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just found our ANOTHER family memeber has EC....
Sadly, I just found out last night that my uncle (My dad's brother-) was diagnosed with EC> My dad just under went surgery for EC 12/7/09. I am so sad. They have not staged it yet. My cousin is a PA so she will be able to help and support him. Kim
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pain
how long does the pain in the side rib cage continue after surgery. also, chest?
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In Loving Memory Of Albert R. Franko
To My CSN Family. This is the poem that was on the back of Al'S Memory Card. God saw you were getting tired, and a cure was not to be. So put his arms around you and whispered. "Come to me" With tearful eyes we watched you, and saw you pass away. Although we loved you dearly, We could not make you stay. A golden heart…
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PET scan results
We got Lyle's results today from the PET scan. They found one lymph node but right next to the esophagus. Soooo....it turns out to be T3N1M0...same as you, William. We will meet with the oncologist next week...get the port...meet with the surgeon to be sure Lyle is a candidate for surgery before the doctors finalize the…
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loss of memory
Hi all, over the past few days my husband's memory has significanly deteriorated. Yesturday, I had to remind him 5 or 6 times it was Thursday, he doesn't remember conversations with the doctors or the kids and many other things. I've never delt with cancer before, but I assume it's not just the medications he's taking and…
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Cough
Jim has developed a terrible cough over the past week. Last night he coughed for 5 minutes without stopping, causing him to become nauseous. We have Zofran dissolvable tabs for that and, luckily, they work instantly. He hates the codeine based cough syrup because he can't shake the drowsy feeling during the next day if he…
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For all the new ones to this site-OR if you want to make a difference...
Hi all my csn friends, I love you all, but am sad by the losses we have had recently and that we actually get new people frequently---that reminds that this disease is not as rare as some think! I want to share this educational site again---it has great info and would be good to share with family and friends.…
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1st Discussion Post
Although I have been ‘lurking’ on this discussion site for a couple of weeks now just getting the feel of things, this will be my first post to the site. My name is Michael and I was diagnosed with adenocarcinoma of the esophagus on Jan. 18th, 2010. I have been a member of another listserve site for several weeks now since…
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Update on new chemo treatment this week
Eddie had his first new chemo session this past monday,iv oxalipatin and six pills daily of xeloda., well things are not going well. He came home Monday at 4pm and has been in bed since, literally, in bed other than going to the bathroom. I cannot get him to drink more than three drinks a day, therefore, I believe he is…
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New here....My mom was just diagnosed with esophageal cancer
Hi everyone! My name is Jennifer and my mom, Nicky, was just diagnosed with esophageal cancer. It is a complete shock to everyone as she does not fit any of the risk factors and cancer does not run in our family. She is 57 years old and healthy otherwise. She wasn't feeling well since October of 2009 and had cold/sinus…
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New here and Baby Sister has EC
Hi my name is Tina and I have been a peeper on here for some months now. I want to convey my deepest sympathy to everyone who has lost a loved one to this horrible disease. My baby sister age 35 was diagnosed with ec and stomach cancer in November 2009. She is a stage T3N2M0. It is a very rare signet ring cell type. The…
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LETS START OUR OWN TRIBUTE TO KATHY IN MEMORY OF AL FRANKO
Kathy, My heart and love are with you during this difficult time in your life, Please know I am here for you along with all your other CSN friends, just remember all the good memories you two have, and lets continue to fight this disease we call CANCER. GOD BLESS Lori (moe)
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To my CSN Family
I just wanted to let you know that I am doing O.K., Al is in a better place and I thank God that he took him when he did with his children and grandchildren were here. I am sure that one of the last sounds that he heard was his gradaughters laughing and playing. This is about all I can post right now. William thank you for…
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Thanks for prayers
Hi all, Well, the funeral was yesterday. It was beautiful, if a funeral can be. It was so conforting. I am truly exhausted! I do miss him so! I know he is in a better place. I did't mention it before, but we had lost our 21 year old son 6 years ago. I know Dan is with him now. That is my peace.I wrote a few words that were…
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Radiation/Chemo question...
Lyle and I have an appointment with the radiologist tomorrow and then the PET scan later this week. In the meantime...I'm having some chest pain...reflux? Heart? Well I went to check it out and have to have a procedure just to make sure I don't have any blockage. Great timing...right? The cardiologist says stress will do…
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I went to funeral today....
For all of my friends on this site---keep these words close when you are sad about recent losses here. "Blessed are those who mourn, for they will be comforted." Matthew 5:4 These were just SOME of the words that have spoken to me lately. Even though this friend had lived a full productive, giving, Christian life, it was…
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Vitamin D
Hello All, Good Morning America just had a segment on Vitamin D and cancer. I know this is not new for a lot of us.....Sherri, I think you turned us on to this months ago. I am sure you can find the segment on line....just go to GMA's website......and start taking your Vitamin D. I added it to Charlie's meds (with the Dr's…
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CHAT
I TRIED TO GET ON THE CHAT BOARD AND IT DOESN'T COME UP. DOES ANYONE KNOW WHY? lUCILLE
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sherri-please answer me ok
you and I have talked before Sherri, his doctor does not want to put in a feeding tube nor does eddie want one right from the beginning. We see an oncologist where there are four other doctors, should I ask for a second opinion before we start chemo tomorrow. I have thought about this before but ed just says "no" leave…
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AL HAS PASSED AWAY
Hello all, Ericka posted a previous note stating Al passed away early this morning, he fought a hard battle and Kathy aka Mumphy, was a EXCELLENT care giver. Please keep her and his family in your thoughts and prayers. Just wanted to put another title out so everyone would know Thanks Lori aka Moe
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Al and Kath (mumphy)
I spoke with Kath this morning. I'm sorry to pass on this sad news. Al has lost his battle to this ugly cancer at 5:30 this morning. Please say prayers, extra prayers for their family. His family waw able to come up and visit. Kath will write more when she's able. Just please keep praying for them all. Erika
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husband seems to be giving up?????
Since Ed got the bad news a week ago that the pet scan showed first three rounds of chemo did nothing in fact, the cancer grew, he has basically stop eating and drinking. He lost five pounds in three days and we are suppose to start new chemo regimen tomorrow. I am basically very very concerned about starting any new chemo…
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TIRED OF BEING SICK
HELLO, MY HUSBAND WAS DIAGNOSED WITH EC APPROX. 2 AND HALF YEARS AGO. HE DID NOT OPT FOR SURGERY, BUT RADIATION AND CHEMO. HE IS NOW ON HIS THIRD SESSION OF CHEMO. THE CANCER DID SPREAD TO HIS LYMPH NODES. HE HAD HER 2 IN HIS TISSUE AND IS TAKING HERCEPTIN 2 WHICH IS FOUND IN BREAST CANCER PATIENTS. HE IS TIRED OF BEING…
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Kim's dad-doing well---those with EC-keep hope!
Hi everyone, I am very torn writing this---so sad for recent passing of CSN friends..,It doesn't seem right to tell you that my dad seems to be doing very well-(except not gaining weight yet-but not loosing either). But--Lori (AKA Moe) said I should.... And I know my dad would want those that have EC--"Don't give up--have…
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gained weight finally!!!!
Hi, I am still so sad over the bad news about Al because he got his surgery just before I got mine and I was hoping all would go well for him and Kath and then Weezies husband has gone on as so many of our friends here have, that like Lori says in her post you feel guilty when it is going okay for you. I have had my ups…
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Update T1A
Jim's surgery scheduled for the 23rd at UT Med Center in Knoxville has been canceled after closer inspection of the endoscopy ultrasound. Two nodules were discovered around the area that will be extracted; however the doctors believe that chemo will be needed prior to as opposed to after. Originally we were not…
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We saw the oncologist...
Well...Lyle and I went to the Oncology appointment and was greeted by a surprised doctor who didn't seem to know the Lyle is a dialysis patient! So...We left without a plan...paperwork to make a PET scan appointment...a promise that the radiologist will be calling us to schedule an appointment...a request for another blood…
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Burning feeling on tongue
My dad was diagnosed with EC-Stage IV a few days before Christmas 09. He's on his second cycle of chemo and has started to have a burning feeling on his tongue. It's making it difficult for him to eat certain foods. Does anyone have tips on how to relive the burning sensation? Thanks so much! Carolyn
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I FEEL SO BLESSED, AND WE HAVE LOST SO MANY ON THIS SITE IN THE LAST SIX MONTHS
Hello everyone, I just wanted to post something and hopefully everyone will feel the same, we have lost so many of our friends on this site in the last six months because of this ugly beast we call esophogeal cancer. Kathy aka Mumphy signed up on this site about the same time, as I did we have become close cyber friends.…
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Naseau and vomitting
Ed has not had chemo for three weeks, as you all know, he did three rounds of cisplatin and campostar and last week's pet scan showed it did nothing at all, in fact, this horrible cancer even grew more to his liver and abdomen. Now he is suppose to start oxalipatin by iv and xeloda six pills daily starting this upcoming…