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Ovarian Cancer

Archives for November 2011

Hi, new to this board.
I am not sure yet if I have Ovarian cancer. I had oral cancer and just recently got my 2nd pet scan to make sure it was all clear. The results came back great for my head and neck, but not so great for my ovary. I just saw my pcp yesterday about all the pain I've been in, my lower back, hips legs, etc. She suggested I talk…
need info
My mom who is 71 was diagnosed with stage IV in March 2010. She underwent surgery in April, then went through 6 treatments of carbo/taxol. She had a recurrence in Sept.2011 and started back on carbo/taxol. After first treatment her Ca-125 dropped but kidney function was affected. Since she only has one kidney her…
Ready for Surgery
My mother is scheduled for debulking surgery December 8th. She is 70 and was diagnosed with stage IV ovairan cancer on Sept 23rd. Her CA-125 was 625 then 115 and now 48. She has had 3 rounds of taxol/carbo and responded fairly well. We are not sure what to expect from surgery. They plan to have her go through 4 to 6 more…
Libby's Update (Wow! I have missed alot!)
I have not been on here for a few months. I had no idea Linda had died. I am sad. I have had the same problem. Ascites twice now. Terrible, never had it before. We did go on our Hawaiian Cruise October 17-Nov 1. First week was great but by 3rd day of islands I was starting to feel not quite myself. I had already taken…
2nd recurrence
My cancer returned after 8 months of being cancer free. Just had my follow up appointment with the oncologist after completing 6 sessions of chemo. The CT125 is 8 and the CT scan is clear. The oncologist said that when, not "if" but "when" the cancer returns again, that it will be in a shorter period of time. Has anyone…
Is it rare to have normal CA-125 reading , at 17 or so and still have ovarian cancer?
Is it rare to have normal CA-125 reading , at 17 or so and still have ovarian cancer? Reason being, I have had BC and went to have a check up since I hadn't had a pelvic in years ( due to hysterectomy , though I still have one ovary and one fallopian tube)and was having "symptoms" that scared me. Pelvice was normal as was…
Mom, 74 has ovarian mass "extension" please advise
My mom is 74 and has lost quite a bit of weight without dieting. She has had zip for an appetite. They did a scan on her and found a large ovarian "extension" on her right ovary. She goes on the 30th to a gynecologist. I'm really worried its ovarian cancer. However, it could still be something else right? She has all of…
PREGNANT, JUST DIAGNOSED WITH CANCER
I don't have many details, but my daugther's sister-in-law is due in February and has just been diagnosed via biopsy. I only know it is a gynecological cancer, but don't know which or what stage. Her doctor says baby is doing well, and there is nothing they can do regarding the cancer until the baby is born (C-section). At…
Writing a Eulogy for my Sister in Law
I am sitting here trying to write a Eulogy for my Sister in Law that was taken from us with Sarcoma Cancer. It dosen't matter what kind of cancer they are all so bad. She battled her cancer just over 2 years and was there for me for the last year on my cancer journey. I will probably be here for another 2 hours trying to…
What's up with you, Carlene?
...should I worry about you, our dear Mother Hen? Please just let us know everyone is good with you. (((hugs)))
Symptoms, symptoms, symptons...Maybe TMI
I know that once diagnosed, treated, and found NED, it takes the body a long time to heal. Some incidents though just make you want to run for the hills. My big symptom that I ignored was constant contsipation and painful gas. During chemo and right afterward finishing my digestive system was a mess. For the past few…
Trip to Colorado Naturopath and Eat the dark meat
Hi All- I am rejuvenated after a trip to meet with a naturopath in, Colorado where I had the good fortune of meeting up with Tethys! We had a pre-Thanksgiving dinner together with my daughter who took me from Springfield , Illinois to Colorado. I learned so much from Tethys. I am thamkful to this board and all the…
Dr. Oz had another show
on ovarian cancer and is spreading the word about symptoms..he had a few woman on who saw his show about ovca and they went to get checked.Turns out one did have it and was currently on chemo. The other lady had a crciod tumer and he showed what it looked like. It had a tooth and some hair. There is finally some one out…
No more chemo
Well, we got the bad news today. No more chemo. The onc thinks her tumor load is large enough that it can't possibly do any good for her. Her counts are really bad, hemoglobin and platelettes both down a long way and that's without chemo for three weeks, and having blood and iron. So, we have no idea how long, probably…
Did my speech
Yesterday I did my first ovarian cancer/self-acceptance speech. I spoke to about 40 people mainly girls between 13 to 18 yrs oldalong with their teachers, for approximately 35 minutes and I told them my story and advocated that we all have problems, but accepting what is wrong makes it easier to handle and allows you to go…
Giving Thanks
Had my PET/Scan on Monday and I just got the results today. I was definitely frantic due to all the bad news that I have been receiving. The doctor walked in and said, "Well I get to be the bearer of good news, do you want to hear it". I about fell off the chair. All my tumors have shrunk 30%. Taxotere/Carbo is…
PET Scans?
My sister's oncologist does not want to do a PET scan. He doesn't like them for Ovarian cancer. I was not with her at the appt so I didn't get a chance to ask why. Did you all get a PET scan? Do you recommend one?
Elevated CA 125 opinion is needed
My CA 125 elevated from 11 at the begining of October to 26 on November. CT scan was OK, no recurrence. Anyone had elevated CA 125 in a very short period such as mine? I feel scared, going back at chemo is hard. Anyway, the doctor says that there will be no treatment till a tumor will show up on CT scan.Doctor thinks I…
mum is still rough but we got more steroids today!!!!
Yay , we managed to get some more steroids for mum today , so we are hoping that they will boost her up. She is eating next to nothing and is being sick alot, so hopefully they will make her feel better and give her some fight back , because at the moment she is loosing badly, she is not ready to loose and nor are we , no…
CA-125 update
I had another CA-125 test on Nov. 15. Results today. 9.1!!! Spending time with my kids. Daughter has been here since Friday. Son just arrived a little while ago. First time I've seen him since April. Cracker Barrel is preparing Thanksgiving lunch for us this year! Hope all of you have a great Thanksgiving. Carla
CT-scan on Monday
and I'm really terrified. It's my first in a year (been on chemos for the past 23 months for my first recurrance). I find out the results next Weds. and I'll let you know. Meanwhile I'm going to enjoy Thanksgiving to the hilt! ((((HUGS))) Maria
Starting round 3
of chemo on Tuesday the 29th. Even though I don't post very much I try to stay in touch by reading everyones post. I finished carbo/taxol at the end of May. I had a hernia surgery in Aug. My ca-125 was at 45 from 15,they thought it went up because of surgery. On my next ca-125 test it was 146, I had a ct-scan and blood…
HAPPY THANKSGIVING TO ALL
I know that things have been rough for so many of you. And without a doubt we all have had enough sadness and losses in the recent months to last a lifetime. But as always, there's still something, somehow to be thankful for. As I count my blessings this Thanksgiving (as I do every 'ordinary' day as well), I wanted to say…
Made it to another Thanksgiving
This will be my 3rd Thanksgiving with Ovarian Cancer and although I'm normaly very up and positive about things, every year I say is this my last. Am I the only one who does this? and then there's x-mas I do the same. I am so thankful to still be here and thankful for my friends and family,this board and to the dr's who…
Damn this disease
I got a message on my cell phone to call regarding a person who was in my Living strong/Living well program. It was her cousin who informed me Shiela had passed away yesterday. I am in shock. This was a young women who was so strong and healthy. I assumed she was in remission from breast cancer. I last saw her at our…
CARBO & GEMZAR
Ooops I posted a day or 2 ago and made a spelling error. Thanks for pointing it out to me ! :) I appreciate it. ..... I said I am NOT having a recurrence but I meant I am NOW having one. anyway, nobody responded yet regarding being on the ABT-888 study (parp) but with that , I am on Carbo & Gemzar. Has anybody been on this…
confused and frustrated
i have an appt tomorrow with my oncologist to discuss my disease progression....i will be starting on chemo again. it drives me crazy to wonder if the combination of drugs i will be given will be "the best" or just "the best my insurance will pay for" and/or is still available...in july when i had "suspicious recurrence"…
Avastin
I am on the gog 213 study. I have recieved avastin twenty one times. Part of the avastin infusions were given in combination with carbo, taxol for six times during chemo for a reoccurence last June. Jan 2011 I continued on just evastin. In the GOG 213 trial you stay on it until there is a reoccurence. I am the only one…
energy
I finished my first taxol/carbo and the neulasta and had no idea the shot would make me hurt so much later because my sister who had non-Hodgkin's lymphoma had the shots and they did not hurt her. She finally let me in on the fact that she was on morphine at the time. I was taking ultracet but finally had to start percocet…
anybody on PARP - particularly ABT-888 ?
Hi, I was dx with stage 4 primary peritoneal in june, 2009. I did IP chemo - taxol & cisplatin. I was in remission for almost 2 years and am not having a recurrence. I started the PARP trial a few weeks ago. I am on the ABT-888 trial. I get carbo & gemzar and will start taking the abt/parp pills very soon. Just wondering…

Ovarian Cancer

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