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Ovarian Cancer

Archives for December 2010

Has the Gov't. Truly Banned Avastin because it is too Expensive?
I heard on the radio today, that the Federal Gov't. is banning avastin because it is too expensive? Has anyone else heard this? I also heard that insurance companies are refusing to pay? What the Heck?? Shame on all of them..
Okay,okay, I'll try the diet! Anyone doing a nutritional diet?
After 3 years my sons finally won out and I'm going to improve my nutrition. Can anyone tell me some things they eat that you find enjoyable. I'm cutting out dairy (I love Milk and Cheese), sugar, white bread, and soft drinks. The only thing I feel I'll have a problem with is milk. Also, how much meat is good per month? Is…
I AM SO PISSED OFF VENTING!!!!!!!!
Okay, so for those who do not remember I was a Stage 2b in May of 2009. I have been getting a blood draw every 30 days for 19 months. My CA-125 post surgery was a 10 and I bottomed out at 5 after 6 carbo/taxol treatments. So this whole 19 months my CA-125 has always been between 6 and 8. So, I get my blood draw in December…
Second round of Carbo/taxol
You all may know that Doxil didn't work for me as it took me into the hospital and didn't prevent fluid accululation around one of my lungs. So my onc put me back on Carbo/taxol as I responded so well to it the first time round. Well yesterday was my second infusion and it all went well. Best news of all ...... I also got…
pain in left side of abdomen?
hello, i am Victoria - 44 y.o, new to this site, was diagnozed with ovca 3c- two month ago and had my hysterectomy on november 15th. Should start chemo next week.Have constant pain in my left side of abdomen, i think closer to liver area, sometimes it even causes shortness of breath? any suggestions / thoughts? i spoke to…
How can I best support loved one beginning the journey?
My sister had CT scan and blood work and doctor now says they suspect OC. She has appt with ONC/GYN set. I love her dearly but live far away, how can I best support her?
feeling sorry for myself today
I HATE my "new normal." there. I said it.Don't get me wrong though, I am so thankful that I am here to have a new normal. I am SO thankful that I got to spend Christmas with my children and experience my grand daughter's first christmas with her. I am NED after a VERY taxing year of surgery and IP and IV chemo and MANY…
Ovarian Cancer Symptom Question
I am 53 years old. For the past 2 months my periods have bee a little "off". One month very light, the next month month a little heavier. The only other unusual occurrence was the lack of any usual cramping that I have had with every period. My last period ended a week ago. For the past 5 days I have had the cramping that…
Taxol maintenance number 11....and 1 to go
I had Taxol consolidation number 11 today, plus spoke to my doctor about "stuff" in general. I asked him why he said, last visit, that I was probably his last patient to get the 12 months of Taxol. He said because the "newest" trend is to give Avastin as maintenance, or to recommend only "wait and see". Avastin is iffy…
CA125 dropped 60 points! YEA! But platelets dropped to 10,000 so no chemo today. BOO!
Yes, it was a bummer to have my platelets tank to 10,000 after just 1 infusion of carboplatin. And, yes, I'm disappointed to have gotten a platelet transfusion today instead of my 2nd carbo infusion. (Funny how you can feel fine even with platelets that dangerously low, isn't it?) BUT, I am so THRILLED that something still…
I think I have ovarian cancer
I have been having lower abdominal pain for going on three weeks now. When my husband and i were having intercourse we had to stop because i started crying in was in so much pain in my lower abdominal. a few days later my pain was n my lower abdominal and all the way down to my knees now lastnight it was from my lower…
Happy New Year!
Just wanted to wish each of you a Happy New Year!! Dont' know what 2011 will bring but I know we all hope for a cure! ☺ Prayer I ask God for health that I might do great things. I was given infirmity that I might do better things. I asked for strength that I might lead, I was given weakness that I might learn humbly to…
even the normal pains become huge concerns
and i have been here before a few times, but this time I was sure my pinchy piercy pain in the top of my shoulder I have been experiencing off and on was a blood clot when it felt like it was traveling up my juglar vein. I was sitting in church and it got worse, and then the panic set in. I asked Mark to please pray for…
not cancer free like I hoped for!!
Just stopped in to say I hope everyone had a good christmas! I am not cancer free as I had hoped for the new year after going through treament for almost a year again for my 2nd reaccurence so I am sad but glad to still be here!! I am getting a break and dont know what will happen next as far as treatment etc. My scan…
I love my husband....but...
Yes, he got me the keurig, he's a good man but here's a recent conversation...like 5 minutes ago... Me: "It's almost a year...I'm scared." Him: "Find your pills, when you're scared, my stomach hurts." LOL... I couldn't help but laugh through my tears. Why is it that my cancer ends up being all about him? Hugs! Leesa
Now I have shingles
Hi all, I have been having chest pains for the last 4 days. I thought I better get it checked out before I have to start my treatments up again. I was suppose to start the Avastin on Wednesday. The doctor told me to come in today and when I was getting ready to go, I see this rash on my boob and on my back. And I thought…
Big Surprise !
I think even my dr was surprised ! My CT/Pet scan did not find any cancer ! I just finished six rounds of carbo/taxol. Originally she thought she would have to go back in after chemo as she could not take out all the cancer without removing the entire colon. Now she is going to give me six rounds of Avastin. They did see…
Need to vent, bowel issues
This is a topic you can't really discuss elsewhere. I am on my 4th recurrence, and thought I was having ascites and fluid build-up. I requested a paracentesis, since I have had them before and they are wonderful. Well, it wasn't fluid at all, but backed-up poop. My PA told me I was backed up, up to my neck. There appears…
finished treatment and NED
My CT scan was clear after having surgery and 6 rounds of chemo. I never felt or looked sick. I have low grade cancer, and my CA-125 is 6 now but was only 37 when I discovered a tennis ball sized tumor under my navel. CT scans and CA-125 are the best tools available for monitoring my disease, but they are not that great in…
Memories for Mom - See New X-mas Picture
Merry Christmas everyone!! Today we had a great day...Mom was able to hang out with us for 11 hours before she finally said, "I'm exhausted and have to go". She got an i-pad and bottle of Jim Beam for those in between chemo times when can have a nip or two! We all had a great time together and made great memories...she…
recommendation for "biography of cancer" book
I just finished a fascinating book called "The Emperor of All maladies, A Biography of Cancer" by Siddhartha Mukherjee. I saw it on NY Times list of 10 best books of 2010. I am not a science geek and my typical reading is fiction, mostly suspense and mystery. But I could hardly put this book down -certainly as a cancer…
Merry Christmas
Merry Christmas to all of you. Have a blessed day, no sickness, and no pain. A day filled with laughter and peace for all of you. Linda
Twelve Days ;)
On the first day of Christmas my Onco gave to me: A power port in my chest cavity On the second day of Christmas my Onco gave to me: Two bald spots and A power port in my chest cavity On the third day of Christmas my Onco gave to me: Three days of muscle pain, Two bald spots and A power port in my chest cavity On the…
Post Hysterectomy
I'm 25. I had a 10lbs tumor and left ovary and appendix taken out on 9/2 and had a total abdominal hysterectomy on 12/1. Anyone have any advice on what to expect. Ive been so emotional the past few days. Also i've heard about weight gain. Any tips/advice is appreciated.
Debulking surgery: Robotic vs Laproscopic vs Traditional for Primary peritoneal cancer
Hi I was just wondering if anyone out there has had surgery for PPC by any method other than traditional incision for debulking. My Mom is 86 and has had 4 chemo treatments of carboplatin (no taxol). Her gynicological oncologist has suggested that she have the debulking surgery with traditional incision. He can perform…
Pray for my Daughter
My daughter just called me. She went to the doctor last week because she has been having two periods a month and she has always had trouble with her periods. I have been begging her to go to the doctor a long time. They did a pap smear and they ordered an ultra sound to be taken on Monday. The doctor's office called this…
CT results
My CT scan on Friday showed progression. Some areas were stable, some had progression. My GYN onc said the progression was by millimeters but progression none the less. No new areas, no major organs. No sign of bowel obstruction, do dilation of the colon. I guess this last part is good news in regard to my ongoing stomach…
Helpful Resources & Information for Ovarian/Gynecologic Survivors & Caregivers
Gynecologic Cancers Facing Our Risk of Cancer Empowered (FORCE): A non-profit organization that provides resources and information for women with increased risk of breast and ovarian cancers, due to a family history and/or genetic status. FORCE is also a resource for members of families in which a BRCA mutation may be…
Takin' a break
I am going to try with all my will power (ha ha what's that?) to take a short break from the boards. I am not overwhelmed with Holiday activities (which would probably be a good distraction) and I find myself getting more absorbed in my cancer than is healthy for me. So I think a little "cold turkey"; get my head back in…
MERRY CHRISTMAS
Just wanted to take a moment to wish all of my wonderful friends a very, Merry Christmas. I've not been able to be on here much, as life has been handing us a heap of numerous, unexpected difficulties. But God is Good and so are all of you. Thank you for your continued support and shoulders to lean on. May you all have a…

Ovarian Cancer

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