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Immuture Teratoma
My 17 year old daughter was taken to the hospital on August the 5th with what we thought was an appendistis. had been complaining of pain in her left side for eight months prior to that date. On the 6th they removed a 6 1/2 pound 9 inch diameter immuture teratoma from her left ovary. Then on Sept. 18th she has surgery…
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Low Grade Ovarian Cancer
Hi, I was diagnosed with Stage 3A low-grade ovarian cancer (micro-papillary serous carcinoma) in September, had an optimal debulking surgery (total hysterecotomy) and started chemo at the end of September. So far 3 rounds down, 5 to go. However, low-grade ovarian cancer supposedly means that it grows more slowly than the…
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removed from clinical trial, need help
Hi- I'm currently being removed from a phase 1 clinical trial due to low white blood cell counts, I no longer meet the criteria and neulasta is not helping. I am at a point where I will most likely seek another opinion outside the University of Chicago. Just wondered if anyone knows of the top three hospitals/docs that…
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feeling really down, may need more surgery.
I don't post here very often, or even reply to others posts, but I've come to know that your a wonderful and caring group of ladies. You support each other and try to give advice when you feel that you can help. Bless you for that. I'm going through a rough time now, I had the double hernia surgery, laparoscope and…
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good news so far on CA125
I know can't get too excited, only first CA125 after starting on the carbo/gem (had cycle 2 on the 23rd) but the number came from 459 down to 283 so is an encouraging start. Better than what the Doxil did for me. I did great with first round, now this one my hemo is down and my whites but he said was still ok for…
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Happy Thanksgiving
Just wanted to say Happy Thanksgiving to all! I am so thankful for each of you as you have touched my life in a specail way, so today I give thanks with a joyful heart. :-) Prayers ♥ Hugs Bonnie http://www.youtube.com/watch?v=hg7eiuY7RU0&feature=fvw Give thanks on thanksgiving day Had to add this youtube connection ...…
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Wings
My mom will be getting her pair of angel wings within a matter of time. Whenever the Lord decides to take her, and for her to feel no pain. And she will see the land of where her father is and be happy to be with him. Chemotheraphy is not working for my mother. She has been battling on since May of 2009, when she was first…
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Mother-in-law passed away.....am I to blame?
My mother-in-law would have been 90 years old in the spring. She had lived with us for the last 6 years. She had been having problems with her heart (CHF) for the last year or so - very tired all the time, short of breath, and she passed out several times. While I was in the hospital in Oct she was ill for several days. I…
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To Nancy707
Hello Nancy707, I don't know if you remember me, but you were the first person to talk to me when I discovered this discussion board. I just wanted you to know how much that meant to me. I was in the middle of chemo treatments and very scared and depressed. I am so very happy that you are doing well. I was the stage 2B. I…
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bowel obstruction surgery
Hello Ladies, 'Just returned from two weeks in the hospital after emergency bowel obstrction surgery due to scar tissue. I had been battling symptoms for months and had undergone many negative tests. 'Had three trips to the ER, when they could not find the cause. I am scared to death as while I appeared to have "worked" in…
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Waiting for more tests
I had a abdominal and a transvaginal ultrasound last week due to post-menopausal bleeding after 3 years. The results came back showing 2 cysts on my left ovaries and thickening of my endometrial lining. December 8th I go back for an abdominal ultrasound again as well as a sonohysterogram (sp?) on December 9th. I am…
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Edwina lost her fight
I was searching for things about my friend Edwina/MsEddie when I found she had posted on this board. I'm sad to tell you that my dear friend lost her battle with ovarian cancer on Monday, 11/16/09. Edwina woke up with terrible pain on Thursday and went to the ER. It turns out that she had a perforation in her bowel or…
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Stage1, Done with Chemo H1N1?
I know this topic has been out there already but I have some concerns. I had a rare form of ovarian cancer (germ cell tumor) Just finished Chemo. Have a great doctor. He recommended both the flu and H1N1 shot. I never recieved the flu shot before. I am going to get the flu but I'm very concerned about the H1N1.. below is…
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Not sure and scared
Yesterday my PCP gave me the results to my pelvic ultrasound perfomed on 11/18/2009. A large simple cyst in my right enlarged ovary. "Worriesome" Adjacent complex cyst component measuring 2.4 X 2.1 X 1.9 per flow with the periphery of the ovary....I have had pain on my right lower abdomen since last year but the Pelvic…
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Need help - Mother has been in remission since 2002 and it seems it is back
Wanted to know if anyone had an experience like this. My mother was first diagnosed with the disease in 1997 (Stage 3) and when they found a 10 pound tumor. They removed it and she had a hysterictamony (sp?). Followed up with Chemo and she was cancer free. In 2002 we found a tumor in her agrenogland (sp?). Same process and…
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anyone have normal ca-125 but have ovca
I am new here. I posted on Lung Cancer too, I have a noncalcified lung nodule too. I have a 4.6cm mass on my enlarged ovary (4.7cm) I know it coud be much larger. I have only one ovary left, it is adhered to the top of my vaginal cuff and possibly bowels. It is mostly solid, with some septations. I am 45, premenopausal,…
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Hello fellow survivors - update
Hi All - I finally got my results of my CTs and the news was not what I would have liked. Besides an enlarged lymph node in my pelvis, I also have a tumor in my spleen. My Oncologist gave me a choice ... I could go directly back on chemo (carbo/taxol gave me 3 year dancing with NED) or I could elect to have surgery and…
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Phenoxodiol
Hey Ladies, I was just on the Web MD website and there is a video on this drug that helps cancer resistant chemo to start working again. If you get a chance, go to Web MD and check it out. If you have already heard of this, please disregard, I may be behind the times a bit. Love, prayers and blessing to all Sheila
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Just been diagnosed and scared
Not ever done anything like this before but I have been drawn to reading as much as I can find out about ladies who have been diagnosed with the same cancer as me - Primary Peritoneal Cancer. I will call it the beast as I have said before since I learnt of my diagnosis I feel like a beast has invaded my body. I went to the…
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waiting...
just got my CA125 back, it's 22, they said top of normal was 20. waiting for my pelvic ultrasound... the waiting is difficult. Not sure how worried I should be. Really not sure what to do right now. I'm just sitting at my desk, trying to work... but just stunned. in shock.
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Everything
Lots of things need to be considered for my mom. It is about my mom - it has. I got a call from the social worker about my mom's procedure today. It did not go well. Nothing could be done. But the doctor wants to do more. He wants to keep trying until they get it in her intestine. the social worker mentioned to me about…
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Mom's in Hospital/question about cisplatin
Ok, today was a bad day. Mom had first go round of chemo last tuesday and Wednesday. Taxol Tuesday/ Cisplatin Wed. This only 4 weeks after her surgery. She felt awful. We just figured it was the new chemo. Today she woke up, fell, and fractured her shoulder. Also, according to my sister she was not thinking very well).…
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Mom VERY recently diagnosed
Hi everyone, I'm so happy I found this site. My mom went to the ER last Tuesday with swelling in her abdomen, which a CT scan revealed to be ascites. They drained 5 liters of fluid from her, and after testing the fluid and taking a second look at the CT scan they diagnosed her Friday with cancer, most likely ovarian or…
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Night Sweat Lady...again
Hi my Darlings Well it was a real sucky day today. Our little sweet **** cat got hit by a car and consequently she died. It was more the reaction of my little Meghan that got to me more than anything else. I didn't really have time to mourn cos all my energy had to go towards trying to console Meghan, and crazy, the first…
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Gemzar
I visited my mom today. She appears to have lost more weight. She has lost all the leg muscle that she had built up this past summer. I spoke with a nurse today and she said that my mom will be put on Gemzar, along with the Carbo. What exactly is that? Are there any common side effects? How long does it take to infuse into…
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Doxil seems to be working for me
Hi everyone, haven't updated in a while so thought I would check in. I just received my third doxil infusion last week, and also had a CA125 taken. Yesterday I went in to get some more cream for my mild rash, and the results of my CA125. It was down again. So, it is too soon to celebrate, but doctor says it seems to be…
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Recommended screening?
I have a risk factor / screening question regarding Ov Cancer: When I concluded unsuccessful infertility treatment (in 2005..?) and diagnosed as "Unexplained" infertility by my Dr(s) I asked if I should now get some additional screening since my ovaries had been through so much and no pregnancy achieved to give them "a…
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Hello fellow survivors
Hi All, I've been a "lurker" on this board and have gained so much strength and support from all of you. I finally decided to join the blog in hopes that my story might help someone else. I was diagnosed 4/2006, while undergoing an emergency operation for a hernia. When the surgeon opened me up, he suspected that I had…
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Staying on carbo
I met with a difference gyn/onc yesterday as mine was in an emergency and could not fly to my hometown. This lady is great with nutrition and I enjoy seeing her (two times now). She suggested that I continue on carbo given at slower rate and premedicated two days prior with steroids since it is working so well for me. Left…
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Dr. Barbara Goff to Discuss Ovarian Cancer on "The Dr. Oz Show,"
Hi Ladies, Thought you might be interested in this.... Dr. Barbara Goff to Discuss Ovarian Cancer on "The Dr. Oz Show," Wednesday, November 11, 2009 Tune into "The Dr. Oz Show" tomorrow to watch SGO/GCF member Dr. Barbara Goff discuss the warning signs of ovarian cancer and what women should do if they have these symptoms.…