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Head and Neck Cancer

Archives for March 2015

Nutrition & supplements
Good Morning!! have a question maybe omebody has some info... Hubby finished treatments august 20th.. NED in November .. Eating now which is amazing food still doesnt taste great but doing what He needs to do, problem is weight is not coming back lost 55 lbs in 7 weeks so muscles mass gone. I have been researching as usual…
I can finally exhale
Flew to Mayo today with my brother and we both had clean scans! BCBS denied another PET so I had to go with CTs of chest and neck. The doctor even called them but their new policy is PETs within 6 months of tx otherwise only if CT indicates concern. I've had so many PET scans already and was surprised at how many they…
New Diagnosis from MD Anderson
Well, Jim and I got some unexpected news when we went to MD Anderson last week. They obtained all slides from 2011 and 2012 and analyzed them in the sarcoma lab. They have re-classified his cancer to an osteosarcoma of the jaw that has metastisized to the lungs. Good news is that the treatment for this in the jaw is…
Prevention Oncology Mouth Rinse?
Hi Everyone, My husband finished his chemo and radiation four weeks ago today. Overall I think he's doing really well. He started eating solid foods a few days ago and is handling that quite well. He has to drink water while he eats but he says the worst pain is from the mouth sores. He has the Magic Mouthwash and a few…
Still taking pain meds?
Just wondering how long you all were taking pain meds after treatment finished. My husband had 2 rounds of cisplatin and 30 days of rads for tonsillar ca. He finished about 7 1/2 weeks ago and still has some pain for which he uses liquid norco - about equivalent to a 7.5mg Norco 3-4 times a day. He finished his rx last…
CSNer meetup
Couple years ago Steve and John met up in Norcal, leaving me out. lol. This time Steve and I grabbed a coffee and had a super chat about how everyday is such a gift. Steve is just 7 months past a 16 hour major surgery due to ORN and looks and is doing incredible. There are lots of CSN folks that can do the same thing. It…
Looking for tips!
Hi there I'm new to the site but have found it to be a great resource so far. I am 30 years old and was diagnosed with SCC of the tongue HPV negative, in October. (When I was 18 weeks pregnant!) I went through two surgeries, one being a hemiglossectomy the day after Christmas. luckily, the cancer was just localized to the…
Hospital again
well I'm in hospital again blocked bowel. my luck has left me lately, my beloved partner died on Thursday he was my rock through this Cancer. He had pulmonary fibrosis. He became ill with a viril lung. I sat with him 3 days he seemed to be getting better then when I was by his hospital bedside he went into spasms and was…
Checking in...
Hi, folks! Sorry for the absence--life has been busy and, to be honest, after losing my mom to cancer last year I think I needed a bit of a break. I'm doing fine, though--ENT check-ups are all clear. The last PET scan around a year ago had an unknown hot spot in my nasopharynx but my ENT said he'd never seen cancer look…
How do you deal with coworkers
Okay guys, I need some good/funny ideas of how to deal with well meaning coworkers who are just too much. Just today I have had 3 different coworkers tell me: * I heard this story about cancer on the radio. You might want to listen to it. * Are you watching the Ken Burns cancer series on PBS? * Tell me about a mother of 4…
Small Tumor or Viral Wart Reoccurring Cancer or? I am Scared
I have not been on here for over a year. I had my last radiation/chemo two years and three months ago. I had HPV related cancer. Three scans have been clear and my quarterly neck check up always clear. The ENT doctor scoped me and said I have a small growth in the soft tissue back of neck/mouth on right side. My cancer…
Swollen voice box after 9 months ?
Hi there , I saw the drs about 3 weeks ago and had a pet scan done. They found a new mark , not near site of cancer, was at back of my nose. They are going to keep an eye on it, they dont seem too concerned. My treatment finished about 9 / 10 months ago. The drs told me at my last visiti that my voice box is still swollen…
NED!
How about some good news? Six month follow up PET scan yesterday. NED today!
Hearing loss...
I posted another topic about neuropathy and now would like to know about your experiences with hearing loss. I did two cisplatins and the third was carboplatin because the hearing loss was fairly dramatic after the two cisplatins. Seven months out my hearing seems to be getting worse. Not dramatically but very gradually. I…
Neuropathy...
I'm now seven months post tx...I had tingling numbness in all my fingers for a couple of months and it slowly dissipated, but it has now returned in the four fingers of my right hand excluding my thumb. Have any of you had neuropathy in the hands or feet? Did it occur and go away and then come back? My ENT mentioned that…
Dizzy spells 5 years after
Hello, I have just crossed the 5 year mark. Everything has been great but last month I started having dizzy spells. Saw the neurologist today and he thinks one of my arteries to the brain has harden. He says this can happen from people who have had radiation. Just wondering if anyone has heard of this happening to anyone.…
i am new normal are you?
Friends, March 23rd marks 3 years post, the day I wore the mask for the last time. I wish to thank everyone who participates in the H&N forum and all the good advice that comes from radiated heads. Still batting NED! Matt
Options for treatment
For a while I have been worrying about a total glossectomy. I really don't think my quality of life will be very good without a functional tongue especially at the age of 19. I worry that I may receive a total glossectomy due to nearly over half my tongue being indurated. I have done all my scans and FNA and am now waiting…
Cold all the time
Ok... here goes from someone fairly new on here. Background Mid 50's male (whos brain still tries to tell him he is in his mid 20's) that is 8 months out from treatment for Tonsil Cancer (caused by HPV) Treatment was chemo (first 2 treatments with Cisplatin and last with Carboplatin as the Cisplatin was distroying my…
post irradiation otitis media with effusion - update
To make a long story short: on Sunday (everything seems to happen during weekend!) early morning I wake up with a severe pain in my (right) ear. A few hours later I went to ER. Of course, no ENT specialists available on Sundays, so the general practitioner missed the diagnosis. Anyway, can’t blame him, how many NPC…
nervous
I was on this board a while back ......................not sure what to do I had went to my ent telling him that the left back of my throat was sore but could never pinpoint were it.......so he checked gave methe spray and said it was nothing ..........Now I still have the pain but i ohave figured out were its comming fr…
fentanyl patches
I finished my rads almost 4 weeks ago and chemo almost 6 weeks ago. Thursday, I have my peg removed-THANK YOU JESUS!! Any how I had been using only 25mg patches for about 1month and a half and a couple of weeks ago we took it down to 12mg. I get very dizzy and I am not sure if it from the patches or not so I just took off…
updates
Hello everyone, My brother goes in for his 9 month check up (PET/CT) on Monday. SCC HPV + As for everyone else the scanxiety is massive for himself and his wife. I try my best to calm the fears...but as we all have experienced these are only words, until they themselves hear the words "all clear - NED". I have put my…
lymph node testing for cancer
I am going into the hospital at the end of the month for surgery. My dr said the swollwn lymph node is either lymphoma or squamous. Has anyone had this? If squamous will take part of lymph node to find out what kind of cancer. If no squamous found will take all lymph nodes on right side of neck. Don't know what to expect…
Spell check.....How can we get it to work?
Just a thought for the Staff....How can we get spell check to work on this site. My computer will on all other things I do but for some reason it just won't work here. By the way, i'm terrible on spelling. Just a thought if it can be worked on that would be so nice. Bill
for those who can't swallow
a cancer pt on FB had said that radiation had burned her throat up so bad that her doctors told her she would never swallow again and be on peg feedings the rest of her life. she did some research and found a doctor who gave her other options and much hope. Well, he was able to repair her throat and now she can swallow and…
a great article on the "after" affects of cancer tx
this is a little long but well worth reading, especially those who have not finished tx yet as it will help you understand what you may feel then.…
Diabetes insipidus, anyone?
Hi all, I'm wondering if anyone has had to deal with diabetes insipidus. My husband has it as a result of his tumor and it is what causes problems. Since diagnosis we have landed in emergency and then hospitalized 4 times. Every single time it was due to high or low sodium in the blood. His sodium gets out of balance if he…
Long Term Survivor aka Dr. Patrick S. Dunlap (wife)
I am Janet Dunlap, wife of Dr. Patrick Dunlap, better known to some of you on this board, as "LongTermSurvivor." Pat passed away February 10th, 2015 at 6:00 a.m. Pat was on the board even February 9th. If anyone desires details you can reach out to me at jbcody2424@gmail.com. We had contacted hospic about three weeks prior…
Prednizone
I have come back from the other side. :{ It is amazing how the support differs so much from one discussion board to another on CSN. As I told you all earlier my mom has recently been diagnosed with lung cancer with mets to medial lymph and hylar lymph. They also saw a place on her L4 vertebre that is likely metastic. She…

Head and Neck Cancer

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