Lymphoma (Hodgkin and Non-Hodgkin)
Discussion List
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My Heart hurts
My mother in law passed away yesterday. They took her off the respirator Thursday evening and moved her to a hospice house Friday afternoon. I was with her when she passed, it was peaceful and she went within minutes of the Great Grandkids telling her they loved her...I think she was waiting for them. I wish I could take…
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Pain
Hi Everyone; I am having a pain underneath the left armpit and it is kind of radiating down the side. What does everyone think about this? I do go to the my Oncologist next Friday. Will ask abou it for sure. I have never went with my blood tests. Because my tests were always ok. It is weird. I have been in remission for…
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checking in
Good morning guy's, hope all is well. I'm trying to get into a routine that includes some exercise. The funny thing is that I really have to force myself to to get through it. I'm hoping that the exercise will get back some of my energy! I'm kinda of stressing about Lisa's appt. this Monday, I wish they would just do the…
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Whew!!
Hi guys, Yesterday the wind blew and it started snowing but it didn't last long enough to even cover the ground..."YES"! Got my walk done today, but froze my toosh off in the process. It's cold as all get out, but the sun is shining and the wind is minimal...hope all of you have a nice peaceful weekend and decent weather…
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It will be a "GIRL"
Hi guys, My daughter in law just called and said they looked at the baby today (29 weeks along) and for "SURE" we will be welcoming a baby girl...Elizabeth Jo Reid into our family around the 9th of May. Finally now I can start buying girlie stuff! Lizzy weighs about 4 pounds right now and is progressing perfect. Hurry up…
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R-Epoch treatment
Is anyone currently on R-Epoch treatment for large B Cell Lymphoma?
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Sorry that I haven been posting
Not sure how long its been since my last post, been dealing with some medical issues, right after the new year i had to go to the ER due to blood in my urine and severe pain in my stomach, doc said it wasnt a kidney stone, but had a hard time figuring out what was causing it, i asked him if retuxin could have done it and…
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Tired
Hi Everyone: Has anyone felt such terrible fatigue. I have finished my treatment in December 23, 09 I had 8 rounds of R-Chop and Zevalin. But every evening I can hardly stay awake starting around 5. I read Liz's post and I have pain in the muscle at night. It really wakes me up at night from sleep. I can not seem to lay on…
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Don't assume Drs will figure out for you (but how would I know?)
Hi, Folks, I just learned from my physical therapist that I have lost most of muscle tone in my body after just completing 12 chemo treatments so my PT is sending me an order for swimming and pilates training to build up my muscles and strength. Wow - I feel overwhlemed to start all over but I look forward to gain back…
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Both of us have Lymphoma
Hi, I was wondering if anyone else who has Lymphoma also has a spouse with Lymphoma. My husband was 1st diagnosed with T-Cell Lymphoma in 1997, underwent treatment and went into remission for 2 years. Re-diagnosed in 1999, treated and went back into remission for a total of NINE years. He was diagnosed again in October of…
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Indolent B cell Non hodgkins Lymphoma around kidney
Hi I just signed on & am asking if anyone else has a lymphoma site around the kidney. I am Stage 1EA & am otherwise very healthy at age 57. I am in a watch & wait mode and would love to treat this if there was a high likelihood for cure, which I hear there isn't. Radiation to my kidney would cause significant kidney…
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fingers crossed
Hey guy's just had to share, my wife had her routine mammogram last week, they seen something they did not like, they had her go back and this time they did a magnification scan, and they found calcification there. Now see needs to go for further evaluation. Does not seem real, I did some research and it could mean nothing…
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Sue, hope you're feeling okay
Hi Sue, Just checking on you. I have not seen you post in a day or so. I/we worry when we don't hear from our regulars. Sure do hope that you are feeling okay. Thinking of you.. Lisha
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Not Prednisone
Hello everyone, I posted some incorrect information on a past post awhile back. I stated I received Prednisone first, then Rituxan. That was incorrect. Sorry. I received Benadryl first, then Rituxan. I somehow had Prednisone on my mind. Especially reading all the negaive posts about this medication. Thinking of all of you.…
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I asked my onc to do a PET scan today
Well, I am about to the end of rope. I called my nurse today to ask my onc to do a pet scan today. I am tired of my armpit and boob hurting so bad. I'm having more and more nightsweats and I've had it. I'm doing the therapy for the lymphedema and don't seem to be getting anywhere with it. The pain just keeps on...never…
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Life is Precious....
Hi, Everyone, Just to let you know today I was just finishing PET scan and walked to the snack room then got the message that one of my dearest friends from another state passed away at age 67 - just suddenly collapsed for some reason. I am deeply saddened and at a loss. I am getting better and was going to contact her to…
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No problems...
Hi all... My Rituxan infusion went really well. The pre-meds made me very tired and I ended up sleeping through the whole process. Came home, had diner and then fell asleep again for another 3 hours. Headed to bed now and will let you know if anything new comes up tomorrow with the R. So far so good though..."totally…
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Donald51
I am wondering how Donald is doing , have not seen him on here in a long time. I would love to know how he is doing after the Zevalin treatment. I go to see the Oncologist March 4 , so will see what he has to say. Hope everyone had a wonderful Valentines Day. I just am not feeling the greatest. But will see. I had Zevalin…
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Happy Valentine's Day
Just wanted to say Happy Valentine's day to all that have genetic mutations cells like myself.
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Happy Valentines Day!
Hi all, I thought I better wish you all a "Happy Valentines Day" today since I'll be at the clinic all day tomorrow. Labs at 10:30, Onc appt at 10:45 and then my first Rituxan maint infusion at 11:00. They said it would be at least 4 hours for the infusion, so that will fill up most of my day. I'm sooooo happy I won't have…
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MRI Results (Mass behind left eye)
The MRI results showed a good response and we will follow up with another MRI in 6 months. My oncologist stated that unlike what most people expect, radiation does not completely wipe out all of the tissue associated with the mass. Some fibroid like tissue remained. She was most interested in the clinical presentation…
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GAS PASSER
Hey,I went to the mall today and I walked by this guy and I think he was an anesthesiologist. He had to be....he almost torn my head off. PHEW!!!! LOL
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forgetfulness
I had my last cancer treatment last November, and it seems like since that time I am forgetting things, saying things wrong even having a hard time spelling simple words. I went to my doctor today she says this is normal after all my body has been through. Last year I had a severe reaction from a tick bite, a rash they…
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I miss me
I miss myself and the life i had. I look in the mirror and dont even recognize myself. I find it easier sometimes to avoid mirrors as i hate my puffy fat face, the little peach fuzz i have on the top of my head and the red bumps all over my face. I feel as though i am stuck sitting on a dock watching my friends and family…
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Discussion on first treatment experience
Hi Everyone, My name is Amanda and I was diagnosed with Stage 4 Hodgkins Lymphoma five years ago. Thankfully, I am now doing very well! This experience has inspired me to improve upon the treatment process from a patients point of view. One of the hardest times for me was the beginning of the treatment process when…
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Back home - update
Hi All, Just a quick update, as promised. It has been a long day, got up at 5, surgery center at 7:30 and home at 2:30. Keith is resting/sleeping mostly. He wakes when the pain gets to bad, takes his meds and goes off to sleep again. Hopefully he will have a comfortable night. We have the ice therapy machine running, the…
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Large B cell follicular Lymphoma Stage IV
Hello my name is eddie. My Nanny who is much more of my mother, has Large B cell Follicular Lymphoma Stage IV cancer. Her left arm is twice the size of her left arm. She beat it and went into remission almost 2 yrs ago. The cancer has recently came back and ALOT worse now. She has gone through the strongest and most…
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ommaya reservoir
I had an ommaya reservoir placed in my head in 1992 as a means to treat my spinal cord and brain with chemotherapy. I had a lot of problems with it after it was placed and it was finally removed a year later after I experienced seizures and swelling on my brain. It has been almost 18 years since I had the reservoir removed…
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I am so MAD
Hi All, Just when I thought that things were looking a bit brighter, no such luck. Maybe I am just destined to have bad luck. My new Acura just got side swiped sitting parked in front of my house! Hit and Run! The car is only about 6 months old. This afternoon just sucks. First I get a letter saying that we have to pay the…
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Checking in...
Hi All, Just want to say that I am thinking of you all. I hope that you are well and warm and healing. Fran, I do hope that you are feeling less symptoms with your new adjustments in meds. It can be such a tough road. Hang in there. My hubby and I are getting everything ready for his surgery on Wed. Hopefully he will have…