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Ovarian Cancer

Archives for September 2011

I could use some help please.....
Hi everyone, well got my CT scan results today....they weren't good. Tumors still have grown and it's very discouraging...earlier last year was on gemzar/carbo until I developed allergic reaction to carbo and that part had to be stopped. Gemzar didn't help. Took a few months break and started with new cancer center in Oct.…
Top of my class
Well it only took getting cancer to become top of my class lol. When I found out that I have cancer it devastated my life. It turned not only my life but the life of my mom and dad and all the people in my life. It seemed that my mom and dad's life stopped and it became all about me. I have never been the type to want to…
What to expect after Chemo
My mother-in-law is taking her first round of chemo as I type this. They are giving her a booster(not sure what that's for?) then taxol/cisplatin. When will she start feeling sick? Do all chemo treatments make you sick? They said her hair will fall out. Is that usually over time? She is still in the hospital after just…
IP Chemo
I have my first ip chemo in 2 weeks. Doctor said I will spend the night in the hospital to keep me on iv fluids. I am scared! Wondering what to expect. Any advice with be greatly appreciated.
Another BIG hope for the future...
Here's a link to a BBC article on the efficacy of a British flower to kill JUST the cancer cells in various forms of cancer. http://www.bbc.co.uk/go/em/fr/-/news/science-environment-14855666
Full hysterectomy and epidurals
It looks like I might be headed for a full hysterectomy soon but because of heart damage from prior chemo drugs etc. they won't let me have a general anaesthetic so are suggesting an epidural. Has anyone here had a full hysterectormy with an epidural? How was it? Thanks.
ECCO-ESMO: New Review Supports Bevacizumab in Ovarian Cancer
Log in or create a free account for complete access to everything MedPage Today has to offer! ECCO-ESMO: New Review Supports Bevacizumab in Ovarian Cancer This report is part of a 12-month Clinical Context series. By Ed Susman, Contributing Writer, MedPage Today Published: September 28, 2011 Reviewed by Vandana G.…
I'm starting to really hate steroids.
I took my fifth treatment yesterday. I could not settle down last night or this morning. Woke up several times during the night sweating (of course, those wonderful hot flashes). Now I have no energy. I stay so hungry after treatments. It's hard for me to understand why some people take steroids by choice. Guess they like…
just need to cry on my teal sisters shoulder
I finally got in the see the pain doctor to see if we can get the bone pain under control. I had been on 15gm of morphine three times a day with 5-10 mg of oxycodone every four hours as needed for pain as a break through medication. I was already on tramadol 200 mgs a day and 1800 mg of iburporfin a day. When I met with my…
I need advice.....
I just finished treatment #5. I had am optimal debulking surgery in june and my number is now 11. Do I really need #6? My doctor says I should go through with it, but I am sick of it. Will this last one make such a difference? I welcome all opinions here, and thanks! Robin
Newly Diagnosed
My mother-in-law was just diagnosed with stage IV ovarian cancer. What a roller coaster ride this has been. I am closer to her then my own mom. I can't imagine our lives without her. She is 70 years old and is very healthy otherwise. Her spirits are great, she is a strong Christian women who is not afraid of dying. Her…
Advice for Daughter of OVCA
Hi Ladies. My mother was diagnosed with OVCA in January of this year. Next week I'm going to my first annual gynecologic exam since her diagnosis. I'm 38 and I'm just wondering if I should ask for additional tests - CA125, vaginal ultrasound? Also, was wondering about being tested for the BRC1 (?) gene? I wonder if this…
Post Chemo NUTRITION....
Hi Girls! I have one chemo left. I have decided to attack this beast from a nutritional standpoint when that is over. I ordered the Anti-Cancer book that one of you highly recommends and now I am looking for a good book or two regarding nutrition. I have read that eating an anti-inflammatory diet is a good idea. Anyone…
OVCA Vaccine
Log in or create a free account for complete access to everything MedPage Today has to offer! ECCO-ESMO: Vaccine Shows Promise in Ovarian Cancer This report is part of a 12-month Clinical Context series. By Ed Susman, Contributing Writer, MedPage Today Published: September 26, 2011 Reviewed by Vandana G. Abramson, MD;…
Stomach Pain....
Hi All....have not posted in a while. I have been feeling so discouraged. I just finished five of six chemo treatments and each time i feel more poorly. I have so much pain in my abdomen that I finally gave in and took the vicodin. I took this week off from work which I find so annoying. I love my job and I want to be…
I am pleased to say
After on three treatments I am in remission. I can't believe this I did not dream I would ever be saying this since I am stage for let alone say it so soon. I will be on advastian as a maintance chemo for at lest one and a half years and more than likly more than that but as long as I stay in remission that is all I care…
Should I get the flu shot before starting chemo?
I start chemo on Thursday and am thinking about getting the flu shot before I start. Does anyone know of a reason why this is not a good idea? I intend to ask my doctor too. Thanks
red spots
Hi everyone I have an appointment later today with my GYN/ONC but I thought I would throw this out at you all. I have red bumps on my face, chest, and back may in other places that I just can't see lol. I was wondering if this is from the chemo or what. It looks like chicken pox but I know it's not because I have had them…
ovca and long term disability insurance
Hi teal sisters !! I seem to be in a real dilema. My employer has been great and had helped me out with several problems. I had applied for ltd in May 2011 because according to HR it took 3 months to qualify. I was not eligible for short term or fmla at the time I was diagnosed due to a previous surgery in august 2010.…
Ovarian cancer 5k walk
Hi ladies I just wanted to let you know on Oct 16th in west Orange NJ there is a ovarian cancer awareness walk being put on by the NOCC, sorry Carlene, signed up before your post. I am visting my parents that week and it would be cool to meet any of my fellow csn teal sisters.
A Great Day!
I spent the morning in Forest Park, St. Louis at the 5th annual Roc Star 5K. There were about 2000 participants and they presented a check for $55,000 to Siteman Cancer Center at Barnes Hospital. My team had 20 people (aunts and uncles, cousins, siblings, my daughter, mom and husband). It was our first year and now that…
vaccine therapy
Anybody have any type of vaccine therapy? I have clear cell ovarian and drugs are not working. what drugs have worked for you? Dr suggest md anderson. What are your experiences there?
beginning to see through my chemo haze
Hi Loves, Just coming back from two weeks of chemo haze. Week one gemzar/cisplatin and week two gemzar. I've been doing this for the past 21 months and believe it or not, it's beginning to feel routine. The good news is that my Ca-125's are holding so steady that I'm now going to be able to take some schedualed "extra…
When do the hot flashes ever go away?
I had my surgery in May of this year. I was having a few hot flashes prior to that. However, now, especially at night I wake up sweating. That's with a fan blowing on me. I turned 49 in August. What has been some of your experiences? Do they ever go away? :) Thanks, Carla
Need some help to decide the best port to ask for
I decided I need to see the surgeon about my port, it's not getting any worse, but it's not getting better, even after 18 days of antibiotics. When I originally had my port put in, the surgeon didn't tell me of different kinds. The one I had was a portacath and I always found it to be somewhat large and bulky (in fact the…
Nuerontin
I am still having a heck of a time with nuropathy in my toes and feet. My MD said I could take nuerontin but I refused as I thought I could handle it but I am not so sure now. Does it really help and are there side effects? I just hate to take another pill, but I guess I will. Thanks for the input...val
Metformin as anti-cancer agent
Metformin is used for polycystic ovarian syndrome & for type 2 diabetics. Here's more interesting information on metformin. Just curious if any of the survivors were taking Metformin before they were diagnosed with OVCA? Or does Metformin (Glucophage) protect women from OVCA? I know the info is REALLY technical, but the…
Glucosamine may be a good idea
FIRST: You have to see the connection between OVCA and somthing called "survivin." Survivin is something malignant cells have that help them survive. ******************************************************************************************* SURVIVIN EXPRESSION IN OVARIAN CANCER Z. Liguang1, L. Peishu1, *, M. Hongluan1, J.…
First chemo after surgery
It has been over 3 weeks since my surgery, and the chemo assay is still not in. I don't know why it is taking so long! Anyway, my doctor ordered the first cycle of chemo, and then we will change accordingly when the results do come in. I fly to CA tomorrow to do cisplatin and navelbine on Monday AM. Did the labs yesterday,…
A rare bit of good news to share: CA125 dropped 9,309 points in last month.
I'm weird about CA125. Once mine went up into the thousands, I refused to worry about it. But when I get a big drop, I DO celebrate it, because good news related to my disease progression has been pretty darn rare for me this past year of my cancer journey. So I had to share this, even though I just don't know what it…

Ovarian Cancer

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