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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for September 2010

Does anyone know
Hi Its driving me crazy but does anyone know of anyone who has survived slow growing indolent non hodgkin's lymphoma for twenty years or more.? Nobody seems to be able to give me an answer. I know its treatable but for how long? Any help would be appreciated. Richard
Small Lymphacytic lymphoma
My husband was diagnosed with SLL a month ago. He has swollen nodes in his right groin, nodules in his lungs,lost about 35 lbs. in the last year, high WBC count, and is fatigued. He is on his 3rd week of rutuxin. He had an allergic reaction to the first dose and now is more fatigued, has joint pain, and abdominal pain and…
Headed out!!!
Ok...Getting ready to shut the computer down and head for the river. Wish all of you a happy healthy weekend and always know I will be thinking of you all! I'm going to try and catch a big fall Chinook Salmon...wish me luck!!! Love to all...Sue
Cure for slow growing lymphoma?
Hi My doctor says I have slow growing non hodgkin's lymphoma. I thought it was manageable but not curable. He says there is a 25 percent chance that it can be cured. Does anyone know how this is possible. Richard
Vocal changes
Hi All, I have another question - of no particular importance, just curious. Anyone have any changes in your voice after you started chemo? I used to be a respectable baritone/tenor and then stopped singing for many years. Came back as a bass. Last night was my first time singing since chemo, now I'm suddenly a higher…
Question for the Guys
Hi Guys, I've been researching a question that I've had no luck with. Frankly, it's a plumbing issue. (Embarraaassssinnng) Have any of you had any bladder problems that have only started after you began chemo? I know old guys supposedly start having problems, but I've not had any significant ones until I started chemo. Now…
7th treatment in the bag!
Hey Guys, I received my 7Th treatment yesterday, low counts and all!! My Onc offered to give me a blood transfusion and I passed!!!! hahaha I have to get another Muga scan next week to rule out that there is anything wrong with my ticker. My Onc looks at me like I got lobsters crawling out of my ears, when I tell her about…
Chronic Pain after Treatment
Hi! I need some major encouragement these days! Prior to being diagnosed 01/2009, they sent me everywhere to figure out what was wrong! At one point they said it was Fibromyalgia. Then after being diagnosed my oncologist said that the HL was the problem. I was so thrilled to be diagnosed after over a year of being told…
Do I cry or do I laugh
Hi All, Well , here I am ready to explode. I don't know if I should cry or laugh or just go crazy.. Dr told me that on the most recent ct and pet/ct they found a mass on my ovary. can you believe this s**t. I mean , really when is enough enough. I though that I had more then I could handle but I guess that is not the case.…
Waldenstrom's Macroglobulinemia
I'm new to this site (been spending most my time on the uterine cancer site), but does anyone here have Waldenstrom's Macroglobulinemia? My high school buddy has recently been diagnosed with it at the age of 49 and I'm just looking for some info. Thanks
Chemo today hopefully!
I have my seventh treatment this morning , hopefully they will be able to give it to me, I have been feeling so bad the past few days, I know its my red counts, I have the shortness of breath, and that dull pain in my chest. I really don't want that Procrit because of my history of head and neck cancer. This last month is…
Feeling stronger
Hi All, I am feeling so much better. I am sure it's because of all your warm and positive wishes, what a huge difference a day makes. I even went to my physical therapy this afternoon, almost didn't but am glad that I did. I have a wonderful P.T. who really understands me and is able to work with me at my level of energy.…
Good Dr. visit.
Hi all, My blood counts were good and my cancer doctor is very pleased with how well I'm doing since round 1 last Tuesday. My count was 7.2. She said 4 is considered low. I asked about the shot and she said she wouldn't give that to me unless my counts got down to 2 or lower.Next labs will be on the 17th. The only tumor…
Hair
With everyone starting so close together I lose track of everyone and where they are...but many of you should be getting close to the dreaded day. Does your hair hurt yet? That's the best way I can describe the beginnings of it. Just very tender at the roots. Just know that it won't be a good day, but my heart is with all…
Hey Liz
Hi Liz, I want to send you positive wishes for tomorrow. I don't know if you'll read this before your chemo, so I'm sending it tonight. I'll be thinking of you and hoping that all goes smoothly and quickly. Also, Happy Happy Birthday To You. Not the best way to spend a birthday, but it gets you one step closer to remission…
Wiped out
Hi All, Well. I just woke up after sleeping all afternoon. Woke up late this am and then spend my day sleeping. Cannot be good. How do you all cope with the extreme fatigue. I don't feel sleepy, but as soon as I lie down, I'm gone. Still running low grade fevers in the evenings. I think that plays into it also. I hope all…
So far so good...
Hi guys, Wow...fell asleep about 2:00 a.m. last night and slept straight through until 10:30 this morning. The major portion of my body aches have gone away and I'm feeling pretty good. Moving slow, but not overly exhausted or tired. I'm 100% back to normal with my bathroom business(yes!).. appetite is fairly good, and…
cancer treatment centers of america
anyone have experience with these hospitals
CT's vs MRI's, etc.
A friend was diagnosed with NHL in Feb of '09. She has had tumors show up in brain, lungs, and near her heart. Chemo has apparently removed all known tumors at the present time. Her onco wants to discontinue treatment, but of course she is worried. My question is.... what tests should she be asking for on a continuing…
3 Cancer Books - 2 on NHL
Hi - read 3 wonderful books this week I highly recommend. Newest, hot off the press by Merril Hoge, FIND A WAY, about his experiences with CHOP to battle NHL. Mostly about his years playing NFL football and how to remain positive. Second book, CANCER ON $5 A DAY, CHEMO NOT INCLUDED, by a Comedy Central comedian, Robert…
I'm almost Done :)
Sooo, my most recent PET scan showed me to be cancer FREE!! HAHAHAHA God is So Good! All I have to do is some radiation to make sure because I still have a tumor the size and shape of a small banana... no I didnt swallow one whole,LOL! I just want to say thanks to all for the support. You all are in my thoughts and prayers…
Prednisone ?
In the morning I won't be taking the prednisone. I've been taking 60mg a day since Tuesday when I had my first round of chemo. Tonight I've been reading "everything" I can find on abrupt discontinuation of prednisone and I'm not liking what I see. It's 12:26 here on the West Coast so maybe by the time I get up in the…
Brand New Here
I am brand new to this group. I just found you by accident or on purpose, hard to know. Something compelled me to check side effects of Rituxin. I am in my third relapse of B-cell, non-hodgkins lymphoma, indulent kind...if one wants to believe that it is indulent. I think it has taken over my life pretty fast. Nonetheless,…
Who here has gone through the stem cell transplant?
So I went to my first rescan 3 months after remission and had already relapsed. I did a treatment of ICE, but it didn't work and I had some crazy reactions to it. Now I'm doing ESHAP and holy cow. I'm curious who has gone through the stem cell transplant. What's it like? I'm terrified it get's even worse than ESHAP =,( I…
Sue
Just wondering how you're feeling. Hopefully the bus hasn't hit too hard :)
Sad news today
Hi All, I thought I would reach out to you all. I just heard that my mother in law has a recurance of her melanoma. She has tried everything from surgery to chemo and rads. The Dr said there is a trial at Moffit hosp in Tampa that she could try. She is thinking about that. She is also thinking about doing nothing. Very sad…
more news
Hi All, Well, the Dr said I should do more watch and wait. But only for a few weeks. I feel like that is all I have beed doing already. I have had so many scans and blood work etc. and I am so tired and very frustrated with the whole thing. I don't know what to do at this point. I think what they are really trying to do is…
anyone fighting SMZL splenic marginal zone lymphoma
I was diagnosed with smzl a couple of months ago. Currently undergoing chemo therapy with cladribine and rituxin. The spleen is already starting to shrink and I am having little negative response to the chemo, essentially just fatigue and a little chemo brain. The big debate between my two oncologists was getting a…
Good News!
Got the news we were looking for!!!! The treatment is working, only one spot left, it's on the Pelvic bone, kinda sucks that it might not go away, because it's in the bone marrow, but hey..... what do I want!!! LOL Will be doing maintenance Chemo for two years, after this course of treatment......... But all and all GREAT…
Neuropathy anyone? My concerns
In looking back before I had this formal diagnosis, one of the earliest symptoms that I had related to HL (or something else?) were the muscle/nerve body aches all over in the evenings and they were unbearable but ibuprofen save me from having them. That was in the fall of 2009. Last winter and my dr gave me shot of…

Lymphoma (Hodgkin and Non-Hodgkin)

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