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Oxaliplatin Side Effects
Have any of you had uncontrollable teeth chattering and/or shivering as a side effect to the Oxaliplatin? Xeloda? A friend has had this, and her drs are totally unaware of this as a side effect. I know she'd like to know she's not the only one out there. Thanks.
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Refusing Chemotherapy
I have recently had a recurrence of colon cancer, Stage IV, metastasized to the lung. Four years ago I had 3 nodules removed from my right lung, and then underwent 6 months of folfox. It was hard but I did it, and went 4 years cancer free. In January a nodule was detected on my left lung. It was easily removed surgically…
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“The Greatest Gift is PEOPLE” – New Sundance Update
First, I wanted to thank all of the ladies I missed, who had placed a reply towards the end of the 'Road to Ruin' post: FFML, AnneCan, Devastated, Shanna, Holly, Margaret, Kathryn, Lizzy, GrammaD, JoAnne, Michelle, Kimby, Maggie, Gail, and Raquel. What would I do without you ladies in my life? I don’t think I want to know…
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Half-way there!
I am half-way done (6th dose) with my FOLFOX regimen. No real problems to speak of. I don't even get nauseated anymore. I still have to deal with the constipation, but I've kinda learned how to get ahead of that one. I still get my neuropathy right after, but it disappears about 4 days after I'm disconnected. Most of you…
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Those with Stage 2 might be interested in item at curetoday.com
about a test for recurrence that is becoming available which may also help determine post-surgery Tx, called the Oncotype DX test......steve
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COUNT DOWN TO SURGERY
I got the call to confirm liver resection on the 6th, this coming tuesday!! I am scared and excited at the same time. I will be having the entire right lobe removed. The surgeon said he feels vergood about it, that it is major but very do able. All of you liver resectioners, can you tell me what to kinda expect?? Will I…
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Louann is home
Sorry to have caused any worry for any of you. I have been feeling bad for a few weeks and the pain just got worse. My ONC did more lab on the 24th and called and said for me to go to the ER . Once there they did alot of blood work and a MRI that found a small tumor in my blie duct in my liver. They than did a live action…
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Xeloda feet
This week has been so nice. I finally have some positive energy and have been working in my garden a little bit.It really helps with stress, anxiety, as well as weight gain. This morning at 3:00 AM I woke up with my feet on fire and it felt like they were cracking all up.Have been walking on toes like a baby just learning…
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Happy B-DAY to all the APRIL Babies
I only have one April B-Day on my list, but that does not matter. HAPPY B-DAY TO ALL THE APRIL (spring) BABIES Kathrun_in_MN (Kathryn) - 09 April If you would like to become part of the B-Day List, please provide me with the following info: Birthday (month, day & year) Date of DX (month, day & year), and if NED (month, day…
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Staph infection in port
I've never had chemo since I was Stage I, but I'm wondering if anyone has had a staph infection in their port. One of my colon cancer friends from church had a wedge resection of two spots on her lung in January. She has had a recurrence of two inoperable lung tumors, one wrapped around her airway. She was originally…
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Eleven down
JUST ONE MORE TO GO!!!! I'm going to make it! (No oxy for the last one though - I'm going to refuse it.)
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Possible colectomy
I didn't think I would ever be back to this site, but here I am. I was diagnosed with colon cancer 7 years ago. I had a colonoscopy today and "there was an ulcerated area at 15cm with polyploid features." A biopsy was taken, so I obviously don't know yet if it was cancerous. I am to consider subtotal/total colectomy. I…
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2bHealed question: modified citrus pectin
2bHealed, I ordered the modified citrus pectin to add to my juicing regiment and tried it last night for the first time. It was not pleasant. I have had all sorts of tough flavors in my juice (kale, broccoli rabe, cabbage) and can usually get it all down with no problems. I added a TB of pectin to my juice last night and…
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Vacation
OK, I have asked a lot of serious questions and thanks again for all the responses, but I have one not so serious question now that needs to be answered. Before I knew about my recurrence, my husband and I paid for our family's first vacation ever! We are supposed to leave June 11 and return June 18. We were planning to…
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Plan A for Hatshepsut's Husband: An update
We saw my husband's oncologist today and here is the treatment plan that will be put into effect tomorrow: Xeloda 1000 mg. twice a day (one week on and one week off) Oxyplatinum (via IV) (I'm not sure whether this infusion will be weekly or every other week.) Vectribix (via IV) (This infusion will be every other week.) My…
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UPDATE on ITTAPP
Okay, I will try and condense this....Went to Dr.with pain, sent me for a Ct, it showed swelling in the area between the lung and liver. The Dr. asked me to go check into ER and have a Thorocentisis done in that area. It did say that the findings were malignant cells in the fluid in this area. They do feel that it is…
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Went Over Scan Results with Onc Today.....WOW!
Finally.... the day I have been waiting for.... So my Onc could explain all the results from CT, MRI, and PET/CT. As most of you know I was declared NED in December, 2009 and then taken off drip and put on Xeloda with Avastin. The scan show..........DRUMROLL..... I am STILL NED!!!!!!!! YEAH!!! YEAH!!! YEAH!!!! omg...I have…
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One more Gluten question
I know many on here have gone Gluten free. I have had many symptoms of Gluten intolerance in my past so I too am "experimenting" with this concept. I was wondering how long it took you to notice any differences in your system? I have gone just over a week with no "obvious" gluten in my diet. I'm not buying everything…
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I have a date!!
It’s true, My iliostomy “Take Down” reversal is set for April 9th three days short of my cancer dx in 2009 (April 12th) anniversary. This journey is coming to a end and a new one is starting. I hope it’s one of being NED!! Surgery April 9th 2010 Kaiser San Diego Zion Hospital. I’m READY!! Brooks
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sister in law- stage 4- update & questions...
Hello, I posted "New to boards, Need direction, Stage IV, Long post" at the beginning of March (on March 2nd I believe), and would like to ask a few more questions, and also say thank you ladies and gents for the amazing input, insight and response. I appreciate it! We took my sister in law to MD Anderson, ER two weekends…
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Brooks/Molly the Owl
Thanks a lot Brooks, now I am officially hooked on that site. Last night came home from work, fired up the laptop, and I had Molly on the laptop, on the dining room table, full screen, hacking away at that rabbit, while we ate dinner. Tina
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Home from CT Scan
I was to arrive by 10:20 but got there a few minutes early and someone else was running late. Signed in, went potty, got my IV inserted, had my with and w/o contrast CT Scans, drank my water and was leaving the place by 10:45. I was a little anxious this morning because I drank the first half of the icky poo last night and…
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Folfiri
Hi everybody,I haven't written anything here since long time ago which my mom started folfiri after liver resection!Now she finished third one and because of sever diarrhea and weight reduction the onco gave her 2 weeks rest. But can anybody help me to know what is the normal dosage of Fofiri for a person 50 kg?because as…
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Depression??
I think(know) I am depressed. I go to work only because I have to. But can't wait to get back home. I just want to sit at home. I haven't even done our taxes yet. I am afraid we are going to have to pay and that will just be one more bill to worry about. I guess that is the bottom line. SO MANY BILLS!! Sorry about this but…
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Problems with port removal
I had my port removed February 26th. In my opinion it has been slow in healing. Still kind of 'raw' feeling and looking. Today I discovered a bump about the size of a pea on the left side of sutures. I think it is the same location where I could feel the tubing when the port was still in. Anyone else have this happen and…
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SUNDANCE HAVENT SEEN AN UPDATE ON YOUR FIGHT LATELY
CRAIG Havent seen any updates on what has been going on with you ? I am hoping you have got some good news please let us know I have been concerned about you you have been a real inspiration to me and a lot of others Sheri22
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Changing/Mannie gone home
Hi,just a note to say my husband Mannie (changing) went home to be with his Lord and Savior Jesus Christ on Feb 28th.Just want to thank each of you for your input and support over the years. I know he never posted a picture but you could get a peek of the most humble and talented person I've ever known. See…
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My clinical trial update
After 8 treatments of the clinical trial chemo, today I have my second CT scan. The result looks very good. The nodules in my lung are stable. No evidence of interval growth or new nodules. The lesions in my liver are smaller as compared to the previous CT scan done 5 weeks ago. The bigger lesions decrease about 30% in…
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lcarper2 surgery for stint today
Louann's friend said the doctors found a very small and inoperable tumor in her liver and are putting in a stint to release the bile this afternoon. She's still yellow, in a lot of pain and very itchy. Louann doesn't have computer access at the hospital.
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UNDY 5000
Hey all. anyone ever heard of the Undy 5000? It is a 5k run and a 1k walk to raise awarness of colon cancer. Apparently they do it in a few cities around the country, this was the second year in St Louis. People run/walk in their underwear (dont worry they wear them over sweats if they are too reavealing lol) to raise…