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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for March 2010

Lots of symptoms, no answers. What were your symptoms prior to diagnosis?
Hi, I'm new here and I feel sort of shy posting this, as I have not actually been diagnosed with lymphoma, though my oncologist has suspected it because of my various symptoms. I have had severe night drenches, itchy skin, occasional red blotches on my abdomen, severe fatigue and weakness and palpable lymph nodes in my…
Disability and Cancer
I was curious, I used to beable to work 50 hours a week, now that I've been in Chemo and have been sick I havent been able to work at all. Is it possible for me to receive disability because I have cancer or because I cant work. I'm not for sure how it works, or even where to go to find out info. Any info would be greatly…
Hair Loss & Scalp Pain
Hi all - I'm getting ready for my second round of chemo, and my hair is beginning to fall out. The skin on top of my scalp feels really sore - sort of like it is bruised. Did anyone else experience this while their hair was in the process of falling out? Thanks!
Muscle pain
I seem to have it in my arms and leg muscles and my shoulders. It makes me wonder what that means. I will give it a few more days and go get that checked out. After going through all this stuff since 04, and all the chemicals you get really panicky. Hope you are all doing well. Hilde
So far so good!
Hello to all and hope this finds everyone staying positive, I had my bone marrow biopsy last weds. and that went fairly well.I was glad because the one before was not so good. I got the call yesterday from my MD who told me the bone marrow was completely clear. I was stunned as I had 50% bone marrow involvement when I was…
R-EPOCH
Hi, I'm new to the board and am wondering if anyone else is or has been on R-EPOCH. I have primary mediastinal b-call lymphoma, stage 4, and have had one round of chemo so far. I'm wondering what other people's experiences and side effects have been with this particular chemo regimen.
HAs anyone ever??!
So yesterday I went in to do my second treatment with ABVD, they drew my lab work and everything came back great except my white blood count, which came back as 2.0. So the Dr. decided not to do the chemo and was just going to give me a shot of neulasta. So I wait in my room for an hour before he comes back with another…
Share Amazing Stories!!
Beautiful day to everyone! I was thinking it would be wonderful to share stories of hope and miracles! Unfortunately we have all come together on this site, but as I quickly learned, everyone here is so special and knows firsthand how precious life is. We fight everyday to live to soak in one more day of sunrise. Our lives…
Blood Counts post Stem Cell
I would love any input from post stem cell transplant patients on how long it took for their counts to stabilize. My sister's Netrophils Absolute is still up and down at almost Day 90. The Doctors don't act overly concerned but it is really stressing her out. Anybody else have this experience?
CT Scan or Pet/CT and how often?
Hi everyone, I'm just wondering which scan your oncologist recommends for you. I get CT scans because I've had 5 false positives on prior PET/CTs. Also an early diagnosis of DCIS breast cancer on another PET/CT. However, for staging my NHL recurrance and following progress during treatment I was followed with Pet/CT. Now…
Pet/Cat scan results
Hi Everyone: I went to see my Oncologist on St Patrick's day and my pet/cat scan was clear. So I was thrilled about that. So I have to do a regular cat scan before June 9th. Then he will see me again on June 9th. So far so good. I still wonder about things. Why is it you can not get it out of your mind. You have a pain and…
Treanda - Recently Treanda was added to my F. lymphoma treatment, any info. or advice?
I am having backaches and tiredness while taking Treanda. More than when I was on Rituxin. Also, my appetite and taste is affected. Anyone in the same boat? Thanks for answering. Gus
Fatigue after Chemo
Hi and Happy Saint Patrick's Day, I was just wondering how long people have felt fatigued after finishing chemo. I am 4 weeks out from my 6th round of RCHOP and there are days when I'm just too tired to get dressed and do much of anything. Other days I feel good but run out of energy after a few hours. When I mentioned it…
Clean CT Scan
Hi, I just returned from my Onc's office to get the results of my 4 weeks after completing RCHOP CT scan. Yipee.........! Appears to be all clear, at least for lymphoma. Lots of incidental findings but looks good. So why am I not thrilled. Don't get me wrong, I'm very happy the lymphoma is in remission. I just feel like…
Removing the port
Today I had my port removed in the Dr.'s office. I was worried before I went in but it was a very easy procedure. I will continue to have Rituxin in my good veins but no more port ever I hope!!!!!!! I had it in a year while battling NHL follicular lymphoma. Stage 3A. I feel very happy today and glad it is gone. SO if you…
Chest pressure with ABVD?
I do have another question with the ABVD treatments, I recently, all day today have been experiencing chest pressure near my heart, I have just recently been switched to the ABVD treatments this past wednesday was my first. My diagnoses is stage II HD With a mediastinal mass about 20 cm by 15 cm and one near my neck, so…
Symptoms?
Hi everyone - I'm freaking out a little and needed some of your advice. I just lost my husband March 1 to colon cancer. I have recently been diagnosed with a food allergy - supposedly, I'm allergic to nickel in foods. My concern is that I have had swollen lymph nodes on the back of my neck, my armpits and my groin area. I…
Rituxan only
I have searched the posts here and only find Rituxan taken with the other chemo drugs or as a maintenance after chemo, has anyone done just the Rituxan as a first line of treatment? I have been doing wait & watch and have not had treatments of any kind. I am stage 3 grade 1 Follicular NHL in all my lymph nodes and a spot…
ABVD didn't work, anyone have some hope?
Well my husband finished his 6 cycles of ABVD for stage II Hodgkin's (20cm x 20cm mediastinal mass) a month ago. He had his follow up PET yesterday and the news wasn't good. His score actually increased from the initial 4.5 to 7. Well the doctor said our next step was two rounds of ICE and he would harvest stem cells…
8 months of ABVD
Hello Everyone, I was diagnosed in July 2009 with Hodgkin’s 2A with an 11 cm mediastinal mass and will be finishing up ABVD chemo on the 19th of March. I had a PET scan in January and was told that I was cancer free but would need to continue with the treatment. My doctor suggested I complete 6-8 cycles of chemo with no…
what are the risks with pregnancy post hodgkins disease
Hi I have never posted before, I has hodgkins disease at age 11 in 1981, age 18 in 1989 , at age 28 in 1998 , I had and radiation to my groin area in 1981, and ABVD in 1989 and 1998 followed by a peripheral stem cell transplant, then in 2003 i had stage 1A ovarian cancer treated successfully by surgery , totally not…
Pet/Cat Scan
Hi Everyone; I did my first Pet/Cat Scan this morning. So I am nervous and hoping for the best. After doing the Zevalin. My blood counts are still too low. I did have a Neulasta shot 4 weeks ago and my wbc went up to 6.1 and then the following week it dropped down to 3.9 and now it dropped to 3.4 I dont know why it dropped…
ABVD Treatments
A question to those who have had the ABVD treatments for lymphoma, what were the biggest side effects you had to deal with and how long after you had the treatment did they eventually subside? I started the ABVD treatment yesterday for the first time, before that they had me do a round of ICE and through that one I had to…
stopping treatment short of remission?
my doctor just gave me my 7th chemo and said we will stop for now. my lymph node has gone from 3" to 1". she will give me a Pet scan in 2 months to see if it is stable. WHAT? all my blood work has been very good etc. why stop now? has any one else gone thur this same thing? i have follicular NHL. isn't the idea to reduce…
Pomegranate juice or pills
I will be starting the rituxan for my lymphoma after 23 years of remission. As we all know, the immune system plays a big part in controlling this disease. I have heard that the pomegranate juice or pills has a lost of antioxidant benefit. Does anyone else drink this stuff and do you have an opinion about it or something…
Zevalin
Hi to everyone, Hope this finds all of you well. My PET scan yesterday showed a complete remission. What a blessed relief. I am so thankful. However I now find myself needing to make a big decision as to ongoing treatment that I was not prepared for. I thought I would be having Rituxan every three months and was prepared…
H-Pylori caused bowel to perforate, ulcers, then NHL-anyone else
It all started with a most terrible pain, which I have no memory of. (middle of sept) I was rushed to the hospital, ER. I had a ct scan, and was immediately operated on. I was in ICU for almost one week, then 2 more weeks of hospitalization. Total 3 weeks in hospital. I thought I would never leave the hospital. I found out…
Me again
So it seems as if I feell sooo crappy all the time. They had me on so many meds in the begining maybe I didnt realize how bad I did feel. Now that I'm getting closer to my next round of chemo I'm seriously doubting myself, I know I need to keep positive I just hope its not this hard forever. I sleep roughly 12 hours a day…
ANYBODY KNOW SOMEONE WHO HAS HAD AN AUTOLOGOUS STEM CELL TRANSPLANT?!
I am 28 and a mother of three small children. I am so scared to go through this transplant and don't know what to expect and haven't read any good stories. Thank you, Natalie
Working while getting treatments...
Hello, my name is Renee. I am 28 years old and was diagnosed with Large Cell NHL on December 15th, 2009. I just finished up my 3 cyles of R-CHOP on February 26th and will be starting radiation treatments in 1-1/2 weeks. My question is this...how did you handle working while going through treatments. The fatigue has been my…

Lymphoma (Hodgkin and Non-Hodgkin)

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