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newbie questions
I've been recently diagnosed with HPV SCC. I first noticed the lump in May and after tests and specialists I recieved the diagnosis about 3 weeks ago. I'm starting to get over the overwhelming hump with good info and great forums like this. One question I had is my mass has gone up and down twice. Right now it is the…
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About how long till taste buds return?
I cannot tell you how much I miss eating. Been feeding with peg tube since week 3 of rad. Fortunately my last rad is tomorrow! It's been super hard watching tv seeing all these food commercials or driving by my favorite restaurants, I crave so much. I completely lost my sense of taste from rad and chemo (cisplatin) I know…
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Dry mouth?
Though I am still dealing with mucositis and thick mucus in my throat I've noticed that my dry mouth has gotten worse. My tongue is so dry and my mouth will stick because of the dryness. I tried biotene but that only helps a tiny bit for less than an hour. I try to sip water but with my excess mucus still causes me to gag.…
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Getting first biopsy for septum nasal symptoms. need advise?
I am scheduled for my first nasal biopsy on my spptum inside my nose. Very scared. What to expect afterward. My lesion is very small with dryness and crusting around since February. i am worried the doc will miss it and I will have to have more than one. Did anyone have a first biopsy that came back negative? How long did…
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Squamous cell cancer of the nasel septum
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NED
During our road trip back from our 12 week post treatment PET, we got a call. The scan shows no CANCER. There is something new in the lung that needs to be followed up on but they repeated several times that it was not cancer. Plus, we ate out after the scan and he ordered food and actually ate it. If you have had a…
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10 years after radiation
It has been 10 years since my radiation therapy for tongue cancer. I still have horrible burning pain in my mouth with so many different foods and toothpaste is excruciating. Also, I have constant sore throat and earache. Does anyone else have this?
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Annual Scan - NED
One year down ..... one year anniversary of surgery (4/20/16) followed by the completion of 33 radiation and 6 chemo treatments (7/15/16) for Stage IVA tonsil cancer. PET scan performed yesterday with NED results given today. Still have various side effects to deal with but I will take this news anytime they can dish it…
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NED! Happy dance!
We feel like we're dancing on air. Of course, hubby will have to continue with follow ups and repeat scans but right now there is a lightness in our home that has been missing. Hugs to all!!
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Cancer of the nasel septum inside the nose
Is there anyone who has had this very rare cancer? I have many of the presenting symptoms but also symptoms can vary between people. What were your early symptoms? How long did it take to get a diagnosis? What was your experience with this cancer or other cancers of the nasel septum or nasel cavity? Did you get a biopsy?…
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Gross Tongue
So I'm three months out from rads and chemo, and noticed that my tongue is still coated with a whitish/tan film. I've been brushing my tongue, but hasn't really helped. It kinds reminds me of algae, looks like I could pull it right off, but it is attached. Anyone else have a similar experience, and if so, any tips for…
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Vitamix
Maybe I am the only person who did not know this but just in case there is some other uninformed caregiver or patient out there, I wanted to be sure everyone knows that Vitamix offers a medical discount for famiies who need to blend food for medical reasons. There are some hoops to jump through and your options are limited…
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A very Big Day
I just returned from my final visit with the ENT, got scoped, poked, prodded, gagged and just about every other 'pleasant' experience you can have with a follow up visit and the good news is that everything is 100% normal ...and... I'M DONE with having to go to regular follow-ups. I crossed the 5 years since the end of…
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Need help
so 10 days ago I was told I have vertigo when I went to my GP. from all thats written, I do have it, BUT, thats not whats making the world go black whenever I stand up for more than a few minutes, or raise my arms above my shoulders. I cant take much more, I really need this under control. Im almost out of PTO/Vac/Sick…
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PET post treatment
We got the info today that my husband's 12 week PET will be Thursday. Send positive thoughts our way. He still has a clearly visible residual node. Hoping we get clear results.
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PET scan tomorrow, results on Tuesday
And I am as nervous as a long tailed cat in a room full of rocking chairs.
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Taste - Post Treatment
So, I am now 13 days post treatment. Everything seems to be healing well. I think I may be one of the lucky ones, as I have been seeing signs of improvement for about a week now. my concern is with taste. I've had no changes regarding my taste... still taste nothing! I was reading some posts and have become confused as to…
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Need nausea med that does not cause constipation
Looking for a recommendation for a nausea med that would not cause constipation. Just finished my first week of radiation and have had nausea since day one but it is getting worse and lasts all the time. I see doctor Monday but don't think he will be helpful. He says it is not from the radiation. Trust me, it is.
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Preparing for Radiation Treatment - What worked for you?
I get my treatment plan next week, based off my recent CAT and PET Scans and HPV testing of needle biopsied material (SCC Base of the tongue with swollen nodes - no surgery at this point) I assume my treatment will start about two to three weeks from today. I've already been told it will be a combination of radiation and…
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The whole Natural medicine thing
Every now and then this site gets me thinking about something and I end up going for a dig. Today, why actually is "recovery". First stop - placebos. It sort of plays on the positive mental attitude thing. I'm personally sort of sceptical - wishing away my mucosites didn't have much affect; end of radiation treatment, and…
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Time from Diagnosis to Treatment
Wondering what timeline most people experienced from the point they knew they had cancer until treatment started. My ENT did a needle biopsy of my enlarged neck node on June 19, 2017. The biopsy came back postiive for SCC at the base of my tongue the next day. He referred me to the Stephenson Cancer Center the next morning…
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First new topic post - awaiting official diagnosis.
I had a biopsy last week and an MRI yesterday but I already know what they will reveal because I can feel it. Tongue, throat, voice box, neck nodes both sides. it is affecting my eating, speech and breathing with rapid progression. Whatever that blood test is that shows cancer level in your body - mine is totally sky high.…
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Olfactory/EsthisioNeuroBlastoma
Hello all thought i would share my story, I was diagnosed with this rare cancer officially in March '17. I am only 23 years old so hearing the news was unbelieveable not only to get cancer so young but this rare form? I had symptoms starting late december/ beginning of January and it seemed just like a sinus infection.…
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10 months out
Hi, I am 10 months post radiation treatments after having a hemiglossectomy with tongue reconstruction from my wrist along with node dissection bilaterally. This was my second surgery for tongue cancer. The first one did not require any treatments after surgery. I'm no longer on pain meds. My problem is with eating. I had…
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Great news!
I have received the best news ever today! This is a partial of my Biopsy Report. I have backspaced My Doctors names. ADDENDUM F F F Addendum #1 Entered: 07/05/17-1230 F F ADDENDUM FINAL DIAGNOSIS: F F Palate lesion, excisional biopsy: F F Sialometaplasia with superimposed moderate dysplasia (see F comment). F F Please see…
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Hello - just checking in
Hey peeps! I haven't been on this forum for a very long time. Just thought I'd drop by and say HELLO and to let you know that hubby is doing quite well. In August he will be getting a PET scan since it will be his 2 year anniversary since completing treatment. He was diagnosed with Stage IV HPV positive tonsil cancer and…
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Scared and appreciative and just plain emotional
Hello all, I came across this site a few days ago and I must say it has been a positive light I've been searching for. I really have been comforted by the many stories I've read through and the supportive comments I've read others post. It truly seems like a community on here and that is what I've been looking for. My…
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Tinnitus
I have tinnitus pretty bad, usually I don't hear it as I have got used to it but now I am also getting swishing sounds in my head or ears, it happens when I move my head, does anyone else get this, this is 8 years out from treatment.
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1 week post treatment
Well, I did it. Made it through 7 weeks of hell, but hell continues for me. I know it takes a few weeks to start feeling better, but I seem to be getting worse. 1 day after treatment I needed a blood transfusion due to some low blood counts. My throat and tongue are as sore as ever. Then today, I had yet another blood…
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Return of the turkey neck