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Ovarian Cancer

Archives for October 2011

Ovarian cancer 3c diagnosed Dec 2008
I was diagnosed Dec 2008 with 3c ovarian cancer first treated with standard protocol . Carbo,taxol six rounds. Remission for a year, then metasties .treated last July with carbo, taxol, and avastin. After six rounds, started avastin alone starting jan 2011. It has been ten months on avastin, wondering how much longer it…
:(
Hi ladies, I have been away for a while , mum managed to complete the 6 rounds of doxil , but the numbers are creeping straight back up again. We are not surprised, but still shocked to hear it none the less. The onc gave us three options . 1 do nothing, ( not an option !!!!) 2 topotecan , in mums case it only has about a…
My Awareness Effort
I'm trying to do my part in awareness. I submitted a story about my relationship with my horse and how he helped me regain my health after treatment to a horse magazine I subscribe to. It includes some information about the disease and, if they include it, a web address to look up the symptoms. Well, they accepted my…
Seeking advice -
Hello all, My sister (68 yrs old) was diagnosed with adenocarcinoma endometroid type, FIGO grade 3. cancer in the summer of 2010. She is being treated at Sloan in NY. She had a total hysterectomy (they removed regional lymph-nodes as well as portion of the omentum) shortly after followed by adjuvant chemotherapy, she then…
need for chemo
I had stage 3 ovarian so had 6 chemos and surgery. At my 6 month checkup, my markers were 182. One doctor said chemo fairly soon but cat scan first (results soon). He's no longer doing chemo and gave me a new doctor who said we'll proably let it ride. Oh yes, regular dr. found tumor during exam. Should I be concerned? Is…
cancer reoccurence
When undergoing chemo after being in remission for 6 months, are the side affects the same?
Anti-Depressants
How do you guys feel about maybe starting an anti-depressant to just take the edge of things while going through treatment?
I don't know what to say
It's been exactly 5 months since my mother died of this disease. I lurk on the board. I come and see new names and want to offer hope and support....and realize I haven't any to provide. then I see Linda P's post and am sickened. Then I see old names who were my life for so long, LeesaG, Carlene Hissy Fitz, Kayandok, and…
chemo # 7
Hello ladies !!! I just finished chemo 7 today. My ca 125 is now at 110. Great news !! My ct showed residual cancer in 4 lymph nodes. Onc said 2 on the right under liver and gallbladder- 2 nodes on the left under stomach and duodenum. He also said these were really hard to get to. They were all less than 1 cm. He will…
this disease sucks !
Even if the news is not terrible there is no way to share it with my family without freaking them out ! I just got my ct/pet scan result in the mail and I only understand half of it but know enough to know there is progression and will need further treatment. I just want someone to lie to me and tell me it will be alright,…
Posting for a newbie lost in the forum...
Hello all, My name is Michelle and I usually post in the Caregivers board. Today we have a new poster that posted and said they were a little lost and are autistic as well as dyslexic. But is very concerned for his wife and I thought I would post his question here and someone here might be able to help him. If so, you may…
Now that chemo is over, what can I expect?
I took my last treatment Tuesday. I'm achy and fatigued today. I will remain on Avaistan for two years. What can I expect now? How long will it take for my body to recover from the chemo? While my last CA-125 was down to 14, I am still scared. I suppose that's normal. I have noticed that when I don't feel as well…
Suggestions for Ovarian Cancer Speech
Hi Everyone, I just wanted to share some good news. I was contacted to give a speech about my story and to raise awareness for ovarian cancer. I will be speeking to approximately 45 girls and women. I will be stressing the importance of how and why it is the silent killer and how it is extremely important to know the…
Linda P. Where are you?
Checking in on you, please send us an update.... Sending thoughts and prayers.....Laurie
I DID IT! JUST FINISHED MY LAST TREATMENT!
My platelet count went from 35 to 82 in 7 days. They gave me the treatment. I will be on Avaistan for 2 yrs., twice monthly. I see the dr. Nov. 15. He will then schedule a pet scan. CA-125 was 14 three weeks ago :) Thanks for all your help and support! To the lady who recommended the Tahini butter, maybe it worked, just…
Harry Connick Junior
was on Pierse Morgan today. His mom died from Ovarian cancer when he was 13. (Maybe you guys already knew that.) I want him to be our Spokesperson! What an absolutely cool guy!!! kathleen
Fingernails
I can't believe it. This stupid poison is now making my fingernails come off. Has anyone ever had that happen? Linda PS Do you think I can glue fake fingernails to the nailbeds....LOL
Weird rash
Last night I noticed that I was scratching my but, my neck and my torso a lot. Then, it occured to me that there might be a rash there (DUH!). When I looked in the mirror I saw this weird bumpy rash where I was scratching. I decided not to worry about it, and went to bed, hoping that it would go away. This morning, the but…
Check this out
I got an email to participate in whatnext.com which is sponsored by ACS. It is a site where you detail your journey with cancer. After I had completed all the sections I received an email on 9/12 telling me I would be featured on the site within the next few weeks. They said they would also mention it on Facebook and…
Just finished my last round of chemo
So Thursday was my last round of chemo I got my CA-125 just before my chemo and it went from 5 to 9 they said it was nothing to worry about but I just did not want it to go up. I am praying it is nothing but I am nerves though I have been seeing it go down all this time and then the last time it goes up. Has this happen to…
First PET Scan
Hi All.... Having my first PET Scan this coming Tuesday morning. I was told not to eat any sugar, caffiene or carbs 24 hours before the test and nothing at all 6 hours before. Easy enough....but does no carbs include veggies???? The only carbs that convert to sugar is starch right??? I dont want to eat the wrong thing and…
Ovarian cancer and brain metastases
The mechanisms by which primary tumors produce brain metastases is thought to be hematogenous (blood) spread from primary or secondary sites in the lung. Since the brain has no lymphatic system, all tumors metastasizing to the brain do so by spreading through the bloodstream. Arterial blood passes through the lungs before…
Question about Neulasta
My mom is taking chemo for ovarian cancer once per week for 3 weeks. The day after the 3rd treatment, she gets a Neulasta shot. Then she has a week off before the cycle starts over again. For the last 3 months, she has developed a fever of up to 103 approximately 7 days after the Neulasta shot. She has been hospitalized…
Stuff I don't need to hear
I got a call from my sister the other day. The first thing she wanted to tell me was about someone who healed their cancer with their mind. The second thing she wanted to say was "I think you are obsessed with your cancer--that's all you ever think about." I had to end the phone call right there--I don't need to hear that…
Good News??? Not so much
well news was not so very good at my 3 month post vaccine trail check-up- no longer in remission - c-scan shows that there is a very small nodule that has gotten bigger in my pelvis - good news is that it is contained and not spread anywhere - dr's at Sloan are not messing around with it - i have an appt. with my surgeon…
cisplatin-immuno suppression question
I had ear issues prior to chemo. I was sad to find that the chemo affected my hearing. I have lost some hearing in certain ranges. :( But..I am alive. :) I may have asked already but keep forgetting how long does done stay chemo suppressed after finishing chemo?
Been almost 6 weeks
Hi everyone- Just felt the need to check in and reach out this evening. Mom has been gone for almost six weeks and I am still floundering quite a bit. Its been odd and extremely painful, trying to reach back into "life" and be the so called normal everyday. How do I let go of the first 40 years of my life? How do I move…
NEW TO THIS NETWORK
HI I AM 26 YEARS OLD AND IN MARCH OF THIS YEAR I WAS DIAGNOSED WITH OVARIAN CANCER. IT ALL STARTED WHEN I WENT TO GET MY PHYSICAL, MENTION TO MY DOCTOR SOME PAIN ON MY PELVIS AREA I HAD AND SHE SENT ME TO GET AN ULTRASOUND. IN MY ULTRASOUND THEY FOUND A CYST ON EACH OF MY OVARIES AND THEY WERE HUGE. AT THE BEGINNING THEY…
I'm so incredibly grateful.
I had my first CA 125 test early last week, the first since my last chemo in July. I had been at 6 since my debulking surgery on May 5. For the last 2 months I've had a sore throat which was finally diagnosed 2 weeks ago as oral herpes! If my immune system couldn't ward off herpes, how could it stave off cancer? It takes a…
interim status report on my recurrence treatment on the clinical trial.
I posted on the uterine board, but I would like to share this on the ovarian board also. I have UPSC 4B or OVCA 3C: ambiguous origin. The treatment is same and the prognosis is about the same too. In fact, the clinical trial I am on is for the ovarian cancer patients who are deemed platinum resistant. here we go. I just…

Ovarian Cancer

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