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My surgery Aug 26th
Hi: I had my surgery last Wednesday, the 26th and was home early Thursday afternoon. Fortunately, I had the robotics and the operation went extremely well. According to the doctor he did not see any other cancer cells outside the uterus but we're waiting for the pathology report. He did tell my husband that it appears that…
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Could it be cancer?????
Hi all! For the last few years I have had severe bone and muscle pain and have worried what if it is some sort of cancer. Also, I have had so many female problems- heavy periods, sometimes months at a time of bleeding, pain, etc. My mom was diagnosed with breast cancer last year. That prompted me to make a few appointments…
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Research for USPC
I keep turning over in my mind how we could support research for our rare cancer. My Gyn Onc is married to another Gyn Onc and committed to dedicating their lives to Gyn Cancers. In my imagination I see the two of them on Television promoting awareness; they are both out of residency 11/2 years and eyecatching. But then…
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Remission Scanning - How often?
I am wondering how often scanning is being recommended by your oncologists once you have completed treatment. I find some women have every three months, every six months, yearly and some none at all. I am not sure if there is not a recommended protocol or if insurance is dictating how often this followed once treatment is…
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Mom's radiation
Sorry I haven't posted in a while. My mom started radiation a week ago yesterday. She had to stop chemo in May due to the bone marrow suppression. Now one week into radiation, her platelets are at 97,000 (previously 120,00 two weeks ago). If her platelets continue to drop, radiation may be interupted. It's all very…
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Should my doctor hurry?
First, thanks for reading. I'm 31 years old, I have no children but would like to. I'm scared, I've been trying to find answers with no success. These are my symptoms: I've been having discharge and blood for months now and lately there is some strange pain (not to strong) that comes and goes on different areas of my…
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new residuals damage from surgery-itch-swelling-pelvic hematoma
1 week after 2nd surgery for lymph node removal i ...a pain near public bone at 2 week post-op surgein says it is nothing 5 hours later i am at gyn for a persistant vulva itch.... the itch is due to dryness...no yeast or urinary infectio0n....use hydrocortisone 1% oinment not cream not vagisil.... it really works...i still…
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Update from my Mom's surgery
Hello all... My Mom had her hysterectomy yesterday. They were suspecting uterine sarcoma based on a cat scan report. My Mom has had huge fibroids for years (she's 54), and apparently the radiologist interepreting the report did not know about the history of these fibroids. Whether this makes a difference or not, I don't…
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post hysterectomy/cancer surgery and pain one year later
Hello, My mother was diagnosed with stage 3c cancer one year ago. The docter said the majority of the "cancer" was in her omentum. She had a complete hysterectomy and removal of the omentum. After the surgey the doctor said she still had small spots on the lining of her liver and kidneys. He thought her cancer orginated in…
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Mom having hysterectomy tomorrow
Hi All, Just wanted to say that my Mom is having her hysterectomy in the morning. Me? So nervous. The reason is that she had a suspicious cat scan of her abdomen..they said it looked like uterine sarcoma. I hope it's not that. She does have a history of large fibroids. I am hoping for the best case scenario. My mom is only…
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thign is swollen....why any know
thign is swollen....why any know 17 days ago lymph node removal....
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Uterine cancer can lead to breast cancer
Last Dec, I was diagnosed with 1b uterine cancer, I had a full hysterectomy and 3 brachy treatments,,I am now on Bioidentical hormones and I feel marvelous..except for one nagging comemnt I read somewhere that women who have had uterine cancer are more than likely to develop breast cancer,,I am 60 years old and Life is…
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My Mom has Endometruim Adencorcoma Stage 3c
Hello Ladies, First of all. Thanks very much.You are supporting are each other. so nice to see soo many coments here. I am Kumar living in UK. My mom lives in india. She has digonised stage 3 c Endo Adencorcoma Grade 1. Let me write her Pathology report after surgery Cervix:Chronic cervicits Endometrial growth:well deff…
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What's your 'Remission' style, when you see 3 months of no doctoring stretching before you?
I am trying to guess how I will be as my remission gets 'less new'. It is so thrilling and strange to be out of treatment, and then to have my check-ups, and the next appointments set for NOVEMBER! I am almost giddy with the freedom of having my DAYS returned to me without the constant interruption of treatment…
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radiation..1 time a week internal for 3 weeks (cuff)
just was told no cancer in nodes but i need radiation...this 1 time a week outpatint does anyone know abou it also i can get pelvic fo 25 days... the dotor said how much insurance that it will not come back do i want to do my choice...i always buy the most insurance any suggestions
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Peace and best wishes to all - Pass it forward!!
Greetings Ladies, This was emailed to me. I usually ignore these things but I am passing on to all of you. We are all touching each others lives in some way. I think that if this group of women were ever in the same room there is nothing that we could not accomplish. Make a wish! Now read below... 'May today there be peace…
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Newbie just diagnosed-scared
HI I'm Jamie I was diagnosed last Thursday with Focal well-differentiated endometrial adenocarcinoma. The Dr. seems optimistic she can get it out on Tuesday with a complete hysterectomy and my ovaries. I'm scared-I'm 42. I worry I will grow older overnight-I worry I won't wake up after surgery-I'm worried my husband will…
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Lying to children: a funny true story
My 8 year old granddaughter saw my dilator and lubricant lying on my bed stand this afternoon, and asked "What's this, Grammy?" I answered "It's for my cancer, honey", hoping she'd let it go. No chance. "What do you do with it?" Channelling my own grandmother, (who told me as a child that the big box of Kotex and little…
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info about second opinions
Web MD has a good article about this. Link is http://www.webmd.com/cancer/features/cancer-when-do-you-need-a-second-opinion-and-why?ecd=wnl_can_081809
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Frequency of CT scans or PET scans after treatment
What information have any of you had with how often CT or PET scans should be done once you complete treatment. Every six months? yearly? I suppose we have varying opinions on that too! Diane
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Insurance Denied IMRT
My sister's insurance - Aetna - denied her rad/onc prescription for IMRT since her cancer is listed as Stage 1B Grade 2. Nice! The radiologist doesn't feel that her cancer is acting like a stage 1B and has sent slide to MD Anderson Cancer Center in Houston to review her path. Has anyone else had to fight the insurance…
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SALLY: about the brachytherapy
One other new tidbit I came away with from my appointment with the new gyn-onc: Apparently there are more than one kind of vaginal brachytherapies. I had no idea there were different kinds. My gyn-onc said that I had been given the very latest and least damaging of brachy-therapies. I looked on my appointment sheets for…
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Thank You
Thank you to everyone that has replied to my posts the other day about test results and my posts in the past. Like many others I come on this site on a regular basis and read through the different posts. I find this site to be very encouraging and very informative, and yes sometimes heartbreaking. Even though I believe I…
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My Mom is having a CAT scan of her chest in the morning...
Hello.. Was wondering if everyone could say a little prayer for my Mom because in the morning she is having a CT of her chest to see if she has lung nodules. The surgeon said he wants to rule those out before proceeding with her hysterectomy on 8-25. I just don't want this to delay her surgery. He said if she has lung…
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UPSC and hormone cream
Big post-treatment check-up day for me, with my 1st apppointment with the newly-hired head of Women's Health, and their new Gyn-Onc. He has my head spinning with new information, as he has decades of experience working with UPSC. I could hardly wait to get back and post to run all this by you and get your feedback. First…
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Having lymph nodes removed
I my name is gerr66, i just joined the network last night. I had a hysterectomy a month ago and will be having my lymph nodes removed. My question is to have it done robotically or have an open incision. Anyone has any direction please respond. blessings, gerri
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Heart Problems
Have any of you had problems with both your heart and trying to fight uterine cancer? My sister Cindy (60) has left ventricle dysfunction (the part of the heart that sends out the oxygen rich blood) and her stage 1b, grade 2 cancer has returned to the vaginal cuff and possible the right hip area (lymph nodes, still the…
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Sharing resources. A rotating library!!!
Hi Ladies, What a great resource we are to each other!!!! I think it's awesome - all the info and encouragement that we share. Now I wonder if we can take it another step - a rotating library! Linda sent me the Kris Carr video. I am sharing it with Mimi - then I will send on to the next person who wants it. I also have CDs…
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Questions about my mom
Hello.. My Mom may have uterine cancer according to her Ct scan of her abdomen. She is having a hysterectomy on 8/26 with biopsies, it will be done by a gynecologic oncologist. She said she is shocked by this tentative diagnosis. She has been working full time as a nurse up until 2 weeks ago when she landed in the ICU for…
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Likely Uterine cancer diagnosis for my Mom
Hello All, I really appreciate all of the support this board has to offer. A lot of good information here. I don't know if I should be typing here on behalf of someone else, but I feel like I need some help. My dear Mom, (she's only 54) was just hospitalized for a serious blood infection where she was in the ICU for…