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Opdivo and Low Sodium?
Has anyone experienced low sodium levels with Opdivo? My Mom has had 7 doses of Opdivo and was hospitalized yesterday with low sodium. She is improving with IV's. Has anyone else experienced something similiar? At this point we do not know if it's related to Opdivo or something else entirely.
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Social Security Medicare
My husband’s insurance will end at his company at the end of June. Please let me know if anyone has Social Security Medicare. If you can point me in the right direction on If to apply, when to apply, how to apply. How much does it cost? What plan option did you choose? Are you happy with it? How long did it take to get? He…
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Been gone awhile
Hello Everyone, Ive been gone awhile from this sight. I needed time to be away from the cancer thing. Sort of a denial I guess. I wanted to give you an update on me and my son. I have been NED since my last scans (Feb). I'm coming up on my year mark here in June. Lately I've been struggling a bit with what I hope is just…
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bulge
Its a year since i had my surgery so far so good the only problem i had is the bulge i have its the size of football may be smaller we scand the area six months ago no herein and the surgent said its the price you have to pay.... any had this problem please share your experience i still have the feeling of tender and the…
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NED once again!
Hey, all, Another 6-month follow up in the books, another NED in the books. Looks like Uncle Ned will hang around through the summer. They said everything looked good with kidney function and everything else. I'll take it! - Jay
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Sutent has run it's course
Two and half years of good Sutent results may be coming to an end. Today's scan shows lung met growing fom 7mm to 10.2 mm in six months. Several new bilateral 4.5mm noldules although I suspect they are the same ones that were reduced by the Sutent in the past and noted as " too small to measure ". You would think the…
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Reassurances and a few suggestions needed
Hi all, I had my first visit with the RCC specialist oncologist today (2 weeks/3 days post op - full radical nephrectomy) and he has suggested that I start on Votrient rather than Sutent due to the 'kinder' side effects, the grading and aggressiveness of the cancer. Start of treatment is delayed until Monday as Voltrient…
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RAPN-my experience
Had a robot assisted partial performed on me 3/23/16. This is my experience. Surgery day was pretty scary but once in the hospital the staff really helped ease my mind. My family stayed in the pre-op room with me and met the doctors. I got the magic cocktail and was whisked away. Seemed like no time had passed and they…
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Starting Sutent again.
I was suppose to start my treatment with Sutent 3 weeks ago but because I had a blockage in my windpipe it was delayed. So far I have had 8 radiation treatments on my windpipe and 7 more to go but they are gobng to start my Sutent on Monday because my breathing as gotten a little better. (I think) I am still worried about…
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Initiation
I’m taking icemantoo’s advice and elaborating a little on how I handled the ‘initiation’ into this club and some other thoughts. It’s taken me a little while to move past the surgery and come to terms with the cancer diagnosis. I think you all can identify, and maybe someone will be encouraged by this post (sorry, it's a…
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Opdivo test back
I got my first test results back from Opdivo use, it was not good news. All of my tumors grew and more formed my ONC suggested that we give it another cycle and see what happens, this based on information given to him by Bristo Squibb Myers, but we are all skeptical it will work. I am part of a phase IV study so that is…
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Really new but catching up quickly
Hi all, I hope that it is ok that I post here. I am an Australian living in Singapore. Forty-four year old Mother of two adult children, who live in Australia, and have been recently diagnosed with kidney cancer. Less than two weeks ago I went to the doctor to ask about a lump in my side, the next day I had an ultrasound…
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Footstomper, where are you?
We miss you and hope you are doing well. Hugs Jojo
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Doc 99.9 percent sure my sis has kidney cancer.
I have a sister who is 59 years old has been sick for several years in and out of the hospital with lung diease. At Thanksgiving time she started to say she was having pain while breathing, short version, a new doctor she went to had an MRI done and noticed a tumor about the size a large muffin, come to find out the…
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gout
here is a new one I don't remember seeing here. Last week while doing minor yard work, my right knee swelled up significantly. Unable to put weight on right leg. Very painful. I was very confused as the integrity of my knee structures appear unaffected. Yesterday I realized that this may be gout. I'll get blood work today…
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Officially 5 big ones!
Curiosity just had me check out some of my old records. It is official. March 12, 2011. Diagnosed with kidney cancer. Nephrectomy march 15th. Nothing but a barrel of laughs ever since. Still can't get that damn song out of my head. Although it has changed from a tune by the phantom of the opera played on a harpsichord in…
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New here/surgery Coming up March 28th
Hi! I've been lurking on this board as I waited for more information about my own situation (if I don't join, it can't be real!!). Found incidental complex cyst back in August, followed up in Feb and it had grown. MRI showed enchancement, etc. Went to Urologist who then sent me to different hospital (in Boston) for…
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Happy St. Paddy's Day to all!!
Anyone having a nip or two......or twenty of Jameson's, or the like? Slainte!! (pronounced - slan cha) That's Gaelic for "cheers" or "good health"......more importantly, good health. Donna~
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Solid Kidney Mass @ 25 years old.... ALM? RCC?
Hey All, Thanks for accepting me onto the forum - i've found reading your posts extremely helpful as I wait for more tests. I'm hoping for some insight/others experiences/ advice on some news of a mass in my right kidney. I had 2 ultrasounds which found: 2cmX1.7cmX1.2cm - Homogenously hyperechoic renal mass, suspected to…
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Good News to Share
I got my scan results today and happy to report NED. It's been 14 months since my last tumor was discovered. I definitely felt relieved. Today I asked my doctor if we could relax the scan schedule. I'm getting a chest/abdomen/pelvic CT every 3 months now. Have been since my last tumor 14 months ago. He said no. I asked him…
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crazy question about stitches
So, its been exactly 4 weeks since my partial lap. I had a two week followup with the surgeon and he said everything looks good and I have to come back in 3 months. When I was there I showed him that there was a stitch sticking out and he said thats ok. They are now rubbing against shirts. I assumed it would dissolve and…
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Howdy
It has been a while since I have been on this site. I see we have several newbies and I offer my welcome to all. To the rest of the group, HI! In February I had my third major back surgery in three years. This was by far the most complex and the hardest to recover from. I am getting there but it is slow going. That,…
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How to Post Pictures
Hey, guys, I've gotten a couple of questions on how to post pictures inside the post here on CSN. It's not very user intuitive, so I'll go step by step. I would recommend opening your post in a new tab on your browser so you can switch back to this one for reference. 1: The picture must be online already (like on Facebook,…
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New to Forum
Just a quick good morning to everyone. New to all of this and looking forward to learning and contributing.
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Newbie Here....venting/feedback
Hello, I am a 52 yr old, widowed mother of 2. I just joined the message board last night in need of people who can relate to my story. I started going to the doctors in June 2014 due to a terrible pain on my right side. Went to a GI Dr. In Dec 2014, thinking it may be my bowels. He asked me "what is going on with your…
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Scans in 1 week
Hey, all, Been a while since I've posted, but I have been reading and keeping up with the times. Just been very busy with Jake, who just turned 4 months old on the 2nd (pic below). He's been doing great with his clubfoot treatments; he breezed through the casting and tenotomy surgery and is now wearing a boot/bar brace 23…
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New here
I had my right kidney removed one month ago. Open nephrectomy, clear cell, 4 cm., stage t1a, grade 2-3/4, unifocal, limited to the kidney. I realize how lucky i was that it was caught so early before it had a chance to spread.. i wish i had found this site sooner, there is lots of good information here.. I have a few…
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Damn scanxiety!
I have my three months chest/abdomen/pelvis CT on Wednesday. The anxiety is starting. I really don't care for the 1 week wait between the scan and seeing my oncologist. I was spoiled before. Used to I'd get scanned in the morning and see him in the afternoon and get the result. Three things really bothering me of late.…
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chemo before Sutent
I was wondering if any one started on a different chemo treatment before using Sutent? I was to start treatment last week but because of a rapid heart beat and now I have to have radiation for a tumor on my windpipe I don't think they can use Sutent at this time. They think the radiation will stop the rapid heart beat…
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Surgery Yesterday
Hello, I had my robitic partial nephrectomy yesterday morning. They were able to spare 85% of my left Kidney. I spent the night in the hospital and was released a few hours ago. Unfortunately, I was not able to empty my bladder. So, I was sent home with a catheter. I'll get the catheter removed on Tuesday. I'm sore and I…