Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Lymphoma (Hodgkin and Non-Hodgkin)

Archives for May 2012

Endoscopy Results
I finally got the results after 13 days. I suppose it took so long because of the holiday. I really don't believe that?? Anyway, all 5 biopsies are negative. I was starting to think, if there were a problem, I would of heard early on. Still, it is better to hear the results asap. The Gastro doctor is very good, and has…
How to post a clickable link
I put a document on the Recipe Project site that shows how to create a clickable link on a discussion board or message on CSN. Just go to the site and open/download the pdf document titled "How to Post a Clickable Link" Recipe Project - How to Post a Clickable Link on CSN Also, there hasn't been much activity as far as…
Shingles Vaccine
Hi all. I was just catching up reading the thread on Dan's latest challenge with his relapse after his SCT(best wishes Dan). Some were commenting about recommendations for the shingles vaccine. I am curious too. I have had about 15 episodes of shingles since I had Hodgkins Lymphoma in 1989. This past year I had 5 cases.…
hi everyoune out there! can anyone help me look for an answer.?
hi everyone! i am ja from the philippines. i was diagnosed having HODGKIN's LYMPHOMA 2008 and had my 6 cycles of chemo for one year which ended feb 2009.. and until now i haven't had my menstrual period since then. im dying to know if i can possibly have it back! i am 28 now. and have this heavy pressure on me not to get…
Constipation?: NHL
I've got B-Cell NHL and have completed my 1st treatment of R-Chop. My 2nd is June 6th. So far the symptoms I can handle but I have constipation that doesn't seem to alleviate. Per doctor's suggestions I have used: stool softener, magnesium citrate, enema, Senokot and am now trying out prune juice a few times a day. So far…
Finally off prednisone!
My doctor sent me an email over the weekend and told me that I can finally stop the prednisone. Yippee! Seems like I have been on it forever, and I'm not convinced that it did me any good at all. I had an actual, real dinner tonight - not yet another plate full of asparagus and spinach. I've been so afraid of gaining…
Survival Statistics
I was diagnosed with nodal marginal zone lymphoma last year. Both Oncologists I am seeing tell me I have a chronic condition that is not curable but is treatable. I've seen several different survival statistics and wonder which ones are the most current????
Yesterday
Hi guys, I forgot to mention, I never received the results of the endoscopy this Friday. The results didn't come in yet. Yesterday, the weather in New York was good. Therefore, we had the BQ as planned outside under a shaded tree. Gotta go. My friend just called she's back in the hospital from the dog bit. bye. Maggie
Mantle Cell Treatment with Bendamustine @ Rituxan
My husband has started treatment with Bendamustine and Rituxan for mantle cell lymphoma. He had an enlarged spleen, bone marrow and colon involment . After 1 treatment the spleen has reduced in size. Unfortunately for his second treatment his WBC's were to low hopefully next Friday. Has anyone else been treated with this?
OT- Graduation pictures
Hi All I have posted some photos from my daughter's graduation and party. She received a Master's Degree in Social Work! They are on my expression page.
Memorial Day
Hello everyone, I hope everyone will be enjoying this weekend. I also will remember all the soldiers, and the soldiers who came home so disabled from both wars in the middle east. In my opinion, and my mom's words so long ago, there will never be peace in the middle east. Forgive me for my negative thoughts. The weather in…
Coming off prednisone
I'm going nuts. Feel anxious and nervous. Sore. Anyone experience this while weaning off. Down to 10 mg every other day. Then off by Wednesday
BEAM
I am scheduled for a BMT but will first need 6 days of BEAM to kill my bone marrow. If anyone has had this type of chemo, can you tell me how it made you feel? I am a little nervous about having it from what I have heard and read, so I would like to hear from someone who has gone through it... Thank you
Have a nice Memorial weekend!
Just wishing everyone a great and safe Memorial weekend. I don't have a lot planned - going to visit a friend on Sunday - he heard I can cook - LOL ☺. Hugs and good wishes, Jim
CT Scan and Blood work up scheduled!
Going to have my 1 year CT Scan with a FULL Blood work-up. CT is scheduled June 6th and I have to have my blood drawn next week with 16 hr. fast. The Cancer with 12" of my Bowels being removed made me border-line Diabetic. Sugar level hovers around 130 with 1 glipizide 5mg a day. A little worried about the scan, have been…
Memorial weekend..
Hi my peeps, :) Just wanted to wish everyone a safe and happy Memorial weekend. I'm headed to my Aunts house in Klamath Falls Oregon tomorrow morning. She has cancer, so I go twice a year to help her around the house getting various projects done. Usually go in the spring and then again in October. This trip my oldest…
Im finally getting my port out after 2 and a half years, what to expect, im nervous!
Hi, I was diagnosed a few years ago with Hodgkins, it was early unfavorable because of the size of the mass. I still have some of the tumor left and am still doing PET scans,was every 3 months now its every 6 months. Im a little nervous about getting it out, but anyone who has had it done before any insight on what to…
Prednisone
What side effects have you experienced with Prednisone ?
Maggie is scared
My doctor ordered an endoscopy for me because of low iron counts. I finally went May 16. Rather then explaining each finding, 5 biopsies were taken. I will get the results hopefully this Thursday May 24. I think to myself, what now????? Please keep me in your prayers. Love Maggie PS if anyone wants complete details I will…
Platelets - is it wrong to worship them??
My platelets were at 18 when I was first diagnosed with marginal zone B cell lympoma on 4/13. Hard to believe it has only been a little more than a month ago! I'm being treated with Rituxan and Prednisone, nothing else for now because I also have ITP (an autoimmune disorder) that was diagnosed at the same time. The ITP…
new to this n confussed bout what been told :(
well around last august time i was sent for xray cause of a cough for 3months that shown lumps on my lungs as he put it which he said he though was sarcoidosis so had ct scan n 3montly scans which all shown same everytime specalist has always said sarcoidosis also n explained id need sample took n told me if i choose he…
Bendemustine, Neulasta and Me
Hi, Well this was my first week of treatment. This is hard. Had Bendemustine Wednesday and Thursday with my shot of Neulasta yesterday. Have typical symptoms I think. Swollen still from Iv,I'm quite sure my eyes are in my face somewhere!, have some wierd redness on neck (nurse checked it yesterday, blamed it on steroids)…
Carol News
I got a message from Carol yesterday (5/16). I responded and wanted to share with you guys. ================ Hi Carol, I'm sorry you're having these problems. Chemo caused constipation for me big time. They gave me senokot during treatment which helped and I learned to start taking that the day before my treatments…
no chemo
no chemo this week, my platelete are still low my dotor put on 2 prdonizones a day for it which i don't know how that would bring up my platelets,but i felt to bad to even to talk to him about anything. i hope everyone else is good and sue lizzy is so cute i can;t believe shes a y. ear old blessings denise
5 Day Hi-Dose Pred. OK?
I am starting chemo tomorrow R-Chop. One of the pills the dr wants me to take is Prednisone 20mg. BUT she has me prescribed FIVE TABLETS (total 100mg) for five days and then I am off it completely. Then when I have chemo again in 3 wks I will be prescribed do that again. Does that seem abnormally high to you or have some…
News!
Hi Everyone, Well went to my oncologist today and got my test results. No amyloidosis! Thank God for that! But lots of information today. I'm a bit overwhelmed. However, my hemolglobin is a bit low and several nodes are up. The biggie is the bone marrow though. I went from 10% to 50% infiltration. So needless to say…
WHERE IS EVERYBODY???????
EITHER EVERYONE IS TAKING A LONG WEEKEND OR YOU ARE HAVING TROUBLE GETTING ON THE SITE.
HAPPY MOTHERS DAY
Happy Mothers Day to all you mothers out there.Young, old,in between and to the ones that are going to be mothers someday.The majority of our group are female so this is for you. Oh,Hey guys don't feel left out you all know we are a bunch of mothers too. LOL
Virus or something on this site??
Did everyone see and read the posts from linxi????? Also, right after an advertisement for coats???? I hope our computers are OK?????????? Maggie
Possible Lymphoma with redness in both eyes
Hi, My mother currently has a mass on her right breast. The doctors performed a biopsy on the mass and found some B-cells. They are suspicious of lymphoma. She went in and received a CT scan of her chest to pelvic area and did not see anything abnormal other than the mass. She's going to receive a 2nd biopsy on her right…

Lymphoma (Hodgkin and Non-Hodgkin)

Discussion List