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bile duct blockage
My husband was having lots of pain Tuesday and was becoming jaundice, he was scheduled for chemo but wasn't able to after his blood work came back. He had elevated levels of bilirubin and many other things. He had a CT scan to confirm a bile duct blockage and ended up having surgery yesturday to insert a stent to drain the…
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Side effects?
Well, we don't know if they are side effects, or if Jim caught a bug of some sort. He has a bad productive cough, so the PA called in a scrip. Then he was nauseous for the first time since starting chemo. Took the Compezine and it worked for a little while, then not. Don't know what to think. We see the PA this afternoon,…
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Sad news but no more suffering
Dan lost his last battle at 5 am yesterday morning. Sorry but cannot even type or think right now. Just wanted to let you all know. Thanks for prayers and support through this horrible journey. I continue to pray for all of you, that you may succeed in your battle. Keep the Faith!
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Just left M D Anderson, and am very confused
Hi Everyone, I just left MD Anderson and am very upset at the conflicting advice I got. First I saw a radiologist that said there was no need for radiation since I had had the surgery and there was nothing to radiate, but that the medical team had agreed to chemo. Then I saw the head of the oncology department that said no…
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Al will not be with us much longer
Hello, I am posting to tell you all that Al has lost the battle with this disease. We met with all of the Dr's today and it has spread to the point that it my be in his brain we opted not to do any more scans. His liver is failing and will no longer be able to with stand any type of aggresive chemo therapy. He will only be…
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Update on my dad
Well I'm writing again with sad news. He's still in the hospital and is still sick. Hopefully he'll be better tomorrow. The oncologist called me mother to say that she needs to talk to them about discontinuing chemo on my dad. I'm outraged about this. She hasn't seen my dad and to be so cold as to call my mom and say this…
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Update on my dad
Well I'm writing again with sad news. He's still in the hospital and is still sick. Hopefully he'll be better tomorrow. The oncologist called me mother to say that she needs to talk to them about discontinuing chemo on my dad. I'm outraged about this. She hasn't seen my dad and to be so cold as to call my mom and say this…
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First trip to the Oncologist
Lyle has his first appointment scheduled with the Oncologist this Friday. We have questions like...How will the treatment effect his dialysis. What should we expect? What are some other questions we should ask to be informed about his treatment? I appreciate your guidance! Thank you, Susie
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Re-Starting Chemo Tomarrow
Hi All, Al has his f/u appointment with all of the Dr.s tomarrow. First we see the neruosurgeon to see whats going on the the mets in his spine. Then we go to the oncologist to see about re-starting his chemo. Thank God for Hillman Cancer Ctr. all of the Dr.s are there on Thursdays so we go from the 3rd fl. down to the…
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New chemo treatment have lots of questions
My husband did three rounds of cisplatin and campostar, recently pet scan showed it did nothing in fact, his cancer grew more, more mets to liver and stomach. So the doctor today changed up his treatment plan to: Oxalipatin done by vein once every 21 days xeloda three pills in am and three pills in pm (500 mg each pill) I…
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Does anyone know what to do about the foamy substance that develops
Hi All, Has anyone experienced that foamy substance that develops in your stomach? I've had it for the last few nights and it is very discomforting. Have you found a way to treat yourself when it happens or even know what it is, and why it happens>? Any information would be a big help. Thanks. God Bless!!!
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Here is the latest on my dad.
He is doing good, you know the saying, one step and day at a time. Thats how we take it now.. He had his 1st chemo treatment on the 28th of Jan, he did good. Didnt get too sick but for sure during that first week he didnt wanna eat at all. He lost 6lbs. He did feel the cold sencetivity right away. They switched his nause…
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update on my dad - not good
Things aren't going well at all. He had his G tube and that went well. Friday night he ended up in the ER with a swollen stomach and an oozing tube. It's infected. They cleaned it up and sent him home with antibiotics. Yesterday he had his 1st chemo, 5FU and oxiplatin. They got home late, around 9 and my dad starting…
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Hi, All! I'm new to this and am looking for some support and information
I was diagnosed with EC on 9/25/09 afte an EGD. I had been experiencing stomach pain, inability to keep food down and dramatic weight loss. I tried to ignore this out of fear, but of course, that didn't work. I have had one full 6-rounds of chemo and was told I was in remission on 12/22/09. On 01/21/10, I had surgery in…
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what is the name of oral form of 5fu?
My husband's doctor may be changing him to this oral form of 5fu, what is the oral name and how big are these pills as he has a swollowing issue? what other chemo drug is it usually put with? Is 5fu stronger than cisplatin and campostar which he did three rounds and the pet scan showed it did nothing and actually his…
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Trying to get Dr. Oz to do piece on EC
Hi, I wrote an email several weeks ago, asking the Dr. Oz show if they could possibly do a show on EC since we have so many people find out in the later stages that they have this terrible disease. I mentioned I did not want to be on the show just thought that he does so many public service shows where he tries to make…
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oral 5fu
Has anyone tried oral chemo 5fu, two pills daily along with vein chemo. My husband's oncologist may be suggesting this treatment plan next week and I would like opinions. I thought 5fu was given intravenously. thanks
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Awareness Event
For any of you in the Hattiesburg, MS area, the school where I teach is hosting a 5K Run/Art Walk on Sat., Apr. 17 to raise awareness of Esophageal Cancer. Each year our school hosts this event for a charity that has touched our school community. This year it is especially dear to me as my husband was diagnosed with EC on…
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T3N0M0
T3N0M0 - is the result of Lyle's endoscopy with ultrasound. Next step, they tell us it to see the Oncologist and then the surgeon. I'm curios to see what the doctors have to say...considering Lyle is also a dialysis patient. I have a hard time wrapping my mind around how all this is going to work with his current health…
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Herceptin question
Hi everyone, two months ago I brought up the use of Herceptin to our Oncologist. He hadn't heard of the use to treat EC so he looked it up right there in his office. He said he would contact the manufacturer to see if they would pay for it, seeing that it is still experimental. Well like I said that was two months ago, I…
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New Pet Scan results, very very upset!!!!
Ed has his first pet scan since starting cisplain and campostar back in December, did three rounds of it., had pet scan, results were as follows: More liver spots, more cancer to his abdomen, basically his doctor said " this chemo did not do anything, in fact, his cancer grew". His original diagnosis back in october 2009…
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Asked if I wanted a support Group!
Hi Everyone, I was recently asked by the very nice social worker at Hillman Cancer Center if I felt that I need to go to a support group. I look at her and said that I have had a very large support group since I found this site. She looked at me kind of weird and I explained to her that I found all of you while I was…
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T1A stage
My husband has just recently been diagnosed with T1A stage of esophogeal cancer. Major surgery is scheduled for Feb. 23. Any suggestions about long term care etc. would be appreciated. At present I am in the "numb" stage dealing with this blow.
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J tube, Dave was right.
Well the dr had me come into the cancer center and the surgical PA looked at it and said what Dave our new board member told me, yeast infection and she burnt off some granulated tissue with silver nitrate very gently that stuff burns!! She prescribed the nystatin powder, like Dave mentioned, Dave had said that in his post…
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Please help...
Is there something I can do for my husband to help take away his pain? We still do not have a diagnosis...but he will just be sitting there and pain will begin...what he calls heartburn. It is terrible watching him suffer!! I don't know if I'm strong enough to take this journey....
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Awaiting pet scan results thursday
Ed just had his second pet scan (first one done in November when he was first diagnosed), we see the doctor this Thursday to consult with him. Originally he was diagnosed at stage four with mets to liver, stomach, pelvis, etc. He has done three rounds of cisplatin and campostar, still three more sessions to go. I am…
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Reports not good!
Hi everyone. I just talked to the Dr. a little while ago. The cancer has move to more places in Al's spine and he also has spots on his liver. We are going to try chemo very cautiously. The Dr's understand our position on quality vs quantity and at any point we feel it is to much or really isn't helping we will stop. I am…
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Has anyone had their Esophageal Cancer that has metastasized gone on remission?
I need some hope. You may remember, I have EC, and have had surgery. After two months of no cancer, I broke my neck and found out my EC Mets to the bones. I was wondering if anyone has had something similar to this and has had success with chemo and radiation? I know each individual case is different, but hearing someone…
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Has anyone had their Esophageal Cancer that has metastasized gone on remission?
I need some hope. You may remember, I have EC, and have had surgery. After two months of no cancer, I broke my neck and found out my EC Mets to the bones. I was wondering if anyone has had something similar to this and has had success with chemo and radiation? I know each individual case is different, but hearing someone…
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symptoms
Why is it that my husband could barely get food in on Friday and Saturday...but then had a good food day yesterday and is feeling pretty good today? Do the symptoms come and go for anyone else? Susie