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Ovarian Cancer

Archives for May 2011

May I introduce myself?
Hi everyone I've just plucked up the courage to join. I've spent many months reading lots of forums and came to the conclusion this is the most active and most supportive, positive and honest bunch of people. So here I am. However, this is about my mum. I live in the UK, luckily not far from my parents. My mum is 75 and…
How are you feeling Nancy591
Hi Nancy, was wondering how you were doing? Hope you're feeling good and how are you doing on the Topotecan? I'm also on the Topotecan and have not been feeling well, I'm extremely tired because my blood counts keep going down. I'm on a treatment plan that is 1x a week, 3 weeks in a row, but don't know if that's going to…
Chemo side effect question
So I was wondering what type of side effects people had and if you tolerated chemo relatively good or bad? I am curious because I am in carboplatin/ taxol mx and I am taking chemo really well for the most part. I go once every 3 weeks for 6 rounds total. I have 3 down and 3 to go. I did devlope acne and got tired after…
Choosing not to monitor CA-125 unless symptomatic
I finally found this article about research that I had heard about regarding whether there is any benefit to monitoring CA-125 after remission in the absence of symptoms. http://www.medscape.com/viewarticle/703649 I'll be meeting with my oncologist this week & I'm gonna ask him if he's OK with me not monitoring any cancer…
Anyone else get an email about the Dr Oz show?
They are taping a show about ovarian cancer in Manhattan, on May 14th. Unfortunately, I will be in NYC on the 11th, so I won't get to participate. You can send in your photo for the slide show, though. Or, if you live near Manhattan, you might contact them, if you're interested. Here is a cut-and-paste of the text I…
Happy Mother's Day
Teal Sisters.....Happy Mother's Day. Have a wonderful day. All of us know that we must make the most of every moment. Today is one of those special special days to make some memories. A big hug to all of you. Linda
I am telling on my sister!
I have been NED for 21 months now. My younger sister was just told she has a growth on her Uterus and will need a hysterectomy and a biopsy. We are adopted so there are no Genetics between us and we have no medical history. ( our records are sealed in the state of California) I am writing this to let you know that little…
Kidney Stones?
I am being treated for a UTI...the doctor is concerned about kidney stones. Is this another lovely door prize from chemo? Has anyone out there had kidney stones after chemo? On a side note: it is, (in a super weird way), nice to go to a doctor for a "normal" ailment and get a prescription that cost $00.87! Odd, eh? Mary
Hello- I am new here
I am unfortunatly a newly diagnosed ovarian cancer pt. I am having surgery on Monday 5/9/11 at UK hospital in Lexington, KY. I have been reading some posts, and I have to say there is a lot of support and love here. All my gyn/oncology told me yesterday has just flown out of my head. It was too much for me to hear. I am…
Good news!
Mum had her third lot of doxil yesterday , and her ca125 is now down to 36!!!!! Happy days! :) xxx
For lindaprocopio
Linda Would you mind sharing your experience w/ taxol? I understand that it was disappointing. Were you treated weekly or every 3 weeks? Thanks, Carolen
I am ned!!!
It is official. God is good. Thank you my teal sisters for all of your help and advice and encouragement. Keep the faith and stay strong...val
Clearity Foundation - tumor blueprinting
This foundation tests ovarian cancer tumors to determine the best course of treatment for that specific tumor. I don't know how this differs from the tumor assay many doctors run, but I believe it is more specific than those tests. http://www.clearityfoundation.org/clearity-overview.aspx I understand that the foundation…
Anyone get acne on chemo?
Has anybody had acne as a side effect of chemo? I am breaking out under my chin and side of my head and low back. I never even had acne as a teenager. It is so annoying.
Using henna while on chemo
Has anybody used henna while on chemo?
Update...and vent....
Mom was diagnosed with pneumonia 10 days ago.....that on top of the stress fracture in her back has made it quite the uncomfortable past two weeks....her lungs seem to have responded very well to the anti-biotics and except for the fatigue and weakness in her legs, she is doing better....Today was pretty rotten…
Diet for PPC?
Does anyone have any tips on what kind of diet is suitable for this cancer. My mother has porblems with certain things. Like any lettuce makes her sick. I know she has to eat small amounts but i want her to get protein. Last nite and had a sandwich with only a little lettuce and she was sick. Today rice and a little…
Caelyx and Carboplatin
Has anybody had this combination? Had 9 months cancer free but it is now back, multiple modules AROUND the liver and spleen. does hair loss occur with this treatment/
I have no marker with the CA125 test
I have no CA125 test as a cancer marker. I had a test done last July and it came back 7. My gyn. said it looked like nothing wrong but sent me for a ultra sound inside and outside. That showed that my uterus was a bit thick and he suggested that I have a D&C and a lapro. surgery. When they got in with the lap. they found…
Mskcc process sucks
Mom has fracture in her back..getting over pneumonia and we checjed in for chemo at 11.20 still waiting...i hate the process her..hate hste hate it
Gemzar chemo - to take or no to take?t
I am living with ovarian for the last three years. Had Taxol, Carbo,Doxil, and now they are suggesting Gemzar. Doxil made me horribly sick and the tumors worse, so stopped after only two courses, and now, after two months, am still recovering. Read on Gemzar that it may makes you even sicker: Kidney and lung infections,…
My 5 year survival anniversary!
Dear Loves, May 5th will be my 5 year anniversary of my diagnosis (OVCA 3C)! We all hear the statistics and I intend to celebrate for the whole month. I also intend to take Linda's good advice and "live large". Hmmmm.... wonder if I can find some teal balloons to tie on my mailbox? (((HUGS))) Maria
Sad News- Sarah the Carcinista passed away
I'm so sorry to share with you that The Carcinista died today. I heard that she died peacefully and surrounded by her family. RIP Sarah. Very sad.....she will be missed.
CA125 Rising after chemo
This is a big topic on this discussion board but I did not see anything specific to my question. Diagnosed last June, Stage 3C. Did not have cancer surgery then because of condition I was in and had to have colon surgery/colostomy. Had 6 carb/taxol treatments and my CA 125 went consistently down until the last test when I…
Primary Peritoneal Cancer
Hi- This is the first time I am writing. My 62 yr. old mother was just told she has Primary pappilary serous peritoneal carcinoma. I think this is how you say it. It starts in the ovaries. Her ovaries are swollen but it is not present there. It is on her omentum, a little in her stomach, some in her colon, some touching…
how to deal with the uncertainty of the cancer returning
I am 37 and was Dx with Stage 1 ovarian cancer almost two years ago. All my test have been good thus far but my Ca125 goes up 1 point everytime I take it. It is still well within normal range but I can't help thinking about it coming back. It almost consumes my mind sometimes. Does anyone have any help for moving on and…
How to Access Chat Room
I have tried to access the chat room by clicking on "Chat" at the left of the screen and come to a blue page where nothing happens. Am I doing something wrong? Thanks, Chris
ANITA 1216 - PLEASE READ!
ANITA: Please consider my gynecologic/oncologist in Southfield, MI not far at all from Dearborn. He works out of Providence and is the best of the best! His number is 248-849-8140. There will be a long wait at his office, but it is well worth it. Please let me know if you get in. (((HUGS))) Monika
If it's not one thing...
Been AWOL again and trying hard to catch up. I was supposed to start my new chemo (cisplatin/gemzar) last Tuesday BUT... I came down with strep throat and a horrible ear infection. I'm amazed that we all don't have more of these problems while our immune systems are taking such hits. I'm having such a hard time shaking…

Ovarian Cancer

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