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Colorectal Cancer

Archives for October 2008

delayed skin rash after oxaliplatin
Sorry -- another oxaliplatin-related post from me! I broke out in an angry rash on my lower face/neck (which later spread a little to tummy, back, inner arms). This occurred more than 24 hrs afte my 2 hr oxaliplatin infusion. (I've had oxaliplatin many times before, but never this rash). My oncologist says it is rare to…
new to the group/cancer
Hello all, I'm Robert, 47 years old and was diagnosed with stage 3 rectal cancer on May 16th, 08. I have had 7 weeks of radiation and chemo (Xeloda). Had terrible pain from burning at the anus (felt like trying to pass shards of glass), But the pain has since subsided (thank GOD). I am scheduled for surgery on the 13th of…
CP6-Stay well, have FUN!!!
WOW! Only a bit over a week till CP6, S.F.!!!! I will miss you all...and, well, the rumor about me not going to any city that doesn't have a Coyote Ugly bar is just NOT TRUE!!!! (I think Istanbul has one...) Please, all of you that are going, get together for one group hug for me. And stay away from the 'tenderloin' after…
hand foot from xeloda - how soon does it start?
I'm just starting my 3rd cycle of Xeloda (out of a planned six). Taking 3 [500mg] tablets in morning and 3 in evening. 14 days on, 7 days off. (Oxaliplatin drip on day 1, but that's another story). So far, I haven't had any hand/foot syndrome. Except one blister/ulcer on the top corner of one toe, which was treated and…
Getting MAJOR anxiety
I am getting anxiety over having chemo. I had a large mass and many lymph nodes removed from my colon on 9/15. I have an appoionment on 10/06 with ongologist to find out my treatment..I'll need Folfox 4 thats all I know for now.. Who's to say that waiting that long to start treatment means the cancer has not spread to…
First Colonoscopy for Hubby...Update
Our prayers were answered. Hubby's colonoscopy was okay. Nothing in the polyps. There was an abnormal growth in cecum but that was benign. I started crying I was so relieved. THANK YOU ALL for your Prayers. You all are so great in here. Always were and always will be. In two days will be 2 years that I was diagnosed with…
Friday Riddle Early
RIDDLE: I run too fast .....What Am I?
5 Years since surgery
This week it will have been 5 years since my cancer journey began and today it is five years since the surgery!! As Kay stated we all know, five years is a milestone in the world of cancer, but it has never been a destination for me either. What has happened to me over the past years has been a blessing that words cannot…
Cold Weather
The weather in Cincy has finally gotten a little colder and I am really feeling it even in the 40s........the oxaliplatin has kicked in. This is a bigger battle than just opening the frig or trying to drink something cold. My onc. has suggested wearing a mask to keep the cold from my lungs.....anyone else out there…
Got it!
Today I received my lovely healing bag. So beautiful and so meaningful! Kay, I adore it, and I thank you so much. And blue is my favorite color! I'll write you a proper thank you note after my grandson's Halloween needs are met. *grins* I'm up to my elbows in preparations for his class party. With love, Gail
NED without surgery?
Does anybody know of stage 3 or 4 survivors that are NED without surgery? The reason I ask is that I am currently in my #10 chemo (folfox+avastin). My doc will give me one month break after I finish 12 rounds of chemo. Then the surgeon will remove the tumor in my rectum. I will start the maintenance chemo one month after…
Good news, my situation motivated my son and nephew to set up screening
I've been relentless in pushing colon screening ever since I was dx 9/9. My son today let me know he has a schedule with his MD for a first concult enroute to getting a colon screening. And my nephew let me know by emaill that he' getting screened as a 50th birthday present to himself. FYI, I came home yesterday and am…
YEA !!!! I'm done (for now)
As KathiM always says "NAKED HAPPY DANCE" ! I just finished 5 1/2 weeks of chemo via a 24/7 infusion pump and 28 radiation zappers. I didn't have too many problems except this awful burning and needle feeling when going #2. Having the pump 24 hours a day was a pain at times but kind of got used to it pretty quickly.…
Birth Control
Can anyone tell me does chemo effect birth control???? Don't need that happening on top of everything else...lol lol lol
First Colonoscopy for Hubby
Hello all, I used to come in (here) all the time 1 1/2 years ago. I still do come in and read and sometimes comment. For the new people, I was Stage 3, ascending colon cancer, 12"removed,6 months of chemo and as of Dec. '07 I have been NED. Yea!! I finally talked my husband into having a colonoscopy (at the age of 60). He…
Author Rick Warren-Purpose Driven Life
Rick Warren (REMEMBER HE WROTE "PURPOSE DRIVEN LIFE") You will enjoy the new insights that Rick Warren has, with his wife now having cancer and him having "wealth" from the book sales. This is an absolutely incredible short interview with Rick Warren, "Purpose Driven Life " author and pastor of Saddleback Church in…
*** NEW *** Anyone ever had a port in their arm???
Ok, so since my husband's visit to the surgeon yesterday and x-rays - the surgeon has decided that he should take the port out. He sees nothing wrong with the port from the xray. He thinks that the catheter in there is rubbing on his collar bone and that is causing the discomfort. He suggested putting it in his arm as he…
Self Esteem
I have had a colostomy bag for three years now. My first way of dealing with this was to pretend that it didn't change anything even though it had. Now I feel that it is slowly eroding my self esteem. I have gained alot of weight, my intrest in sex is way down and can't seem to muster the energy to change it. Can anyone…
Radiation/ Chemo Side effects
Dear All, I am posting for my brother in law who was diagnosed with colon cancer stage 3c. He had a surgery done to remove part of the colon and had ostomy bags installed. He started his radiation therapy, which was for 25 sittings. The last sitting of the radiation happend after the first FOLFOX4 treatment spanning 2…
Good news
Well after 2 weeks I got my results today and the CT scan is clean and the CEA is under 1.0 so all is well! That is great and I'm very happy. My mom died last week at age 80 due to lung cancer. She was a lifelong smoker but outlasted the odds for a long time. She didn't want any chemo or surgery just to be left alone and…
Apache4.....are you OK?
Has anyone heard anything about or from Apache4?
Remembering Nanuk (Bud)
One year ago tomorrow we lost our dear friend Bud. I think of him so much and miss him all the time. Below is a wonderful video tribute that our own Lisa Rose put together. It captures Bud and all the things I love/loved about him and hope you all do too. In Remembrance Of Bud Martin…
Problem going poop
Ok, this is a subject I haven't seen much discusion about. Today I have just started week six of 5FU (24/7 infusion pump) and radiation. For the past two weeks I have been having the usual problems I have seen here - diarhea, painful anus when going, etc. Doctor gave me some suppositories but I haven't felt much pain…
Hodgkins 20 year Follow Up
Hi Semi-Colons, You know you are getting old when your first oncologist is retiring. He is a great guy and helped to get rid of my Hodgkins 20 years ago. So what does this have to do with colon cancer. Well there was some theory that I might have developed it due to the radiation I received twenty years ago. In speaking…
White Blood count down
Went in for my 4th post op treatment, 5fu,leuc,oxil, and my white blood cell count was down to 1.4 so a shot of Nulasta and will get another Tuesday and another Wednesday then start the chemo regimen again. I hope this doesn't prolong my treatments but if it does it does. They want to really boost my white blood count.…
Port Pain
It has been 10 days since my husband had his port put in. He is still in an extreme amount of pain. He went to the surgeon today and he sent him for an x-ray, he said something to the effect that he thinks the needle part of the port is rubbing against a rib and/or his collar bone, if that is the case he will have to take…
today is the day....
For second opinions. I'm taking my mom to a major cancer center today at 2. I'm both nervous and hopeful. Please pray for her today.
New diagnosis - kind of scared
During what I thought was a routine colonoscopy on Wednesday (10/22) I was diagnosed with a malignant mass in my rectum. I have a CT scan tomorrow morning, and an EUS imaging later this week. My gastroenterologist is a wonderful doctor, and I trust him to find me the best team, but what should I expect? I am not sure I…
Had surgery on Monday
Hi my name is Karyn I am 38 years old, stage 4 colon cancer. I was diagnosed in January, and I had 12 rounds of 5fu and I just had my tumor removed with a colon resection on Monday! I feel great! I came home from the hospital on Thurs. I had it done laproscopically, my tumor was the size of an orange! I pray for all of us…
New Procedure?
Hey Everyone, this is my first posting. I have been a member of CSN for about a year and a half or longer. I am currently 39 yrs old, and I had stage III rectal cancer resulting from FAP. So, with all the radiation I received and the location of the mass I had they had to remove my entire colon and rectum. I live with a…

Colorectal Cancer

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