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Tesetaxel: Oral taxane chemo
This drug is still in clinical trials but it was fast-track approved for gastric cancer: Tesetaxel is a novel oral semi-synthetic taxane. The drug stabilises microtubules, inducing potent cytotoxicity in a wide range of tumour cell types. Certain taxanes have been approved by the FDA for the treatment of breast (BC), lung,…
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I found this quote that I believe was written for us
"When the Japanese mend broken objects, they aggrandize the damage by filling the cracks with gold. They believe that when something's suffered damage and has a history it becomes more beautiful." I love this quote; it makes me feel like a valuable Ming vase. Karen
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Genetic tesing ?
My oncologist wants me to be genetically tested. Since there is no family history he doesn't believe it's genetic. My sister's gynecologist says that it's important for me to be genetically tested. I also have a 20 yr. old daughter. My sister is almost 42. My question is this, how is this paid for? Do insurance companies…
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My T-shirts came today :)
for the July 4th, Teal There's a Cure walk/run that's held in my hometown. My husband had them printed for me. They're teal with TEAM FISHKIN on the front and a huge 5 on the back for my five year survival anniversary. We got them for the granddaughters/sons/daughter-in-laws/chemo buddies/friends and of course for us.…
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Why did I get a disease that usually hits Caucasian women from 60-64? I am only 32
I am 32 and I was 31 when I was diagnosed with a cancer that is common in Caucasian white females between the age of 60-64. I am 32 African American female. What happened???
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Love for Lena
My Mother is a 38 year old mother of 6 boys including myself. She was first diagnosed with ovarian cancer while in the hospital giving birth to my youngest brother, now 2 years old. She is a strong woman, and has put up one heck of a fight considering the extremity of her cancer. The cancer has spread to her back as well…
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My first chemo day went great!
The nurses were unbelievable! Each one was so pleasant and kind. It was a very relaxed atmosphere. I took carbo/taxol. I arrived a little after 9:00. I got back home about 5:00. I saw the dr. following my chemo. I had my pet scan results from last week. Two lymph nodes in my lower back were cancerous. However, he said he…
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paris11...
I just saw your reply about NWestern. My mom had an opinion early on with Dr. Shenk (SP?) at Northwestern. He was fantastic. She couldn't be treated there because of her insurance at the time. She goes to Rush and sees Dr. Rotmensch. He is known to be one of the best (perhaps THE best in the area). I know someone who lived…
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Another Taken
My mom is now gone and lost her battle with this horrible cancer. She went very peacefully and was not suffering or gasping for air while dieing. If I had it to do all over again, I would do it in a heartbeat. Even though it only took a few minutes for her to go home, I could not bring myself to pull that vent off of my…
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How much is "a few more weeks" worth to you?
If you read Sarah Feather's blog (the Carcinista), you will recall that when her doctors had "the talk" with her, they said Taxol might buy her "a few more weeks." Sarah had vowed, after losing her hair three times, that she would not "go out" bald. Thus, she declined the Taxol. What would you have said? Would you have…
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Tomorrow is my first day of chemo. Getting REALLY nervous now...
I had my port put in this morning. Kinda sore but doing fine from that. I just keep letting my mine go places it has no business going, like "what if the chemo doesn't work... " I guess that's normal. Just wish I could relax about things. Thanks to all of you. This board is such a blessing.
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CA 125 way up :(
Hello Ladies, Mom is on her second/third line treatment. She did 7 rounds of carboplatin and 13/15 weeks of a clinical trial. April 21st she started Doxil. June 16th she had her third infusion. Today Mom had a CT scan which of course we don't know the results of but we suspect is not working. When Mom started this hellish…
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Peritoneal message board
Yipeeeeeeeeeeeeeeeeeee we now have a Peritoneal messaging board :) It is lovely to have this messaging board so that all the people with either PPC or secondary Peritoneal Cancer can go to for specific help, support and advice. I understand that it will run on a trial basis so the administrators can gauge how popular it is…
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When does hair loss start?
I started the Tax/Carbo on Thursday of last week. How long does it take to lose hair? I dont plan on allowing it to fall out all over the house and around town. So the first sign i will shave it. SOMETHING I GET TO CONTROL. What is the average time?
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Just Finished
my 2nd round of chemo of carbo/taxol. Had 18 weeks of treatment, taxol weekly and carbo with taxol every 3 weeks. I did ok through treatment except my last 3 treatments of carbo I had a allergic reaction, so my last carbo was given in the hospital to give to me slowly, it took about 10 hours. My CT Scan showed no sign of…
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How reliable are the predictions for the outcome of standard therapy in randomized phase III studies
Estimation of expectedness: How reliable are the predictions for the outcome of standard therapy in randomized phase III studies (RP3) in epithelial ovarian cancer (EOC)? Meeting: 2011 ASCO Annual Meeting Citation: J Clin Oncol 29: 2011 (suppl; abstr 5036) Author(s): V. Castonguay, I. Diaz-Padilla, L. Wang, A. M. Oza;…
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Mom in ICU
My mom is in the MICU. She has had pnemonia, fluid on the lungs, and minor heart attack. I guess they re-staged her at Stage 3, but she was staged at 4 to begin with. Doctors do not see any hope. I can put a feeding tube and breathing tube in mom. The doctors do not think she can ever take chemo again. Her lungs are weak I…
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Counting the ways we count the days
From what point do/did you start counting your remission? My doctor wrote in his notes at my 4th month of chemo that I had "no evidence of disease." Presumably because my CA125 was normal. By that reckoning, I am 18 months NED. BUT....I started maintenance chemo immediately after completing my first line treatment. And…
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PARP as a maintenance drug?
I am currently on a PARP trial after being declared platinum resistant after my first round of IV chemo. I have been on this trial for a little over a year. My doctor has been watching a tiny spot on my CAT scan that has remained unchanged all this time. I finally talked my doctor into a PET scan and the scan came back…
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Check list for first chemo treatment Tuesday (28th) Do I need anything else?
I went to Wal-Mart this morning. I bought a large bag (on clearance) to put all my belongings in. neck pillow, have been to library to get a good book to read, bottled water, chips, I plan to take a Subway Veggie sub with me, my meds. Am I forgetting anything? Oh, also a change of clothes. With IBS one NEVER knows. Thanks…
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How do I access the chat?
When I clicked on it at the left of the page, it was just blank. Do I need to download something first? Thanks.
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Wishing for...a LazyBoy
Was away from my office for one week due to chemo, and returned on Wednesday. Been cheerfully working, busy and productive, but just now "hit the wall" and took a discussion board break. And now, I will plop on my office floor and take a short siesta, using a roll of paper towels for a pillow. Wishing I had a comfy…
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my worst fear has been confirmed today :(
Christ although I knew this was coming my fear has been confirmed (I just was kinda hoping it would be ok) The cancer is spreading :( . Doxil is failing mum. I just can't believe it. Mum is home from hospital now and has the district nurse coming in everyday. When she told me this afternoon , we shed tears , but she said…
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Chemo and Advil side effects
It's been awhile since I've been on this website. You have been so helpful and reassuring to me that I now have a question that might sound silly. I have arthritis in my legs and at times the pain is terrible. My Dr. knows this so it really never entered my mind that taking cisplatin and cpt 11 may cause some leg pain. I…
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Is this a symptom of menopause?
I had my surgery on May 18. I'm 48. I am hungry ALOT!! Is being this hungry a symptom of menopause? I know that a lot of women gain weight in menopause. Thankfully, so far so good, no hot flashes or mood swings. However, I realize those could follow later. I am on Zoloft (well generic) Anyway, I recently read (perhaps on…
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Git it done and over with
Ok, so the hair in the unmentionable places started going first. Last night, I noticed that the hair on my head was shedding way more than usual. I kind of lost it. I had a mini mental break down. I found a hair cuttery place that was open after 7 pm and off I went. My favorite gal was done for the night and I did not want…
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My mom has just been diagnosed with PPC.
I live in NC and my parents are from Mo. My mom just retired a little over a year ago and she has been looking foward to enjoying life without having to work. She has been ill for the last few months and we all thought it was from a lap band surgery she had about 3 years ago. My parents have been traveling back and forth…
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First Chemo today.....SCARED advice please!
I was diagnosed with OC IIIC in early June. Surgery on June 8th. Pre-OP CA125 of 1150. Post OP CA125 down to 141. I start the Tax/Carb chemo in a few hours. Everything seems like a blurr. Thanks to my new insomnia i have found this message board and it is nice to know that so many others have hopeful stories. I hate the…
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CA-125 Screening Over Time: Early Detection Hope
This story from Time, features a study volunteer named Liz Stegall. "The most widely used test to detect these tumors is a blood test known as CA125, which picks up proteins that are common to ovarian growths. But the blood levels of these proteins also rise in women with more benign conditions, including pregnancy,…
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Fast heart rate?
My sisters heart rate has been in the 140's since her surgery. It is supposed to be between 60-100. And, she has a fever of 101. They are doing blood cultures and a chest x-ray. Did any of you experience this after your surgery?