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Port question
How soon after you have a port placed can you start using it for chemo? My wife muscled through 18 months of chemo treatments without one but is now tired of getting stuck multiple times.
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Thanks you all
It has been just been over three months since I was told about my cancer and just over two months since I found this site. I just wanted to tell of you how much I love this site and all of you. I have learned so much about my cancer and how strong we become during our fight. I have reached out so many time with just need…
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cancer is back
My mom went to the oncologist today got pet scan and blood work back. Cancer has returned to lining of the stomach, liver and also lower cavity of one lung. She will start back on chemo same combo as before carbo/taxol. Also will be in a research study but won't know whether she is getting the real medicine or a placebo.…
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I'm just amazed as to how staff handle a port
I guess I'm just a little upset and amazed as to how staff handle a port, especially when they're supposed to be oncology nurses. I've had some type of rash (or infection) for the last 2 weeks. When I first saw the oncologist, he put me on antibiotics. And, then was referred to my primary care doc, who continued the…
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Sluggish port
Got a question re: my PowerPort. I was in Tijuana at an integrative cancer clinic getting treatments for 3 weeks but I had to use a peripheral vein for the blood draws--the port was OK for IV infusions only (the nurses couldn't get blood out of it). Has anyone else had this experience--what should I do about it? By the…
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Checking on tests
I have a question somewhere I heard about a test that was like HE-something. Someone suggested that I check with my doctor since I can't use the CA-125 test as a marker. Does anyone know anything about that test.?
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Traveling (cruising) during chemo
I am considering taking a cruise in 6 weeks. I will have had 2 of my first treatments with Carbo/Taxotere. Is this a good idea? I have cruised in the past during treatment with no problems.
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Question for post chemo ladies.
I had my last chemo on 9/16/2010 and am still experiencing aches, pains, fatigue and a general lack of stamina. I don't want to exaggerate the situation, I am feeling great but I don't think I'm back to before ov/ca. I am 63 and not a real active person so although I was healthy, I know I was not very fit. Here's my…
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Taxotere and Carbo it is!
I've been wondering what my chemo regime will be for my 2nd recurrence and the winner is- Taxotere and Carbo. He also said I could do Taxotere and Cisplatin, but the Cisplatin seems to be harsher. Will start treatment next week and every 3-4 weeks there after. Doc feels this will put me in remission as it has worked twice…
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I'm a little discouraged
Hi everyone, I guess I'm just getting a little discouraged and a little nervous because my CT scan is next week. I've been on so many different chemos since the fall of last year including Avastin and the tumors have grown a little. I guess I would have liked to hear, they shrunk. I guess I'm getting used to the…
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Questions for women with hysterectomies
I am seeing my onc ob/gyn tomorrow. I won't be seeing her for a long time. I would like to know if there are any questions I should ask about what to expect for the future concerning...my hormones and well anything to do with my female parts and sex...etc????
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Well, it's back
My dear wife, Cindy, had her last Taxol consolidation therapy last month. Went to MD Anderson for CT Scan and CA125 today. Several lymph nodes came back positive on the scan. CA125 was only at 9.5. Her CA125 had previously ranged from 2-4 during our one year of remission. New plan is to go on carboplatin/gemzar/avastin…
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Remission
When do you count for remission. What is considered remission? When do you start to count for NED is it when my organs affected were removed, or when I had a clear pet scan, or when my cat scan after treatment was done. Not really sure about all this need a little help. Thanks Sharon
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Fingers swelled up
I am having a rough time. I currently am on taxotere/carbol. I thought the doctor was going to put me on taxol/carbol, but he decided to go with taxotere. I have had two treatments so far and each one has been dealing me a fit. Have so much trouble with loose bowels. I lost weight with that..7lbs in 3 days. I get that…
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Fingers swelled up
I am having a rough time. I currently am on taxotere/carbol. I thought the doctor was going to put me on taxol/carbol, but he decided to go with taxotere. I have had two treatments so far and each one has been dealing me a fit. Have so much trouble with loose bowels. I lost weight with that..7lbs in 3 days. I get that…
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peach fuzz
Hi all next week is my 5th treatment of taxol/carbo and in October with be my 6th and last of the taxol/carbp and I will only have advastin for five more months after that. The nurse said that with only taking advastin that my hair will start growing back. Here's my question I did not lose all of my hair I have a very fine…
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Flushed face
I took my 3rd treatment 3 weeks ago today. Since late this morning my face has been flushed. My B.P. is normal. I have no fever. What could cause this? I typically am red faced a couple of days following treatment, but three weeks? Has anyone else experienced this? Thanks, Carla
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3rd Treatment and Ethyl
Hi Ladies! Tomorrow I get my (1st) power-port and will begin my 3rd round of chemo next Tuesday. I'm in another clinical Phase II trial (vaccine trial didn't work for me). I will get dose dense Taxol every week and possibly an oral glucose-factor inhibitor that will block glucose receptors. The glucose is from the insulin…
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My first delay in treatment :(
I was scheduled for treatment number 5 today. However, my platelets were at 59, so it will be delayed until next week. A chemo nurse said that they should be back up next week. My white and blood counts were fine. I wonder how many women do get through all 6 of these treatments without any delays? Hope all of you are…
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Hats and scarves
I recently found a couple of nice websites for head wear. (it seems that recently I've been pretty hung up on my hair-less status, more so now that they've extended my treatments) I know I've seen them mentioned in a few posts here, but thought I would start a new thread for any newcomers that may be searching for…
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guilt felings
wondering if anyone has dealt with feelings of guilt about surviving cancer and treatment. My Godfather just passed away from pancreatic cancer on Friday. I am a 1 year survivor of ovarian cancer. Having a rather hard time feeling positive about myself when he did not survive. Feel guilt that I survived. Trying to find out…
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First Fluorescence-Guided Ovarian Cancer Surgery
First Fluorescence-Guided Ovarian Cancer Surgery ScienceDaily (Sep. 19, 2011) — The first fluorescence-guided surgery on an ovarian cancer patient was performed using a cancer cell "homing device" and imaging agent created by a Purdue University researcher.…
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New advance for ovarian cancer
Tomorrow night on ABC World News, Diane Sawyer will interview Joan Doak who is a survivor and staffer for NOCC (sorry Carlene) regarding a new procedure for identifying ov/ca cells during surgery using a flourescent dye. Below is a link to a news story about this breakthrough. This is news to me, maybe some of you have…
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the color teal
Who choses the color for cancer. I was on the uterine cancer blog and found someone talking about ovarian cancer group have taken teal as their color when teal is for all female cancers. They also went on the say that ovarian cancer groups think that ovarian cancer is more deadly that other cancers. I just find it a little…
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And now, for some GOOD news....
The NOCC selected 9 of the quilt squares for a wall hanging that will be permanently displayed in their headquarters in Dallas, along with a copy of the "book of stories" that was raffled off with the Ovarian Cancer quilt. Four of the squares were ours: Joan Jack Mary Klein Bonnie Lemke Leesa Green I am so pleased about…
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Ladies....I have some bad news about the OC Quilt (and the NOCC)
As many of you know, today was the NOCC (National Ovarian Cancer Coalition) 5K in my area (Dallas/Ft Worth), to raise money for research and awareness for OC. I joined NOCC in early 2010, at the urging of my doctor, who was (and may still be, I'm not sure) on the Board. I walked the full 3.5 miles last year in the rain,…
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Is a port necessary?
I had a port 7 years ago and it was great at the time. It became infected in 2006 and I came down with sepsis and barely made it and the infected port was removed. I will need to start chemo again soon and wonder if they will suggest another port. Pros and cons??
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Time period between detection and biopsy
I had an MRI hips which showed a tumor on my left ovary. I was given the info by phone by the receptionist and faxed a few doctors to see and an order for a pelvic us. The first gyne/oncologist I saw immediately decided I needed robotic surgery. I am seventy. We planned it in two weeks. In the meantime I began wondering…
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Wiggin out
Ok, I am hispanic. I got a freebie wig from ACS. It was in good shape and close to the color my hair orginally was. Though I look so washed out. I look sickly. I took the look good feel good class, so I have and can do the make up but the wig still makes me look ugh. I am considering going a lighter color but am having…
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Radiation cough
I just finished radiation 2 days ago and I have had a dry cough since starting treatment last week. Just wondering if it might be related. The radiation was aimed above and below my clavicle. Of course, all I can think about are lung mets. This darn disease makes me feel like a hypochondriac and I hate having to focus on…