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8th Treatment
On way in about a hour to my last Chemo session...... where did the time go!!!!! They won't do another P.E.T. Scan for a few more weeks, that's when the real fun begins! LOL Talk to all soon God Bless Vinny
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Are you scared
Hi All, Hope your week is starting off well. I am having a really hard time with the fatigue. Today, going up the stairs was close to impossible. I was so short of breath. I had to stop many times. It hurt to breathe. I know that some of you have trouble with anemia and or major fatigue. Do you get scared by this. I keep…
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Well
The appointment went well today I suppose. I do have to have a colonoscopy :( which is what I was afraid of. I SO did NOT enjoy the first one I had a few years ago. He doesn't believe it's anything serious. He thinks it's just irritable bowel. I told him I've had irritable bowel for years and never had this type of pain,…
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Hair regrowth
I know I have seen it on here several times and the answers vary from person to person, but how long did it take for you to notice your hair starting to regrow? I am going for my hopefully last treatment next week (#6) and so far I have not noticed anything regrowing at all. As a matter of fact it is still thinning. I saw…
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Today
Today is going to be a good day for all of us. Treatments today are going to fly by. I go see my surgeon today and hopefully get good news, we'll see. Hang in there guys, we're gonna make it (throwing a hat in the air) LOL Take care everyone Beth
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Tuesday morning warriors
Hi Sue and anyone else going for treatment today, I just want you to know that I am sending positive energy your way. You will be in my thoughts and prayers. before you know it, you will be on your way back home. Stay strong. Peace and healing to you.. Lisha
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LYMPHOMA WORKSHOP -OCT. 16, 2010 - BLOOMINGTON, MN
Hi, For those of you living in or near the Twin Cities, there is a Lyphoma Workshop here on October 16. My husband and I attended last year and it was fantastic. They have breakout sessions for the different kinds of lymphoma. Last year there were two doctors from Mayo, one from the U of M, one from U of W. Those are the…
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Longevity
Hi How long can you live with slow growin non hodgkin's lymphoma? Must you die from it? I try not to take into account the statistics but does anyone know? Richard
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Vinny
How are things going for you today? John
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Elevated IGM levels
Anyone else familiar with this? I have indolent b cell nodal marginal zone stage 4. I am getting straight Rituxan therapy and have been told that my IgM levels have increeased and that this can contribute to fatigue. Just wondering if anyone else knows anything about this. Sometimes I feel like I'm learning a new language!…
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Hair growth ????
Hi I finished my sixth chemo last week and my hair started to grow back. Peach fuzz. I am suppose to get eight chemos. Has anyone experienced this? Does that mean the chemo is not working? Richsterr
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Overwhelming fears
I know I said I have to go see my surgeon again. At first I was laughing at least it's not cancer related, but now the thought creeps in...what if it is? I've let this problem go for 3 years since it's just off an on. Alot can happen in 3 years. What if there is a blockage? The &*(*^*& fear is taking over today and…
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Anyone in the NYC area Conference Sept 20
Hi, Just wondering if anyone is living in the NYC area. If so, there is a conference on Sept 20 at the Weill Greenberg Center at 6:30 PM. If you will be attending, please email me. Perhaps we can meet up. Dr. John P. Leonard will be the moderator. Also, I was thinking of switching to one of the doctors that will be…
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CARDBOARD FINGERNAILS
Anybody have their fingernails turn to cardboard while on chemo? I am waiting for my skin to turn to wood so I can change my name to Howdy Doody!!!!!!
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Yet another trip to my surgeon
Well, looks like I am going to be heading to my surgeon again. He's going to determine what tests to do, colonoscopy or scan. Damn.
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Good news and not so good news
Hi, Friends Got word that my WBC became normal - so that is good news and that means I don't need the shots but the onc said I need to get the shots for 5 days before each chemo date. Huh! I am hoping that I get a break the week after chemo so that I can work 1 to 2 days (meaning right before chemo day). So how can I be…
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lost for word's...and for me that's bad!!!!! lol
Hi everyone, I'm feeling quite numb right now. I had my weekly visit after Chemo, my counts are so lowwwwwww, no surprise. My Onc and I starting talking, I asked her that just because next Wednesday is my last treatment, what happens if the cancer is still there? She tell's me that she is sending me to a specialist at the…
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Neulasta (pegfilgrastim)
I completed 3 cycles of RCHOP - at the finish of the first tx I was given an injection of 6 mg of Neulasta as a preventative to nertropenia. My side effects were horrible - lots of bone pain, joint and body aches, head ache, jaw pain, gum pain, teeth pain ear aches etc. The next two cycles we cut the dose to 3 mg to see if…
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I need to vent
Hi All, Please forgive me, but I need to vent a little. Today has been a very hard day. After getting off the phone with my mom in law, my husband comes to get me. He has just come home from driving our grandson to the skate park. He tells me to come look at the car, our BRAND NEW car. As he was driving out, a kid on a…
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How's it going John?
Hi John, Just checking in to see how round 5 went for you. I can hardly believe you are nearing the end of your treatments. It just shows how fast time "really" goes by, which makes me stop and remember that my time will move equally as fast. The waiting between rounds is hard, as all I want is to get this all behind…
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Good news!
Sorry I've been MIA. I was on vacation and then jumped right back into school. My PET scan came back clean as a whistle. Officially one year cancer free!
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Any survivors of Non hodgkin's lymphoma slow growing stage 4?
Anybody here survived non hodgkin's lymphoma stage 4 and for how long can you live with it? Please help Richard
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zevalin .... in our future
My husband has completed his chemo (Rchop) and will be starting Zevalin and Rituxan in a few weeks. We meet with the radiologist tomorrow to discuss the zevalin regiment. WE know very little about this drug. Does anyone have advice or suggestion of a list of questions we should ask the DR. My husband was diagnosed in Feb,…
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In the Announcements...on my calendar for Update on Lymphoma
Event (e.g.conference, teleconference, fundraiser, etc.) Free CancerCare Telephone Workshop: Update on Lymphoma Treatment from the 2010 American Society of Hematology Annual Meeting December 15, 2010 01:30 pm All CancerCare workshops take place over the telephone or you can listen via live streaming online.…
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Well?
Sue, did you catch that salmon? How you feeling? Vinnie, How's the last one going for you? You doing ok? John, Are you ok or just wiped out? Doesn't seem like you've been up much lately. Liz, You hanging in there? Forme, Still thinking about you! Cookingirl, Are you finished yet? You doing ok? Catwink, You ok lady? Haven't…
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base of tongue preliminary biopsy results showed lymphoma
DOES ANYONE HAVE ANY EXPERIENCE WITH THIS LOCATION OF LYMPHOMA? wHAT IS THE TREATMENT? WHAT IS THE PROGNOSIS? I KNOW WILL FIND OUT WITH THE FINAL RESULTSBUT I'M JUST TO CURIOUS TO WAIT. WE WERE EXPECTING SQUAMOUS CELL CA. THANKS IN ADVANCE TBOB
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Uninsured
My boyfriend does not have health insurance. We live in NY and I was wondering if anyone has ANY resources, links etc to can use to help him with the bills. Its overwhelming.
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Roller coaster ride
Hi All, Do you ever feel like your on a roller coaster ride that won't stop. Just when you think the ride is slowing down , it starts to pick up speed again , next thing you know your are at the top looking down, then wham down you go again. That's been me the last couple of weeks. How do you keep it together. I know some…
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C T scan
Had my CT today. 6 treatments down, and now I see if I need 2 more. I should know on monday or tuesday. Wish me luck!
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Stand up for Cancer
I LOVE THIS PROGRAM. MAKES MY HEART HAPPY! WE ARE STANDING UP EVERYONE :)