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Biopsy results are back
Got off the plane this morning to find a voice mail from my Onco's office to call them back for results from the lymph node biopsy done on Friday. The biopsy does show that the lymph node contains UPSC. Not sure what next steps are other than meeting with the ONCO on Friday to discuss what next steps may be. ACK!!! Damn…
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Biopsy results are back
Got off the plane this morning to find a voice mail from ommmy Onco's office to call them for results. The biopsy does show that the lymph node contains UPSC. Not sure what next steps are other than meeting with the ONCO on Friday to discuss what next steps may be. ACK!!! Damn cancer...
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waiting for results -question
Hi all, I'm waiting for results of my hysteroscopy and d&c from last Wednesday. It's making me a bit crazy! I have a question though. If there is no cancer, should I ask for a referral to a surgeon anyway? I feel like this scare is enough for me to go get the hysterectomy I've been avoiding for 15 years. I have severe…
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waiting for results -question
Hi all, I'm waiting for results of my hysteroscopy and d&c from last Wednesday. It's making me a bit crazy! I have a question though. If there is no cancer, should I ask for a referral to a surgeon anyway? I feel like this scare is enough for me to go get the hysterectomy I've been avoiding for 15 years. I have severe…
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Namedropper
I don't know how I missed your earlier post. And I did not see it on the breast cancer board, either. I'm so sorry to hear you are now facing Stage 4 breast cancer. I am a healthy survivor of both. I assume you have had your scan now. I'll be on the look out for you on both boards. Suzanne
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FYI
For the last week or two I have been finding post from a group called Cancer Tudor on my,Facebook page. The have been posting advertisements for hyperthermic treatments available in the USA. I have no idea of the reliability of these adds or these places, but did think it was interesting.
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Scanner perfect... Miracle? 16/03 news about irm
Hi, I have adénocarcinoma endometrial with metastasis in abdomen.i had 3 rounds of carboplatine and taxotere and i had à scan. Scan is perfect. No evidence of metastasis in the abdomen. I am very surprise. My doctor give me a irm to confirm. Did anyone here have metastases that disappeared with chemotherapy?( Just 3…
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Waiting for Whole Body Hyperthermia
Greetings from Germany. Well! I've been here a week and today I will be getting whole body hyperthermia. Up to this point, my treatment has consisted of local hyperthermia every day, targeted at the areas where lymph nodes lit up on my scan Along with infusions of vitamins C, Bs and other supplements to strengthen my…
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Radiation extreme nausea
hello everyone, my mom is uterine Carcinosarcoma stage 3c2 and started pelvic radiation a little over a week ago. Chemo was nearly a breeze for her but radiation has been really rough. She threw up the first few days and still has terrible constant nausea. They have her on zofran and compazine or something but it hasn't…
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Mullerian Adenosarcoma - just diagnosed
I had a D&C a couple weeks ago to take care of some polyps. Today I met with my Doc because he wanted me to come in to discuss the pathology report and he told me I have mullerian adenosarcoma. He scheduled an appointment with an oncologist for next Wednesday to discuss options, prognosis, etc. I'm 37 years old and I'm…
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Abnormal u/s and hysteroscopy biopsy today-
Hi everyone, I had an u/s this morning and hysteroscopy this afternoon. U/s: * lining 12 mm * Small cystic spaces in hetero lining * multiple cysts on left ovary - ?endometriomas * can't find right ovary * ?adenomyosis Histoscopy * d&c * removed polyp * sent to pathology * was painful even though I had conscious sedation…
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Any UPSC 1a who did observation rather than chemo/radiation
There appear to be so few 1a UPSC that I have been able to find in the reserch or on this board. If you were a 1a and decided to skip treatment, please let me know. At 77, I am really wondering if I want to do this.
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New Endometrioid Adenocarcinoma dx 12/20/2016
Hi, I am 55 years old and had surgery on Jan 10, 2017 for a hysterectomy including cervix, tubes, and ovaries. The initial in office biopsy before surgery showed class 2. Surgical pathology confimed class 2. Other signficant findings were 2 tumors less than 2 cms in size, one at the top and one near the cervix. The report…
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I'm new here, saying hello
I will preface this with the statement that I am not officially diagnosed. But I wanted to share my story, and ask for support. I am a week out from turning 49. I have regular cycles every 28days give or take a few days. I don't have any of the high risk factors, not overweight, not post menopause, no smoking, no drug…
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Metformin - My 78 year old mother's journey
In the beginning of January 2016 my mother was diagnosed with high grade Serous, endometrial uterine cancer. No metastases were found by scans at this time. Surgery for a full Hysterectomy was scheduled for the middle of March 2016. A bone and CT scan just prior to surgery, revealed the cancer had metastasized to 2…
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Need advice for my mom
Hello, My mom is going through chemo for stage 2 fallopian cancer and is having a really hard time with the treatment. She is sick for at least 5 days, she can't keep anything down and she is either completely constipated or has diarrhea. She is also having incredibly painful abdominal cramps. We have told all of this to…
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My dance with NED may be over too
I am undergoing some pre-surgical testing for a reconstruction procedure (DEIP) for my left breast as the surgery is currently scheduled for April 26, 2017. I had an abdominal CT angiography a couple weeks ago to ensure that the vessels needed for the DEIP procedure are healthy and to determine exactly where they are.…
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Diet during treatment?
Ladies, would you care to share what dietary intake you have found useful to you while undergoing treatment? Be it to keep up protein levels or blood count?
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Gynecological Oncologist Recommendations/Military Insurance questions?
Can anyone recommend a good gynecological oncologist in the Colorado Springs/Denver area that takes Tricare Standard/Prime? I have an appointment on Wednesday with my gyn/oncologist, we are moving in May, but I may be going to C. Springs earlier from Florida for treatment purposes. Does anyone know if my doctor can do a…
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Lymph node biopsy and recurrence
At my 3-month checkup I told my oncologist about a lymph node in my groin that felt swollen. He examined it and told me I need to have it biopsied. The biopsy will be done in 2 weeks (3/17). Has anyone had a similar experience? I'm just trying to steel myself for what's coming. Any possibility this can be lymphedema from…
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Seeking experience with Gemzar
I am a stage IIIC UPSC patient of about 9 months. First six months it was determined I am platinum resistant after receiving standard protocol of carbo-taxol and subsequently diagnosed as "recurrent" disease with spread to perioneum and abdomen areas. I have been on doxil + avastin for the past three months but the…
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Third Occurance
Third occurance Hi - just joined today. Found out my uterine cancer is back after 5 years of no issues. 2010 discovered the cancer after D/C for bleeding so had a TAH - doctor said no worries, they got it all. One year later, bleeding started again and tests showed positive so had radiation - internal and external. Thought…
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I have been matched with a clinical trial...
I received a phone call yesterday stating that there is a clinical trial that I match with. They are calling my doctor, and requesting the pathology report. It would be a phase II or phase III trial with immunotherapy. I was wondering if people have had a complete response with immunotherapy. I am stable right now. Thanks,…
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Fertility-preserving options for endometrial adenocarcinoma in 36 year old
I was diagnosed this week with endometrial adenocarcinoma, figo grade 1, arising in a background of endometrial intraepithelial neoplasia (atypical hyperplasia) from D&C. I am 36 and got married 6 months ago and have been trying to get pregnant; neither of us have ever had children and I've never been pregnant. My BMI is…
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New here - Depot Lupron and still have thick endometrium?
Hi all, I'm new here and need some help if possible. Here's the story - I am 46 and have struggled with severe endometriosis, PCOS, and infertility. I have been on Depot lupron for 4 years and have lately been having bleeding and discharge. I did a hystosonogram and they found a polyp. Went to a new Dr to schedule the…
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Brain inflammation
Has anyone had or heard of brain inflammation from using Avastin?
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Stopping avastin for 2 months
I need to have surgery..torn rotator cuff from a fall 3 weeks ago and oncologist says i have to stop avastin 4 weeks before and 4 weeks after surgery. i am scared about stopping. I've boon on avastin almost 2 years and it has controlled my serous carcinoma. however in the last few months one implant has grown a little and…
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Signing Off for a Few Days
To all you lovely ladies... I'm going to be off the board for several days as I venture across the Atlantic and get myself settled into my new treatment routine. I take with me all of your wonderful wishes, love, prayers and hopes for success. Those alone will give me wings across the ocean. I will try to post here during…