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Question regarding my Dad- need advice
Hi everyone, Dad had surgery a few weeks ago. Recovery has been going pretty good. The past couple days he has had increasing pain and a low fever. Mom took him to the doctor yesterday,and they gave him an antibiotic at the local doctor whom I don't really trust. They did a chest xray, and said there's some pockets of air…
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Jimbo...... hope all is going well
Hi Jimbo, how are you doing? Have you finished Chemo... and Surgery? keep us updated, you are in my thoughts. I hope all is well. Sal
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Liver Tumor is Malignant
A Pet/CT confirmed that the 1 inch tumor found in my liver on the 4th Cat scan since my Esophagus surgery in Dec 2010 is malignant. At Mass General they are convinced that it is stage 4 esophageal adenocarcinoma in the liver. Initially I was told that chemo with Folfox was a high possibility, but their top liver surgeon,…
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Chemo radiation question and malnutrition
My father had MIE surgery on the 13 of October for esophageal cancer located at the GE junction. The biospy report showed cancer cells in stomach. Had 6 weeks chemo radiation post surgery for the stomach which he completed on the 13th of Jan. Is it normal to still feel really weak almost 4 weeks after treatment is…
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dates for tests
just got ct,pet scan and esophogram scheduled. all to happen by the 16 of feb. then will get date for app.@ uof mich . this is all beging to get real ,real quick.
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My husband has Stage IV EC
My husband was diagnosed with StageIV EC in July 2011. He had a ‘spot’ in his liver and on his spine. He was given aggressive chemotherapy, including targeted Herceptin (since his tumor was positive for HER2) and Cisplatin. His scan in Sept was GREAT with all tumors shrinking or disappearing. He also had a stent inserted…
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In need of help. Wife in distress
Hello, I have been scouring the internet like most with unanswered questions. My husband over the last year has had trouble with a sore throat, dryness, trouble swallowing. He has to think when he eats so not to get choked on his food. His voice is horse and it is getting worse. I knew when he made his own appt. that it…
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just got my dx
Just got results from egd. it showed EC.esop/gastroesophageal junction,modertatly diferentiated adenocarcinoma,invading at least yhe lamina propria.high grade dysplasia is positive for HER/2/neu(3+/70%) I cant make heads or tales of this.Trying to get appt @ u of m. Thanks for all you do.really scared, this is a second…
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questions questions
My cousin is having surgery Monday the 13th of February. I don't know much about his cancer other than it's esophageal and it's stage 3. He's had it since at least this time last year. He had a feeding tube for awhile. The surgery he's having on the 13th is because the cancer has returned, now the dr's want to cut it out…
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different medications
I am newer here but a while back just after my husband was diagnosed with stage IV EC I saw a posting someone had on here about different meds for pain, nausea as well as acid reflux and other types of problems. The list was about a whole page long and had many ideas on there for people during this fight we have to face.…
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Have more info, although not great news.
Hi EC Friends, I haven't been on in a while. I thought I would do my best to take a break. I'm trying to find things to do to occupy my mind as everytime my mind idles, I end up in tears. I have been reading your posts. I was saddened to hear of Alan's passing. My heart aches for all of us here. Every day is truly a gift.…
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My beloved husband, Alan passed away.
For those of you who don't read Facebook I would like to let you know that Alan passed away very peacefully in my arms on January 31st. I had posted here that since Christmas day he had developed a pain in his back and said he only felt comfortable lying down. The Drs dx a water infection and he received 4 lots of…
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G-Tube
Mom is going to have a G Tube inserted on the 8th. What do I need to know about feeding her through a tube? I was not able to be at the doc's office when she was told this. She is of no help in answering questions. She shuts off her brain. My brother told me someone would come and show me how to feed her through the…
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Always fighting to get tests, the results & explanation
Hi all Again looking for some information, the Xray shows "right pleural effusion", my reading suggests this is ca spread and time left is is very limited maybe weeks. I'm sorry to ask but there is two week wait for specialist appointment, four weeks wait for urgent CT and the primary doctor will not explain many thanks kit
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update
update new Just an update on hospice. They came in right away and took over on everything gave us everything we need and more. Jarrell is feeling and looking better than he has in months. They changed his medication regiment and he is up receiving vistors and looking forward to things again. Hard to believe this could all…
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Women with EC--get free help with housework---You others can help make this more available!
Here is a wonderful resource for women with cancer--any kind of cancer--. Don't be fooled by the Breast Cancer logo on the website. The social worker at my cancer center gave me the information on them but said it was hard to get in as there was a lot more demand than participating cleaning services at this time. I found…
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some good news
Hi, Well I had my 6 month scan and checkup, my scan was clear. Saw my surgeon and onc dr yesterday. My onc and I had a discussion about percentages of recurrence and this is what he explained to me. They can be high but most recurrences making the percentages high occur during the 1st year and then some during the second…
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Honeymoon Period?
Hello, I am new to the forum but I have been "lurking" since late November. My Mother was diagnosed with Stage IIIA esophageal cancer late last year. She is currently doing weekly chemo and daily radiation. She just started week 3 of 5. After week 5 she will "rest" for a month and then have the esophagectomy surgery. She…
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PET scan results - Confused!
We went to the doctor and the repeat PET scan showed a complete response. We were thrilled! Then the doctor went on to say this is palliative treatment and will prolong life, it is not a cure. He said the original prognosis of 6-9 months was now more like 12-18 months because my husband responded to chemotherapy. My…
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Rachel Naomi Remen M.D>
right now listening to Rachel Naomi Remen MD give a interview on the mystery of illness including cancer. If you do a search on this site, you'll find her. Amazing. http://www.humanmedia.org/catalog/advanced_search_result.php?search_in_description=1&keywords=rachale+naomi+remen&x=0&y=0 Cora
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Horrible side effect of Radiation treatment
Hi all Please can I have your prayers for Mark, he has reacted to the radiation treatment really badly, I am so scared. Ann
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Esophageal Ulcers
Well, my wife and I were wondering why it still hurt to swallow now that several weeks have gone by after rads/chemo. Talked to the oncologist and said swallowing is still hard, and it hurts, could we stretch the esophagus? Scheduled an endoscopy for yesterday, and they did a stretch, but guess what? The reason why it…
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Hospice
Today we made the dicision to call hospice in to take over Jarrell's care. I am feeling so angry with his doctors right now. If only they would have been more truthfull, we could have given him a better quality of life sooner. It saddens me as I watch his depression deepen. We had such high hopes. I am feeling so defeated…
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Any word of Jeff Thomas - 2011 Class "President"
Laura, Erica, Niki - Has anyone heard any news of Jeff Thomas? I know he had a very difficult back to back MIE / Ivor Lewis. Seems like there might have been need of some follow-up chemo as well. Just hopeful that all is improving for Jeff. Terry
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Diet question
Hi everyone, I was trying to search the board for info, but it took a while to wade through everything so I thought I would just post this question to those of you who know this info. My dad is on the anti-dumping diet after his surgery. His home health nurse said to avoid foods with sorbitol and xylitol as an artificial…