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Caregivers

Archives for November 2009

Appendiceal Cancer Caregiver
My husband was just diagnosed after appendectomy in August. He had surgery and they found widespread cancer. He starts chemo Monday and I am a renal transplant recipient. I'm having a difficult time coping and I am so sad. He is my best friend and my caregiver. I am happy to help him, but I can't imagine how to survive…
Does anyone need to talk and just vent? I am here.
Hello-- If anyone needs to talk, vent, anything I am here. Trust me. I have been through this as a caregiver and I know it can tear you apart. But I am here. Lets share our stories.
Caregiving your domestic partner
Just wondering if anyone else here is caregiving their domestic partner? Lisa
First holiday without Jack
Well it was the first holiday without Jack , It was hard, Everytime I made something I just thought how much Jack would love it, I hope everyone is doing well and had a nice Thanksgiving and I am blessed to have all of ya support here . love patty
Looking for caregivers that are taking care of their spouses
I am 40 and my husband is 42. He was diagnosed in May 09 with gbm IV. He just had his second craniotomy. I am trying to figure out how to deal with the emotions of taking care of my husband,kids, house and finances. At the end of the day I just want to be held. The loneliness is starting to become unbearable. How do you…
Does it get easier
They say each day gets easier, but i dont see that, i cry all the time, I went back to my old job but there are so many memories just from work, I use to rush home and Jack would be waiting for me, so i just want to know what happens to the caretaker once we lose our love ones, I have notice once Jack passed alot of the…
Emotional Rollercoaster
This week has been insane. First last Thursday the nurse saw my husband and told me she is concerned that the tumor on his neck was ready to break though the skin and also that the tumor in his mouth is getting larger each time she sees him and she’s concerned it will rupture and we won’t be able to stop the bleeding so…
Chemo brain
My husband with colorectal cancer going through chemo has Chemo Brain. I am near tears trying to communicate with him. He snaps at me, thinks he told me something, doesn't remember things I say. I have had to come up with new communications skills and I can't always remember to do them which frustrates me and ultimately…
How fast can it spread?
Mom had a pet scan two weeks ago. Results were that her left chest was lite (Stage 4 Breast on the left side) and a verterbra in her neck. The oncologist said "We're really really going to hope it's arthritis." Oncologist has told us all along she has a very agressive cancer. Many complications later, port went in, chemo…
Very Frustrated
My daughter seems to be very angry. I find it very hard to deal with. She lives with her father up North and I travel there to see her. The environment that she is in is in my opinion not a good one. She has chosen to live with her father. I have told her that I would love for her to live with me. The area in which she…
2 week
Well it has bee 2 weeks since jack passing, It is not getting any easier I cant believe I am taking a job that starts tomorrow as a caretake for someone else, It is so hard Im just having a hard time to do anything, but look at pictures of jack, and go to different sites Im going to try to keep on this site and maybe I can…
Difficulty breathing, need some direction
My husband has end stage laryngeal cancer. He had trach tube put in Sept. to help with breathing. Lymph nodes in neck and collarbone growing. Trach tube changed last week by Dr. There was some bleeding. Dr. said everything looked good. What does that mean? He never commented on the lymph nodes. I don't have much faith in…
how wise are you??
anyone out there who has walk this road ? more than ten years ago i was my brothers caregiver back in 93 when it was new, at least new to me. he died from colon cancer (lynch syndrome) at age 33.he was father of 2 young boys. i had to fill in often. 5yrs ago i was dianosed late stage 3 and survived. my mom had same illness…
ashes
Well I had to pick up Jack ashes it seems to be finalzed that Jack is really gone, and but I still wait for him to come home and I was a little upset with a comment that Jacks brother said to his sister, he said I know we promised Jack that we would help Patty but we have to think about the family, Most all you were…
How do I do this?
I'm 27 yrs old and caring for my mother who has cancer of the tongue. She just recently had her third surgery and will start radiation in 5-6 weeks. My dad and grandparents and I are working together- taking shifts at the hospital with mom. In addition to that, running errands for everyone, and trying to keep on top of my…
confused
Im trying I just seem to be losing everything, when Jack got sick I had to give up my apartment, now I am stuck in a situation and no way out, I made the promise to Jack to take care of his dad, but his dad is feaking me out, and his daughter says she tried of dealing with his behavior, He is making inapproiate remarks and…
confused
Im trying I just seem to be losing everything, when Jack got sick I had to give up my apartment, now I am stuck in a situation and no way out, I made the promise to Jack to take care of his dad, but his dad is feaking me out, and his daughter says she tried of dealing with his behavior, He is making inapproiate remarks and…
everyone is judging me
I ready to call it quits, if i cry to much im told pull your self together read a grieving book, I plan on going out with my friends to see Jacks old band im told im cheating on Jack I give up , I promise Jack I would stay here and take care of his dad but it has his sister stimplatinons Im ready to just give up stay in…
Actively Dying
Hospice listed my husband as "Actively Dying" on Monday and had to sedate him because he was so agitated and in so much pain. I asked what Actively Dying meant and was handed a booklet and was told it is all explained in this booklet. Well this booklet explained all these signs and symptoms of this actively dying thing…
time to make the quality vs quantity decision
We have had a massive 24 hours. Paramjeet (my hubby) has been deteriorating rapidly since last Wednesday so we were expecting bad news from the scan results (for the scan he had last Friday) but we weren't exactly prepared for what we got. There is a recurrence in the original site and the new growth has grown and several…
i cant do this
I dont think I can do this without Jack We creamated him this morning, it is real now he is gone and there are people causing so much drama and Jack was here to stop all the stupidess, Im trying so hard but I am actally sleeping with his picture just to think he is here with me, I lost my soul mate, how do I go day by day…
Chemo No. 5
Tomorrow is round 5 of 8 of chemo for my wife. At the half way mark last time the symptoms lasted longer. She's really getting weary and although we are on the downhill slide, it gets harder and harder to endure for her. I consider it an honor to be amongst all of you who are so strong and such inspirations. During her…
Both Parents Diagnosed -- I think things are about to get challenging
Hello. I posted this same message in the esophagus cancer section; my apologies if this is repetitive. My parents and I have always been relatively healthy, until now. In August of this year, my mother was diagnosed with breast cancer. A month after that, my father was diagnosed with esophagus cancer. I joined this site…
Terminal Diagnosis & Giving Things Away
For those of you who have lost a spouse or have a spouse that has been told there is nothing more that can be done, have you had to deal with your spouse giving their possessions away? My husband was told on October 1 that there is nothing mroe they can do for him and we have hospice in. We don't know how much time he has…
thank you
I want to Thank all of you for your support this site has gotten me through alot of stuff, and I will continue to sty on becasue maybe I can help someone else, Im so use to getting up so early with Jack so here I am trying to figure out what to do, We are not having any services till Feb when the other family ( who was not…
arrangements
well we had to make the arrangement for Jack, I got to see him one more time and kiss his forehead, I love him and miss him so much I am so lonely and in the middle of all of us grieving I had to deal with wife /ex wife, I never got a chance to file the papers so she made a scene and called the funeral home and wanted to…
Something for the Soul...
Something to console or simply to fill a few voids. You may actually find some of these useful....... 1. Life isn't fair, but it's still good. 2. When in doubt, just take the next small step. 3. Life is too short to waste time hating anyone. 4. Your job won't take care of you when you are sick. Your friends and parents…
scheduled CSN outage tonight
The site will be down tonight from 1:00 to 5:00 a.m Eastern Daylight Time for scheduled maintenance. Greta Your CSN staff
Signs...
Here is a touching story I just stumbled upon... http://neatorama.cachefly.net/notes-left-behind.htm Wonderful signs left behind.
its so unfair
I feel like I have been cheated with time with Jack, We meet in June 2009 and he was dx in Aug 2009, and I decided to stay and we fell so much in love, We had such a short time and most of the time was fighting cancer, The world lost an amazing drummer, and I lost the 2ns chance of love, so where do I go from here, My…

Caregivers

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