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PET scan results
Hello everyone. I am new to the site. Hope you are all doing well. Does anyone know what this mean? We got this on a PET scan result after receiving a one-year treatment of chemeotherapy, radiotherapy and brachytherapy. "There is morpho-metabolic resolution of the solid lesion in the uterine cervix". Also, do you know what…
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Good News on CA 125 level and update
Hi Ladies: I wanted to let you know that I spoke wtih my oncologist's office this morning. MY CA level is now down to 42 (I went for the blood test on Tuesday, March 28th) so it has dropped 23 points from last month where in February it was at 65. As of now, the normal range is up to 35 so I am only a few points above the…
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First Radiation
I had my first radiation treatment for the tumor between my spine and Vena Cava. 17 more to go. It was not nearly as hard as the radiation to my neck because I wasn't in a mask that was attached. I figured I would have the same type of lower body form that I had during pelvic radiation four years go. But no, this one…
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Recurrence and travel plans
I posted last week about my recurrence. Now I have a few more details. In addition to the two lymph nodes that were removed that were cancer, more lymph nodes in my groin and elsewhere in my abdomen and an area in my omentum were suspicious. Although they previously found both carcinosarcoma and papillary serous it turns…
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new here
Hello everyone. I have been lurking for awhile. I will share my story with you. I was diagnosed on 1/16/17, and had robotic hysterectomy BSO full pelvic, paraaortic dissection with 28 nodes removed. Surgical pathology is stage 2, grade 2 all nodes negative. single focus on LVI. I am 51. Recommendation is for pelvic…
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My New Oncologist (maybe)
We are supposed to be moving to Colorado, though my husband hasn't received an official notification of the assignment. I have an appointment in Denver in April, and was wondering if anyone has met with Dr. Corr at University of Colorado Hospital?
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Waiting for lymph node report after hysterectomy
I had hysterectomy Wednesday. Recovery so far a breeze. Surgery confirmed grade and type 1 endometrial cancer. the bad news was in surgery determined more than 50% invasion into myometrium. That put me in higher risk group for spread to lymph nodes. Waiting on that result causing great anxiety. Dr. said only 6-10% chance…
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PET scan results - 9 months NED!
I received the results of my PET scan late yesterday and I am still NED - hooray! That makes 9 months since the end of frontline treatment for uterine carcinosarcoma (MMMT), stage 1b, grade 3. The mass that they found in my chest during the last scan is still there but it hasn't changed at all - same size, same metabolism…
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Why PET scans?
I am due for my first mid-treatment CT scan on April 10. Yesterday, I told my doctor I wanted a PET/CT. He said it was not medically necessary from his standpoint. But he said if I was sure my insurance did not place limits on lifetime PETs he would code the script to get the PET/CT OK'd. In my heart, I know the reason I…
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New Diagnosed, Stage IV - Need Answers
I am a newly dx 65 year old with Uterine Stage IVb cancer. I am looking for any input and suggestions you may have as a start down this road. My story, 6 years ago, I was dx with Stage 1 uterine cancer, low grade which was found on a nodule after having a complete hysterectomy. No chemo give, just follow up with Oncologist…
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Anyone Else Have Random Pain -- Or Should I Be Worried?
Hi Ladies. I am 3 months out from my last chemo and was declared NED status mid-January of this year. (I was diagnosed stage 3a, grade 3 in May of last year- went thru chemo/radiation/chemo). The past week or so I've been feeling EXTREMELY fatigued. My legs shake with effort just to walk across a room. I'm constantly…
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Biopsy results came in today
Results of second biopsy came in. They say still complex hyperplasia but they didn't find cancer from the D&C samples. I am glad. But feel sad that others here hear worse news. I keep you ladies in my thought and heart and prayers, especially late at night when insomnia kicks in. I will have a full hysterectomy in the…
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Thinking ahead for 2d opinion at Fox Chase
On April 10 I will have imaging at the halfway point of my treatment for recurrent endometrial adenocarcinoma. I have not been able to maintain the Carboplatin/Taxol regimen for various reasons. I've had two Carboplatin and three Taxol so far. I hope to convince my oncologist to do a PET/CT instead of CT alone. I am…
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Biopsy result wait time
I am aware that biopsy results take time. Some are quick but mine seem to take a long time. I know my first round went to three labs and then came back asking for more samples. I'm in that second round of waiting again, they have been sent out from local lab to somewhere else. It seems to me the longer they take the worse…
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Another update
Today was supposed to be labs, dr.'s visit and infusion. CT scan results were not what any,one wanted. The tumor that sits between my spine and vena cave grew this time. It has grown partially into both. My oncologist is hesitant about continuing on Keytruda because this is the second tumor that has grown. We talked about…
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How much neuropathy is tolerable?
For those undergoing or who underwent chemo treatment with agents that list neuropathy as a possible or likely side effect, I am curious how extensive was the effect you experienced. Also, did it cause you to withdraw from treatment with that agent or did you persevere? If you continued, what has been the permanent damage…
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Scan? Irm? Pet scan?
Hello Is your scan and irm true? I did a lot of scan and irm with good results but during surgery the surgeon found the disease spread
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One more with recurrence
I had two lymph nodes removed on Friday. I didn't think I would get results right away but the Dr. was able to get the preliminary pathology. He told me there were cancer cells (carcinosarcoma/MMMT cells as before). My appointment with Dr. is 3/29. Tomorrow I'll call to set up scan. My head is spinning. I've read a lot…
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My doctor is retiring :(
Hi ladies, I really value any and all opinions in this matter. My oncologist, who I've been with for 10 years now, is retiring due to her husband having an illness which she needs to devote her time to. I'm so happy that she has made this difficult decision and is now free to take care of her husband....who deserves…
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Recurrence - And the treatment plan is....
My husband and I meet with the oncologist this afternoon. The pathology shows that the cancer is more like UPSC and not breast cancer (I was diagnosed with Stage II IDC in June 2015 followed by StageIIIC1 USPC in Sept 2015). I will have a PET scan on Tuesday morning to see the scan show activity anywhere else. Provided…
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New to the Network --- Have a Question
Hi lovely ladies. New to the boards. Brief history on me: I was diagnosed with Stage 3A grade 3 uterine cancer last May. End of Feb (week after my 42nd birthday), I started bleeding profusely. 26 clothes changes in 3 days. I basically would bleed out every time I stood up. Insurance finally kicked in on March 1st and after…
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Treatment of recurrent or metastatic endometrial cancer
Treatment of recurrent or metastatic endometrial cancer - UpToDate 3/14/17, 1:11 PM https://www.uptodate.com/contents/treatment-of-recurrent-or-metas…e=see_link§ionName=First-line%20chemotherapy&anchor=H8007524 Page 1 of 22 Official reprint from UpToDate www.uptodate.com ©2017 UpToDate The content on the UpToDate…
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Adjuvant treatment of high-risk endometrial cancers
Adjuvant treatment of high-risk endometrial cancers - UpToDate 3/17/17, 10:04 AM https://www.uptodate.com/contents/adjuvant-treatment-of-high-risk-endometrial-cancers/print?source=see_link Page 1 of 12 Official reprint from UpToDate www.uptodate.com ©2017 UpToDate The content on the UpToDate website is not intended nor…
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Approach to Adjuvant Treatment of Endometrial Cancer
Approach to adjuvant treatment of endometrial cancer - UpToDate 3/17/17, 10:03 AM https://www.uptodate.com/contents/approach-to-adjuvant-treatment-of-endometrial-cancer/print?source=see_link Page 1 of 11 Official reprint from UpToDate www.uptodate.com ©2017 UpToDate The content on the UpToDate website is not intended nor…
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Staging uterine Carcinoma
Staging uterine carcinoma - UpToDate 3/17/17, 10:06 AM https://www.uptodate.com/contents/image/print?imageKey=ONC/51307&topicKey=ONC/16721&source=see_link Page 1 of 2 Official reprint from UpToDate www.uptodate.com ©2017 UpToDate ® ® Staging uterine carcinoma* (TNM and International Federation of Gynecology and Obstetrics…
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Information on Uterine/Endometrial Cancer
I was trying to do some reasearch on USPC recurrenece before I meet with my GNY ONCO today and found that a research library that I use for tax also has a research library for medical. I subscribed as a patient for 7 days and have found some great information. Nothing earth shattering or really all that new but lots of…
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I need a shoulder to cry on...
I am feeling down and need to vent .. i finished my last chemo session and had a severe allergic reaction to the carboplatin. The nurses maxed me out on steroids, benadryl and something else to try to get the swelling down so I could breathe. They neglected to stop the carboplatin until the doctor suggested it ( and it was…
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Hello. Just diagnosed with UPSC.
Hello, I am 62 and was just diagnosed with UPSC last week. This Thursday I am scheduled to have a PET scan to determine if the cancer has spread outside my uterus and what stage the cancer is in. Then the following day (3/17/17) I have my 2nd meeting with the oncologist to discuss the results of the scan & possibly get a…
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Mom diagnosed with UPSC
Hello everyone, I have been a passive follower of this forum for about 3 months now. I have decided to post about my mother's fight against the disease. A little bit about myself and my family. I was born and raised in India and I am currently in the US doing my Pediatrics residency training. I will be graduating this year…
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Post Whole Body Hyperthermia
Thought I'd post an update. The WBH went well. Basically I stripped down and climbed into a unit that looked something like a cross between a waterbed and a tanning booth. At first it felt pleasantly warm as they hooked up the various sensors, but the longer I lay there, the happier I was to be put out. And I went out…