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Ovarian Cancer

Archives for August 2011

Number of rounds of carbo/taxol
Hi ladies. My mother has completed 8 rounds of carbo/taxol. 3 pre-surgery and 5 post-surgery. Her CA125 was very high pre and post surgery. 40,000 pre-surgery down to 977 post-surgery then back up to 3,000 when she restarted chemo. The carbo/taxol has been decreasing the number. It's now down to 172. It still seems to be…
Pep talk for all
Just wanted to say my sister who had ovarian cancer as of right now has beaten the odds. I can't remember when she was first diagnosed due to my fibro fog, but it was stage 3. She received chemo and then went to a doctor in Atlanta and received heated chemo. Thus far, this has worked for her; as of now there is no evidence…
naturopathy
Has anyone had any experience with adding elements of naturopathy their chemo program? Has it mitigated the side effects of chemo at all?
It's GO GO time!
Well, I arrived safely in CA on Sunday, did the pre-op check in today, saw the gyn/onc (Dr. Miracle Worker) got my meds for when I discharge, and most importantly the GO GO Lightly! My sweet SIL is here with me and we have been having a great time chatting for 2 days as we are running around from pillar to post. Tonigt I…
can you feel the gas pedal
when you drive? I haven't driven in quite a while and I am kind of nervous now as I still have some neoupathy and sometimes I almost trip down or up a few steps. I feel like such a klutz. I am going to a wedding soon and I want to wear a nice strappy shoe with a heel but I don't know...but I think I shall..the worst I can…
Upcoming Run/Walk Events to Break the Silence....PLEASE THINK ABOUT ATTENDING ONE IN YOUR AREA!
Upcoming Run/Walks September 2011 09/10/2011 - Run/Walk to Break the Silence on Ovarian Cancer - Delaware Valley Chapter Memorial Hall Philadelphia, PA Register here. Learn more 09/11/2011 - Run/Walk to Break the Silence on Ovarian Cancer - Massachusetts Chapter Marine Park, Day Boulevard South Boston 09/11/2011 - Walk to…
Herceptin with Upsc
Have been on Herceptin with upsc for over 1 year.no reoccurance. Should I stay on it?
Doing All I Can to Put the Word Out About Ovarian Cancer Through Videos Now!
It's been a while since I've been on the boards and now that I'm back it's still shocking to see so many new names/faces dealing with ovarian cancers. For those who do not know me, I decided to take a break from the board at a time when we seemed to be losing so many sisters in this fight. It was overwhelming and I felt so…
But I don't feel sick...
I was very sick before I had my surgery in May. I've tolerated the chemo well overall (I've had 3 treatments). Anyway, some family members will say "you're sick." I don't feel sick! I'm up and about, feeling better than I have in several months. I know they mean well, and are just concerned, but I don't feel fragile! :)…
Clinical Trials
Here is a website that might be of help to some or all. www.clinicaltrials.gov/show/nct01068509 There are locations in CA, FL, Georgia, Indiana, New Jersey, New York, NC, SC, Ohio and Washington. I will be getting into the clinical trial at Stanford. The vaccine is called MUC1 Dendritic Cell Vaccine ( CVAC ) Phase 2 Hope…
To Skeeter and Karen
Hi ladies, I've accessed both your blog sites today and have bookmarked them to follow along. Thank you for setting these up and giving us insight into your respective cancer journeys.
Insurance drama
On Wednesday I finally went in and quit my job it was hard to do but I knew I could not work while I was fighting this battle. I worked for five years as a house manager for adults with mental handdicapps. I loved my job and the four ladies that I took care of. Before quiting I applied online for our state health insurance…
Encountering more ovarian cancer patients and a survivor!
Yesterday while in Kroger, a lady came up to me, pointing at my hat, and said "My hair used to look like yours." She said he was 73 and diagnosed with ovarian cancer (stage 3) in July 2010. She ended her chemo in April. She had a nice hair of head. She was so sweet. The other day a friend called to check on me. She was…
Earthquake and Hurricane
Earlier this week, in Maryland (USA) there was a 5.8 earthquake and will be getting a hurricane this weekend! Both are rare for this part of the country. Although I nearly peed my pants during the earthquake and annoyed about the disruption hurricane will do to normal life....I have two more things to add to my list of…
FSH Level too High and please advise me
Hello All, Most of people know me here and My mother was diagonesd in may 2009 with endo adenco stage 3 c grade 1. she had finished chemo in sept 2009. she is in remission with grace of god. In april her ca125 was 7. she went yesterday for her exam. Doctors has ordered her FSH test. Is it test for cancer. Her level come…
Bleeding 6 Months After Surgery
HI EVERYONE! I know you all are a VERY close knit group of ladies with lots of support and great advice and words or encouragement. I do read up on here from time to time. My mom is a fighter also...she is on the boards as well. She introduced me here as I am so thankful she did! I like reading about each and everyone of…
Topotecan
I've been having bloating recently so I had my CA125 taken and went to see my oncologist. My numbers are up from 122 to 1,467. It is so strange because I don't actually feel unwell and where I usually get fluid around my lungs they are currently clear. Anyway I will be having Topotecan. It is a weekly cycle where you have…
Austin 5K Run/Walk
I am going to Austin for the Ovarian Cancer 5K Run this weekend and plan to walk are there any other ladies planning on going? Mona
Vein Pain
I just finished chemo 4. My HEM/ONC raised my dosage of Tax/Carb because he said I tolerate it well. I am disapointed that after my 3rd chemo that my CA125 only dropped 1 point from 13 to 12. My blood counts also have not dropped much. I thought that was good, but ONC said they want to see some drop to know it is…
Ovarian cysts may not lead to cancer
Ovarian cysts may not lead to cancer: study NEW YORK | Wed Aug 24, 2011 5:25pm EDT NEW YORK (Reuters Health) - Finding ovarian cysts on an ultrasound scan isn't a cancer sentence for women who are middle-aged and older, a new UK screening study suggests. Women with so-called "inclusion cysts" weren't at higher risk for…
my mother is giving up
my mother was diagnosed nearly 2 years ago.she is 54. at the begging she was broken but after she had surgery her courage grove up and she believed she is going to be fine .we been true a lot of bad days and good days. chemo is working very good but in past few days she started to feel worse and we are going to see doctor…
Short Remission
I guess I just need a little pep talk. In June I had a clean scan and the dr. said I was in remission. Since then my CA125 kept going up so I had a scan last Friday. The scan showed some small growths in my abdomen and there are 2 enlarged lymph nodes. The gyn/onc wants to do a needle biopsy on one of the lymph nodes. My…
DISTRESSED AND UPSET
My mom has stage 4 ovc and really doent think she wants to go though chemo just to die anyway. Does anybody have any ideas how to keep her hopes up? she already went though surgery and is recovering well but still is unable to eat and is regaining some fuild again. 2 more weeks for chemo, any sugestions in keeping her…
Kelly33
I have been thinking about you and your family. You have many friends here who are concerned about you. If you can drop us a line and let us know how you are doing. I know this is a very difficult time,,you are in my prayers...and your mom is not forgotten..val
THIS IS UNFORGIVABLE
http://health.msn.com/health-topics/cancer/cancer-drug-shortages-getting-worse-fda-says-2?gt1=31036 As discussed here earlier, some cancer drugs are on 'short supply'. As I read this article I was disgusted at the flimsy but very disconcerting excuses - 'misprints on drug label', 'contamination'. Who's policing this branch…
Learned something new from my eye doctor today
I love my eye doc! Besides being a brain cancer survivor, he is so compassionate. I asked him about a side effect I have been having from cisplatin/gemzar. I've been noticing that for about a week after infusion, I think I see shadows/shapes/etc. out of the corner of my eyes. He told me that your eyes get there blood…
CA-125 Results
Well, my number had oh so slowly been inching up this year from 1 in January to 4 in July. I had resolved myself to the belief that it was correcting itself to a more normal level. Now, it is back to 2. I am still doing integrative treatments of IV vitamin C, although less frequently than in the past, diet, exercise,…
partial bowel obstruction
On Monday, I thought was going to die from pain in my upper stomach. I knew right away that the bowels were doing something weird. I went into the doctor, and he confirmed that I had a partial bowel obstuction and said I could see if it resolved or go into the hosptal. I leave on Thursday (today) for Seattle and then to…
Pet/Scan ...Not so good
Well I got the results from my PET/Scan that I had done on Friday. The one tumor has grown from 6cm to 9 cm (on my liver) and there other spots that appeared on my upper left chest area. I had been on Avastin alone and previous Pet/Scan had showed it was working. So now I had to choose a different cocktail. Choices were…
Great book!
In case anyone is interested in reading a fascinating, gripping history of cancer, get "The Emperor of All Maladies," by Siddartha Mukherjee. My oncologist suggested it to me, and I loved it. The author is an oncologist and the book is up for a Pulitzer.

Ovarian Cancer

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