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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for January 2014

I need your help please - Words of Inspiration Needed
Hello!! I hope everyone is doing well and recovering quickly with no complications. I come from the breast cancer forum, dx at the age of 32. I want to reach out to all of you because I'm working on a project for my aunt, who was diagnosed with AML (leukemia) at the age of 46. She means a lot to me because she has been…
Help with Seeking out 2nd Opinion
My husband underwent a FSA biopsy of the para aortic node yesterday. This was after receiving elevated LDH blood test, elevated liver enzymes and two CTs showing bilateral enlarged pretracheal, axillary nodes and "prominent retroperitoneal, porta hepatis and para aortic lymphadenopathy." He also has an enlarged spleen. The…
Last Scheduled Infusion
I get R tomorrow for the 23rd time tomorrow. That ends my 2 year maintenance regime. My onc's plan is to go get a PET scan and then decide whether to simply watch and wait, do something like R-CHOP or to continue with Rituxan. Last scan the only thing was a 10% enlargement of my liver. But I am having skin lesions and a…
late side affects due to radiation treatment
Hi there, I am new here and searching for answers, Here is my story. I was diagnosed with Hodgkin's stage 2A lymphoma in the winter of 1997. After a staging laparonomy which the drs took out my spleen, they determined that my cancer was above the diaphram. I was treated with 5 weeks or radiation. I had no symptoms that I…
Selfie
I asked Jim where his picture went, that I missed it. I was just cartooning a picture of myself (for another purpose) and decided to show it off. It isn't really a Selfie (the 2013 Word of the Year) my husband took it with his phone last summer. As you can see, my hair was just starting to grow in well and I am sporting a…
Do you remember what your counts were when you were diagnosed?
What was your WBC, RBC, and Platelets?
Needing some support and advice
Hey Guys Been a while since ive been here. Hope all of you are doing very well. Well its been about a year and half since ive been in remission from my DLBCL! Hard to believe. I have a scan coming up in two weeks which of course brings scanxiety with it. However I need some advice. Here goes, ive been fighting a cold for…
Lymphoma advances ?
Just wondering if anybody has heard of any real advances in Lymphoma treatment. I used to hear things now and then, but lately I have not heard anything. I have heard somewhere that a cure is close, but so is the moon compared to Neptune. That's not meant to be funny. Just making a point as to what is meant by close. I…
Neuropathy after chemotherapy
Hi! I had three months of ABVD for stage IIB Hodgkin's lymphoma and one year later and my neuropathy is actually getting worse. My hands go purple and white at the tips, and hurt, especially if they are cold. Anyone else get this? Thanks
Stopping by
Hi sweet friends, Just stopping by to say hello and wish you all a very happy healthy new year ahead. I try to keep up with all of you, but find myself tired and overwhelmed at times. My fatigue seems to still rule over me, but I do my best to keep going and keep my spirits up. Some days are a bit harder than others, but…
SERIOUS SITUATION DEVELOPED
Hello folks: I have had a big "knot" in my stomach for most of the past year. Had an Endoscopy and it appears to be stress related due to mainly lymphoma and heart problem worries. My life basically came to a standstill. Have been concentrating on eating as much as possible. Don't want to be skinny minny. Difficult.…
Post Flagging again
Would you believe several of the post were flagged and pulled that I mentioned Health care in. Not all but several so far. Don't you just love it when one person thinks they control the board. Thank you, again. People that is a shame !!! There is just no freedom of speech any longer. God help our children in what this…
Getting Older !!!
As I have grown older I have learned that it is impossible to please everyone, but I have learned as I have gotten older pi$$ing everyone off is a piece of cake (as some already know). I hope everyone has a great year and this year brings nothing but good news to everybody. John
Post hematology/oncology visit
I hope everyone is doing well. Had a long day.. Had my appt for chronically elevated WBC. Bottom line they drew blood to check for CML, Chronic myelogenous leukemia. She said I should not be worried, she doesn't thinkI have it, but at the same time there are people diagnosed at my WBC levels. Please Take care of…
CSN study
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
Pet-ct report, suspicious for Intrathecal lymphoma or possible inflammatory process.
Pet-ct on Jan 10 report was good until the last part. This is a new one for me. The report suggest a followup mri or spinal tap. The onc is setting up a mri, thank God, instead of a spinal tap which I've never had. It just sounds uncomfortable. Basically there was a bright spot on the scan in the L4 spinal canal. Has…
Zevalin
I have been diagnosed in 04 with FNHL, and did surgery twice on each side of my neck. I did 22 radiation treatments in 04, and was ok for almost one week away from 5 years. It came back in 09, at which time surgery and 8 rounds of chemo it was stage 4 with bone marrow involvement. Then I did Zevalin and I am still not…
Asparagus- A cancer cure?
I received a e-mail from a friend yesterday entitled "Asparagus-Who Knew" The article talked about was called "Asparagus For Cancer" printed in the Cancer News Journal,December 1979. I'm going to Google it to see if that article still exists. It implies that eating cooked asparagus can help a person with lymphoma,bladder…
New Drug Update - Personal Experience
Howdy all! If you remember from my last post my doctor started me on Revlimid (25mg) because he saw a slight uptick in cancer activity in two small areas. I was ready for stem cell transplant however the doctor said they prefer the cancer to be decreasing in activity if not non-existant. I've already had a ton of chemo (2…
Active duty Marine Corps
Hi, I am an active duty Marine with 20 years served. I am currently a little over a month in remission fro DLBC Non-Hodgkins Lymphoma. I gained about 20lbs from chemo and I'm due to reenlist before May. I don't have the energy to excersise like I used to but I was able to take and pass both the CFT and PFT. I am overweight…
HELP
Hi, I'm new here. Have NHL, had my 5th round of chemo one week ago, today! just to let you know a little about myself so you will understand my question and need for advice. I am 39yrs old, diagnosed at age 38, after changing doctors. Had the same doc for 4yrs, kept getting sick, my old doc would treat me for a sinus…
Depression
This might sound stupid but how do you tell your doctor that you have depression and you need some anti-depressants? I looked all the symptom up on the internet and all of them matched what I feel like. I am the type of person that it is hard to tell others my feeling I keep them all in side. Some people just say to come…
Can We Talk Chemo Brain?
Yesterday, I had a Rituxan maintenance infusion and talked to my Doctor, AGAIN, about my brain. He asked me some questions about last night, yesterday, last week, etc. After I answered the questions, he pointed out that I could remember these things. That was when I realized he was "testing" my memory. I told him I wasn't…
Aaron, How are you doing?
Hey Aaron, I've been thinking of you since your last post saying you might be back in the chair. How are you feeling? When do you find out? Shar
Anxious and Afraid
So, I just got the email I’ve been dreading since July of last year… it's time for my sixth month PET scan. Words can't describe how anxious I am right now. I was diagnosed with stage 3A Hodgkin's Lymphoma this time last year. I've been in remission since July and these past sixth months of zero doctor appointments have…
Life Is Good
2 1/2 years ago I had good reason to believe I would not ring in 2014. Here it is, January 1, 2014. I am sitting in front of a roaring fire with my wife and two dogs, all of whom adore me, drinking 15 year old single malt scotch and eating the best fruit cake I have ever tasted. We all die but the real secret is to live in…
Exactly one year ago . . .
One year ago today, I finished my final round of ABVD and I'm so happy to say that so far everything is looking good! My friend gave me a bottle of champagne back at the beginning of the year and I didn't open it, but hubby and I are going to crack it tonight and celebrate. I am sooo grateful to have had a year free of…

Lymphoma (Hodgkin and Non-Hodgkin)

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