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Ovarian Cancer

Archives for May 2011

Mom admitted to hospital this am...
I am relieved....finally.....hopefully someone will mention hospice....she needs relief...
ovarian that spread to bone
Hello,I writing about a friend.Just wanting to know how well tolerated chemo is with bone involvement.Anyone know the best place to star looking for resources.Will she need a gyno onc? She does not have all her info from her scans etc so not sure if bowels are also involved.Anyone else here have this in the bones or organ…
Sheer cost
One of the things that is staggering is the sheer cost of this. Just to get diagnosed I: -Went to Urgent Care ->Had various radiology and labs test run -Then went to the regular OB/GYN -After that went to the an Oncologist GYN ->Had surgery ->spent multiple days there ->the sheer amount of labs were eye crossing -Had more…
allergic reaction to carbo
I've been on carbo/taxol for the last 15 weeks, I've since have had a allergic reaction to carbo and have to have my last carbo treatment in the hospital and was informed it would take all day. Has anyone had a allergic reaction to carbo? Hoping all goes well, Joan
Best friend diagnosis - Stage 4 Ovarian Caner - Looking for successful treatments to share with her
My best friend found out she has Stage 4 Ovarian Cancer. They say...3 months to 5 plus years. She has started chemo...cancer has traveled from lymph nodes to lungs and liver. I have read where there are women living pass 5 years. Who is and what are they doing to get pass the 5 year mark? Laurie
Anyone heard if Nancy591 is home from hosp & how she's doing
I was just wondering how Nancy591 is doing. Anyone heard if she's home and how she's doing?
Question for Clamryn (Linda)
Hi Linda, thanks for responding to my question about blood pressure medicine and Avastin. I'm really happy to hear that you're doing so well on Avastin. How fast did the Avastin start to work on you? I started on it end of Dec. 2010 along with Cytoxan and in March, there was still some tumor increases. So, the doc took me…
My story
My story begins with a trip to the ER because of some insane pain. That Doctor came back and told me there was a grapefruit sized growth on my ovary but not to worry because woman my age"26" don't get this type of cancer. I was refereed to gynecologist surgeon who took one look at the scans told me not to worry "Women your…
Has anyone been on Avastin, & experienced High blood pressure & took bp meds?
Hi, I was just wondering if anyone experienced high blood pressure while on avastin and what did you take? I always like to take the lowest amount of medication, if possible. Thanks for any replies.
Could it be true?
Hello ladies, Mom began her third line treatment of Doxil April 21st. She goes for her second treatment May 19th. Yesterday, we noticed Mom's stomach has really shrunk the last few days. I know I am grasping at straws but is there any chance the chemo is starting to work?
Not Diagnosed but have questions about symptoms
I am not sure if I am on the correct board but I was unable to find answers to my questions anywhere else. I am 54 years old and post menopausal, had a hysterectomy at age 32 for pelvic congestion, I had varicose veins coming from my left ovary, removing my uterus was the only way to stop the monthly pain. I started having…
War
I am 34 years old. I was just diagnosed with small cell carcinoma of the hypercalcemic type. I had an ovary the size of a grapefruit. Thankfully it had not spread. A PET scan showed the rest of the body clear. With chemo, we are taking a preemptive strike at any free floating spores. Lol, to say the least these past few…
aaaaahhhh!
what am i supposed to do when my mom is soooo depressed. She only had one chemo. She can handle her nausea. But the bone pain and the depression is what is getting to her. I try to stay so strong but i don't want her to suffer. I don't know what to say to her to make her feel any better. She keeps saying she wants to die.…
fluid retention in legs/groin/peritoneal area
Has anyone experienced fluid retention in their legs/groin/peritoneal area - unrelated to ascites? My mom has been experiencing this and they tried to drain her peritoneal area yesterday only to find that the fluid problem is not related to ascites.(She does have lung ascites. This seems unrelated.) Her Primary Peritoneal…
Study on CA125 and risk of recurrence
This is a very interesting study on CA125 and risk of recurrence. http://annonc.oxfordjournals.org/content/20/2/294.full Briefly, it says that women who experienced an absolute increase in CA125 of more than 5 points over their nadir value are more likely to recur. This number was achieved by subtracting the nadir CA125…
I am new...told I have recurrent ovc
Hello. I've read a lot of posts here, and my heart is warmed by the friendly voices. I am 37 and finished my chemo in November for stage2 ovc. Recently my Ca was rising, and a CT scan shows what my doctor says are lesions(?) in my abdominal cavity, they say I need to start treatment again in about 2-3 weeks. I also have a…
Dr Oz Show on OC
Just got a reply to my email, regarding the Dr Oz show on ovarian cancer. The Associate Producer says it will air May 26th. Carlene
CA125
My CA125 is still in the "normal" range, but it has gone up exactly 2 points a month, for the last 3 months. Both my local gyn/oncologist and the gorgeous NY doctor seem unconcerned. Still....I hate it when it goes in this direction. DOWN, damn number....DOWN. It's now 13. Carlene
Hi Nancy591
Hi Nancy, saw the posting that you have not been feeling well and were in the hospital. I wrote you on 5/9 on this discussion group as I was wondering how you were doing. I was sorry to hear that you've been in alot of pain. I hope you are on your way to recovery and you are in my prayers. I think you are very courageous…
Just not feelin it today
So everyday I get up and have a good attitude towards how my life is right now and am usually in a good mood...for the most part, but today I am just not feelin it. I am sad and weepy and I don't really know why. I know everybody in my life has been so supportive and positive and I am grateful for it. I never had people…
Joint and Bone Pain?
Just a quick question. My mother just had her first chemo. It was Carboplatin and Taxol. She had this Mon. She was fine all of Tuesday. She went and had her Nulesta shot yesterday. She has not experienced any nausea or fatigue. She woke up this morning feeling like she had been in the boxing ring and lost. I knew you could…
Carlene, May I forward your email on to my group in San Diego?
Hi Carlene, I am in a support group of women who have ovarian or uterine cancer here in San Diego. I am rather new to the group, but I understand there is a group of these women who give presentations to doctors and other medical groups with their testimonies and the goal of early detection of the disease. May I forward…
Soy lecithin
I try to eat a healthy diet since having ovca in 2009,very little dairy no red meat drink almond milk,my question is should we be concerned about soy lecithin it is in so much food impossible to find bread with out it, yesterday I noticed quite by chance my mint tea also. I would appreciate any input on this subject. Oska
Abstract from First Ovarian Clear Cell Carcinoma Symposium
Abstract of article those with clear cell ovca may be interested in. Full article requires purchase tho can probable be accessed elsewhere. Interesting that there was a Symposium dedicated to this specific histology.... Clear Cell Carcinoma of the Ovary: A Report From the First Ovarian Clear Cell Symposium, June 24th, 2010…
conflicting pathology reports
so get this.... as many of you know i was diagnosed 2 weeks ago with ovca. this was done when the ovary was removed they tested and found cancer. was told it was a grade 3 and that we would do surgery on the 16th to determine the stage. last week the nurse from the oncol. office wanted me to sign a release form so that…
Nancy591
I got a text from Nancy today. She has been in the hospital since Saturday. I will try and see her tomorrow. She has been plagued with colitis, ascites, and pain. No bowel obstruction, per the x-rays. They drained 4 liters of fluid but she is still in lots of pain. Hopefully the drugs she just started on for the pain will…
Sex
Okay I know that this is a site to talk about the cancer that we have but I dont know where else to post this. Hubby and I have been married for only 4 years and since we found out about my cancer in Feb, his sex drive towards me has almost disappeared. He prefers pornos. Our relationship is almost non existant altogether.…
Mom Update and spoke with Head of Patient Advocacy at MSKCC....
Hi everyone.....Mom went to PT yesterday, which I think is a good thing as she hasn't gotten out of bed in 4 weeks....she needs to move around...although she says she is in pain, today she seemed a little better in attitude and I hope she follows through.....ON the really good side, I called Dr. Jorge, Head of patient…
Has anyone heard from Nancy591?
She has not posted on here or on FB in several days. Carlene
Had partial hysterectomy 4 years ago, NOW have a period????
Hi, I am new to the board. May 1,2007 had a partial hysterectomy for Borderline Ovarian cancer, no chemo or radiation. On May 2,2011 I started cramping and spotting. I now am having a full menses cycle. Has this happened to anyone else? I must admit I am afraid. Before surgery I had horrible cramps and bleeding. I can…

Ovarian Cancer

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