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Neulasta blues....
Emily, 27 I am about to get a full hysterectomy and bladder surgery Tuesday the 25th. Due to my low white blood cell counts (3.1) my doctor gave me a shot of Neulasta- I feel more weak now then ever. My back and neck are in extreme pain, sore throat, and a headache out of this world. “which is worse – my heartbreaking…
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PET/CT vs CT
I am wondering why a PET/CT is not the choice diagnostic tool when monitoring for recurrence. A PET/CT caught my recurrence early. The CT portion showed all clear but the PET portion showed hybermeatabolic area. On my most recent PET/CT, the CT portion showed my primary recurrent spot to be IMPROVED but the PET portion…
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got my news from doctor today you won't believe this
URGENT PRAYER REQUEST DOCTOR JUST CALLED MY WHITE COUNT IS STILL VERY LOW AND HAS DROPPED A LITTLE LOWER . DOCTOR IS GOING TO GO ON AND ORDER PET SCAN AND SEE IF THE CANCER IS GONE, HE SAID I MAY NOT NEED ANY MORE CHEMO. PLEASE PRAY ALL CANCER IS GONE AND I AM HEALED IN THE NAME OF JESUS AND THEY WILL FIND NOTHING ELSE…
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HELLO
SORRY I HAVEN'T BEEN ON HERE MUCH.WHEN I TOOK CHEMO BACK IN 2001 FOR OVARIAN CANCER,I HAD REACTIONS TO THE CHEMO.WELL AFTER ALMOST NINE YEARS,I'M STILL HAVING A REACTION.WHEN I WAS TAKING CHEMO,I FELT LIKE SOMEBODY HAD POURED A BUCKET OF ICE IN BOTH MY FEET.WELL GUESS WHAT??I'M STILL HAVING THOSE SAME FEELINGS IN MY FEET.I…
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Recurrent Ovarian Cancer - 4th time
Hello. Would like to hear from anyone that has had a similar situation. I was diagnosed in 2003 with stage 2c Ovarian Cancer. I was 38 years old. Surgery and carbo/taxol was done. 4 years later, in 2007, I had a recurrence. Again, carbo/taxol. I went into remission until 2009. carbo/taxol again. Again this year, another…
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Touching base
Hello all. I'm writing to say that it's been two years and three months since my wife Linda finished treatment for a recurrence of ovarian cancer. Her health has been good and she's walking and exercising and most importantly, working in the garden she loves. We have one child still living with us who's finishing up…
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How do you
how do you set your settings where you can visit with friends on here
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Another great survivor story...
I don't remember if I posted this story or not....she was diagnosed at Stage III C in 1997, went NED, then had a recurrance. She is still going strong, 13 years after her diagnosis. My mother, Susan, was diagnosed with stage IIIC ovarian cancer. She had surgery in July 1997 and for the first time that I can remember, I saw…
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What should I do
I have someone on facebook that keeps sending me e mails abut i am going to die from the chemo, it is poison and will kill me etc. I have written telling her this upsets me and please do not tell me this kind of stuff again, did she listen?? no, i got an even worse one this week telling me since I am so skinny and frail…
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Galactorrhea
Hey ladies! Just curious if any of you experienced something called galactorrhea. It's when the breasts release fluid from both breasts. I'm still going through the testing phases to figure out what is going on inside. I had an MRI in December because I was having frequent headaches in addition to the fluid. Mammogram…
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Checking in
Just checking in with you ladies. I have not forgotten you, just don't feel like getting on the computer these days. I am improving but it is very slowly. I have to make a trip to Dallas, weekly, and that is 330 miles one way which leaves me exhausted. My incision is a 4"x1.5" open and has to be packed with a dressing…
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Back to Onc/Gyn past Wednesday
I did go back for my scheduled appointment with my onc/gyn Wednesday and let her know what Dr. Copeland from The James Center had said (previous post). She told me that she had not sent me there to change doctors only to get a second opinion on the sensitive bone marrow! But she also told me that besides me she has one…
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How do you know
I went to the Dr and got my cat-scan results. My fluid around the lungs has cleared but the cancer is still in a few spots and hasn't improved nor is it worse. I do have some cells around the liver but not on or in it. We decided to stay on Doxil for 2-3 more rounds. I just had my fourth round done Wed and called today for…
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Results from latest CT scan
Just thought I'd share my good news with you all. I finished chemo on March 26th and have just received my results from the CT scan I had a few weeks ago. My Oncologist Consultant phoned me at home to say it was good news. (I have PPC so my cancer are cells lining my abdomen) All of the cells have shrunk and some have…
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Germ Cell/Yolk Sack Ovarian Tumours
Hi, I just want to offer to people out there suffering from the above my advice or my experience (as someone who has suffered from and beaten this) and answer any questions you might have about what you are going through if I can possibly help. I wrote a website about my experiences here: www.linkinachain.bravehost.com But…
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LisaQ
How are you? I've been thinking about you.
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Pathology report/Post op notes
Hi everyone. My mom is 55 years old and was diagnosed with ovarian cancer in March when a tumor was found in her upper abdomen underneath a prior incision from gall bladder surgery. She had a hysterectomy 4/13, and spent the next 3 weeks in the hospital. She has other health problems (diabetes, heart disease), and is…
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Concerned about pelvic ultrasound report
I was dx with breast ca in Jan. stage 1 no lymph node involvement and just finished radiation. I had been having a lot of pelvic problems-bloating, severe pain, constipation, diarrhea, nausea. So before starting Tamoxifen for the br ca I had a pelvic ultrasound. The results concern me. I have a right enlarged ovary which…
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Mothers update in Indiana
Hello all, My mom was rushed to the hospital yesterday before her dr. appt. She had pain (from dramomyiosis) and was so weak. She was slightly dehydrated and low blood pressure and low oxygen level. She is at a great hospital which the amulance took her to (not the local hospital). Thank goodness. My father is so glad she…
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New member introduction
Greeting all This is my first post but I have been here almost every day reading the board since February 2010. I find this to be the most caring and informative board I have visited. In February, I had surgery for ovarian cancer. I have serous papillary ovarian adenocarcinoma stage 3c. I thought I was handling everything…
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Can anyone use these?
A number of my friends have signed me up for free hats from a variety of groups, web sites, etc, or in some cases, purchased and sent me hats, scarves, etc. I really appreciate their thoughtfulness. However, some of them don't fit (I have a very small head), and some just aren't my style. If anyone would like one or more…
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Not Such Good News
Spot on Liver....not in it...on it....whats the difference? I totally didn't understand what the doctor was saying...She does not want to do chemo just wants to watch it as concerned that chemo would be too rough on my mother right now...wants Mom to have quality of life and since the cancer isn't causing any problems,…
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Maybe good news
Saw doc yesterday, he thinks one of the pills prilosed maybe causing my blood to drop like it has, he said he has never saw any ones blood do like mine has done. he told me to stop taking the pill. get blood drwn monday so please pray all levels will be up. Yhey have come up some but not alot, although it wsa enough he…
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CA125 rising, should I be concerned?
Hi Ladies, 'Went to the Doc today for my four week check-up before chemo(I am doing maintenance for a year after the initial carbo/taxo.) My CA125 is low. My baseline was pegged at 5. This may seem low, but my original CA125, in the thick of things, was "only" 300. WELL, each visit, it seems to be going up a point. First,…
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Number of Chemo drugs for Ovarian
Surviviors, My mom is in the beginning of txt (going Wed to discuss options) and I just wondered when it came time for chemotherapy, are there a lot of options?? 10, 15, or 20 different drugs?? Just trying to "keep up the hope." Blessings to All of You, vicki
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I'm Back
Hello Ladies Yes I know, I vanished again.....sorry for that. Well another emergency trip to the ER a couple of weeks ago. I really thought that this was it for me, I couldn't breath and if the paramedics didn't get there when they did, I"m not sure how long after I would have been able to hold on. But I'm here! The fluid…
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Cancer numbers is now 9
my ca 125 has gone down to 9 now blood is still struggling to come up, see doctor tomorrow
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PET/CT results
Well, after 5 infusions of Doxil, it was decided I should move on to something else. The PET showed increased uptake in the areas on my colon. I have a new enlarged abdominal lymph node. Overall, the scan isn't bad and the areas on the colon are still small. The disease is not spreading quickly. The CT really didn't show…
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Stage 4 ov, also breast cancer diagnosis
Hello survivors, my mom, age 68 young, diagnosed 3 weeks ago with breast cancer and 2 wks ago with stage 4 ovarian cancer (I think there is a connection here), her breast oncologist said it was non operatable, but my father took her to gyno oncologist and he will operate on 5 -26. you inspire me. I have read and copied…
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LisaQ
How did Mom make out?