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Head and Neck Cancer

Archives for March 2015

How long after treatment do the swallow/hearing tests happen?
Just curious what to expect- husband is a little over 3 weeks past the end of treatment (35 rads, 3 Cisplatin for tonsil/lymph nodes) and he is eager to try eating by mouth. It's just little bits, mostly to see what doesn't burn going down. He only wants to try on the weekend when he's relaxed and at home. So, when will…
Dilations
had my fourth dilation today and the tube keeping my throat opened was taken out. I swallow better with it out. I have a bit of a problem since my throat was opened, with bile and acid i had the problem before but it didn't reach my throat and mouth. I hate the burning and bitterness of the bile.ive been on ranitidine but…
Two Years Ago
It was two years ago this past Monday that I stepped through doors of the radiation center at MD Anderson in Houston to start six weeks of treatment. The mask had been fitted, I had eaten at every favor resturant and had really not slept well that night. My wife and yes even my two kids walked in with me as we were…
beverage suggestions
Hi all, My brother Bob is trying to find things he can drink....getting kind of tired of warm tap water. I got him coconut water and he liked that. Has a little taste but isn't overpowering or sugary. Something with calories would be good too. Just thought I's see what worked for you. He's coming up on first pet 3/16, tube…
To MD Anderson we go
Well, just when we think we are in the clear, another hiccup! Three years ago this week we were in ICU with Jim's surgery for his jaw cancer. In January he had surgery to remove 2 small spots that turned out to be a recurrence of his sarcoma, but were told that all spots were gone and all was good. Last week, his radiation…
dizzy with pain question
I had laryngeal, stage 4 cancer, finished with chemo and rads 2 years ago, neck disection Dec. of '13. For the past 8 months or so, once or twice a week I get dizzy/light-headed and nauseaous, usually along with a sharp pain in my jaw or side of my face. I've had 2 MRIs of brain and neck, chest x-rays, all check-ups NED.…
First Post Treatment PET
Hubby had his first PET last week (2 weeks shy of 6 months post treatment) at MDA and it came back with no lights. His scattered <3mm lung nodules appear to just be the way his lungs are as they come and go continuously, so the thorasic guy said he's just a nodule-y person and not to worry about those. All good news! Next…
Guzzle Rides Again!
Friends across the pond, I am doing UK COAST TO COAST ON A BICYCLE 14/05/15. West to East whitehaven to Newcastle over the Pennine Mountains (C2C) FOR cancer Reasearch which has an International Mandate for Cancer Resrearch UK which has an international mandate. 180 miles over rough terrain. 3 days. One sore backside.…
Aspiration??
I have been having severe heart burn whenever I use my peg and it doesnt matter if I am using food or water in it. Could this be a sign of aspiration? I am going to talk to my Dr about this, but I wanted to know if anyone else has had this problem?
3 years ago today....
was the day my life changed for what I thought might be forever....but not so. I was diagnosed March 5, 2012.....what a mind blower that was! So today I had an ENT appointment, and he looked down my gullet, and checked out my vocal coads, checked my mouth and said....every thing looks great! Then as he backed up he…
well one week down..
Well one week down and 6 more to go....chemo is one a week and I am taking Cetuximab which is suppose to increase the affectivness of my rad treaments too....lets hope so!! The Cetuximab has caused My face/forhead/upper chest to break out in a rash....much like having acne....lol....never had acne in my life and here I am…
Questions for the veterans: 3 months post radiation: very hungry and "stinky" sorry for the TMI
Hello all I am now 3 months from my last radiation and my recover is going pretty well; my energy and stamina are improving every day, I can now exercise 60 min every day and feel great afterward. my taste buds are all back and I do not longer have dry throat, just minor dry mouth. I will start my facial therapy to help…
Do you ever stop worrying
now I'm swallowing again, which im over the moon with...I've started to worry ....what if.....the liquid or food dribbles into my lungs while it's going down. Do you know/feel if it's going the wrong way. I shouldn't be worrying about this, I read about people going into hospital because they get pneumonia from food going…
DONE and thank you!
hi all, We are D O N E!!!!!!!!
Lymphedema After Cancer Treatment
Hi Everyone, Actor Kathy Bates has been speaking publicly about the lymphedema she recently acquired in both arms from a double mastectomy after a breast cancer diagnosis. It's sad that she too must suffer from this, but encouraging to me that we have such a fantastic advocate for lymphedema awareness and research. Kathy…
First PET scan is clear
Whew! we dogged a bullet.. I am so happy to feel like we can live a little again, and not be stuck in the tunnel of fear/wondering. I will ensure my hubby works on his nutrition over the next few months, since we no longer have to worry if the treatments did their job at this point. Eating is still not his favorite…
Esthesioneuroblastoma
Hello everybody, I am new to this forum, and I'm writing in behalf of my 23 year old cousin (which is more like a baby brother to me). Nine months ago, after losing sight in both eyes with no previous symptoms he was diagnosed with a very rare type of cancer which occurred in less than 1000 cases from 1924 to date. The…
about to complete 1 yr
Day after tomorrow i am taking my father for the monthly check up). Its been long and toughest year for our family.Last April My father was detected with cancer IVA of Pyriformafossa from then long 8 months suffer continued(Chemo, radiation then surgery on october and after surgery complications continued for 3 months…
Good news, County School Board wants me to be a speaker. Update 4/14
Got the news today that the county school board wants me to be a speaker for there Anti-Tabacco program. I will go to schools all over the county and give talks and answer questions for the kids. May be I can save one or two. Also Stanford Medical in CA, and St Agnos Hospital, Fresno CA, are using my YouTube to help other…
KTeacher and CivilMatt Join Forces and Meet
Friends, I met Bev and her posse (husband, daughter and granddaughter) yesterday and it was great! Bev is a real sweetie and meeting her increased my “happiness quotient” 10 fold. It is interesting how we share some H&N side effects (eating, talking, swallowing, etc.), it made me feel very normal. I guess it takes one to…
Hubs First PET scan today. Scanxiety
Hubby had his PET today. I am nervous and scared about his future. I have been trying to find patients that have my hubbys diagnosis/treatment so I can feel like im comparing Oranges to Oranges..Im not an Ostrich about this whole thing..on the other hand my hubby likes to be.. I want to know what to expect, whats down the…
And then the bough breaks
long made short- 2 weeks ago knee hurting, no idea why, got mri, went to ortho, tapped my knee and all they could get was a tsp of blood, can't walk. My labs are norm for us. Being sent to hematologist oncologist tomorrow, scared out of my mind. I can't deal with another cancer, I can barely deal with life- have therapist,…
Nasopharyngeal cancer - recently diagnosed
Hey all, I've been recently diagnosed and am in the process of creating a treatment plan with the medical professionals. I've been seeking others with a similiar diagnosis for support and mentorship. I'd love to hear from others who might be interested in walking through this process with me, as I prepare for the jouney.…
confused about mets
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Head and Neck Cancer

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