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Head and Neck Cancer

Archives for July 2017

Chemo didn't work
So we went in today for a repeat scan for my dad. Chemo hasn't helped at all. ☹️ So his oncologist seemed to think since chemo didn't even shrink it that radiation wouldnt help at all and would be way too much to put him through. we actually miss a treatment last week because of how sick he was and he has been hospitalized…
Tongue biopsy scheduled... very nervous
I officially have a biopsy scheduled for August 7th which seems like forever away. My dentist found a white patch on my tongue. I have been a smoker off and on for 9 years so I know I shouldn't be surprised but I am. I'm only 27 and I have a 4, 2, and 1 year old to think about. The patch on my tongue is very small, maybe…
Do humidifiers help at night with dry mouth?
Getting ready to start my daily rads next week and i'm trying to get everything ready. I'm wondering if a humidifier on my nightstand next to my bed might help with dry mouth? Amazon has a well rated Honeywell for basically 50% off right now - making it $18. Anyone try a humidifier? If so, thoughts? Thanks!
mm
I had PET/CT 2 weeks ago,all clear .I now have growth on tongue 2 weeks later .Is this possibly cancer?
Long time no post... but I'm back!!
Hello all, i hope everyone is having a good summer. It's muggy here and we've had record flooding. But otherwise it's been a great summer. We visited my MIL in Florida in June, had my nieces wedding in July and the new job starts soon. We've been busy! My husbands been doing really well. His CT scan was great and the two…
Recovery regarding TPN and feeding tube
My husband is one week out from treatment for tonsilar cancer. He had 3 treatments of Cisplatin and 7 weeks of radiation. He has both TPN and a feeding tube. I am wondering if anyone else has had these as well and what to expect long range. He presently cannot swallow.
Four weeks post treatment
Today is my 4 week since treatment. I had 7 weeks of chemo and rads. Cisplatin once a week and 35 days of rads. Healing and recovery has been slow. Hard to measure any daily improvement. More like weekly or even monthly. The string mucus has subsided. I still have phlem in at the back of my throat. Not too bothersome. I…
1 year out, and 4th NED
Just to give hope to others who are unfortunate to join this group, I had my 4th three month checkup and received the all clear. I was told that I could now switch to every six months. Was happy about that, but then got scared that I'll be waiting much longer to get checkups. Still, I do worry about the number of Ct Scans…
4 weeks post treatment today
4 weeks post treatment all signed back to my ENT consultant who will see me on 7th September for a follow up appointment. Energy levels returning well running every day, off to arrange a back to work medical with the company doctor back to work on Monday hopefully. Everything appears to be almost back to normal for me…
Struggling to Adjust to Life After Treatment
I'm a 43 year old male who was diagnosed with stage 3 squamous cell carcinoma 11 months ago. Non-smoker, not a user of smokeless tobacco, negative for HPV, only a social drinker - came out of nowhere. Had a hemi-glossectomy (removed 2/3 of tongue) and removed 5 lymph nodes along with free flap replacement from left arm to…
How do I get an order for a suction machine?
Mornings are the hardest. I know I have to eat something but I'm not hungry. First off I have to brush my teeth and scrape all the mucous out of my mouth. Then I go downstairs and put 4 oz of water down my PEG tube. Now it's time to decide what I am going to try to eat. Today I took a few bites of scrambled eggs and drank…
Vocal cord cancer
My Son in law has cancer of the vocal cords. He has had three surgeries - two biopsies came back clean, but the third one came back with the "C" attached. His surgeon feels that the only way to save his voice and rid himself of this cancer is by using the KTP Lazer. After the first two surgeries, their insurance kicked hem…
Support needed!
Hi all, I'm about to start week five of seven of radiation for SCC HPV+ to the left tonsil which spread to a couple of lymph nodes. Ive had a radical tonsillectomy prior to treatment starting. I've had one round of cisplatin but was taken off that due to hearing loss in the high frequencies. My chemo doc put me on Erbitux…
Still losing weight?
So, hubby's pet scan was NED. ENT follow up yesterday was excellent. His blood work looks good. He's eating very very well. But, he is still losing weight. To the tune of about 10 lbs in since completing treatment 3 months ago. This is on top of the 40 lbs he lost during treatment. I'm concerned but no one seems to be. I…
Salivary Duct Carcinoma
Hello, my name is Hannah and I am newly 26. I live in CT and work as a children's outpat clinician. I was recently diagnosed with stage 1 salivary duct carcinom...I start 6 weeks of daily radiation next week and I'm feeling pretty nervous about it...I had my treatment planning session last week and left feeling pretty…
Truebeam
anyone know anything about this form of radiation?
Long-term impacts of head and neck radiation
In January 2013, I was diagnosed with Stage 4b base tongue cancer. I had an inoperable tumor and involvement of lymph nodes on both sides of my neck. Tests proved my cancer was not HPV related. So I underwent 7 weeks of Cisplatin along with 35 radiation treatments. In July of that year I was declared cancer-free and just…
NED doing the dance
NED////// Had pet monday and results yesterday///all was clear in my neck.wow what a relief.I have a few things they want to check out but told me they thought all was still going to be okay.Thanks to everyone on this site as you all gave me hope and help guilde me through the tough times Dennis
Suggestions to get through with no PEG tube
My husband just finished his 4th cisplatin & 15th radiation, half way there. He doesn't have a PEG tube. His throat hurts, he has no appetite and everything tastes horrible. But we are going to try to get through without the tube. Does anyone have any diet suggestions? Or other suggestions....
how to help my husband through this ?
hi everyone, i have been reading a lot of the posts. IT sure does help hearing how others are dealing with this ugly thing Cancer!!! My husband was diagnosed with oral squamous cell carcinoma HPV positive N16 i think, its all so confusing. Anyways they said no surgery and 7 weeks radiaition and 3 big bad boy doses of…
Deemed medically unnecessary by Insurance
One year and one month ago I had nasopharyngeal tonsil cancer removed along with 39 lymph nodes and two glof ball sized neck masses. I chose unconventional treatments against Dr's orders. At my 3 month PET scan all looked great, surprised the doctor with energy and activity. All following visual inspections at the…
Throat Cancer Blog
Hello. My name is Drew. I was recently pronounced cancer free after being diagnosed with tongue and throat cancer late last year. It has been a hell of a roller coaster ride, but I am happy to be on the other side of this finally and looking forward to the days ahead. I built a blog some time at the end of January to…
Severe Leg Pain After Tongue Biposy
Anyone else experience severe leg pain after being put under for a tongue biopsy? I had my biopsy on Friday around 10:30am. As of right now (Sun at 11:20am) both of my legs, from the knee down, are extremely fatigued when I get up and walk. When I sit still they feel normal. When I try to walk it feels like I did after my…
Oral Symptoms; Looking for Insight
Hello all, I've got a series of oral symptoms that I'm concerned about, but feeling super confused. I've tunneled my way through the Dr. Google archives and decided to post here in the hope that this community can help me gain some insight. I'm experiencing a variety of oral symptoms that, if they were isolated, I wouldn't…
sinus issues
im about 1.5 yrs out of treatment for stage 4 tonsil cancer. i have continues post nasal drip, congestion and now sinus headaches. anyone have similar experience post treatment?
Fatigue/weakness
Is it normal to feel super weak all the time? I am so fatigued all I want to do and been doing is lay in bed all day. It is tiring for me just to do something simple as showering. I am so weak feeling when I get up and moving around doesn't make it better. It is hard to go up 2 flights of stairs my legs are so weak, also…
ELEVENTH TREATMENT TODAY
Worst day yet. Nausea so bad all I could get down was a bowl of chicken noodle soup. My family doctor's office called today to see how I was doing. I told the nurse that I had horrible nausea and could not eat. She offered to call in a script for nausea but I told her I had an appointment with the Oncologist today and that…
Can't breathe, just cry
VCU Massey has a patient portal, where appts, and results are posted. I had a CT scan last friday, and I was waiting for the results to post. It says that - FINDINGS: The left tongue base enhancing mass has decreased in size and now measures about 8 x 13 mm. Enlarged metastatic nodes in levels 2 and 3 on the left have also…
Ground Glass Opacities
Has anyone had a new finding of ground glass opacities in the lung on the post-treatment PET scan?
Conflicting Information
Hello all. I'm glad to be here. As you can see from my moniker, I am the support person for one facing SCC, which was discovered when calling attention to a swollen lymph node at his long overdue yearly checkup on 5/5. I find myself highly suspicious as he faces the decision as to which treatment to choose because of…

Head and Neck Cancer

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