-
Raised blister like bumps on tongue
Hello all, It's been awhile since we've posted here. Dale is 5 years post operation and 4 1/2 years after all chemo and radiation. All clear and really no matters to address since all treatments. He had stage 4 throat cancer on tongue and 3 lymphnodes. HPV based. He has some small, raised bumps on his tongue. maybe about a…
-
neck dissection after effects
Besides the issue that I'm having with the radiation side effects that everyone here has been very helpful with on advise on my other post, I have another issue I would like to hear your comments on. If you don't mind. I had surgery done for the tumor at the base of my tongue and right tonsil and then a dissection to…
-
what can help reach and keep remission
I am almost 3 weeks after treatment and I am still struggling for the side effects, mainly on mouse soar, throat soar, etc. This is tough and the contents in the site helped a lot. But I actually want to bring a topic on what we as a patient can do to reach or keep remission. I always curious about what others in this site…
-
What is LPR? GURD that goes higher up........
WHAT IS LPR? This is just an FYI, as I have GURD and LPR: During gastroesophageal reflux, the contents of the stomach and upper digestive tract may reflux all the way up the esophagus, beyond the upper esophageal sphincter (a ring of muscle at the top of the esophagus), and into the back of the throat and possibly the back…
-
I learned a new abbreviation today...
I knew that NED meant no "evidence of disease". What I learned today was the abbreviation CR - "Complete Response"! That means the PET was all clear, NED and no trace of the tumor...all gone. It was more than we hoped for - my husband's reactions to chemo and radiation were so severe, and he is still battling mouth sores…
-
I am Starting in our Week Three
It appears like it's beginning to get interesting. I was doing effectively until a couple of days ago once the mouth sores arrived in a significant way. One i'm all over this the roof of my mouth has been excessively painful for a coupoe of days. [Content removed by CSN Support Team]
-
Class of 2012 isn't doing too good....UPDATE!!!!!
ENT called tonight....the lymph node biopsy showed cancer. SH*T is all I can say! He says wherever it is, it is very small since the CT never picked it up in August....since the lymph has grown hardly at all since then, either. His office will be calling me tomorrow to set up a PET scan. Here we go again. I'm still in…
-
mouth sores and swollen neck
I finished Chemo and Radiation Therapy about 2 months ago. About 2 weeks ago my throat has gotten swollen around and below my adams apple making it a challenge to swallow. It doesn't help breathing much either. I am wondering if anyone else has experienced this? I am wondering if it might be Lymphadema. Any input would be…
-
PET Scan Results
Praise God! No recurrance! The doctor said it looks like inflammation and they will recheck in three months. I am praying for good news from the rest of you. Bill echoed my feelings so well in his earlier post. As one of my favorite passages says, "I thank my God for every remembrance of you!"
-
Thoughts and prayers...........
In the two years I have lost how many I tell someone you are in my thought and prayers. It is true you really are, but the list has gotten soooo long I just hold up the pages and look up and quietly say, you got this right. With this site and the many people I have met here you all feel like family. So many that have been…
-
Back for more than checking in and saying hello--UPDATED 10/28
I haven't posted in a while because life has been hectic and stressful. I've been checking in without posting though, and thinking of everyone here (especially Phrannie, who rode the bus alongside me). I've been dealing with pneumonia for a couple weeks... and a chest CT today showed it's not just pneumonia. There's a…
-
I'm not sure if the results so far were worth the effort?
treated for squamaus cell carcinoma of right tonsilNew Finished my last radiation treatment on Sept 21st. Been reading older posts about loss of taste, loss of saliva, and terrible sore throat to gain information on how long these side effects will last. I wanted to start a new post to see newer repsonses from new people.…
-
3 Years 10 months
Hi all , While I don't post often anymore , I still stop in now and then to catch up on the postings. I see my onco tomorrow and my ent on Monday for my 6 month check ups...had my CT scan on Monday , and after all this time that dang scanextity still creaps in ... So as my heading says I'm still kicking cancers **** and…
-
Tyranny of Positivity
So husband and I decided to take advantage of some counseling sessions to help with anxiety, negative loop thinking, etc. We are actually doing pretty well, but figured it couldn't hurt, and why not? So yesterday the psychologist said something I found pretty interesting...she said sometimes you have to deal with the…
-
Joining the Tonsillectomy Club and the Triple Endoscopy Club
Hi, I guess I dont have an unknown primary anywhere. They did see the pyriform tumor and then my PET scan lit up my left tonsil and something in the base of my right tongue. My lymph node was on the left. So tomorrow they are going to do the surgery. Then they think they want to do concurrent rad and chemo, only doing a…
-
My First Post: mouth sores
Hello everyone, I have been on this forum many times in the past few months and have found it so very helpful, though never wrote or commented. Many times I felt very alone in this battle, even though I had the wonderful support of my family and friends. I just happened to search for head and neck and there you were:) Now…
-
Lymph Node biopsy...
Remember the enlarged lymph node from my MRI?? Well, today I saw the ENT, and it's gotten larger...not much, just larger....so he felt we should biopsy it. Now I have to wait a week to find out the results. Oh brother....pray for me, guys....you know I'm no good at the waiting around part of anything. p
-
Nausea and Cisplatin -Help!
Hello everyone. My husbands last of 35 proton radiation tratments is tomorrow. YAAAAAYYYYYY!!!!! We can finally go home after 8 weeks out of town! His last chemo treatment of low dose of Cisplatin was 6 days ago and he is miserably nauseaous. Any ideas how to calm his stomach or when the nausea starts to subside? He s…
-
Celebrating victories
When my husband finished his 35th radiation treatment I wanted to celebrate in a special way. Since I love to quilt I made him a signature quilt that was signed by his co-workers, friends and parishioners from church and gave it to him after the last treatment. I'm curious how others have celebrated victories and…
-
How do you add a picture?
I noticed some of you have added a photo to a post and I would like to know how to do that. Couls someone explain pleaae? Barbara
-
Intimacy after treatment
This is a rather delicate, personal question but one I need an answer to and you guys have always had the right answers before. Now that all the side effects such as excess mucous, etc seem to be subsiding I want to be intimate with my husband again. After two failed attempts, I am heartbroken that there seems to be a…
-
New here;husband has nasalpharyngeal cancer ;can someone relate?
Hello All, My husband has recurrent nasalpharyngeal cancer after being recovered for four years. He is undergoing chemo and radiation. I believe he needs support from someone in his age group( he is 44). I want to offer him suggestion of viewing this site. Although Im sure any cancer patient can relate to him, he seems to…
-
Being strong
I just saw this and it reminded me of us as we started our little journeys .
-
Starting Week three
Hello everyone, I just wanted to give an update. I'm about to start week three of Cetuximab and radiation post tongue and lymph node cancer. It looks like it's starting to get interesting. I was doing really well until a couple days ago when the mouth sores showed up in a major way. One spot on the roof of my mouth has…
-
14 months post treatment
Hello all dear H&N friends, Been away for a while trying to get all life issues sorted and back on track. Missed u all. I am 14 months post treatment! Had my Pet scan this May, and it was NED :) though I'm having some pain in my forehead and the doctor asked for an MRI on Christmas. So till then, will keep u posted. Time…
-
Primary probably found... Pyriform Sinus Anyone have this?
Hi me again. I went to CTCA and the ENT there found a tumour in my left Pyriform Sinus. That is the same side my positive lymph node was on. He showed my husband and I on the endoscope. I have my PET scan Mon 10/12 and hopefully that is what glows. So its at best Stage III. Who knows the involvement. They are scheduling a…
-
NED for me
Greetings all, I began using this site 6 years ago after my daughter was diagnosed with multiple myeloma and then shortly after my wife with Lung cancer. Although I lost them both to cancer the information I gathered was invaluable so when I was diagnosed this past December 2014 with SCC I looked up my password and entered…
-
first ned after treatment
Hi all my name is jeff and i had stage 4 bot and lympth node cancer.I went though 39 rad and 6 cemo treatments completed june 20.Just got my results back from the pet scan and blood work,everything is clear.What a battle as i was not able to get a feeding tube put in because my colon was in the way.i realy did not need the…
-
3 Years NED!
I just wanted to share with everyone that Kreg had his 3 year checkup yesterday and was told another NED! We feel blessed and thrilled! For any of you who may be new, this was Kreg's diagnosis and treatment plan: Noticed a lump on left side of neck end of June 2012. Doctor treated with antibiotics. No effect. Went on to…
-
Proton Radiation for base of tongue HPV+ at Scripps in San Diego, CA
Hello all...it's my first post on here but I wanted to post because I thought our experience might be helpful to others and I have gained a lot of support and information on here as well. If you are reading this then I assume your life has been touched by cancer either as a patient or loved one and I'm sorry for that but…