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Need information my dad has cancer
Hey everyone, i need help my dad has a rare diseSe called puertz jegher sydrone. he had surgery to take out polyps in September. While theybwere in there they found a cancerous polyp at the start of the intestine were Ur stomach and Inotes fine meet. It was stage three the do. Was 95% sure he got all of it out. They then…
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Saying Hi
Hi everyone. Sorry I have been out for such a long time. I felt like I needed to rest myself from feeling all depressed and worrying. I hope everyone is doing well or just fine would be at least good for me to hear. My mom is doing fine. Neuropathy is her biggest enemy right now. I hope there is something that I can do to…
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Recovering from my Microwave Ablation 'Cooked Liver' procedure - Update April 30th
OK, this was my 11th surgery. Why oh why oh why did I not ask more questions? I mean, come on, I really should know better. So, I figured that seeing they made it an outpatient procedure, I would be good to go in just a few days. IDIOT! Yesterday I was so tried of the pain that I talked to my surgeon's nurse. "Why am I…
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Learned another lesson today - don't talk to the radiation techs
Good evening all, first of all, let me apologize for being mostly a lurker and much less of an active participant in this board. I want to also thank all of you for being an infinite source of information and an inspiration for me on my journey. After my stage 2 diagnosis, the following surgeries, chemo and some more…
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Back to the drawing board
Today my TEM procedure ended without the removal of my tumor. The surgeon said that she could not remove it safely...without leaving too large of a void and the best way to remove it would be a more standard colon resection surgery. So she thinks that the recommended plan will be radiation, typical for rectal cancer, then…
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Would I get tos'd if
I ask for prayer for my family. Going through things, everyone losing jobs, divorces, mom's scan coming up, and dad losing memory. Sitting here crying a lot lately. Crying in the car at work in the bathroom in church, etc. Shaking all the time, can't eat, can't sleep, can't drink water. Just need some love from my other…
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I was sheltered in oncology...
but now I'm back in the general population, and I can't say I'm too happy about it. My oncologist wasn't the greatest, but man. Now that I'm trying to find a GP to work with, I'm realizing that maybe I had it pretty good. I've seen two family practice docs in the last two months. First guy: -no eye contact -interrupted me…
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Met New Surgeon
Met my new surgeon Wednesday after my "wonderful" surgeon left because of difficulties in the "new health care law." He saved my life and now I'm dealing with a new surgeon but have to admit I'm glad that he has been recommended by my original doctor. I've lost so many doctors because of this new health care law and I'm…
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Looking for insight from all of you
As many of you know, my brother has had a lot of medical issues that interfered with his getting chemo on several occasions. He also had to have his chemo reduced and some of the chemo meds eliminated because of the side effects. He is now on 5-FU and irinotecan. They had to cut the dose of 5-FU in half because of the side…
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New Trial for mCRC/recurrent CRC opens this month
This is the guy I saw for my 2nd opinion. He has added Celebrex to the chemo mix with his patients, and claims significant improvements in outcomes. He is here in Seattle, with the Seattle Cancer Care Alliance, but apparently will work with docs in other areas. Just wanted to bring it to everyone's attention. Many thanks…
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A Day At Sloan Kettering.....
I spent yesterday at Memorial Sloan Kettering Cancer Center, first at some programs, and then at my surgeon’s research lab, where they are doing amazing studies on colorectal cancers. I saw my doctors, but purely on a social basis. We traveled there for the luncheon discussion from their Integrative Medicine group. Some…
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Hi Craig!
Happy to see our friendly lion posting today. Hope that means you are feeling well.
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in the ER not for cancer
I was feeling great and crashed my mountain bike. Busted up my lip and nose. Its not looking good for treatment tomorrow. I am heartbroken about giving my wife more to worry about.
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let's make each other SMILE
Well I don't know about anyone else..but I love to smile..I also love making someone who's having a hard day smile..so here's my shot at it today for anyone feeling blue How many slams in an old screen door? Depends how loud you shut it. How many slices in a bread? Depends how thin you cut it. How much good inside a day?…
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Insurance Hell
I am all gowned up, they've tried to IV me, and now they say the insurance is refusing to cover the Ablation. They will cover a Resection, but no to the Ablation. Im laying here waiting. Waiting, waiting, waiting. i HATE insurance (I love it too).
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Trying to wean myself from forums for a while....
I'm NED for over 2 years now and have found that when I come and read posts about symptoms or reccurences, I go into a real tailspin of anxiety. I've talked with a therapist who has insisted that I need to stop fixating on cancer and try to get on with my life. She says I have PTSD and have developed Health Anxiety (I call…
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start chemo
i start 6 months every 2 weeks of folfox and avastin, nervous
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CEA 48, surgery today two more scheduled
I had the first of three surgeries today. My CEA has been rising, it was 33 in March and now it is 48. I had the first of my 2 part Y90 surgery today. It went well. I have TEM surgery Monday and then the second half of Y90 the week of May 5th. Hopefully this all goes well and and I can join those of you currently living in…
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It's Been Way Toooooooooooooooo Long !
I have been lurking on an off for the last few years, but something always draws me back to check in. For those who don't know me or remember me, I was DX with Stage II Colon Cancer back in 2006 (8 years; boy time flys); went through treatments, surgeries, etc., and had my last yearly CT Scan in March 2014 and still NED…
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Inspired By My Child to Live Again
I wanted to share this with you guys. Especially for anyone who just got an ostomy and is feeling down, or feels afraid because of cancer. I was optimistic and hopeful concerning my cancer. The first colostomy was so hard for me. Then an ileostomy came, and then back to a colostomy; in the course of a year. I hid it well…
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A Small Celebration and Fear
I had my last of 12 FOLFOX treatments this week and was just disconnected from the take home chemo. The CT scan I had four weeks ago still shows NED. I feel like this should be a time for celebration, yet instead I find myself feeling sad and worried about what comes next, scared about possible recurrence, and all the…
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Surgery Thursday - UPDATE April 25th
My surgical oncologist doesn't want to resect the liver, so he is doing a Microwave Thermal Laparoscopic Ablation. He will also remove my appendix if there is not too much scar tissues and adhesions. My appendix has been enlarged for a while. We are just going to stay up in the big city until the surgery is over. If all…
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THC Oil? Anyone else read the studies? Kills Leukemia
A friend of mine told me that thc 'cures' cancer. I said yeah right but went home and started doing research. I found studies by nobel prize winners, top of the field microbiologists, physiologists, (I can't spell today), botanists, etc... Reading through the studies is quite a feat but I tried. There is some really strong…
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CT Scan tomorrow
Well tomorrow another CT/scan . I get them about every three months. Turns out about nine months ago after an interval of a year showed two "lesions" one about 3/4 and the other about 1/2 inch in size. So oncologist ordered an MRI followed by a ultra sound and then a ultra sound with a biopsy. CT/scan; MRI; unltra sound…
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Howdy
Helllo everyone, it's been ages since I have posted in here. I still lurk sometimes however I have not been very active. I suppose it is the survivors guilt getting to me. For the newbies, I am a stage III rectal cancer surviver, I was diagnosed in 2008, had the oral chemo and radiation, resection, Folfox, illeostomy and…
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Dear, dear me, my butt is sore. Update
So today I had my Flexi Sig. First finances. Some of you may remember how I was quoted $29,450.00. First thing I asked when going to admittance was to talk about this. The lady admitting me politely (and she was a lovely girl) told me that the hospital prices are always FOUR TIMES higher than big city hospitals. Ah, I…
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Nodes on Lungs Always Colon Cancer That's Spread?
It's been almost two years since I had the tumor removed from my colon. I had to fight long and hard after that because of radiation almost killing me, but here I am; alive and hopefully well. I had a catscan about 9 months ago that showed two nodes on my lungs. I had another one last thursday that shows that one of the…
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John23
Does anyone know what has happened to John. Miss his posts. Kim
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Stinking lump
Had dental work and my gland has been swelling for a few weeks so I wrote is off as dental work related. Now I have a hard lump on another part of my body. Grumble grumble grumble. Going on Thursday to have it checked. Too tired for this and so done. Cancer can kiss my grits. Hoping it's just some normal problem. I would…
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Been awhile
It has been awhile since I've been on, alot is going on..I've started my folifiri, 5FU and Avastin. Had my first does of Avastin Wednesday and it has not been kind to me at all. Between the cramping, diaherra, nauseau, I've been pretty miserable. I think (I used that word lightly) that I am beginning to feel better. I…