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Head and Neck Cancer

Archives for October 2015

Keitter Up-Date 10-31-2-15
Hi everyone just a little up-date on Keitter, I just got an e-mail from her today, she is still fighting with all she can. They had to postpone some of her Chemo because she has lost to much weight and it was also making her very sick to continue treatment. Please keep the prayers coming in her behalf. God Bless you all…
Jim
Had a little cancer scare last week when our new primary care physician considered some symptoms worrisome. Not cancer but rather neurological. Jim had three mini-strokes last weekend. He has fully recovered. This has been a real fear since he developed dysautonomia and one I was hoping would never come to reality.…
KTEACHER UPDATE
Hi All. Bev's sister, Shirley, posting here. So many of you are kind enough to continue to contact Bev and send prayers and well wishes and question how she is doing. She is extremely weak and tired. The pain in her head is getting worse, to the point that Don is having to increase her doses of morphine. She is still on…
What Cancer cannot do - UPDATE
Am posting this for everyone...and especially for those on the board here who are in the middle of their treatment. Big fundraiser coming up for the cancer center where my husband works and was treated, so I made this wallhanging to be auctioned off. I figured the person who buys it can use the outside rectangles as a…
Jakesaround and Kenny- are you guys making it?
HI, just wondering about you guys (way) ahead of me. I am finishing week one tomorrow. I hope you both are doing ok. Karen
Saw the Oncologist today....
So....there are the two nodes that lit up....but I guess also, there is a tiny little spot on the left pharynx that also lit up, just not like the nodes....nodes were SUV 5, that spot was a 2.7...but Dr. Goodman said that spot and the nodes are "inline"....I didn't know lymph nodes crossed the mid-line, but according to…
Damn
I have been in and out of hospital so much in last two months and away from the posts. In hospital now and saw posts for Phrannie, Laralyn and Joe that are so upsetting As well as my continued thoughts for Bev. My prayers for each of you. Love Candi
Open Sore
Hi All! I just had my 15 month all clear, I am so happy. I find it hard to come back here but I do stop by once in a while. I hate when I read bad news, this visit about Phrannie. It sucks. At my follow-up visit my doctor would do a needle biopsy at my tumor site which is on my titanium jaw replacement. It has not healed,…
Esophageal Speech Failing after 40 years
Yes, my mom had a full laryngectomy in 1974 when she was in her early 40's. I can't believe it was actually 41 years ago as it's all I remember for her; I was 7 years old when she had her laryngectomy due to cancer. She successfully used esophageal speech until the last couple of years. I know some people historically have…
Cancer and radiation 44years ago
. I am a 44year survivor of lymphoepithilioma (cancer in the sinus draining and causing tumors in the lymph nodes on the neck. Because I was so young my doctors decided to try cobalt radiation instead of a radical neck dissection. It was successful and became standard treatment for quite awhile. Find someone to talk to.…
Sorry folks, but I just need a place to vent.....
As most of you know I'm a pretty stoic guy. I have very few "why me" or "when will this ever end" days but, the last two weeks have been just awful. I have what the Doc's are calling "Radiation Flashback". It's a well demonstrated but thinly researched condition that is caused (they think) by some forms of Chemo. In my…
Knot in throat i
I have found a white spoit on the left side of my throat ,I am a week from My first scan after treatemt (With rad).I having the feelings that my throat is closine.But it feels like flum stuck,that I could cough up but I can"t. ..You All, Have done this ? Is it me. worring and in my mind .I hav e gone through some feelings…
Starting Week five. What about the feeding tube?
Hi everybody, I've been reading some of the recent posts and I'm getting very worried. I will be starting week five of six in a couple of days. My throat is getting very sore, but after a couple of pain pills, baking soda rinse and magic mouthwash, I can start swallowing after I get up in the morning. Even so, eating is a…
Head and neck radiation side effects
Hi my name is Justin and I am 30 years old. I was diagnosed with stage 1 nasopharyngeal carcinoma in August 2015. I completed 35 treatments of radiation therapy and 3 cisplatum chemotherapy treatments. My last day of these treatments was October 22nd. I am looking for relief and information and I hope that somebody can…
Second go 'round w/ SCC
My FIL was diagnosed with SCC and underwent a supraglottic laryngectomy on 9/19. Unfortunately, he went through SCC 15 years ago in which they did a radical neck discectomy and he received his full dose of radiation at that time. His current pathologic stage is pT4aN0. Clean margins, but his pathology report indicates…
Lhermitte's sign or syndrome.
Radiation treatment is truly the gift that keeps on giving. But it did give me my life back. I'm grateful. It's choose your poison though, death or radiation side affects. Over the last few weeks, at least once or twice a day, an electrical charge runs down my back and legs. Almost buckles my knees. From what I can tell,…
What is the protocol for spam on the message board
It really ticks me off that people use this message board to spam...like for tv shows etc. I have noticed an increase in the last few weeks. especially when their message starts with a cancer related line. They are taking advantage of people. What is the proper protocol to alert the administrators and block these people…
No appetite and feeling cold 3 years post treatment
I'm three years post treatment from squamo cell cancer of the nasopharynx. My thyroid is being treated. I have never regained an appetite and of course I have very little saliva. As a result, I mostly get my nutrition from liquids. Also, I'm always cold. Freezing! Has anyone else experienced a loss of appetite and feeling…
Sometimes we got to have some fun....
We haven't done a pet post on here for a while.....and for those of us who have pets, we know that they make treatment a little easier....they make us laugh, they give us a reason to pull ourselves outside, even if it's just a pee run. These are my two girls....Lola and Betty (their names sound like they're part of a…
G-Tube and Port OUCH--lasted three days only i feel stupid now
Hi I was reading old posts. I saw yours Phrannie about the tube. Last night my stomach was just spasming intermittantly but today its better. Kills my abdominals though when I move. Dang, I had stopped taking narcotics on the 21st from my surgery. i started back!! WOW. But its so helpful to read the old posts Thank You.…
Just thanks
I just wanted to thank everyone for their advise ,still tired but helps to hear I am not the only one that is where I am at. I have a doctor A surgen and he told me the sugery (SP) was a 10-12-hr operation. He recomened cemo-Radition first.I had no idea what was going on. But He said chemo-radation is no picnic .Boy was he…
very Tired
First day 2nd post,Very tired I don;t know if this a information site or pity site, Don't care. History age 62, Ran 13 marathons 21 1/2 marthons,200+ trithons(sp) bike 45 miles a week,Can't run any more Bad back),8 weeks out from radation, It seens like the more time the more I am tired.I am getting really depressed.My…
Can't believe I am here- first post-updated
I am a wife posting because my husband was diagnosed on Monday. And I don't know what else to do. He had a sore on his tongue that would not go away and finally the third doctor he saw suggested a biopsy. And it came back as poorly differentiated squamous cell carcinoma of the tongue. We don't know what stage, but the…
Cisplatin and Radiation begin Tuesday question??
Hi, I am getting weekly cisplatin. The first dose is scheduled at 5 pm and my time is blocked out until 1 am. I know everybody is different but how long did your chemo take? My dose is smaller given weekly but wow. Feedback appreciated. Karen
Radation Fatigue
Iam out of radation treatment about 8 wks.I am so tired,today I moved 5 cases of pop and Had to sit down ,I thought I was going to fall down.It seems in the morning I can do little, but as the day goes on I get a little stronger. How long can this last . Thanks John
My Uncle had Oral Cancer after surgery jaw getting harder & harder day by day
My Uncle had a Surgery of Lower Jaw cancer & it had been remade by Doctor. After two month of Surgery every thing was fine but now suddenly Lower Jaw started to get Harder & Harder day by day. (IS THIS A SIGN OF PROBLEM OR WHAT CAN ANY ONE SAY THIS TO ME)
Olfactory Neuroblastoma 4 year old
Hi My son Hudson was recently diagnosed with Olfactory neuroblastoma on 9/22. it took two weeks for final pathology results to come in. We started chemo on 10/5 and yesterday we had our first CT scan post chemo and it showed that the tumor is growing. I am looking for any input, suggestions etc on what did work if you have…
3 year anniversary-pyriform sinus ssc
Posts: 1 Joined: Oct 2015 Oct 13, 2015 - 4:19 pm My husband finished treatment three years ago today. He was diagnosed with ssc in his right pyriform sinus. At the time he was 55 and a non smoker. He has always exercised and had a very healthy diet. He had his treatment at the University of Chicago and we would highly…
3 year anniversary-pyriform sinus ssc
Posts: 1 Joined: Oct 2015 Oct 13, 2015 - 4:19 pm My husband finished treatment three years ago today. He was diagnosed with ssc in his right pyriform sinus. At the time he was 55 and a non smoker. He has always exercised and had a very healthy diet. He had his treatment at the University of Chicago and we would highly…
16 yr old son going through tx for Nasopharyngeal Carcinoma
Hi. My 16yr old son is going through tx for NPC, He is finishing up his 3rd round of 5day chemo tx (Cisplatin and 5FU). After this, he will start a combination of radiation and chemo. Can anyone here relate? Want to know what kind of side effects we will be facing. Thanks

Head and Neck Cancer

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