times, but I just couldn't bring myself to do it. I have read too many posts like this and I know that each battle lost to this cancer affects all of us here…
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Husband saw the radiation oncologist...same clear results
Tom saw his radiation oncologist this morning at the U of C...and he said the same thing we heard on Good Friday...it's all clear. He is also moving...his wife is from NC and he will now be at Duke...before July, I believe, his name is Dr. Salama and he's a great doctor. I had to drive up to get him due to the train…
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A new update on husband
Ed was admitted to the hospital Tuesday night after blood tests revealed his potassium and magnesium levels were very low. They put him on iv fluids along with potassium and he came home tody., also he is to take potassium everyday until we see his doctor Monday. He has had alot of problems with the last chemo session and…
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updated now.
This is horrible to me guys. Okay the dr couldnt put a stent in because its on the side of the fistula I think that is what they said. Any way since he has this hole all the fluid goes into the hole and into his lungs. So they need to fix it asap. He is on two vents, they are moving him to presby and dr.luketich is going…
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Lori, are you around for some questions?
Hi Lori, When Jeff had to be dilated what were the symptoms? I have started to cough and choke after eating and sometimes that just causes everything to come up. It just seems like I can't hold back the coughing then that causes the gagging. It only happened once a month or less now I have had about 3-4 times this week.…