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Liver Surgery on Wednesday Feb 22nd
As you know I found out that my esophageal cancer had spread to my liver a few weeks ago on my 4th Cat scan a year after the surgery on my esophagus. The malignant tumor is in segment 7 at the top left of my liver. The surgeon at Mass General told me that without the surgery, there was a 100 percent chance of death so here…
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waiting and hoping for good news
Got all my scans and tests done, now waiting for the doc @ u of mi . this period of time is aweful. All the thoughts running through my head. I read the reports and to me I dont see far spread mets. Praying for the best, but always afraid of the worst. thanks for all you do, phil w
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Haven't posted...Tom has another CT in a week and half..then off to FL
Last chemo round is Wed..then the next Wed CT. He's been down thinking he has bad vibes about this CT. I know the neuroraphy is bringing his spirits down. So maybe FL will help. He's not very communicative and this could be a terrible trip for me. But I've ordered another blue sheltie cross stitch and I'm taking my water…
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Scared
I am so scared of loosing my husband. He has stage four EC, and it is in the liver, lymph nodes, and now his lungs. He is 34 years old. We have a beautiful little girl that is 6 and I don' want her to loose her dad, but both of us are strong, and are fighting. I hold him up when all he wants to do is fall, and I vent to my…
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Our anniversary
I am overwhelmed at how good life is for me today and wanted to share.My husband and I will be celebrating our 50th anniversary with family and friends this afternoon.I feel like not only am I celebrating our anniversary, I'm celebrating life. In 2007 when I was diagnosed with stage three EC, I truly didn't think this day…
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Back from Duke
Well, we went to Duke this week and they were incredible. We discussed a possible trial and some other chemo combos. The oncologist said I was doing very well for my stage of disease. At this point, I'm leaning towards not doing the trial and sticking with chemo locally. The trial would require me to travel to Duke every…
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Any news of Eric (Chemosmoker)?
Sorry folks, but I'm not a Facebook member. I know many of you are. Could someone provide an update? Thank you! Terry
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New Chapter didn't begin!
After driving for an hour in L.A. rush hour traffic to be at the radiation place at 9 a.m., we are one ramp away from exiting when the phone rings and it's the radiology office calling to cancel! Their machine broke! Grrrrrrrrr! They said they'd call to reschedule. Sometimes chapters drag on and on, so I'll post when the…
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Describe For Me "Physical Cancer Pain"
Because I never officially had EC (only a tiny bit of my tumor lit up) and my tumor was completely removed, I never had radiation and/or chemo. But I did have excruciating esophageal pain for 3 three years due to complications from my surgeries. There were many times after hours of vomiting where I'd be screaming and…
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Radiation Questions
Hello, I wanted to ask for help once again. My mother is 86 years old. Her cancer has spread outside of her esophagus to multiple lymph nodes in her chest area. She has been receiving chemo for almost a year. Initially, she was going once every 2 weeks and receiving the Folfox treatment at normal doses. Since she was…
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New diagnosis - stage 3, questions abt treatment, fasting and VA
Hello all, My Dad had a CAT scan yesterday and an ultrasound today. The doctor said it was stage 3 (he did give the specifics, but from what I can figure out he is a T3, N0 (or 1, they couldn't tes the lymph nodes right below his tumor because they couldn't get to them) and M0. He is a very healthy 67 year old vet. We are…
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New chapter begins tomorrow
Mom's first internal Radiation Boost is tomorrow morning at 9 a.m. I will tell her tomorrow when she wakes up. I know she's fretting about it, and if I tell her tonight, she won't sleep a wink. This will be the first of four treatments to rid her of the remaining 2cm of tumor in her esophagus. Good News... The Home Health…
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"Happy Valentine's Day"
This is to all you people who have lost your Valentine just like I did a little over a year ago. I was sitting here today, somewhat sad, thinking how I have lost my "Valentine" to this horrible cancer and started thinking about all of you who must be feeling the same way as I do. It is never quite the same, is it, without…
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Another ambiguous scan
Hi folks, I had posted that Jeff's 5 month post-op scan was yesterday, we got the results today. Again the scan mentions something in the lungs. The thing in the lung they saw last time is stable and not changing, but there is a new nodule. This time the oncologist thinks Jeff should get a PET/CT in two months to see if…
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Painful Teeth
Mom has been off chemo and rads since Jan 6th. She is complaining about her teeth hurting. Anyone have any info on painful teeth during this stage? She isn't using her mouth for much - all her foods are puree or smoothies. at 84 she has all her teeth. I will also ask the nurse today when she comes.
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36 and stage 4 esophageal cancer
Gday, Well to introduce myself,my name is dan,im 36 and from australia.Around august 2010 i was diagnosed with stage 4 esophageal cancer with it also detected in a distant lymph node in my neck.I Had 28 days of radiation to my esophagous and lymph node and two rounds of chemotherapy ,immediatley after my swollowing…
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Searching for insights, information and an understanding of what we may expect
It has been a whirlwind these past seven weeks and we would be grateful for any insights. We are learning, asking questions and trying to educate ourselves. Brief History - Tom had Barretts Esophagus 12 years ago which was treated. Since then he was advised to get a scan done every couple of years. At the most recent scope…
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stage IV and into our fourth year
Hello everyone, I have not been posting but have visited this wonderful site many times. I have also gained additional information here that has helped when visiting with our oncologist. Rick was DX in Oct 2008 with stage IV with mets tom the liver. Surgery was dismissed. Four rounds of the three part chemo cocktail…
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What should we expect?
We found out about a month ago that my grandfather has an aggressive form of esophagus cancer. My grandparents have decided that the best route for them would be surgery to remove his esophagus. He is scheduled to have his surgery on the 20th of this month and I really just want to know what we should expect. I am…
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Happy Birthday William and Loretta
Thought you were going to sneak that in at the end of one of your long post, didn't you. Well I read it. Happy Birthday to you and Loretta, February is a big month for you two sweethearts. What a good day to celebrate! Enjoy, Lee Ann
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G-Tube How much to feed?
All I was told after the G-tube was inserted on Thursday was to flush every three 3 hours eight times. That flushing has finally been completed. I can't find any instructions on how to feed her Boost or Ensure, which is all she is to take through her G-tube. Do I give her 1 can at a time? I know I have to flush with water…
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Recovery
My husband had surgery Dec. 21, 2011 for stage 2 esophageal cancer. They removed the bad part of the esophagus and cut his stomach and pulled it up to tie into the good part of the esophagus. 23 limphnodes were removed and all came back neg. He is 6'1" and weighted 182 at the start of his whole ordeal (6/11) now weights…
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CT/PET scan Thursday
Will this show if nodes are hot?
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extreme weight loss post esopgagectomy
My husband, 62, was diagnosed with stage 3C EC in December, 2010. He underwent chemo & radiation, then had surgery in June. 6 month CT scan was normal (good news). The problem is that he cannot gain weight, in fact, he is losing weight. He is now down to 150lbs. Some food stays in his stomach, with no issue, but probably…
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advice for esophogram and or pet scan this is all new to me
any exrerienced listers got any tips or advice for a newby. swallow test mon and pet thurs. thanks for all you do====phil w
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Radiation recovery
Hello everyone..,, Just curious...how long after your last radiation treatment did you recover???? cough??? thoat burning?? -Lynn
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A word of encouragement
It has been a while since I have been on the boards here but I wanted to update folks to give a little encouragement. I was initially diagnosed with EC in September 2009. I had chemo/radiation and everything looked good. In May 2010 EC popped back up and I had an Ivor Lewis in June 2010. The result of the surgery was that…
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2 wks post op update and QUESTIONS
Hi All, been a long few wks. Nicholas is doing well and has been home for the past wk and I am back to work at both jobs so not much time online. So far no issues with fatigue or dumping, very little reflux. Eating is going well except for a piece of salmon that was gagged back up. Hopefully no stretch will be needed. Saw…
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Good news today
Got PET scan results, almost two years post op. PET scan clear and blood work good. Going to start spreading out the oncology visits and scans. We are very thankful. BMGky Dx Dec 2009 Stage2N0M0 Cisplatin 5FU and radiation Ivor Lewis April 2010
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Metastatic or not ?
Hi from snowy London (UK) guys! Quick background: Mum 49yrs old dx April 11 poorly differentiated adenocarcimoma with signet rings. Stent fitted, dysphagia resolved. Had PET scan which revealed cealiac lymph node enlarged and superior anterior mediastinum lymph node enlarged. Declared not suitable for surgery, fine needle…