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Head and Neck Cancer

Archives for August 2021

Cannot eat/drink anything at all
Hi My mother a breast cancer survivor is suffering from esophagus plus pyriform sinus cancer. She had the 3rd Radiation yesterday and now she cannot eat or drink anything. It looks like to her that her throat is totally jammed. Please give us some idea ok how to handle it. Thanks in advance.
white spot on tongue
Hello, my name is Janice and I am a bit nervous about a painful, white spot on my tongue. I have just noticed this yesterday while working. It hurts and I am constantly rubbing it against my teeth. It is extremely sore. I am wondering who to seek out regarding this. I am thinking of seeing ENT, but am unsure. I am no…
Help
Hello, My Name is Robert I was told by a clinic doctor that he wanted to skip to getting a pet/CT scan cause I have throat cancer and we need to see if it has spread, long story short, I have no insurance and can't seem to find anyone here in Florida that can seem to help me to get the emergency Medicare, I am 57 yrs old…
This Just In
I JUST RECEIVED THIS TODAY in an email from HNCA (Head and Neck Cancer Alliance) It's a free film you can watch on laryngectomees that overcame their issues and sang concerts. It's available to stream: Sep 9th - Sep 18th and you can see a trailer video now. There will also be a Q&A By registering for the screening, you…
Has anyone had radiation to their head and neck area TWICE?
My husband had head and neck cancer 5 years ago and had chemo and 35 radiations. The cancer is traveled to the other side and now we don't know if he will even qualify to get radiation in the opposide side. Please share if you have had an experienc like this. Thank you,
Neck pain and headaches?
Anyone experiences headache and mild neck pain/tenderness 4 years after NCP radiation? I'be been heaving mild headaches, more noticeable on the right side of my scalp but also on the left and at very top of my scalp. I'm bald so i joke about my scalp feeling cold when I get sick. :) but I have been noticing this for the…
Ongoing appointments
I skipped mine. I know, I know, but I am all hospitalled and doctored out. If I never see another it'll be too soon - not just cancer, blew my left knee, and my right hip is bone on bone - which I WAS going to get taken care of so I can ignore it till it hurts again, but my son fell climbing and has .. wrecked is a nice…
Liquid Mucinex thru feeding tube?
Hope I'm doing this right, please bear with me. I've searched previous posts on this, just can't find the specific answer. I'm 3 sessions from the end of my radiation treatments for cancer at the base of my tongue. My biggest problem with side effects is, like many here, thick, nasty mucus!! My radiologist suggested…
New cancer on the opposite side from 5 years ago
OK>..We know we have tongue cancer on the left middle area of the tongue....and we know we face a glossectomy and flap. BUT I am afraid he has more than we know as he is having the same ear, temple, estation tube, trouble swallowing, and jaw ache that he had when he was diagnosed in 2016. This just hit me and now I'm…
Five Year Post Exam
Five Year Post exam today. Clear. NED. I do not feel like I "beat" cancer. I think we fought to a draw, and I hope to avoid a re-match. I started Stage 2, SCC +HPV-16. I received 35 IMRT, and 5 Carbo Taxol. I was scheduled for 7, but by the end was so beat-up we decided to rely on just the radiation. I started at 235 lbs,…
partial glossectomy with radial forearm free flap
We got the call we had dreaded today. After a squamous cell carcinoma tumor in the spring was removed and we thought all was well we have now have a reoccurance in the same part of the tongue. Next week we will go to Siteman Cancer Center in St. Louis, MO for a soft tissue CT and a PET scan. Soft tissue CT on JULY 8 of…
Made my choice for treatment
So, I de ided before meetung with radiation Dr today, that I will go with Rads and Chemo for 7 weeks. During my meeting, the Rad Dr advised that surgein said during tumor board duscussion, that he felt that gking the surgery route would shiw that they could nit get clean margins, si he advised rads and chemo would be a…
High Protein & High Calorie drinks recipes,
Hello to all needing the extra nutrition , ! These are rather basic, with no exotic type ingredients . They were in fact given to me by the Nutrition dept here, way long before my cancer, because I have had a strictured esophagus and trouble swallowing long before cancer. My doctors knew that my Radiation treatments would…
How often do you get imaging done for nasopharyngeal cancers?
Hi everyone! hope all is well. I haven't posted for a while. I hope everyone is doing well. My dad has been doing great. I'm curious how often is CT scan normally ordered for nasophangeal cancer 3-5 years post treatment if you don't have symptoms? it's been about 4.5 years since dad's last treatment and it seems like they…
Radiation Residuals
Hi, Hubby is almost 5 years past his last H&N treatments. He had chemo for 8 weeks and then 7 weeks of chemo and 35 radiation treatments. now he seems to be having some pain that we think might be from the past radiation. temple headache, ear ache, pain into estation tube, jaw pain, and most recently trouble swallowing. He…
Base of tongue cancer
I myself have been battling cancer in throat since 2013, had a billateral neck dissection, a few years ago I had a ulcer come up on the base of tongue and after consulting my doctor I was told that this was just an ulcer, well after about 4 months they finally did a biopsy, and found out that I had cancer on base of…
Maintaining nutrition during cisplatin therapy
What did anyone do to maintain adequate nutrition when you had cisplatin therapy And the loss of taste due to it. My boyfriend may be undergoing it again as follow up to upcoming surgery. He had a g-tube put in the first time around mainly due to radiation effects, but this time radiation not an option. Hoping to avoid…
Deciding between 2 treatment options
So, I met with 3 Drs yeaterday. Chemo, Radiation, and ENT. After the meetings were over, We walked out with 2 options to pick from. Surgery by TORS to remove tonsils, follwed by removing swollen lymph nodes in neck along with radiation, with a possible Chemo backup if lymoh nodes appeared ruptured. Or, Chemo and Radiation,…
Taste is wacko & dry mouth - my 1st post
I am a new cancer patient and have been reading up on some posts within the HNC Board. Back in January 2021, I was diagnosed with & had surgery to remove a metastatic melanoma cancer of the anterior neck lymph node along with some oral squamous cell carcinoma. Four weeks of radiation and started immunotherapy every 2 weeks…
tips please for TORS & neck surgery.
Greetings. I'm having TORS on the base of the tonque and regular surgery on the top lymph node(s), just under the jaw bone - both on the right side on 8/24/21. They have yet to confirm the primary and are going exploring on the base of the tongue. Squamous Cell + HPV. This will be in Seattle at Swedish and then any…
Summer Flowers
Around the house. I hope everyone is enjoying God's Blessings of summer's bounty of fresh vegetables and lots of flowers and birds. Wishing a happy rest of the summer to all you folks. Wishing You The Best-Take Care-God Bless-Russ
Immunotherapy for esthesioneuroblastoma recurrence
Hi, My boyfriend has a second recurrence of esthesioneuroblastoma that is a new tumor , nickel sized, located between his nose and eye. Drs offered the big surgery taking out the eye, some bone and tissue with then a flap put in place for the hole . They offered hope that this would stave off another recurrence. Then the…
using cpap after neck surgery
greetings all. i'm glad to have found this site and am just starting out. Dx'd with Squamous Cell - HPV +. Lymph node just below my right jaw joint is swollen. Scans and visual can not find a primary. On 8/24/21 i have surgery, TORS for base of tounge where they think their maybe a microscopic primary and regualr sugery…
Any mid 20 year olds??
hey y'all!! I was 23 when I was diagnosed in 2020, I am finished with treatment and am now 24!! This may sound odd, but I Was curious if their were any other 20 something year olds on here that were looking for a cancer friend?! I feel like I haven't really been able to relate to many people in my life lately, which has…
Zoom meeting for HPV Negative head/ neck cancer patients
Hello forum, Today August 1st I spent over an hour on the Phone for n a Zoom meeting. Tony is an attorney going through HPV Negative HNSCC,, and he contacted SPOHNC ( Support for People with Oral and Head & Neck cancer) because he wanted more information. Specifically, he became very aware that the Research he found…

Head and Neck Cancer

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